Gap

I know it’s been a good chunk of time since my last entry, but I’m not even gonna bother going back to catch up on what I’ve already written… because honestly not a whole hell of a lot has been different, so I don’t have that much to write about. We’ve had a couple decent snow storms, and a couple days where the temps were in the negativesΒ in the morning, so that’s managed to keep me at home just as much as my normal anxiety issues usually do. 😏

One out of the ordinary thing… I did take a trip to ‘Da Boat with Bri for two nights last week. 😊 We’ve talked about it for months, and have had it in the planning stages for the past several weeks – so we were relieved to have pulled it off, considering that both of us have any number of things that could have popped up to wreck the plan. 😳 Last time she was down there with me was years ago when Dezzy also came along, and they couldn’t even get onto the boat back then.

So of course that’s why we were really looking forward to this trip, since she could see and do everything along with me this time. We took a bunch of outfits and props and shit, just in case we decided to do baby belly photos, but it was too easy to just be lazy in the room or going up to the boat to have fun… so very few pics were actually taken, and that was absolutely fine with us. πŸ˜‹ Our luck would come and go, but it was good enough at times that I could actively see the gambling bug taking hold of her brain right before my very eyes. πŸ˜… Heh… it wasn’t really like that, but she did have a good time and played enough to where she developed favorite machines and everything.

This past week or so has been nice… not having any appointments, not forcing myself to worry about any responsibility stuff. 😐 Heh… that sounds bad. I just mean that I let myself take a break from all of the adulting for a while, although I’m picking back up where I left off here in a bit. (Catching up on the bills that have been stacking up in the mean time) Oh… I do have another “since our last episode” story that I almost forgot about. It’ll be coming up a bit later, if I manage to get through all the bills this evening…

But this trip… I dunno… the more that I think about my medical stuff, the more that I want to do stuff with my friends while I still can. πŸ€’ I have no reason to think that I won’t be able to do things for years to come – but just in case, ya know? Even Dad, a while back, reiterated that point to me a few times… that I need to stop worrying so much, and sometimes just do the fun thing while not worrying about anything else. πŸ€·πŸ»β€β™‚οΈ

Advertisements

Getting By

Heh… I don’t really visit my own site, so I had to chuckle when I clicked over and was reminded that the title of the last entry was “Tired Of This Shit” because I was like, “Yeah, that sounds about right.” 😏

Things have been rough this past week too, because why wouldn’t they be, eh? πŸ™„ Gah… I’m trying not to bitch even more than I already have been, but this week was loaded with appointments – so of course I had to start it all off by being sick. 🀒 You know, I’m not even gonna cover how this week was… I’d rather just be thankful that the week is over, and that I think I’m about back to 100%. πŸ€·πŸ»β€β™‚οΈ Or at least what passes for 100% for me these days.

Only appointment I had to cancel was the dentist, and that’s because it was the first appointment of the week – right when I was feeling my worst, and in the midst of a shitty 36 hours of not being able to sleep. Great way to start the week. I guess there wasn’t anything remarkable about any of the other appointments… if anything, they went pretty good… it’s just been a little exhausting being sick, not being able to sleep, but still getting up around dawn each day to make it to this place or that place.

Today wasn’t bad though. I knew I felt good enough to eat something, even though nothing sounded good, but then since we were out that way we decided to stop at Frisch’s Big Boy for lunch. πŸ™‚ Our eyes were both a little bigger than our stomachs, but at least that meant goodies to take home. Plus we had the nicest, most genuine waitress that I can remember having for a long time.

So now it’s a couple days off before another appointment Monday, and then the follow-up with the endocrinologist later in the week. πŸ‘¨πŸ»β€βš•οΈ Four tubes of blood for several different tests, information from the scan at the hospital a while back… this will be my first appointment since then and, believe me, good or bad, waiting for info like this isn’t easy. πŸ™Β That’s probably part of the reason that I’m having even more trouble sleeping than usual.

Grumble

I had Bri around for a few days. I hadn’t been able to spend much time with her since Christina passed, partly due to schedules, partly due to my radiation stuff still going on… but yeah, the last few days have been nice with her around. I don’t need to entertain her, there was plenty of Netflix, Plex, and YouTube, and we were both probably more productive with whatever stuff we needed to work on than had we not been each other’s company. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Had to wake up before the sun rose this morning, to make sure I’d make it to my 8-o-fucking-clock doctor appointment, and I’m still in a shit mood about it. 😠 I’ve never been excited about any type of mental health care… heh… and I suppose it shows sometimes, but yeah, this was my first real session with a shrink shrink, and getting medications that he thinks will help me be less twitchy. Meh… I’m trying to not even think about it much right now and I’m gonna just see how it goes.

I can’t be bothered with all that stuff right now though because, yet again, I’m doing the monthly fight to get my workers comp medications. 🀬 You know, the same medication that I’m apparently being accused of not getting filled and not picking up like I should. Is that what they’re trying to use against me? That they force me to completely run out and sometimes have to wait days before the next prescription is finally approved? Are they holding that “delay” against me? Yeah, I don’t feel like talking about that right now. πŸ˜’

I swear though, next month’s calendar is already peppered with doctor and other appointments. Half of them are actually still related to the thyroid cancer treatment, but now there’s PCP appt, workers comp doc appt, thyroid stuff, talky shrink, pill shrink… bleh… it’s making me tired just looking at it. Gonna try to continue to make some changes at my next WC appointment as well, which might not go easily… I’m just tired of going to a pain management place while still being in pain each day. πŸ˜– Something obviously isn’t working quite right and I deserve to have it changed in order to improve my treatment and my condition.

Yeah… already done with today, man…

Checking In

Haven’t been able to shake this funk.Β πŸ˜• Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now.Β πŸ˜”

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery.Β πŸ€• The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day.Β πŸ™πŸ»

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point.Β πŸ˜·πŸ’‰πŸ˜ It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this.Β πŸ˜” They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup.Β πŸ˜’ Next on the agenda, though, is my first full appointment with the new shrink on Monday.Β πŸ™„ I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.

The Rest of My Month Looks Fun

  • γ€°PharmacyΒ  /Β  monthly visit to jump through hoops for meds
  • γ€°PsychiatristΒ  /Β Β intake appointment
  • γ€°DentistΒ  /Β  temp crown removal and permanent crown installation
  • γ€°EndocrinologistΒ  /Β  injection #1 prior to 131 treatment
  • γ€°EndocrinologistΒ  /Β  injection #2 prior to 131 treatment
  • γ€°FMCΒ  /Β  nuclear medicine department for radioactive iodine (131) treatment
  • γ€°HomeΒ  /Β  (one week of isolating myself from the humans)
  • γ€°FMCΒ  /Β  full body scan 7 days after 131 treatment
  • γ€°PsychologistΒ  /Β  first “real” counseling session
  • γ€°Rehab/PainΒ  /Β Β monthly WC appointment

Spent most of this morning on the phone, trying to wrangle all of my other appointments around the iodine treatment schedule – since that’s the one that is the most important, and the one that effectively removes a week of possible scheduling time from my life.Β πŸ˜’

EDIT: Just got off of another call with Dr Walter’s office. We’re now trying to figure out how much of a pain in the ass it’s going to cause… me being seen by his PA rather than directly by him, because Dr Walter is my “physician of record” when it comes to anything related to my workers comp claim – and they loveΒ finding any reason that they can to deny me treatment or medication. 😠 This sounds like it will be a work in progress, and we probably won’t know what the negative side effects are until they happen.

Overbooked / Understaffed

Not thrilled with how my dentist appointment went yesterday. The root canal, to prepare for a crown, was first – and I ended up spending two hours in the chair. Some of that was waiting for the numbing agent to work, but a lot of that time was because she had her office overbooked – and she kept working on me a bit, leaving for a bit to work on other patients, then back to me again. She had to have done this about a half-dozen times… enough that by the end of it all the numbness was wearing off.

Now, I know that what she was doing with my tooth was difficult, and she had to use different tools and try this and that… but in my opinion, once she started working on me that should have been it. And the “rooms” are actually somewhat in the same common area, so it’s not like I can’t hear her working with someone else during the moments she was taking a break with me. And when I said “by the end” it didn’t actually mean that she completed the task. It means I had enough of the pain and the pauses and I told her to either get it wrapped up or put a temporary filling in it and I’d return at a later date when she could actually finish uninterrupted.

I honestly wouldn’t go back to her if the impression hadn’t already been taken of that tooth, and the process of shaping the tooth for the crowd having already been started. But the second dentist working there, after they numbed me up a second time, she came in and got my wisdom tooth out in about five minutes. Granted, her job was just down and dirty with much less finesse required, but I was thankful to get it done and get out of there. It was an awful sounding process… lots of cracking, breaking, digging… *shudder* I’d hate to have actually seen it from a 3rd person point of view.

My entire day after that appointment was fucked… think about two hours of having my mouth pulled this way or that way, opening as wide as I can, and then of course all of the actual trauma to my mouth. Couldn’t even close my mouth during the times where she wasn’t in the room, due to the bite guard. Felt like someone hit me with a 2×4… it kept me from falling asleep and woke me up a few times during the night once I did. So yeah, one of my worst dentist experiences by far. As soon as the crown is in and I know that I can’t be messed with, I’m gonna make sure someone hears my complaint. Take two hours on my mouth, fine, but don’t go running away so often that half of the time in that chair was spent either watching TV or micro-napping.

Checked Boxes

I probably shouldn’t feel as relieved as I do right now, considering that I’ve still got biopsy planning to do in a couple of days, but it sure feels nice to be done with the lower back treatments. Even though I’m still having some issues with my neck, tonight feels totally different than the past few nights. πŸ™‚ Just knowing that the “every other day” of at least that particular matter is done with for now… it has taken a surprising weight off of me. Especially because the treatments really did help, and I’m feeling so much better than I did when the symptoms first appeared. I’m not back to normal, but I’m getting closer with each day that passes – and that’s all that I could really hope for.

I’m not pushing my luck, so I’m not going to do anything too physical for a while (and I’m gonna keep easing back into it as I do)Β but I’ve taken my improved mood this evening and did a little picking up around the house, went through my closet and picked out a ton of clothes to donate away, and still plan on getting all of my legal documents sorted, stapled, and ready to sign in front of a notary tomorrow.

And this next stuff… it’s bad news… but it’s not “negative” in the way I was meaning the other day, when I said I didn’t want to post about so much negative stuff. Jim’s ex-girlfriend Alex… I thought her mom had actually passed away a couple of days ago, but it turns out they decided to keep her on life support (brain death) long enough for her to be able to donate organs and tissue to as many people as possible. 😒😊 Heartbreaking for their family, obviously, but it’s good for them to know that even in death their mom was able to keep helping some people. πŸ™πŸ»

And then another friend, who’s actually a little bit younger than me… he unexpectedly lost his son a few days ago. 😟 Losing any relative is hard enough as it is, but I can’t even start to imagine how a parent must feel when their son or daughter dies before them. I mean, it’s just expected that kids will almost always outlive their parents, so it seems that muchΒ more unfair when it doesn’t work like that.

But I’m gonna jump back into this little bit of work that I’m doing, so I can wrap it up and then aim some boiling hot shower water at my neck for a while. πŸ”₯πŸ”₯😳🚿πŸ”₯πŸ”₯ I’m hoping to sleep better tonight than how it’s been over the past few nights, so I won’t feel more beat up than usual when I head into town for a few things tomorrow.