Getting By

Heh… I don’t really visit my own site, so I had to chuckle when I clicked over and was reminded that the title of the last entry was “Tired Of This Shit” because I was like, “Yeah, that sounds about right.” 😏

Things have been rough this past week too, because why wouldn’t they be, eh? πŸ™„ Gah… I’m trying not to bitch even more than I already have been, but this week was loaded with appointments – so of course I had to start it all off by being sick. 🀒 You know, I’m not even gonna cover how this week was… I’d rather just be thankful that the week is over, and that I think I’m about back to 100%. πŸ€·πŸ»β€β™‚οΈ Or at least what passes for 100% for me these days.

Only appointment I had to cancel was the dentist, and that’s because it was the first appointment of the week – right when I was feeling my worst, and in the midst of a shitty 36 hours of not being able to sleep. Great way to start the week. I guess there wasn’t anything remarkable about any of the other appointments… if anything, they went pretty good… it’s just been a little exhausting being sick, not being able to sleep, but still getting up around dawn each day to make it to this place or that place.

Today wasn’t bad though. I knew I felt good enough to eat something, even though nothing sounded good, but then since we were out that way we decided to stop at Frisch’s Big Boy for lunch. πŸ™‚ Our eyes were both a little bigger than our stomachs, but at least that meant goodies to take home. Plus we had the nicest, most genuine waitress that I can remember having for a long time.

So now it’s a couple days off before another appointment Monday, and then the follow-up with the endocrinologist later in the week. πŸ‘¨πŸ»β€βš•οΈ Four tubes of blood for several different tests, information from the scan at the hospital a while back… this will be my first appointment since then and, believe me, good or bad, waiting for info like this isn’t easy. πŸ™Β That’s probably part of the reason that I’m having even more trouble sleeping than usual.

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Buncha Nothin’

While I’m technically ready to start doing all of the adulting that I’ve got planned for the first couple of weeks of the new year, I am glad that today was essentially a “paused” day… where even if I wanted to, nothing significant could really be accomplished. πŸ€·πŸ»β€β™‚οΈπŸ™‚ I didn’t go out last night, nor did I have any company over, but I still didn’t fall asleep until around 3am. And of course I woke up too damn early, so my brain is thankful that the only real work that I’ll be doing today will be the stuff that I can address by mail. Which leaves all of the phone calls for tomorrow. 😳 Yay. 😟

Last night wasn’t totally lonely though. Brianna also stayed at home, although she was also babysitting for her sisters, so we ended up keeping each other company via messages up until the ball dropped at midnight and then a while after. β˜ΊπŸŽ‰ I think my adulting may be rubbing off on her, because a lot of what we talked about was both of our growing lists of “Shit We Gotta Do” in the next week or two. 😏 I mean, nobody is really a fan of responsibility, but I think it made her feel good (the same way it does me) to spend some of her evening coming up with a game plan of her own. πŸ“’πŸ–ŠπŸ‘§πŸ»

I wish that I didn’t have to take Cassi back home earlier last night, but she did end up staying later than we originally planned. It was a rough, dark, rainy, stressful drive up to Columbus in that horrible weather – with 80% of the traffic still breaking the speed limit, and the other 20% either scared, creeping slowly, or completely stopped along side of the highway as they waited for the rain to stop. β˜πŸŒ§πŸ˜―πŸ˜£πŸ˜§πŸ™ˆβ›ˆπŸŒ§ While she was here though, we started watching a new Korean rom/com/dram called Strong Girl Bong-soon. It’s strange how easily I take to Korean songs and shows now that I’ve been doing it for a bit. πŸ˜πŸ‡°πŸ‡·

But yeah… this is kind of a rambling post since it’s been a leisurely kind of day for the most part. All of my upcoming doctor appointments are still heavy in my mind though… I’m just trying to not let them bother me today. 😟 I will say this though. I haven’t been feeling great for the past couple of weeks. 😐 Not awful, but not how I normally feel either. So while I’m not gonna try to predict anything when it comes to my upcoming tests, I think I’m subconsciously getting myself ready for some potentially bad news. πŸ€·πŸ»β€β™‚οΈ

It doesn’t help that I’ve been having a lot of anxiety filled dreams lately as well. 😳 Not exactly nightmares, but dreams that definitely had a negative feel. And twice now I’ve had dreams where I died. πŸ˜• One was strange… I had already passed away, but I was still around to console people and to help with all of the arrangements needed in that sort of circumstance. 😬 But the bad dreams, the specific “not feeling well” things… right now I am choosing to attribute it all to the Wellbutrin that one of my docs put me on. πŸ€’

I haven’t felt this mentally and physically shitty in a long while. πŸ˜” And it’s so much so that I’m going to stop taking that new med until my next appointment with that doctor, so I can let him know the side effects that I’ve been experiencing. Over the years I’ve probably tried half-a-dozen different meds to help with depression or anxiety, and never have I made it past a month or two before the side effects outweighed the potential benefits – and I’m pretty sure this one will be the same way. 🀨 I’ve also got something more immediate for anxiety, but I haven’t noticed any bad side effects from that one, so perhaps I’ll be able to keep one-out-of-two in my rotation this time.

Alrighty then… time for some football. πŸ™‚πŸˆ Ready to push the scary thoughts to the back again for now.

Grumble

I had Bri around for a few days. I hadn’t been able to spend much time with her since Christina passed, partly due to schedules, partly due to my radiation stuff still going on… but yeah, the last few days have been nice with her around. I don’t need to entertain her, there was plenty of Netflix, Plex, and YouTube, and we were both probably more productive with whatever stuff we needed to work on than had we not been each other’s company. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Had to wake up before the sun rose this morning, to make sure I’d make it to my 8-o-fucking-clock doctor appointment, and I’m still in a shit mood about it. 😠 I’ve never been excited about any type of mental health care… heh… and I suppose it shows sometimes, but yeah, this was my first real session with a shrink shrink, and getting medications that he thinks will help me be less twitchy. Meh… I’m trying to not even think about it much right now and I’m gonna just see how it goes.

I can’t be bothered with all that stuff right now though because, yet again, I’m doing the monthly fight to get my workers comp medications. 🀬 You know, the same medication that I’m apparently being accused of not getting filled and not picking up like I should. Is that what they’re trying to use against me? That they force me to completely run out and sometimes have to wait days before the next prescription is finally approved? Are they holding that “delay” against me? Yeah, I don’t feel like talking about that right now. πŸ˜’

I swear though, next month’s calendar is already peppered with doctor and other appointments. Half of them are actually still related to the thyroid cancer treatment, but now there’s PCP appt, workers comp doc appt, thyroid stuff, talky shrink, pill shrink… bleh… it’s making me tired just looking at it. Gonna try to continue to make some changes at my next WC appointment as well, which might not go easily… I’m just tired of going to a pain management place while still being in pain each day. πŸ˜– Something obviously isn’t working quite right and I deserve to have it changed in order to improve my treatment and my condition.

Yeah… already done with today, man…

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)

Checking In

Haven’t been able to shake this funk.Β πŸ˜• Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now.Β πŸ˜”

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery.Β πŸ€• The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day.Β πŸ™πŸ»

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point.Β πŸ˜·πŸ’‰πŸ˜ It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this.Β πŸ˜” They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup.Β πŸ˜’ Next on the agenda, though, is my first full appointment with the new shrink on Monday.Β πŸ™„ I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.