Well, I’ve Got The Extra Hour

Body’s tired and feeling a little beat up, but my brain isn’t ready to go to sleep I guess. It’s a little after 2am on Sunday morning… πŸ€” Oh, wait a minute… πŸ˜… no it’s not. πŸ€¦πŸ»β€β™‚οΈ Just looked down at my phone to see the exact time – and hooray for “fall back” tonight, eh? Still being awake at 1am doesn’t feel nearly as bad as still being awake at 2am. 😏 Heh… it’s just that typical thing that happens after vacation. In this case the vacation came to me, but you know what I mean – you get the nice distraction from reality for a while, then when vacation is over and things have to go back to normal, it just takes a little while to adjust. 😟

It’s silly, but because I don’t generally do a heck of a lot with my time… I mean, when it comes to going out and doing things… so when Gen was here, even if I wasn’t necessarily part of all of the plans for the day, I still felt like I was “doing something” with my day. πŸ™‚Β It’s just been a while since I’ve had to coordinate a few of my days with anyone else, whether that coordinating involved me doing something or involved me avoiding it instead. πŸ˜… Granted, my lack of “doing stuff” is usually because I’m either hurting or wanting to avoid hurting… but with the right company, I don’t mind it quite as much for a couple of days. But yeah, Sunday… Monday… πŸ€” they’ll probably be a couple of “nothing” days so I can regenerate from the visit and get my thoughts back on track when it comes to the stuff I want or need to do. πŸ€·πŸ»β€β™‚οΈ

On Friday she woke up early to do something with friends in Logan, but then once she got back here we went out and picked up Bri and Bryson to go in town for a bit. Stopped off at Walmart, and as we were all checking out (and this happens more than you’d think) the cashier lady mistook me for Bryson’s dad. 😁 I was standing behind the cart, entertaining him so he wouldn’t fuss until we left, but when I moved to the front of the line to pay for my stuff – he started crying… and cashier lady said “Aww, see he wants his daddy.” 😏 I just played along, joking that she was right and that Bryson wasn’t a mama’s boy. It actually caught me off guard this time though, ‘cuz I wasn’t shaved, and I’m pretty sure I was lookin’ my actual age… 😊 but it’s still amusing.

That evening Gen made plans to meet with Toni, Matt, and Anna for dinner, but I just didn’t have the oomph for it… and that was before I found out Wendi and her Matt were there as well. 😯 I kinda felt bad for dipping out, but I just didn’t have that couple hours of “social” in me that late. (I did appreciate her bringing a cheeseburger and fries home for me right before midnight though.)Β Despite needing to get up stupid early the next day, she wasn’t sleepy yet due to all the socializing so we squeezed in another episode of Doctor Who before she hit the sack. πŸ€“πŸ“ΊπŸ‘±πŸ»β€β™€οΈ That made four episodes since she got here – which should be enough to either hook her, or to know that it’s not her kinda thing. 😏 I always try to convert people.

Saturday morning… she was up and out shortly after the crack of dawn, on her way to some horseback riding near Moonville with a friend, and not only did I not wake up when she left – but I didn’t even fully wake up until noon. 😐 There’s a chatty cat that comes to visit (outside) and tries to play on my emotions as it’s getting colder around here, so I agreed with her suggestion of making a little “kitty house” out of a big ol’Β Rubbermaid tub from the basement – so that was my mini-project for the afternoon. Time was starting to get tight though, so rather than fussing with the mailboxes or the bags of gravel, we decided to go out and visit Dad for a bit before it started to get dark. πŸ™‚ OutsideKitty had vanished by then though, but that’s good… gives me a little more time to finish up the tub and find some suitable soft stuff to use as the base for when I put it out on the back porch for him. πŸ˜ΊπŸ™„

Dad seemed like he felt better today. Like half the people I know though, he’s been fighting a shitty cough and “bleh” feeling, but it’s either starting to get better or our visit was just a nice distraction from thinking about it. 😁 Unfortunately we couldn’t stay there too long, ‘cuz I had to get Genesee up to Columbus (to Chad and Shannon’s place) and try to get back home before it was dark dark. 😳 Sounds like an “old person thing” but I just prefer to not drive at night with these “backup pair of a backup pair” glasses that I’m currently stuck with. πŸ˜• I can cheat during the daytime with my Rx shades that are one prescription “more current” at least.

But yeah, as quickly as she arrived, she’s now up there and will be heading home in a few hours. 😟 (So glad that Chad can help with getting her to the airport at 4am today. Oy.) She was busy nearly the entire time she was in town, not including the house downtime for watching Doctor Who, looking at old pics/vids, etc… but I definitely envy the way she was able to tackle her self-imposed schedule. 😊 I suppose it’s easier when it’s stuff that a person actually wants to do… but she can wake up and be out the door, ready to go, in minutes – while I need an hour just to wake up enough to decide that I’m about ready to wake up. πŸ˜‹Β (Actually, it’s more about letting the morning meds kick in, so I can at least partially function like a human being…) But it was nice to see that even with the limited time here, she still managed to do most of the stuff that she planned.

Some Today, Some Tomorrow

Woke up to my neck feeling all janky today… either from sleeping on it wrong, or just from the building stress of the last few days. But I still dragged my ass out of bed with intention today, determined to get some of the stuff on my mental to-do list done. It wasn’t until I was getting ready to leave the house that I realized it was 92 effing degrees outside today. The heat still takes a little more toll on me than it used to, and along with the neck / headache shit – I ended up scaling back my goals just a bit.

First stop was gassing up the Fusion and topping off the air in the tires, then to the bank, then to the post office – to mail out that report for my attorneys. I wish I could snap my fingers and it would just be there, but I’ll have to be okay with them getting it tomorrow and then finally actually looking at it at the start of next week. I’m gonna give Jim a call though and leave him a message, letting him know that it’s coming.

And then since my car has gone from “change oil soon” to “oil change required”, I figured I should go ahead and get that done while I was out today. It was like I suspected though… and why I like these new guys that I go to for service… he said the synthetic blend that I got last time could have actually lasted me many more miles, and the car was only crying because I forgot to inform it that it got synthetic this last time, and didn’t increase the mileage interval before it starts squawking at me. But yeah, for an oil change place to say 7,500 miles on synthetic is cake, and even 10,000 wouldn’t be that bad… that shows some honesty that you wouldn’t always expect.

But by the time the oil change was finished, the base of my skull was thumping and I was feeling pretty meh due to hanging around in the heat as I waited, so I decided that was enough “on the go” chores for the day. Hoping I’ll bounce back overnight tonight, so I can finally go get my hair cut and schedule an eye appointment tomorrow.

Ugh… I hate that the workers comp crap is still in the back of my mind though. Today is a good example of something that would be used against me. “Look! He admits to working on his car!” (Because they’d count putting air into my tires as work.) And if I didn’t specifically state that I took my car somewhere for an oil change, they’d probably claim that I didΒ that myself as well. And of course, regardless of whether I mention any levels of pain or not, there’s this strange “Robert admits to performing multiple chores, including multiple stops at various locations throughout his day.” kind of stuff that’s obviously intended to imply something…

I guess I just thought that I was past the point of having to justify doing things that I simply have to do, or pointing out every time that something causes me difficulty or pain each time I do it. It hurts to do certain things, such as folding laundry, standing and doing dishes, etc… but of course I still have to do those things. I’m not sure how pointing out that I’m still managing to get by, despite my disability and pain, somehow makes me the bad guy. Meh… but anyway… I’m okay with what I was able to accomplish today.

EDIT: After I finished this entry, I remembered something else that annoyed me enough to come back to add this. Weeks ago I learned that Skillet was having a concert at the end of September in Columbus. However, I’m not going to that concert… a concert by one of my most favorite bands… because it’s a general admission show, and it would simply hurt too much to stand and be bumped around for that hour and a half. I’ve fought with myself, trying to make myself go, but I chose not to because I don’t want to hurt. I think I even made an entry where I wondered about “disabled seating” for folks like me… but in the end, despite it being a show I’d desperately love to see, I’m not going. My life is a constant balancing act because of my disability and pain… sometimes I have to do things that hurt (like chores) that I don’t want to do, but I have to. Sometimes I choose to do something fun, despite knowing that fun thing will likely cause me pain… and I think that’s okay too. But then there are examples like this – where I really wanna do something, but I’m not willing to pay the pain-equivalent of “the price of admission” to do it, because I’m that concerned with avoiding extra pain. Yet the legitimacy of my disability and pain is still being questioned, year after year after year…Β  fml.

I Know It’s Weird, But…

I wish my day was ending on a better note. 😞 As you can tell from my couple of previous posts, I was trying to get (or keep) myself in the right frame of mind where I could accomplish various things, hopefully have my plans for the weekend go down without any issues… basically just trying to hang on to the “normal” while I was feeling it. (And believe me… just that in itself is a bigger challenge for me right now than you’d probably think.)

Now, as many of you may already know, one of the “weird” things about me is my near inability to talk on the phone. There’s a logical root reason to how I ended up this way, even if there isn’t as much logic to it now, but it’s something that everyone who knows me is aware of. Unfortunately, I have one family member who is apparently as averse to textingΒ through the phone as I am to speaking on the phone, so there’s obviously gonna be some problems when we need to communicate. πŸ˜πŸ€·πŸ»β€β™‚οΈ

So even when people do absolutely need to talk to me on the phone, they know to text me first to make sure it’s okay to call. Essentially it’s just giving me a warning that they’re gonna call, which helps my twitchy brain prepare for it, and usually making it something I can do. But over the past two days it’s been cold call after cold call, but at least this last time she left a voice mail saying that she had some good news and that she wanted me to call her.

So even though she knows I’m like this (we talked about it the last time she cold called me… heh), she’s got good news that she wants to share, so it makes me feel bad that this weird part of me won’t let me answer or call back immediately. πŸ™‚πŸ€¦πŸ»β€β™‚οΈ I have to “save up the oomph” to make a phone call. And yeah, I know that’s a really weird thing… there’s no debating that. I just hate when I’m doing my best to hang on to “normal” for a while, and something like this reminds me that I’ve still got a long way to go…

Of course I’m interested in her news, and I wish that I could just pick up the phone and call back right away, because I don’t want her to think that I don’t care… but now I’ve spent the evening being frustrated by myself, rather than continuing my forward progress. 😟 Dumb. But how many times do you have to tell someone that you don’t talk on the phone, or that if you have to talk to me on the phone – just text me and give me an idea that a call is coming? (Of course this doesn’t apply to anyone who doesn’t have the ability to text me.) I’m not asking people to understand why I’m this way, just that they understand that I am – and that they respect that unfortunate fact and don’t get hurt feelings if it takes me a while to call back.

Gah… okay, I gotta stop dwelling on this. It’s just how I am right now, I’ll talk to her tomorrow, she’ll share her news, everything will be fine… I can’t let my defects erase any of the positives that I’ve been actively working on lately. And I’m gonna keep reminding myself… as hard as it is for me to take or make phone calls, it could be just as hard for her to text – and it could be just a difficult for her to explain as it is for me.

It’s all good… it’ll be fine… I think I just needed to vent.

Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got backΒ home I learned that Christina was gone. πŸ˜”

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

Abundance Of Caution

We’re down to about a week-and-a-half before my surgery. 😳 And let me tell you, I’ve been dealing with some serious anxiety issues since the beginning of this past week – and I’m finding it hard to shake. πŸ˜₯ I’m right on the edge, always, and the slightest thing will push me over into labored breathing, chest pains, dizziness, etc. 😟 So while it might make me “difficult” in some people’s minds between now and my surgery, I’ve got to do whatever it takes to keep my anxiety levels low, or at least unchanged if I’m still managing to hang on to being okay.

It’s kind of embarrassing, but I honestly need to keep myself in a mental health bubble for the next 10 days. πŸ˜’ I don’t want anything to happen that will risk me not being able to have the surgery when scheduled, and going to the ER for a panic attack with severe chest pains probably wouldn’t help that cause. πŸ˜• Now, I am gonna tell the doctors and surgeon everything that I’ve experienced up to that point, before I go in, because I absolutely want them to know… but yeah, right now is not the time for me to deal with anything that I don’t absolutely need to deal with.

Cassi helped with that over the past couple of days. πŸ€·πŸ»β€β™‚οΈπŸ˜ I went and got her on Thursday after she got off work, because she had two days off in a row and wanted to spend them here with me. ☺ We never figured out how to make our “couple” relationship work, but boy are we good at being each other’s “person” in times of need. And it’s because neither of us need much… just the distraction from our respective lives that’s somehow provided by just being in each other’s presence.

As for what we did over those two days… there’s really not much to talk about. We just plop down in the living room, turn on Grey’s Anatomy on Netflix, and just sit with each other and watch, talk, eat mac and cheese… heh… just “normal” stuff that doesn’t add to the anxiety. The only times it got a little rough for both of us was when one of the episodes would be about thyroids or cancer and the results. Probably shouldn’t have watched those particular episodes, but it’s also good to think about everything realistically, all of the potential outcomes – and letting myself cry a little bit and be scared with her… it was much better than doing that same thing by myself. πŸ™‚

So yeah, the last couple of days were really nice, and really needed… and today, well, I’m calling it “a day off” since I don’t intend to do much (if any) communicating with anyone, and instead focus on things that I just personally need to do before it’s time for my surgery. 😊 The doctors and surgeon haven’t give me any reason to worry about the surgery. None. But you know how it is… you still wanna kinda get things in order, just to give yourself that peace of mind. And doing that sorta thing makes me feel better… makes me feel productive, which is something I always aim for.

Mood is good… I’m hangin’ in there.

Cash Grab

In the interest of psychological self-preservation, I’ve steered clear of reading too much Twitter or watching too much political news today. 🀨 That’s probably something I should consider doing permanently… instead of trying to always stay up to date on the latest breaking news, maybe I should take a couple days’ break between absorbing all of the awfulness. πŸ€” I’m sure I’d end up hearing about it if anything urgent actually happened, but the rest of it should be easy enough to consume in summary form for the previous couple of days. πŸ€“ Meh… it’s a thought anyway…

I was blessed to receive a “catch up” sleep last night. I think I ended up crashing around 5:00am, and didn’t wake up until 3:00pm… so despite my schedule getting a little screwed up due to the sleep schedule adjustment, waking up feeling rested and without much pain was a godsend. – so I can overlook the inconvenience it’ll probably cause.

I got another small surprise in the mail today. While I’m normally not a fan of bands/artists re-releasing their albums with “bonus tracks” after everyone has already bought the original… because I liked nearly every single track on Skillet’s album Unleashed, I went ahead and gritted my teefs and clicked the “buy” button when they announced that they were releasing Unleashed Beyond – which has five brand new tracks and two remixes of songs already on the original disc. πŸ˜ƒπŸ€˜πŸ» I haven’t listened to it yet, but I’m 90% sure that I’m gonna like the new stuff.

So yeah… honestly even though it’s the early evening, I really feel like my day is only just getting started – and right now my mind is clear, I’ve not set any obligations for myself, so hopefully it’ll just be a mix of lazy, doing a little of this and that, and trying to keep it from ending up crappy for whatever reason. I felt a twinge of maybe wanting to take some photos again, so maybe I’ll look about and see what types of new features and photo slideshow software packages are out there these days.

But It’ll Be Fun

Feeling pretty miserable today. 😞 Christina’s cancer fund-raiser is this evening, but I just can’t make myself go. They’re doing it as a “bar crawl” since she used to be a bartender, and therefore has a ton of friends/acquaintances that would be likely to come out in that fashion… but me, with my twitchy social anxiety and introversion, it’s just not my scene anymore.

I feel bad, because I’d really like to be able to go and show my support, but there’s not really anything that I can do about it. I sent a message to Chelsea a bit ago, explaining why I wouldn’t be there, and I think she’ll understand for the most part. The shirts they had made for the event… it marks the third “cancer support” t-shirt that I’ve bought this summer in regards to a friend who’s fighting that battle, and that’s three shirts too many. (And that’s only my cancer-fightin’ friends who are doing that sort of fund raising.)

But like I told her, I’m not doing very good at accepting “bad” these days, and when there’s an option of being reminded of that “bad” vs. hopefully just being able to avoid the thought of that “bad” altogether and acting like it’s not real… heh… well, I think you know which option my brain chooses for me. I mean, I know they’re gonna have fun and that it will be hopeful, goofy, optimistic, etc… but right now everything just feels too heavy and I can’t be there. (And yet here I am, still feeling “bleh” about it since my brain won’t let me go. πŸ˜’ It can be frustrating being me sometimes.)