Almost As Good As Medicine

When I’m having a bad day, and my energy levels just aren’t there, often I’ll feel bad for Maven. 😿 She’ll wanna play or follow me around or whatever… but since I’m not really doing anything – sometimes she’ll just sit and stare at me, sometimes she’ll flop down next to me, and sometimes she’ll just piss off to the basement to do who-knows-what for a couple of hours. 😏 But it’s weird that a cat, with just a certain look, can make you feel like you’re letting her down in some way.

But this weekend I’ve kept busy (off and on) and was doing enough “stuff” that she was actually getting a little bit twitchy. 😾 She doesn’t like change either, especially when it probably doesn’t have any reason to her, so whenever I would sit down and take a break she would join me. Almost as if she was relieved that I “stopped doing stuff” so she didn’t have to wonder what the heck I was up to and when I was going to stop. 🀨

You probably have to be a “cat person” to really get this… but this cat, when I first got her, she didn’t like to have her belly touched – let alone petted, rubbed, or scratched. 😯 But over the years, with just me and her here, it’s molded her into a critter who shares a lot of personality traits with me. Plus she absolutely trusts me now, and has turned into a kitty that (most of the time… heh) loves belly rubs. πŸ˜„

So, shortly after I finished folding, hanging, and putting away my laundry… using up the last bit of oomph that I had for that moment, I sat down on the floor for a short break and ended up with this in my lap… 😏😊

Sorry about the large blurred edges, but the only way I could record this properly was in portrait mode… and if I uploaded it “as-is” the video would be taller than the height of the actual page. But anyway, knowing how she used to be, seeing how she is now… this is one of the very few things that can take my mind off of all the bad things swirling around inside my brain, to where all I’m thinking about is how lucky she is to have me, and how lucky I am to have her… and that sometimes I don’t make too bad of a critter daddy, I guess. 😊

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Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…

Woozy & Wobbly

Got my few hours of sleep, spent another hour just trying to get up and get moving so I could head in town… but then I stepped outside, and I don’t know if it was the heat or lack of sleep or what, but I instantly felt woozy and a little dizzy. 🀒 So despite my aversion to making phone calls, I gritted my teefs and phoned up the doctor’s office rather than driving all the way in there, not feeling the greatest.

Left a message a while ago, letting them know that I needed to get the next scan scheduled, to also reschedule my followup appointment with them after that, and also that I’d need to know when / and for how long I’ll need to stop taking my thyroid meds – and if I’ll need to make the same temporary but drastic changes to my diet like I did last time. πŸ˜•

A few hours later… still no call back. πŸ™‚πŸ€·πŸ»β€β™‚οΈ And that actually makes me feelΒ better. I guess it makes me feel like my condition isn’t as “Shit, we need to hurry up… call him back right away.” as I sometimes think it is. 😏 So yeah, just waiting for word either today or Monday, and of course once I get all the details I’ll be sharing most of them here. Hoping that I can make something good of the weekend in the mean time.

No More Stalling

Coming up on 4:00 am, so of course I’m still wide awake. πŸ™„ I wussed out the past couple of days re: getting in touch with my thyroid doctor, but since I know I have to do it tomorrow… (well, later today actually) yeah, this is just how my brain likes to do things. “Something important you have to do tomorrow? DON’T FALL ASLEEP! KEEP THINKING ABOUT IT!πŸ€¦πŸ»β€β™‚οΈ Thank you very much, brain.

Believe it or not, I’ve finally gotten myself to a point where I’m not actually stressing over it that much… it’s just the “ugh” of the slog that I’m gonna have to go through. πŸ˜’ So taking a couple extra days to let myself get over the surprise of them bumping it up a bit, I think that was the right choice for me to make. πŸ˜•πŸ€·πŸ»β€β™‚οΈ

And what difference is that couple of days really gonna make, ya know? Sure, I’m still nervous about everything that’s coming up… 😬 who wouldn’t be… but I’m gonna try to keep the faith and tell myself that everyone involved with my treatment is gonna continue to do the best that they can for me. πŸ‘¨πŸ»β€βš•οΈπŸ™πŸ»πŸ™‚

Let’s hope that I still feel this almost-optimistic later today, when I wake from like 4hrs of sleep. πŸ™„

(Shhh… don’t tell anyone, but if I can manage to sleep in, you can bet I’m gonna sleep
in. I’m pretty sure that the doctor’s office will be open all day, at least as far as I know…)

Trying To Not Read In To This

I got a message two days ago from the doctor’s office that is handling my thyroid cancer treatment. My next session with the radioactive iodine treatment, which should be my final session (if everything goes well), was scheduled to start near the end of July… but they now actually want to schedule that as soon as possible. 😐 They asked me to call in yesterday so we could start making a plan, but to be honest the message had me a little too shook… πŸ˜₯ and since I was actually having a decent day yesterday, I didn’t wanna risk nuking that by bringing all of my thoughts back to the “unknown” about what’s remaining inside me, if anything.

That’s also why I took advantage of the day yesterday to get caught up with some things around the house, because I know that this next step is gonna be a bit of a nightmare. 😣 I have to completely stop taking my thyroid meds for a couple of weeks, and they were clear about how it could have drastic physical and mental side effects. (Also part of the reason that I stopped the Paxil, so I didn’t have one crap thing on top of another.)Β Then once the thyroid medication is completely out of my system, that’s when I’ll go to the hospital for the radioactive pill and another full body scan about a week later. πŸ˜•

Confession… I didn’t call them back today either. 😞 Instead, what I’m going to do is just go into the office tomorrow and talk to them in person. To be sure that I understand the details of the plan, to be sure that everything is scheduled properly… and also to see if I can catch some kind of vibe by the way that they speak with me about it. 🧐 Like I said, I’m trying to not assume that something has gotten worse just because they want to start things sooner. 😳 It could be as simple as being easier on their schedule, and just better for me (or anyone) to do all of this “second phase” stuff sooner rather than later anyway.

So yeah, that’s the next thing on the radar… movin’ in fast. 😟 And lemme tell ya’ something. πŸ˜’ Uncertainty, when it comes to something like this… it’s a special kind of slow, drawn-out torture. I’m ready though. I was doing good at keeping it out of my thoughts up until now – but whether I got that call a couple days ago, or whether we stuck to the original end-of-July starting point… either way the anxiety was gonna come. So I agree… let’s get this shit started. 🀨

Unrelated: I just updated my Windows 10 and all of my emojis now have thick black outlines. πŸ€”πŸ€·πŸ»β€β™‚οΈ

The “Subjectively Positive” One

This is gonna be another really long one… it’s more fun for me this way. 😏 Settle in and enjoy.

Now, this is something that’s almost impossible to explain to someone who doesn’t or hasn’t experienced severe social anxiety. πŸ€” But last Saturday, after spending about a week and a half without even leaving my house, while trying (and failing) to adjust to a new medication, and still tending to my gimpy knee… I had to go to a concert in Columbus. 😐 At the Schottenstein Center, which holds about 18,000 people. 18,000 loud, screaming, drinking, super enthusiastic, having an awesome time, concert-goin’ people. 😏 (God bless ’em… heh) Oh, and we had “Meet and Greet” VIP passes for Debbie Gibson and Tiffany after the show.

The story begins last year, when my friend Jim got us tickets to see Phil Collins at Nationwide Arena. I had seen Genesis before, but never Phil on his own… so it was a bucket list thing. We had a great time, so in the fall of last year when “The Mixtape Tour” tickets came available – I went ahead and got our tickets, sort of as a birthday gift / way to pay back his generosity re: the Phil Collins tickets.

Flash forward to last Saturday… and it took every ounce of oomph that I had to make myself get up, get ready, and go to the venue to meet Jim. πŸ₯Ί My anxiety was so bad that up until the minute I was finally able to make myself get in the car, I wasn’t even sure I was gonna be able to do it. 😬 But I had already cancelled on Jim on a few other things, and I would feel like a giant shit if I bailed on him again, and he ended up just going by himself. So I honestly went more because of Jim, rather than a desire to actually go. Well, no… that isn’t entirely accurate… because I absolutely wanted to go… heh… like I said, it’s hard to explain how anxiety can overrule anything that you think you might want or be able to do. πŸ™„πŸ€¦πŸ»β€β™‚οΈ

Heh… I’m realizing that this isn’t gonna sound like a positive experience, so let me go ahead and interject here to say that I did have a good time while I was there, and was glad that I went. πŸ™‚ It was the getting there and getting home that were the biggest hurdles for my uncooperative brain. And of course there had to be construction all along the freeway on the way there, which is always fun – anxiety or not. And then when I got there, because I left so late, I ended up having to walk… *consulting google maps* … I had to walk “Total distance:Β 2,885.24 ftΒ (879.42 m)from the parking lot to the venue. 😧 But I had my cane, I took my time, and didn’t die too much. 😏 In fact, not only did it help me to unwind from the traffic, but it continued my DIY physical therapy that I’m trying – to avoid the costly, painful, inconvenient, time consuming, real thing.

The thing that probably saved the night for me, once we found our way to our seats, was that we were at the absolute top of the seats. Literally everyone in front of us, with the backs of our chairs being against the wall. 😊 Plus the seat next to me was empty. 😁 I can’t stress enough how much of a difference it makes to be “outside” of the humans rather than surrounded by a sea of them in every direction. So for the duration of the actual show, I was golden. πŸ™‚ Me and Jim, catching up on shit, no assholes around to be a nuisance, a decent view of everything due to the big LED screens, despite being in the very definition of “the nosebleed seats” for the concert… and it was awesome. I was glad that I “made” myself go.

Then the show ended. 😳 At which point we had to navigate through the herd of exiting humans, trying to figure out where we had to be to do the Meet and Greet part of our experience. 😬 Buttloads of people, slight confusion of where to go, the prospect of meeting a couple of celebrity singers… so, again, I found myself *this close* to just walking out one of the nearby doors and just waiting for Jim to go and do that part on his own. But he said the right things I needed to hear, I took a few woosah moments, and once a lot of the people were gone we found our way to what was essentially the basement under all of the seating. 😯

Sorry, I’ll try to tighten this up a bit. 😏 There were different M&G packages, some with just Debbie, some with just Tiffany, some with both – so thankfully, even though they had us all crammed into a relatively small waiting space, we got to do our thing pretty quickly since we had the dual package. Got a hug from Tiffany, they both autographed my lanyard, and while there was a little confusion with the official person taking the photos – it gave me some time to actually talk with Debbie while we had a short wait.

She asked if I had a good time and I told her “Oh, absolutely…” with a smile, but since other people were distracted I was able to lean over to her and kinda quietly say “… but man is my social anxiety kickin’ right about now.” Heh… probably a little weird, but it would have been awkward just standing there silently as we waited for the photographer to get ready. πŸ€·πŸ»β€β™‚οΈ But she just smiled back at me and said she actually knows what I mean, and that before each show she usually stays in her dressing room with her piano and just plays some random jazz or classical to help her get rid of herΒ pre-show anxiety. πŸ™‚ And that was a comforting thing to hear… since rather than her thinking I was a weirdo, she could actually relate. Then we got the pic, I got a hug from her as well, and that was that.

Well, that was it for me I mean. 😏 Jim still had to get his picture with them… but keep in mind, Jim wasn’t Jim for the night… he went as Squirtman. πŸ˜³πŸ˜„ The orange body suit, the cape, the Squirtman puppet, flashing LED glasses, the cowboy hat… heh… the whole deal. That was actually another good thing throughout the night – because when you’re next to Squirtman, you’re essentially invisible – which was perfect. πŸ‘πŸ»

He got there an hour before the doors even opened, so he was parked right in the first lot and was able to give me a ride out to my car – since all of the walking and stairs and such did finally take its toll on me. πŸ˜•Β I did have the typical “I need to be home”Β voice repeating in my head as I was driving, but the goody feeling from the concert buzz made the long drive home much more bearable than some drives I’ve made in the past. πŸ™‚

So yeah… yay me. 😊 I did a thing. 😏

If you remember any of these bands or singers and wanna check out some clips, here ya go:

Alrighty, that’s about it. Congrats if you made it through all of my (hopefully) descriptive weirdo rambling. πŸ˜‰

Unfortunately… Nope

This will be a lengthy entry.Β Β πŸ€”Β  Although, I suppose that’s typical for me and the blog… 😏

A few days after going to my full dose of Paxil, one in the morning and one at night, the side effects that I hoped would go away were actually getting much worse. 😳 So over the past couple of days I’ve weaned myself back off… and today was the first day I started feeling close to my normal “normal.” 😟

The biggest problem was the tremors. Any time I would yawn, which was a lot,Β probably due to the new med… every time I would yawn, my left shoulder and arm would start shaking uncontrollably – sometimes lasting up to 30 seconds before it would calm. 😧 And then it started doing it with my other shoulder as well, to where eventually when I yawned (and even when I wasn’t) I’d honestly compare the tremors to what you would see in a person with Parkinson’sΒ disease. πŸ˜₯ I suppose it makes sense, as the disease is related to dopamine problems and that’s often something that psych meds mess around with as well.

The daily waking up in a near panic attack… that didn’t stop either. And when on the full dose, taking the morning dose was no longer relieving the anxiety when I took it. So, it was waking up with severe anxiety, taking the pill (along with my others) that was supposed to help with anxiety, only to have it then stay around all day. 😣 Awesome. πŸ™„ That was reason enough for me to reconsider if I wanted to continue taking it… and I really did want to give it a chance, to wait out the side effects to see if they’d pass. But you have to remember, after my work injury, the main thing that my doctor and I had to work on for a long time was getting my left shoulder with the nerve damage to stop randomly shaking.

So not only was the new med increasing my anxiety, but it had brought back the uncontrollable shaking in my left shoulder, which always leads to much more pain by the end of each day. πŸ˜’πŸ€¦πŸ»β€β™‚οΈ So I hope most people would understand why I wasn’t willing to “just keep hoping it’ll pass” while possibly risking it getting worse or even becoming permanent again.

It’s disappointing, but again I’m experiencing the “Ahhh” of just losing all of those awful and scary side effects, and returning to my “normal” self… which now feels like a relief – hopefullyΒ returning just to “how I was” a couple of weeks ago. πŸ™‚Β (The tremors weren’t gone today, but they’ve lessened quite a bit.) And with my thyroid doctor calling today and wanting to accelerate the next step with that issue, I just don’t think I’d be able to do it while essentially fighting against the side effects of the Paxil. The next step with my thyroid stuff is gonna be difficult enough as it is. πŸ€•

More on that when I know more. (Although I’m gonna try to squeeze in a subjectively more positive entry between this one and that one.) But in the mean time, I’m still wondering if sometimes it’s in the doctor’s plans, or at least something that they know can happen – where a medication that is supposed to help makes you feel so awful that when you stop taking it, you actually feel happier and more relieved just to be back to how you were. πŸ‘¨πŸ»β€βš•οΈπŸ€¨ Because boy, that’s been the trend with me, the few times I’ve been prescribed something by a shrink. 😏

  • Just to cover my ass, I’m not saying with any type of certainty that the Paxil definitely caused all of the symptoms that I was experiencing while taking it. It’s possible that all of the things that I considered “side effects” were completely unrelated… this is just my account of how things went while I was taking it.