Ray of Sunshine

No updates this past week because there hasn’t really been that much worth talking about. I did go to my first appointment with the WC doctor at the new facilities. About a month ago they moved to the brand new FMC-connected health care center / emergency room building, from the older medical center directly next door. It’s quite the upgrade. Big open waiting room areas with tall ceilings and tall windows, many more rooms to see patients, and even a few new doctors on the payroll.

But, especially right now, anything revolving around my workers comp case kinda has me anxious – so I did the typical thing the night before, where I couldn’t fall asleep at a reasonable hour and then I also woke up way too early. πŸ˜’ The appointment went fine… they always do… but it also involved going over some things about the rebuttal report that he’s going to be writing for the upcoming IC hearing – and to say that I’m tired of thinking about, talking about, and working on that topic… that would be an understatement.

After not getting enough sleep that night, it managed to shift my schedule to where I’m falling asleep around 8p each night, and then waking up around 3a… while also getting interrupted throughout the night by shitty, stress-themed dreams. (Of which I can’t even usually remember the details.)Β πŸ˜• I’m hoping I can shake things up this weekend and get out of thatΒ rut. Several people I know haven’t been feeling good, a couple friends got some crappy news that they didn’t need, my knee and shoulder are still meh… it’s just been one of those weeks for a bunch of us. 😟 Crossing fingers that next week will bring some positive change.

So, yeah… πŸ€·πŸ»β€β™‚οΈ that’s about it. I mean, there’s been positive things this past week too… got a new mailbox (that I’ve yet to try and install), the little ring of grass around the light post is actually growing, I got the trash cleaned out of my car, completed some random light chores around the house, etc. But yeah, like I said, not stuff that’s really worth blogging about. (I know… when have I ever let that stop me… heh) 😏

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It’s Nice When They Go Well

I was anxious as I drove to my appointment today. 😐 Even after I had checked in and was walking down the hallway to his office, I still wasn’t sure if I was going to decide to stop seeing him or not. But once I got to sit down and talk with him, it made my decision to continue going there an easy one. πŸ‘¨πŸ»β€βš•οΈπŸ™‚ I explained how the IME doctor’s report made it seem like my treatment there should be something that demands great concern, with all of the “scary” things that were implied, and (even though we obviously continued our conversation) his reaction told me all that I needed to know. 😏 In a good way.

One of the first things he said, was that it was absolutelyΒ fine if I decided to no longer continue my appointments with him. Not only because my primary care doctor could prescribe the same relatively run-of-the-mill meds that he currently does, but also because he wouldn’t want it to cause me any unnecessary problems with my WC case, as ridiculous as the questioning of my mental health may be. 😎 See, that’s how a doctor should be… giving me his blessing to stop going there, even though he’d be losing a paying client, because he wants to do what is best for me.

That in itself made me decide to schedule at least one more appointment with him, about two months from now… not only so he could follow up on me, but so I could also follow up with him and let him know how the (yet to be scheduled) hearing went. He also said that he’d be happy to write a rebuttal report as well, setting the record straight when it comes to my treatment, as well as correcting other facts that the report got undeniably wrong. πŸ‘¨πŸ»β€βš•οΈπŸ€“ Because, as you’d expect, having another doctor doing things that serve to further the stigma of mental health care… 😟 I don’t think he appreciated it. 😏

So I felt much better leavingΒ that appointment than I did when I arrived, and to let my thoughts stay on that positive path – I took most of the rest of the day off when it came to checking messages, watching the news, or doing anything else that could possibly subject me to negative stuff. πŸ™ˆπŸ™‰πŸ™ŠπŸ€·πŸ»β€β™‚οΈ And now that I have started catching up on the news tonight… 😯 Goodness. I think I made the right choice in avoiding it for the better part of the day. Our government is a mess, man…

Vicarious Eavesdropping

That little nap yesterday afternoon…Β πŸ˜’Β screwed up my entire night. Didn’t fall asleep until about 3am, and I was up and down almost every hour on the hour from then on out. I don’t know if I was dreaming, since I was watching a huge storm front going through Illinois and Indiana as I was getting sleepy, but it was either that or I just barely slept through what sounded like a huge downpour. πŸŒ§οΈβ›ˆοΈπŸ‘πŸŒ§οΈπŸŒ§οΈΒ As if someone was spraying a hose against the side of my house. (Probably just my imagination.)Β Meh… now I’m just tired and grumpy and have a friggin’ neck / headache again, but hey… at least it’s Saturday. πŸ™‚πŸ€·πŸ»β€β™‚οΈ

Took my morning meds and some Aleve, so I’ll be feeling better soon. Also, I’ve got a package on the way. 😯 And how can you be in a shit mood when you’ve got a package coming? 😁 Before bed each night, I usually spend a while listening to the scanner, and relaying any interesting bits to Amy, my night-time / insomnia texting wife. 😏 We use that term jokingly, of course… but everyone (if they’re married) has a real spouse, but then you often have a “work wife”, an “internet wife”, a “texting wife”, etc. Anyway, the scanner is great, but I’m far enough from town that reception is sometimes a problem. πŸ€¨πŸ“»

So I found a cheap, wide-band, glass mount antenna with the bitty SMA connector that my Uniden HomePatrol 1 uses – and it’s supposed to arrive today. Hopefully by one of their delivery people that has the GPS system where it’ll pop up a little map, showing where they are, and how many stops until they reach you. πŸ€“πŸ§­πŸšš Gonna tuck the antenna behind the curtain on the picture window, which somewhat faces towards town, so hopefully it’ll give me just enough boost that I’ll stop getting garbled transmissions.

At this point, $20 was about the limit that I was willing to throw at a possible solution, but I did also consider that my metal awnings could possibly used with a magnet mount ground plane antenna. But not only does that start to get outside of my wheelhouse when it comes to antenna knowledge, but they’re also more expensive, and I don’t have an easy way to run the connecting cable into the house. Besdies, I’m not sure I care enough about “perfect reception” to bother doing whatever I’d need to do to get it perfect. 😏 Most services in the area have gone to digital broadcasting anyway, so I imagine it’s only a matter of time before they start using encryption as well – which would make my receiver useless. πŸ˜• Gone are the days of getting a $20 “Bearcat” scanner at a yard sale that would give you access to almost everything you’d wanna listen to.

Okay, enough rambling… just wanted to bang out an entry to help me wake up and get my day started. I doubt I’m gonna be out of the house much over the next couple of days, having no appointments or obligations (and also wanting to avoid the bizarre 90 degree “fall” weather), so that gives me even more reason to anxiously await the arrival of that antenna for one of my toys. πŸ€“πŸ˜Œ It’s honestly too cheap, so I’m not expecting much, but if it gives me just enough gain re: these two specific channels it’ll have been worth it.

Makes me wish for a “Fall Hamvention” … but I probably wouldn’t go to that one either. πŸ˜…Β I miss Hara Arena.

Still Working Through It

I mailed out my rebuttal report yesterday, so today I called my lead attorney to let him know to expect it, leaving a brief message describing what I thought about the doctor’s IME report and explaining that even though I know they’ve got the situation covered – that I hoped the information I provided will help them out. πŸ‘¨πŸ»β€πŸ’ΌπŸ€“πŸ—’οΈπŸ€·πŸ»β€β™‚οΈ I also told him a return call wasn’t necessary, since I really would like to get this all out of my thoughts, but that he could of course call if he had any questions after he spoke with my doctor. πŸ‘¨πŸ»β€βš•οΈ

I realized today, though, that even though I supplied all of that extra information for my attorneys to use as they see fit, that it’s going to be hard to stop thinking about it and to stop subconsciously “defending myself” until I’ve really done everything that I can to prepare for the hearing. πŸ€”πŸ€¨ And the Industrial Commission hearings have proved to be a mixed bag for me. It’s a very stressful and anxiety-filled situation to be in, so I don’t remember every detail from every hearing… but I do know that sometimes I’ve been asked questions, sometimes I’ve been asked nothing and basically just sat there, and sometimes I’ve been asked if there was anything in general that I wanted to add.

If they decide to ask me questions, that’s great… because one good thing about my answers, because they’re based on the truth and over a decade of experience, my answers won’t be much different from anything that I’ve said to them, to any of my doctors, or anyone else in the past many years.Β But if they ask if I have anything that I’d like to add, that’s where I now need to focus my thoughts – and figure out the most concise way to convey the most amount of (what I believe is)Β relevant and important information.

I’m literally at the mercy of this “deciding body” when it comes to my future medical treatment, so I can’t afford to stumble over my words or not know what I want to say if given the opportunity to speak. So probably over the next day or two I’ll start jotting down several points, and then turn that into something that will hopefully be effective when delivered. πŸ˜•πŸ€·πŸ»β€β™‚οΈ

When there’s a new doctor that has provided a new report that has all kinds of new claims and allegations, some of which I absolutely disagree with… some of which are simply false (there’s no other way to say it)… that’s a change since the last hearing, so of course any references to that in my comments would also be “all new information” that I’d be responding with. So I think you can see why I’m still feeling anxious, having not yet prepared what will basically be my “closing statement” if it’s asked for. πŸ˜“ So that’s the plan for the weekend.

Even if I’m not asked to speak, even if I end up not using it – obviously I’ll feel much better knowing that I’m prepared rather than not, and I’m hoping that will help me feel a little less nervous about the whole thing while I wait for all of the official paperwork to start pouring in, along with a notification of the date that the hearing will actually happen. πŸ™‚πŸ€žπŸ»πŸ€·πŸ»β€β™‚οΈπŸ™πŸ» (And hopefully I won’t mention any of it for a while after this.)

Method To My Madness

You may or may not have noticed, but over the past many weeks – especially in the time right before and after my scan – I’ve been posting a lot more entries to the blog than usual. Even if not in quantity, I’ve definitely been ramblingΒ more than I typically do. Now that I’m most of the way past that phase, I’m probably gonna end up slowing a little with my postings – not necessarily on purpose, but because as things start to feel like they’re returning to normal I have a feeling I just won’t feel like I need to post quite as much.

There’s no way to explain to someone who hasn’t gone through it, how it feels to sit with an unspecified amount of cancer in your body, jumping through all of the hoops for the tests, which includes gradually wearing down your energy levels to nothing, and then just sitting there, not knowing, waiting, worrying, hoping, etc. 😟 There isn’t an emotion that you don’t experience, ranging from hoping that it’s completely gone – to hoping that if it isn’t gone, that you at least get an expiration date… just to finally get rid of the uncertaintyΒ more than anything else. 😞 I suppose I can only speak for myself, but I don’t see how anyone wouldn’t feel most of the things / ways that I’ve felt. πŸ€·πŸ»β€β™‚οΈ

But my way of dealing with all of that (or distracting myself from all of that) was by posting here. Didn’t necessarily want to talk to anyone about it in person, or in any detail or whatever… but also couldn’t just sit here and stay all bottled up about it. So whether my posts had something to do with my medical stuff or not, it’s been a big reason why I’ve been so active lately. Now, I’m not saying that I’m gonna stop blogging… I mean, rambling is sort of my thing, it’s more that I just wanted to come here and finally explain.

Of course it doesn’t help when in the middle of all that, I get new “neck stuff” (unrelated to cancer) to eventually be concerned about. πŸ˜’ It’s hard to stay positive and try to get back to normal when just as you’re finishing up with one thing, something else fairly big comes along right on the tail of the last thing. And that’s what a lot of my postings have been, whether they seem like it or not… trying to find the silver linings, trying to reassure or even convince myself that I have the ability to take the good for what it is, and work around whatever negatives are left after that. (Bleh… that sounds cheezy.)

I’m still not back to normal, but I’m definitely getting there. I found out, thanks to the festival, that even though my energy levels are a whole lot better – there’s still a wall there to be hit, and I still don’t get a sign when I’m approaching it. I’m assuming that’ll just continue to get better though, because it has so far. I’ve barely been doing anything with friends yet, and still haven’t been on Facebook for over a month now… so I’ve still got a few of those types of hurdles to get over, but it’ll all come in time. πŸ™‚ I’m not setting goals or time-frames or anything like that… just trying to always make sure that I keep moving forward with all of it. And as for the stuff that I’ll have to face in the future, whether it is spine related or cancer related (or something as of yet unforeseen), I can’t let it chew up all my thoughts and actions between now and whenever that will be.

So whether it helps me because I’m just getting stuff out, or because it also helps to reinforce the positive thoughts… whatever it is, it’s just what I’ve needed to do during this more-uncertain time in my life. πŸ€·πŸ»β€β™‚οΈ But as I continue to get better, it should require less energy (or rambling about it) in order to keep the progress going. I made it up and over the most recent hill, so now I can hopefully start to coast a little more if that’s what I decide to do.

Meh… I could obviously continue with more on this topic, but this basically explains what I wanted to be explained. We’re all works in progress, and I’m no different. And if it’s not one of the issues that I’m currently focused on, there’s always gonna be something else that tries to damage my calm and toss some grenades in my life’s direction. 😟 I’m just hoping that I can take the things that I’ve learned from dealing with the current situations and apply them to those other things when needed. πŸ™‚ Maybe get a little better with the “ups and downs” since we all seem to come with an endless supply.

I Know It’s Weird, But…

I wish my day was ending on a better note. 😞 As you can tell from my couple of previous posts, I was trying to get (or keep) myself in the right frame of mind where I could accomplish various things, hopefully have my plans for the weekend go down without any issues… basically just trying to hang on to the “normal” while I was feeling it. (And believe me… just that in itself is a bigger challenge for me right now than you’d probably think.)

Now, as many of you may already know, one of the “weird” things about me is my near inability to talk on the phone. There’s a logical root reason to how I ended up this way, even if there isn’t as much logic to it now, but it’s something that everyone who knows me is aware of. Unfortunately, I have one family member who is apparently as averse to textingΒ through the phone as I am to speaking on the phone, so there’s obviously gonna be some problems when we need to communicate. πŸ˜πŸ€·πŸ»β€β™‚οΈ

So even when people do absolutely need to talk to me on the phone, they know to text me first to make sure it’s okay to call. Essentially it’s just giving me a warning that they’re gonna call, which helps my twitchy brain prepare for it, and usually making it something I can do. But over the past two days it’s been cold call after cold call, but at least this last time she left a voice mail saying that she had some good news and that she wanted me to call her.

So even though she knows I’m like this (we talked about it the last time she cold called me… heh), she’s got good news that she wants to share, so it makes me feel bad that this weird part of me won’t let me answer or call back immediately. πŸ™‚πŸ€¦πŸ»β€β™‚οΈ I have to “save up the oomph” to make a phone call. And yeah, I know that’s a really weird thing… there’s no debating that. I just hate when I’m doing my best to hang on to “normal” for a while, and something like this reminds me that I’ve still got a long way to go…

Of course I’m interested in her news, and I wish that I could just pick up the phone and call back right away, because I don’t want her to think that I don’t care… but now I’ve spent the evening being frustrated by myself, rather than continuing my forward progress. 😟 Dumb. But how many times do you have to tell someone that you don’t talk on the phone, or that if you have to talk to me on the phone – just text me and give me an idea that a call is coming? (Of course this doesn’t apply to anyone who doesn’t have the ability to text me.) I’m not asking people to understand why I’m this way, just that they understand that I am – and that they respect that unfortunate fact and don’t get hurt feelings if it takes me a while to call back.

Gah… okay, I gotta stop dwelling on this. It’s just how I am right now, I’ll talk to her tomorrow, she’ll share her news, everything will be fine… I can’t let my defects erase any of the positives that I’ve been actively working on lately. And I’m gonna keep reminding myself… as hard as it is for me to take or make phone calls, it could be just as hard for her to text – and it could be just a difficult for her to explain as it is for me.

It’s all good… it’ll be fine… I think I just needed to vent.

Pace Yourself, Dummy

Felt like I had a little more energy than usual yesterday, so I trimmed my hobo beard here in the living room (with a trimmer that allegedly catches all the trimmed hairs) but then of course I still wanted to vacuum up whatever it didn’t get. Turned it on, but the vacuum wasn’t sucking, and then it just shut itself off. πŸ˜’ Awesome. Didn’t realize how many filters were inside this thing, but they had become clogged with the flea dust that I spread and vacuumed up a couple weeks ago. πŸ€·πŸ»β€β™‚οΈπŸ”§ So I had it in pieces, took out and washed all the filters, and that was it for me.

Not that I had anything that I needed to do after that, since the filters needed to dry overnight anyway before I could even try it again… but yeah, went from “okay” to completely whupped without any warning. Took a shower to see if that would jump-start things, but nope… just made me ready for bed. 😏 And yeah, I was thinking about how I’d be missing the meteor shower, but there were enough passing clouds that I didn’t feel too crappy about not having the oomph to stay awake and set up the camera to do things properly. πŸ”­πŸ§ Looks like it might end up even more cloudy tonight, but we’ll see.

But yeah, as I was starting to fear as the time got closer – just a few days of being back on my thyroid meds hasn’t quite done the trick yet. I’m noticing a difference, so that’s good, but I just have to be patient and stop trying to do more than I should. I mean, taking apart the vacuum wasn’t even physically difficult… but yeah, I just gotta keep taking it easy for a while. That’s what I did today, and the most I plan to do tonight or tomorrow is maybe that time-lapse video and then getting through the current stack of mail. πŸ™‚πŸ° No physical stuff, even though I’ve got a basket-and-a-half of somewhat radioactive clothes that I will need to get to sooner than later. (But it’s out of the way and not hurting anybody, so meh…)

Only real obligation tomorrow is my workers comp appointment, which is typically just in and out unless we get chatty… but it’s my doctor’s assistant that will be seeing me tomorrow, so other than letting him know how run down I’ve been for the last month and why, it’s just gonna be getting those meds on track. I’m barely out of the window where I’m technically supposed to be avoiding people for extended periods of time anyway, so I’ll make sure to let everyone in the office know that when I get there, which should also help to keep this visit short and to the point.

And whether this jinxes me or not, I like that I haven’t gotten a call from my thyroid doctor’s office on either of the business days since I had the scan done. πŸ€” Different, unfortunately, from one of my friends who has been having some heart testing done – and she got one of those “Let’s go ahead and get you in here as soon as possible…” calls, which always makes your stomach drop. 😳😟 Can’t dwell though… all this shit is in the doctors’ and God’s hands, and we all just have to hope for the best. πŸ™πŸ»