Here Comes The Rain Again

It was interesting, yesterday at the pharmacy, as I tried to get all of my medications processed through the proper insurer, etc. When the lady told me that one of my WC meds had been denied again, I sort of jokingly apologized for my situation being such a pain in the ass for them each month – and said that I could pay cash for it and hope to be able to get a refund once it does get approved, but that I was sure there are probably dozens of other customers just like me and that I didn’t want to be even more hassle than I already had to be. 😏 The interesting part, and this isn’t the first time that someone there has at least hinted this towards me… but she said that in general, they don’t have many problems with workers comp customers, and was surprised (looking at my records in their system) how I seem to have the same trouble almost every month. πŸ€¨πŸ˜’ So it’s nice to feel like the complaints in my head are justified, but it doesn’t help when I want to reassure myself that it’s “nothing personal” against me. πŸ™„ Yeah, the appointment coming up this week, the requirement that my WC adjuster be contacted personally to approve the same meds I’ve been taking for years and years… it’s hard to pretend like it’s all a coincidence. 😞

But in the evening I managed to fall asleep relatively early, and then woke up in a cold sweat about an hour later after another awful nightmare. πŸ˜₯ Dad and I were out on Shepherd Hill, it was late in the evening, a storm was blowing in, and we were walking along the fence-line of the property… where everything was all overgrown, as if our houses there had been abandoned. 🀨 My cousin Jim was at our house, and was helping to pack up all of our valuable things before the storm hit… but Dad and I were still out in the cold and wind, looking for Mom. 😟 As it turned out, she was actually out in the garage, making a safe space for all the kittens to hide and safely ride out the storm.

By this point Jim, Uncle Jay, and some others had already taken their carloads of things and left, and Dad and I were trying to get Mom to come inside the house so we could get the last of our things and then leave as well. But having grown up in that house, she didn’t want to leave… and as the storm hit, it turned into a tornado. Pieces of the walls started giving way, window were breaking, parts of the floor were being pried up from the beams and thrown into the air, and the three of us took shelter in the doorway between the foyer and the kitchen – and could only watch as the house was being torn down around us. 😒

It was then that I woke up… so I didn’t actually “go through” the worst of what would have happened if I had stayed in that dream, but it was close enough. And it was one of those dreams that felt so real that the noise and wind blowing from the fan in my room… it took me a few seconds to realize / remember that it was just my fan, and not that storm blowing things around still. Luckily I’m still exhausted… not only from the past few days, but also from that nightmare… so I think I’m gonna be able to go back to sleep fairly easily. I just hope I don’t drop right back into that dream.

That’s one of my “talents” that I usually appreciate… being able to “resume” interrupted dreams, or having dreams that take place in certain fictional locations, but locations that are always the same in my dreams, making them seem as real as if I was sitting on my porch and looking out at my back yard. It’s usually a comforting feeling to have these made up, but specific dream “destinations” over multiple decades… but that’s not even how it was this time. This was our old house, it was the house that Mom grew up in, and it was too fucking real. 😣 I have “good” Mom and Dad dreams too, but I’m really learning to hate these bad ones.

Used to be I could be screwed up during the day for whatever reason, but at least I could count on “sleep” as a time where no matter how stressed, depressed, or screwed up I was feeling during the day – it would all go away at night. But these past couple of months, more often than not, the “twitchy” of the day just follows me into my dreams. A lot of days when I wake up, my first thought is “I can’t wait until this day is over so I can go back to sleep.” but, at least right now, I can’t even say that and mean it. 😞

I’m tired, boss…

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Bad At Feeling Bad

Saw my workers comp doctor on Thursday, discussed the additional pain in my neck and shoulder from relying on my cane (for my unrelated knee pain) this past month, but mostly discussed the upcoming WC mandated “review” – and he’s just as frustrated by what they’re trying to do as I am. πŸ˜’ Then I finally went back in to my prescribing shrink after taking a couple months’ break to get used to my new WC doc meds… and ended up spending an entire hour with him.

Granted, when you talk to a counselor you usually get an hour, but typically the pill shrink just wants to get you in and out of there, prescribing what he feels is appropriate based on the counselors notes and maybe a few followup questions. He talked to me about so many different possible meds, I have to admit that I don’t even know which ones he ended up calling in for me. I guarantee you that I’m going to be doing a lot of googling before I start taking anything… especially considering the other meds I’m already taking, and that in about a month I’ll have to stop taking my thyroid meds to prep for the next radiation pill treatment.

Meh… I’m not gonna get into all that. But I’m gonna try what he thinks I should, as long as I don’t find anything concerning that he maybe didn’t consider. πŸ€·πŸ»β€β™‚οΈ But for the past hour or so, I’ve been waking up and psyching myself up for the trip into the pharmacy. Three different doctors, multiple prescriptions, many new, some to be covered by WC, but still might not be, and then others meant to go through my regular insurance. 😣 For some reason they can’t mark it in their system, which meds go through which insurance, nor can I count on some of them being approved anyway, so this’ll be a fucking process today. 😠

I know. 😐 This is just what people have to do. The medical / workers comp / insurance programs in the US are shit, nobodyΒ does it without jumping through hoops, dealing with delays and irritation… but I’m still gonna bitch about it. 😏 And sure, whether it’s WC or traditional insurance… once, maybe twice, do what you have to do to verify that “Yeah he’s broken. Yeah he needs those meds.”Β (I get it… fraud prevention) but then just cover the shit plz. πŸ€• Go through that sort of bullshit long enough and you can totally understand why people, as they get older and feel more broken, just can’t or don’t want to have constant adversarial engagements with the whole system – and just stop bothering with some of it. 😒 Especially when the doctor’s hands are tied and they can’t even prescribe you the meds that could actually make you feel better – whether due to WC guidelines, insurance not covering it, or it simply being too cost prohibitive. 😠 Man it fucking pisses me off…

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I’m just bad at feeling bad when a)Β I’m denied treatments that could make me feel better, and b) people are still fighting to take the things away from me that merely keep my pain tolerable. πŸ˜–

Oh, and my insurance company… they keep leaving messages, saying that they want to schedule an in-home visit from a doctor that can evaluate me and give me his or her opinions as well. πŸ™„ Yeah, um, no. You’re insurance. Just be insurance. Get my health info from my records like a normal company… and don’t expect me to invite you into my house with another handful of hidden hoops behind your back. 🀨 Okay, I guess I’ve dragged my feet long enough, and should get in town and see what kind of luck I have with all this shit.

Your Warranty Has Expired

I wish that I felt more capable of adjusting to whatever illness or injury that might be affecting me at any given time. πŸ˜’ I don’t usually complain directly to anyone about such things, instead saving it for shouting into the void here, so I dunno… maybe everyone else has just as hard of a time adjusting to certain things like I do. But for example, the better part of the last couple of weeks have been really good – and then out of nowhere my knee just decides that it’s going to hurt. Hurt hurt. 😣 And my past couple of days have been mentally, physically, and socially fucked up because of it.

It makes sense that physical pain, along with losing some ability and motion, would also trigger my twitchy… I just hate that I don’t have any more control over it than what I do. 😠 But after a few days of hobbling around, and a few nights of long but often-interrupted sleep due to feeling the pain throughout the night, I wish I could just say “Well, I guess I’ll just take it easy and stay off my feet today.” but instead I let it fuck up my day, being irritated about being so irritated about it.

One problem, almost all of my friends (for a long time now) tend to be younger than me. It keeps my mind young, but my body doesn’t get that memo. So I’m not surrounded by similarly aged people with similar aches and pains. 😏 Another problem, with my work injury happening to me as young as I was, I’ve been dealing with that pain / disability for over a decade now… and it is pain that I feel like I didn’t really earn. πŸ˜•

I’ve joked with my cousin Matt and Dad about how “At least I was never in great shape when I was young…” compared to Matt, who loves / loved playing basketball, and Dad who is a Marine and served during Vietnam. In a way it’s a joke, but you’d also like to think it would be true… if you were never in great shape when you were young, it should be less of a deal when parts start to get defective when you get older. That’s turning out not to be the case. Now it’s more like “Dammit, I didn’t use myself up when I was young, so I shouldn’t be breaking down like this already.” πŸ™„

And I’m not making this entry to complain… it’s actually something I’ve thought about as I’ve faced various things, and it has also made me wonder how I’m gonna handle things when it inevitably gets worse as I get older. πŸ€” Like my Aunt Carol, she was in all kinds of awful shape, but she didn’t bitch about it or let it slow her down – let alone stop her. πŸ™‚ I just hope I can eventually become more like that. Everybody gets old, everybody sooner or later starts feeling worse and worse, and I just don’t want to end up a grouchy old recluse because I’m still struggling to handle the changes that every other human just seems to handle.

One thing I’ve noticed though, even my younger friends don’t give me shit about it – when either my neck and shoulder are extra screwed, or when my back or knee just randomly decides to go to shit for a while. I think it’s that insecurity of (in most ways)Β being on the same page as someone regardless of our ages, and worrying that if I have to hobble around or use a cane for a few days that they’re gonna look at me like “Oh my gosh… I forgot how old he is.” Heh… but so far that’s not been an issue, and if anything it just ends up being something that we joke about rather than it being some eye-opening revelation… heh… as if they don’t know my age until a physical sign appears. πŸ™„πŸ˜„

Meh… it’s just a gimpy knee, it’s not gonna be permanent, I’m gonna be fine, and I’ll surely have plenty of otherΒ “fun” new things like this to deal with in the future. πŸ€·πŸ»β€β™‚οΈ Gotta figure out how to just start sucking it up.

New Rule

I have to stop letting how I feel when I wake up each day be an indicator of how I’m going to feel for the rest of the day. 🀨 Especially since I usually have the luxury of waiting it out… taking my morning meds, giving it a little time, and eventually feeling at least somewhat better. And yeah, I know that this is such a “Yeah, no shit.” thing for normal people, so of course my brain just instinctively resists the idea. πŸ™„

I’m gonna be so bad at getting older and more broken if I don’t keep trying to recognize my flawed ways of thinking and trying to change them. πŸ‘¨πŸ»β€πŸ¦³ The other thing that I have to work on is learning to accept that some of the physical things just aren’t going to get better. What’s that Garth Brooks song? Much Too Young (To Feel This Damn Old) 😏 Heh… I really hate that my blog is like 90% “bitching about things” these days though… like today, it was only four hours of sleep, waking up because I could feel my pulse in my friggin’ jaw, and then (when I got up to go to the bathroom)Β discovering that my back is trying to re-fuck itself.

I swear, there’s an invisible hat in my house somewhere, filled with bits of paper listing all of my various potential ailments or irritants for the day, and some unseen force just grabs three or four of them at random and there ya go. πŸ€•πŸ€’πŸ˜–πŸ˜·πŸ˜ŸπŸ€’πŸ˜“β™Ώ The unending uncertainty of each day is such shit… so waking up depressed or mad is understandable, but I gotta stop letting it stick… especially if that’s the only thing that seems to be triggering it on that particular day.

But it’s been a few hours now since I woke up, my meds are kicking in, things are sucking a bit less, but I’m still gonna take it easy today. I’ve got another appointment tomorrow, plus I need to build up some positive juju because I wanna get back in to see Dad again next week, Bri is gonna be induced and have her baby next week as well – starting at 6 friggin’ AM, then on Saturday Jim’s going to Buckeye Lake to meet up with his dad, brother, and Adam at Pizza Cottage and I’ve also been invited. I’ve missed the last couple of hang-outs with them, so I really wanna try to make it this time. πŸ˜”πŸ€žπŸ»

And that leads me back to the new rule. Well, let’s call it a guideline, since I know that I’m going to fail at it at least as often as I succeed…. but without being able to “shake off” how I feel when I wake up, none of that fun stuff on my potential to-do list will be possible. History has proven that more times than I’d like to admit. πŸ˜’ Trying to adjust my attitude each day will let me hopefully be less flakey to my friends and family, and being less flakey to my friends and family in itself will help keep my mood going in the right direction. I just have to hope that my meds decide to start pulling their weight again soon too.

Ahh, There It Is

All week the news has been telling us about this horrible snowstorm that we were supposed to have starting today. (Technically yesterday, but you know what I mean.) But as today progressed, it brought nothing more than rain… at least until almost midnight. But once it got here, boy did it get here.

After much debate with myself earlier in the evening, I decided to go in town to pick up Brianna and Ariel so we could go meet up with some of their and Christina’s friends – to celebrate what would have been Christina’s 44th birthday today. I warned them that I planned to bail when the weather turned – but even though I headed pretty much directly home with them… once they were dropped off and I was on the way to my house, it was a legitimate white-out situation on most of the road that leads to my house.

It was fun hanging out with everyone, but I sure wish I left about 15 minutes earlier than I did… because that drive home made my butt pucker. Luckily I’m familiar with the road, but for those that aren’t – there’s probably no way they’d have made it, since the road was completely snow covered, not touched by a plow or salt truck, nor even touched by another car before me… at least as far as I could tell.

So even though I was creeping along, the stress and limited visibility made my eyes hurt, my shoulder hurt, my neck hurt, and then topped it off with a splitting headache just as I made it to my driveway. But, as usual, as long as there weren’t any other cars spinning or driving into my path, I didn’t really have any problem driving. It wasn’t even slippery… just drifts of snow, effectively erasing the roads and making it a “choose your own adventure” drive home.

Buncha Nothin’

While I’m technically ready to start doing all of the adulting that I’ve got planned for the first couple of weeks of the new year, I am glad that today was essentially a “paused” day… where even if I wanted to, nothing significant could really be accomplished. πŸ€·πŸ»β€β™‚οΈπŸ™‚ I didn’t go out last night, nor did I have any company over, but I still didn’t fall asleep until around 3am. And of course I woke up too damn early, so my brain is thankful that the only real work that I’ll be doing today will be the stuff that I can address by mail. Which leaves all of the phone calls for tomorrow. 😳 Yay. 😟

Last night wasn’t totally lonely though. Brianna also stayed at home, although she was also babysitting for her sisters, so we ended up keeping each other company via messages up until the ball dropped at midnight and then a while after. β˜ΊπŸŽ‰ I think my adulting may be rubbing off on her, because a lot of what we talked about was both of our growing lists of “Shit We Gotta Do” in the next week or two. 😏 I mean, nobody is really a fan of responsibility, but I think it made her feel good (the same way it does me) to spend some of her evening coming up with a game plan of her own. πŸ“’πŸ–ŠπŸ‘§πŸ»

I wish that I didn’t have to take Cassi back home earlier last night, but she did end up staying later than we originally planned. It was a rough, dark, rainy, stressful drive up to Columbus in that horrible weather – with 80% of the traffic still breaking the speed limit, and the other 20% either scared, creeping slowly, or completely stopped along side of the highway as they waited for the rain to stop. β˜πŸŒ§πŸ˜―πŸ˜£πŸ˜§πŸ™ˆβ›ˆπŸŒ§ While she was here though, we started watching a new Korean rom/com/dram called Strong Girl Bong-soon. It’s strange how easily I take to Korean songs and shows now that I’ve been doing it for a bit. πŸ˜πŸ‡°πŸ‡·

But yeah… this is kind of a rambling post since it’s been a leisurely kind of day for the most part. All of my upcoming doctor appointments are still heavy in my mind though… I’m just trying to not let them bother me today. 😟 I will say this though. I haven’t been feeling great for the past couple of weeks. 😐 Not awful, but not how I normally feel either. So while I’m not gonna try to predict anything when it comes to my upcoming tests, I think I’m subconsciously getting myself ready for some potentially bad news. πŸ€·πŸ»β€β™‚οΈ

It doesn’t help that I’ve been having a lot of anxiety filled dreams lately as well. 😳 Not exactly nightmares, but dreams that definitely had a negative feel. And twice now I’ve had dreams where I died. πŸ˜• One was strange… I had already passed away, but I was still around to console people and to help with all of the arrangements needed in that sort of circumstance. 😬 But the bad dreams, the specific “not feeling well” things… right now I am choosing to attribute it all to the Wellbutrin that one of my docs put me on. πŸ€’

I haven’t felt this mentally and physically shitty in a long while. πŸ˜” And it’s so much so that I’m going to stop taking that new med until my next appointment with that doctor, so I can let him know the side effects that I’ve been experiencing. Over the years I’ve probably tried half-a-dozen different meds to help with depression or anxiety, and never have I made it past a month or two before the side effects outweighed the potential benefits – and I’m pretty sure this one will be the same way. 🀨 I’ve also got something more immediate for anxiety, but I haven’t noticed any bad side effects from that one, so perhaps I’ll be able to keep one-out-of-two in my rotation this time.

Alrighty then… time for some football. πŸ™‚πŸˆ Ready to push the scary thoughts to the back again for now.

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)