One More Day Won’t Hurt

Only slept two hours last night… thinking about the call coming from the doctor in the morning. However when I woke up I didn’t take my phone out of “do not disturb” mode, so I see that I have at least one voice mail message… but two hours of sleep + important medical phone calls didn’t mix today. πŸ˜” I’m exhausted and it isn’t even dusk yet, so I’m gonna go to bed really early tonight, take some Tylenol PMs as well, so hopefully I’ll not only sleep a ton – but also wake up early in the morning to check my voice mail and return calls right away if needed. In fact, I’m gonna go ahead and turn off all of my electronicals now.

So, yeah, I’m stumbling a bit at the start, but I’ll get it figured out here soon…

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Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…

Woozy & Wobbly

Got my few hours of sleep, spent another hour just trying to get up and get moving so I could head in town… but then I stepped outside, and I don’t know if it was the heat or lack of sleep or what, but I instantly felt woozy and a little dizzy. 🀒 So despite my aversion to making phone calls, I gritted my teefs and phoned up the doctor’s office rather than driving all the way in there, not feeling the greatest.

Left a message a while ago, letting them know that I needed to get the next scan scheduled, to also reschedule my followup appointment with them after that, and also that I’d need to know when / and for how long I’ll need to stop taking my thyroid meds – and if I’ll need to make the same temporary but drastic changes to my diet like I did last time. πŸ˜•

A few hours later… still no call back. πŸ™‚πŸ€·πŸ»β€β™‚οΈ And that actually makes me feelΒ better. I guess it makes me feel like my condition isn’t as “Shit, we need to hurry up… call him back right away.” as I sometimes think it is. 😏 So yeah, just waiting for word either today or Monday, and of course once I get all the details I’ll be sharing most of them here. Hoping that I can make something good of the weekend in the mean time.

Trying To Not Read In To This

I got a message two days ago from the doctor’s office that is handling my thyroid cancer treatment. My next session with the radioactive iodine treatment, which should be my final session (if everything goes well), was scheduled to start near the end of July… but they now actually want to schedule that as soon as possible. 😐 They asked me to call in yesterday so we could start making a plan, but to be honest the message had me a little too shook… πŸ˜₯ and since I was actually having a decent day yesterday, I didn’t wanna risk nuking that by bringing all of my thoughts back to the “unknown” about what’s remaining inside me, if anything.

That’s also why I took advantage of the day yesterday to get caught up with some things around the house, because I know that this next step is gonna be a bit of a nightmare. 😣 I have to completely stop taking my thyroid meds for a couple of weeks, and they were clear about how it could have drastic physical and mental side effects. (Also part of the reason that I stopped the Paxil, so I didn’t have one crap thing on top of another.)Β Then once the thyroid medication is completely out of my system, that’s when I’ll go to the hospital for the radioactive pill and another full body scan about a week later. πŸ˜•

Confession… I didn’t call them back today either. 😞 Instead, what I’m going to do is just go into the office tomorrow and talk to them in person. To be sure that I understand the details of the plan, to be sure that everything is scheduled properly… and also to see if I can catch some kind of vibe by the way that they speak with me about it. 🧐 Like I said, I’m trying to not assume that something has gotten worse just because they want to start things sooner. 😳 It could be as simple as being easier on their schedule, and just better for me (or anyone) to do all of this “second phase” stuff sooner rather than later anyway.

So yeah, that’s the next thing on the radar… movin’ in fast. 😟 And lemme tell ya’ something. πŸ˜’ Uncertainty, when it comes to something like this… it’s a special kind of slow, drawn-out torture. I’m ready though. I was doing good at keeping it out of my thoughts up until now – but whether I got that call a couple days ago, or whether we stuck to the original end-of-July starting point… either way the anxiety was gonna come. So I agree… let’s get this shit started. 🀨

Unrelated: I just updated my Windows 10 and all of my emojis now have thick black outlines. πŸ€”πŸ€·πŸ»β€β™‚οΈ

So Glad That I Prepared

What a morning. Felt like crap yesterday, went to bed early, got up early, drove my ass all the way up to Sawmill Rd, and about five minutes away from arriving at the doctor’s office – someone from my attorney’s office calls me to tell me that he just got an email from the doctor, and that my appointment had to be postponed. πŸ˜• I didn’t recognize the caller, and just wanted to confirm that nobody was trying to pull any BS on me, so since I was basically right there – I just continued on to the office and spoke with the receptionist, who confirmed it for me. Nice lady, super apologetic… but still… what a bunch of crap. 😠

I forget how it was worded in the letter that I got, but in no unclear terms it said that if I missed that appointment, my case would essentially be dropped and they’d no longer cover anything regarding my injury / disability. πŸ˜’ Granted, I was up there early, but I’m still pretty sure that if I called them a half hour before I was supposed to be there and said that I couldn’t make it – that “call off” or rescheduling wouldn’t fly. Not sure why there was a sudden change of plans, but I suppose I’ll just wait until the next phone call or letter to find out when I have to make that trip again.

So yeah, that two hours in the car was awesome for my knee. That’s unfortunately one of the bad positions for it, that “in between” bend that you’ve got in the car for the brake and gas. Cruise helped a little, but people don’t know how to drive, so even that I could only use for a couple of miles at a time while I gave my leg a rest.

Got home and decided to check in on FB real quick… and my buddy that lost his mom last month… it seems that his dad passed away last night. 😞 Some people might say, “Boy, maybe you shouldn’t use FB if so much stuff is sucking for people.” but to that I would say that if I didn’t get on Facebook to make the rarer-than-usual post or scroll through and “like” or respond to folks on there – I honestly wouldn’t have any communication with hardly anyone. πŸ™ And not everything is bad for everyone… and passive communications seems to be the only thing working for me right now, so… πŸ€·πŸ»β€β™‚οΈ

Looking at the silver lining for my morning though… yeah, my knee is kinda screwed again, but at least I didn’t have to go through the “don’t do anything that will hurt yourself” tests, which inevitably cause me to hurt myself in order to demonstrate my defect and disability. πŸ™„ Maybe the reschedule date will be in a little over a month, when I’ll be glowing with radiation again. 😏

Insufficient Quantities

Another half-work / half-shlubbing-around weekend day. 😐 Cassi had the day off, so I went and got her so I’d have some company (and a helper) and so she could have time away from home. So, like the last time she was here, she’s been working on her stuff a little more and I’ve been working on my stuff more… using that bit of motivation that you get just from having someone hanging out. 😊

A couple different phone calls to the pharmacy this morning and they’re still having problems with getting any of my workers comp related medications approved. πŸ˜’ Ten minutes on the phone, then on hold, and then told that they were gonna have to make some calls to get things straightened out.Β  Haven’t heard anything back from them for the past couple of hours, so I’ll be calling again after I finish this entry. I’m not even trying to get them before last month’s supply ran out. πŸ€¦πŸ»β€β™‚οΈ

Heh… and as I’m writing this I got another text notification from the pharmacy saying that one item is on order, another is ready – but with a $12 charge, and no info about the third. πŸ˜• But this confirms the typical problems I have every month… because if there’s a charge on one of these, that meant it was run through my regular insurance instead of the one provided by workers comp. I guess twelve bucks won’t kill me though.

And even though it’s Saturday, I got an actual registered letter that I had to sign for, from that “home care” medical provider that I mentioned a few entries ago. It says that they’re letting me go as a patient (okay?)Β and that I need to find someone else… despite having never used their services and not knowing who this nurse is that supposedly tended to me a couple times. 😠 So I sent them another email, despite just talking to someone from there on the phone, telling them to knock it off with the bills and the mail. It’ll probably do as much good this time as it did last.

Meh… so that’s been the first half of the day. And yeah, I know that a lot of the entries in the blog lately have just been me bitching about the mundane and trivial, but believe it or not – some people do like keeping tabs on me and knowing how things are going, even people that aren’t relatives or close friends. It’s weird to have made what are essentially digital pen pals, from people who have found the blog and have then messaged me for one reason or another.

But I guess I better throw on some pants and head in town for the one script that I can pick up. πŸ™„ And like I told Cassi, the reason I go in there most of the time, and deal with this shit in person – it’s because people tend to work a littleΒ bit harder when you’re standing right there, telling them exactly how things are supposed to be, and nudging them in the right direction when needed.

Heh… this was quite a ramble for just some medical billing filling bullshit. 😏

“Customer Service”

Might as well continue my bitching into Tuesday.Β πŸ˜’ Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy.Β πŸ™ Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment.Β πŸ€• That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes couldΒ help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I couldΒ (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either.Β πŸ€·πŸ»β€β™‚οΈ

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.