Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. 😕 I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. 🙁 That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I now know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. 🤓📚 And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. 😒

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. 😳⏱👨🏻‍⚕️ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. 😏🤷🏻‍♂️

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Miserable

What an awful night… and I’m not sure if it’s over yet. I don’t know if it was something specific that I ate, or a combination of the different things that I ate… but yeah, spending every couple of hours in the bathroom yacking was not how I anticipated last night going. And this is a little gross, but the main taste coming back up was the sauce from the meatballs… so I don’t think I’ll be able to eat any more of those.

And of course it had to start right after I decided to message some lady last night on Facebook about a camera that she had listed for sale. I told her I’d come in town as soon as I was up and around the next day, and now I’m all barfy and bleh. 🤢 I think I’ve entered a window of a couple hours where I should be okay again though, so the deal is still on. (My throat feels really effed up now, though… I’m hoping that what I’m feeling isn’t serious or permanent damage around my thyroid surgery area. 😧)

Hopefully it actually works like it’s supposed to… because I’ll probably use it as a camera that I just keep in my car for moments when I need a “better than my cell phone” camera but didn’t realize it until that moment. It’s a Canon SX210, which came out in 2010, but it’s 14MP and it’s got a 14x zoom lens – which is pretty good for a little point and shoot. Can’t beat the price of twenty bucks, though… which is low enough that it outweighs my aversion to interacting with the camera’s human former-owner to get it. 😏

Checking In

Haven’t been able to shake this funk. 😕 Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now. 😔

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery. 🤕 The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day. 🙏🏻

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point. 😷💉😐 It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this. 😔 They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup. 😒 Next on the agenda, though, is my first full appointment with the new shrink on Monday. 🙄 I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.

Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got back home I learned that Christina was gone. 😔

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

New 360 Cam Tests

Not gonna lie, I’ve felt miserable ever since the surgery. Zero energy. I’ve only been out of the house a couple times. Once to go through the drive thru to get some pop, and then another time to stop at the BK and gas station near Rockbridge to pick up some essentials and a Whopper meal. Not a big fan of everyone staring at the huge stitched gash across my neck… but the stitches come out tomorrow, and I’ll hopefully get the news about how bad it is or isn’t. I suppose it’s a positive sign that I didn’t get an early call from my surgeon before my appointment tomorrow, but I don’t wanna get ahead of myself.

But while I was in Rockbridge I took my new Insta360 One camera for a test drive. It’s a 360 camera like the last one I had, but it also has software that allows you to “control the camera view” after you’ve recorded – since it sees and records in all directions. This creates a standard HD video, but the “movement” of the camera has been dictated by either control points that you select yourself or automatic focused tracking. I’ve only done the editing on my phone so far, and there are some glitches, but at least I had the energy to try it the other day.

I haven’t had the oomph to go out and shoot a traditional 360 degree video that the viewer can control, but maybe I’ll set it up out in the front yard in time lapse mode and cover that type of test as well. So far I’m impressed, even though I really don’t know what I’m doing with the software yet, and I like how it erases the selfie stick – making it almost look like you have a drone that’s following you rather than a camera on a stick. And their stabilization algorithms are amazing from what I can tell so far.

Fun Facts: Since the surgery I’ve essentially done nothing due to the lack of energy. And there’s only been one day where I haven’t accidentally fallen asleep in my chair at least one time. Feeling tired, but not sleepy, but ploop… I’m out. It hasn’t affected my sleep much, thankfully, because it seems I can’t get enough of it. I also haven’t shaved, so I look like a hobo… being worried about shaving around my incision and slicing up all the stitches. That’s on the docket for tomorrow evening though.

Meh… that’s all I’ve got really. Just wanted to check in and drop this test footage. I don’t even have the oomph to go back through and insert emojis… heh

Exhausted

The experience at the chiropractor today was fairly positive. I wasn’t even sure I was going to be able to make myself go in town for it after sleeping only a few hours and waking up barely able to take a step again this morning. 😟 By the time I took a shower and got dressed, I was almost done… but knowing that my car would evenly heat my back and butt on the way was just enough to keep me focused.

I’m already self-conscious about anyone seeing me like this, all hunched over, walking super slow with a cane… and yayhow lucky for me… the chiropractor’s office is downtown, and the effing Art Walk is going on – so there were people everywhere. 😣 I parked off of the road though and was able to slowly sneak in, with a nice older lady who saw me coming from inside and opened the door for me – joking as she left that it would be ten dollars for the extra service. 😏 I really appreciated that, because I’m sure she could see in my face how I felt, and she was sweet and wanted to give me a little levity that didn’t come off as pity.

The doctor was nice (they are considered doctors right?) and seemed to genuinely care about what he was doing. Asked me loads of questions, and manipulated my legs in all sorts of awful ways during the exam portion. Did you know that there’s an “excruciating pain button” on the back of your knee? Cuz there is. Heh… I told him not to worry about doing things that would hurt, since I knew that it would help him diagnose. His conclusion was what I hoped/figured… most likely “just” an irritated disk with inflamed areas that are royally pissing off my sciatic nerve. (Which is what the “excruciating pain button” is connected to.)

Sadly, he told me to stop putting heat on it… the only thing that really makes the pain temporarily go away. 😒 I’m supposed to ice it as much as possible over the next few days, as well as move as much as possible – within reason, of course. I’m supposed to go see him three more times next week. I’m glad that he’s willing and able to jam a bunch of treatment into such a short time, but I’m nervous. 😳 Today kicked my ass. I mean, the stuff that he did to relieve the stress on the muscles actually did work, and I was able to stand up straight for a few moments afterwards, but the goody was only good enough to get me home. 😔 I don’t know how I’m gonna be able to do three chiropractor appointments, a blood draw, and an ultrasound all being jammed into one week. (My fault for not getting my blood drawn already, but I sure didn’t anticipate this back shit.)

Okay, that’s about enough for now, but don’t be surprised if I come back to this topic. It’s really wearing me down, and “putting pen to paper” helps me to feel better, at least getting it out of my head.

Brrr… Bleh

Not feeling great today. My neck is fine, just feeling kinda woozy and bleh… for now I’m gonna blame the Whopper and fries that I had late last night. 🤢 I don’t have the furnace on yet, so I woke up to a chilly house – and then when I went in the living room and turned on the space heater, it made some sputtering and popping noises before the fans began to deliver cold air. 😒 I can’t complain though, because I got this thing cheap at the HFH Re-Store years ago, and I’ve gotten more than my money’s worth out of her.

I hopped on Amazon and found an oscillating ceramic heater for a decent price, so I should have that in a couple of days. I dunno, I’m one of those weird folks that would rather have a cold house and then heat only the area that I’m occupying, so even though it’s a new expense – it still helps me keep overall heating costs down, or at least that’s the story I’m going with. (Always needing to justify anything I buy for myself.)

Still debating how I’m going to spend the bulk of my day. I’d like to get a little bit more stuff done that I’ve been working on, but that’s gonna be based on how I end up feeling now. I was considering doing some work outside… I mean, my yard guys take care of the weed whacking and mowing, but there’s all kinds of other stuff that needs trimmed or tended to. That’s definitely going to wait now. I’m sure the neighbors are at the point though where they glance over and grimace 😑 so I do wanna get on that soon.