Still Unpredictable, Of Course

I had a scenario today where I was gonna be a backup person in regards to getting a friend to the Sweet Corn Festival for the parade this evening. They’ve got a handful of kids, with some needing to be here, some needing to be there, so basically between scheduling and other helpers and everything – I said I’d be willing to take her or her “band kid” to the parade if needed, because it’s not like I’d mind even seeing the parade myself since it’s been quite a while.

But luckily my name wasn’t drawn, because I woke up today with my neck and back again just feeling a little bit off. 😟 I took my morning meds, including an Rx anti-inflammatory, so hopefully that’ll help… but yeah, after doing some work around the house yesterday, I’m definitely gonna take it easy today. 😳 I just don’t wanna pester my injuries to the point where it screws up my main SCF plan this weekend.

Like it usually is when I have lower back problems, I can’t think of anything specific that I did that would have triggered it… πŸ˜’ and now that I know the damage in my neck could actually affect nerves in my lower back and leg, it does make me nervous when I notice anything different. But just knowing about the damage in itself causes me to be more “aware” about any unusual feelings, and more alert to any changes in general.

So it’s NBD at the moment, but I think I might sleep in the recliner for the next couple of nights – since that’ll keep me from flopping around in bed like I usually do when I sleep. Hopefully if I did tweak something in my neck it was just minimal, and if I try to sleep in a more “still” manner and maybe activate “robot head” for a couple of days (where I either just move my eyes, or move my entire body if I wanna look in any certain direction)Β when I need to look around, I can keep things from getting worse. ‘Cuz this has happened before, and it doesn’t always end with huge pain and the temporary need for a cane.

Just another aspect of testing what I can get away with in my attempts to avoid becoming a potato. πŸ€·πŸ»β€β™‚οΈπŸ˜

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Sweet Corn Festival

A few months ago, when I was still looking at the then-upcoming schedule of medical stuff, it looked like everything would be wrapped up well before this year’s SCF in Millersport. It’s tradition that me, Jim, Adam, and sometimes Brad will meet up for at least one of the days there to walk around, catch up, and see how many former classmates or teachers we can spot. But Jim messaged me yesterday to let me know where and when he’d be there… and it wasn’t until then that I realized that this week was already festival week. 😯⌚

The surprise is from bouncing back a little more slowly than I originally anticipated, so as my mind has been on all that stuff, I guess it just snuck up on me. I’ve got every intention of going… and in fact, I’m pretty sure I’ll be able to handle it much better than last year. 😬🀞🏻 Last year, I hadn’t had my surgery yet, so my energy levels were all over the place, and I was also stuck using my cane at the time. πŸ‘¨πŸ»β€πŸ¦― I can’t remember if it was for my back or for my knee, but I do remember that I only had enough oomph to make a single meandering “pass” with them from the ride area through to the food booths a bit past the covered bridge area. πŸ˜•

I was trying to “mind over matter” myself through the evening, but it just wasn’t happening. I feel kinda bad about how I was, because I know that my friends were concerned about me – and seeing me struggle to just walk around probably ended up being somewhat of a buzzkill for the rest of their evening. 😟 I think I was there for an hour at most before I realized that I was gonna have to call it a night, so it was nice that they walked me all the way back to where I parked so we could get in as much time as possible. There were a lot more unknowns at that point in time.

Since then I’ve had my thyroid removed, been dosed with radioactive iodine twice, been to doctors and a chiropractor for my back, learned of some new damage in my neck… but when it comes to the thyroid stuff, most of that ended up going about as well as it could, and the new “neck stuff” isn’t something that’s an urgent or immediate issue – so this year’s Sweet Corn Festival meet-up should be a heck of a lot better for all of us than the last one. πŸ™‚πŸ€·πŸ»β€β™‚οΈ I suppose anyone with visible health problems feel the same way… for certain moments in time you wanna act like nothing’s wrong, you don’t wanna let your friends or family see how bad it can get, ‘cuz you don’t want them worrying about you – whether the worry is justified or not. You want your “normal thing” to be that normal thing.

Meh… I’m just thinking out loud here. πŸ˜’ I’m obviously still not 100%, so I think I’m talking about it to keep myself motivated and optimistic. πŸ€” I did fix my sleep last night, something that actually surprised me, so I (hopefully) know what I need to do to not screw up my sleep or energy the day before we’re supposed to meet up. (Man, am I trying to jinx myself lately or what? 😏)Β I’m just really looking forward to the possibility of having a normal day with my friends at our old stomping grounds, with the thoughts of all my current “other stuff” being pushed from my brain as we have a good time being reminiscing old farts, eating overpriced crappy-but-awesome fair food, and maybe seeing some other old fart friends in the process. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

“Feels Like 109”

I had only been checking the upcoming weather for rain, thinking about my grass… but this evening I got an alert on my phone, advising about the extreme heat warning that will be in effect until Saturday evening for basically all of Ohio. 😳 I’m pretty sure I haven’t mentioned this, but I’ve already had two “spells” where I was outside for a relatively short time (but in the heat) where I got lightheaded and woozy enough that I knew it was time to get my ass back inside. 😬🀒

So it was strange when I saw that alert. Something whereΒ (up until recently)Β normally I’d just grumble to myself and move on, but when I read that the heat index could reach 109 degrees it actually made me anxious enough that I momentarily got butterflies in my stomach. πŸ˜• Heh… I know that sounds stupid, but heat regulation is an issue for me right now, and seeing that number… I mean, holy shit. 😯πŸ˜₯Β NBC4’s weather people are already talking about the “cool down” next week… but they’re still talking about low-to-mid 80s. πŸ™„πŸ˜’ It feels like this miserable weather is never gonna end.

Thank God that me and most folks I know have AC, but there areΒ folks that I know who only have fans… and it does cause me to have concern for them. Places are giving away fans, the power companies talking about preparing for extra load on the system, various buildings will be operating as “cool centers” for people… 😟 so I suppose all of the “scary” talk, combined with how I feel, is probably making me worry for those other folks more than I maybe need to. πŸ€·πŸ»β€β™‚οΈπŸ˜• But yeah, next couple of days are gonna be rough.

Everybody, please try to keep as cool as you can… stay safe…

Run Down

Not bitching, just noting… I’m really starting to feel the affects of going without my thyroid meds. πŸ˜’ I had every intention last night of doing those two things that I mentioned, and while I did get the grass seed down (and the rain clouds that were coming dried up, thanks) I absolutely crapped out as soon as I came back in.

I remember washing my hands, to get rid of whatever the “blue” is on all of that seed, but after that – I was just out. 😴 I don’t even remember falling asleep, but it couldn’t have been much past dark. I’ve experienced a wide variety of side effects from the various meds I’ve tried or been on, but never has my energy dropped to zero (in what felt like)Β instantly like that.

And surprisingly, even after sleeping a long time last night, it doesn’t seem to have done anything for my energy today. Thankfully nothing was on the schedule for today, so I’ve just been tending to Maven and hoping that this is just an anomaly – and not the lack of meds catching up to me and showing it how it’s gonna go for the next two weeks. 😬

I’ve yet to call my attorneys, to see if I should maybe try to reschedule the “independent” workers comp exam (which is currently scheduled a few days before the radiation dose) to another date, because up until last night and today things did feel sucky, but still manageable. πŸ€”πŸ€·πŸ»β€β™‚οΈ I suppose the next couple of days will help me figure that out on its own. I’ll admit though, this is gonna suck even if it just stays the same… so I really do hope this is just a hiccup rather than a sign of things to come.

The other symptom… feeling like I’ve got a much shorter fuse than usual, and less ability to bite my lip when I probably should. I guess it’s just a good thing that I’m not interacting with too many people right now. (But it is a good reason to consider moving my workers comp exam, I suppose.) Toni was the first person to tell me that I might notice that general feeling… and she’s still got her thyroid, but has that kind of reaction if she misses a few days for whatever reason. Makes me wonder if people with “anger management” issues might also have a funky thyroid and not even realize that could be part of the problem. πŸ€·πŸ»β€β™‚οΈπŸ€¨

Almost As Good As Medicine

When I’m having a bad day, and my energy levels just aren’t there, often I’ll feel bad for Maven. 😿 She’ll wanna play or follow me around or whatever… but since I’m not really doing anything – sometimes she’ll just sit and stare at me, sometimes she’ll flop down next to me, and sometimes she’ll just piss off to the basement to do who-knows-what for a couple of hours. 😏 But it’s weird that a cat, with just a certain look, can make you feel like you’re letting her down in some way.

But this weekend I’ve kept busy (off and on) and was doing enough “stuff” that she was actually getting a little bit twitchy. 😾 She doesn’t like change either, especially when it probably doesn’t have any reason to her, so whenever I would sit down and take a break she would join me. Almost as if she was relieved that I “stopped doing stuff” so she didn’t have to wonder what the heck I was up to and when I was going to stop. 🀨

You probably have to be a “cat person” to really get this… but this cat, when I first got her, she didn’t like to have her belly touched – let alone petted, rubbed, or scratched. 😯 But over the years, with just me and her here, it’s molded her into a critter who shares a lot of personality traits with me. Plus she absolutely trusts me now, and has turned into a kitty that (most of the time… heh) loves belly rubs. πŸ˜„

So, shortly after I finished folding, hanging, and putting away my laundry… using up the last bit of oomph that I had for that moment, I sat down on the floor for a short break and ended up with this in my lap… 😏😊

Sorry about the large blurred edges, but the only way I could record this properly was in portrait mode… and if I uploaded it “as-is” the video would be taller than the height of the actual page. But anyway, knowing how she used to be, seeing how she is now… this is one of the very few things that can take my mind off of all the bad things swirling around inside my brain, to where all I’m thinking about is how lucky she is to have me, and how lucky I am to have her… and that sometimes I don’t make too bad of a critter daddy, I guess. 😊

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. πŸ˜’ They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🀨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. πŸ€·πŸ»β€β™‚οΈ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that didΒ look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in thatΒ previousΒ situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. πŸ‘πŸ»

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill dealΒ  – which will hopefully be a one time thing followed by close monitoring. 🀞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessingΒ that’sΒ gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. πŸ€” It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. πŸ™‚ Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…