Overdue For One Of These

Had my monthly WC doctor visit today. Good timing for two reason… first, because it looks like we’re gonna get our first measurable snow tonight (possibility of 2 to 3 inches) and second, because my shoulder was bad this morning. 😣 Most of the time when I have my appointments with him, I’m in my typical / average condition. Not good, but not too bad. But luckily, every now and then, my shoulder has one of its little fits while I’m in the office so he can see in real-time what I deal with a lot of days. Of course I never want to hurt, but it’s like when you take your car to the repair shop and it just won’t “make that noise” for the guy… yeah… my shoulder was making all kinds of “noise” for the doctor today.

It kinda doesn’t matter though… πŸ˜• and that sucks. πŸ˜’ I mean, my treatment is based on my condition, and he already knows that’s part of my condition – so seeing it happening “live” isn’t gonna change anything about it. It’s hard to describe the frustration of just wanting to “feel okay” while also knowing that there really isn’t anything that can make that happen. 😐 (And yeah, I know, I’m far from the only person that feels that way.) I’m gonna have to ask him at my next appointment, how much WC is affecting what he’s able to do for me. Lord knows they look for any reason to fight even paying for the meds that I’m on now, so I could see where he might know that some options would just be “off the table” from the start.

Meh… gotta try to not dwell on that stuff. πŸ™πŸ» But that’s why I’m a little more twitchy than usual once a month. Every time my WC appointment comes around, it just brings up all the frustration that I go through, for treatment that just makes things tolerable, and the fun waiting and wondering if / when my pharmacy will be given approval for each of my meds, etc, only to do it all over again a month later. πŸ€¦πŸ»β€β™‚οΈ It’s just a shitty cycle that it seems I’m gonna be stuck in forever.

But like I told the doctor today… yeah, I might have times where I bitch about this stuff more than usual, but I also know that things could be a lot worse. I see the other people as they walk into the office… or, sometimes, as they’re rolled by in a wheelchair. 😟 I know that while my disability is definitely full of suck, there’s a lot of folks that have it a lot worse than me – so I try to keep my perspective. (But it doesn’t stop me from thinking that there’s got to be something out there that could still help me more.)

So, yeah, I haven’t done one of these rants for a little while… so there it is. πŸ˜πŸ€·πŸ»β€β™‚οΈ Honestly, if you took my doctor appointment off of today’s schedule, everything was about the same as any other day – a random mix of good, bad, frustrating, okay, painful, tolerable, etc. πŸ™„ It just happened that today, the worst of the tremors happened at the most influential time. So despite several paragraphs of complaining, I’m fine… just thinking out loud and getting shit off my chest like usual. πŸ™‚πŸ‘πŸ»Β It’s all good…

See, I’ll Still Ramble…

I had a good day out of the house yesterday. Well, afternoon anyway… did some “chore” running that I had to do, stopped off at a couple thrift stores, and then went out to visit with Dad for an hour or so before heading back home. πŸ™‚ Did quite a bit, relative to the same time several weeks ago, and it didn’t take too much out of me… but I did fall asleep way too damn early yesterday. πŸ™„πŸ˜ It wasn’t that “drained” type of sleep… I just went back to the bedroom early, figuring I’d watch a couple movies before I sacked out, but I ended up actually falling asleep around 7pm. 😴

Woke back up at midnight, watched the 2nd and 3rd Matrix movies (since I watched the first one again a couple days ago), then fell asleep near the end of the last one and didn’t wake up until around 10am this morning. πŸ€·πŸ»β€β™‚οΈ So it’s 11pm now, I’m in bed, and I’m tired – but not sleepy – so I really have no idea when I’m gonna fall asleep or when I’ll wake up. πŸ€ͺ Luckily the only thing on my agenda tomorrow is going out to see Bri at some point. She’s one of my friends that I didn’t want to see me in as bad of condition as I was for those several weeks, especially considering that she lost her mom to cancer last year. 😟

Two totally different kinds, so any symptoms shouldn’t be compared at all – but I just know that if people saw me during the really bad week or two, they could definitely get the wrong idea about how good or bad I was doing. 😳 But anyway, I’m feeling “better enough” now that I don’t think I come off as “concerning” anymore… at least no more than usual. 😏 So I’m 99% sure I’ll still end up seeing her tomorrow, it’ll probably just be later in the day than I was thinking when I talked to her earlier. She’s great though… and a little frustrated with me at the moment… because like she repeatedly tells me – she’s been through the worst of the worst with her mom, so she doesn’t want me to feel like I have to hide anything from her for her sake. πŸ˜ŠπŸ’•

But my little thrifting trip… it was productive as well. I got a couple shirts, picked up some cheap stereo speakers for Cassi’s receiver that she got, and then found this strange, lone drinking glass with the silhouette of just a woman’s black hair and old-school glasses. 🧐😯 It immediately reminded me of Mom… from a few of her photos when she was really young… and when I showed it to Dad, unprompted, he immediately saw the same thing that I did. 😊 So that was kinda neat, and such a random thing for me to have spotted on a shelf where I normally wouldn’t have even been looking. I’ll have to take a better photo of that glass and then find one or two of the pictures of Mom that it resembles. πŸ™‚

Even more random, Genesee was heading back home from a trip she had taken with her family over the long weekend – and at the same time that I spotted that glass, she sent me a photo of an exit sign that they had just passed under, showing that they were only a couple of miles from the Atlantic City Expressway. 😊🎰 So, yeah… even though I think about her every day, it seems like Mom wanted to make sureΒ that she definitely got our attention that day. πŸ™‚Β And it worked…

Sweet Corn Festival

A few months ago, when I was still looking at the then-upcoming schedule of medical stuff, it looked like everything would be wrapped up well before this year’s SCF in Millersport. It’s tradition that me, Jim, Adam, and sometimes Brad will meet up for at least one of the days there to walk around, catch up, and see how many former classmates or teachers we can spot. But Jim messaged me yesterday to let me know where and when he’d be there… and it wasn’t until then that I realized that this week was already festival week. 😯⌚

The surprise is from bouncing back a little more slowly than I originally anticipated, so as my mind has been on all that stuff, I guess it just snuck up on me. I’ve got every intention of going… and in fact, I’m pretty sure I’ll be able to handle it much better than last year. 😬🀞🏻 Last year, I hadn’t had my surgery yet, so my energy levels were all over the place, and I was also stuck using my cane at the time. πŸ‘¨πŸ»β€πŸ¦― I can’t remember if it was for my back or for my knee, but I do remember that I only had enough oomph to make a single meandering “pass” with them from the ride area through to the food booths a bit past the covered bridge area. πŸ˜•

I was trying to “mind over matter” myself through the evening, but it just wasn’t happening. I feel kinda bad about how I was, because I know that my friends were concerned about me – and seeing me struggle to just walk around probably ended up being somewhat of a buzzkill for the rest of their evening. 😟 I think I was there for an hour at most before I realized that I was gonna have to call it a night, so it was nice that they walked me all the way back to where I parked so we could get in as much time as possible. There were a lot more unknowns at that point in time.

Since then I’ve had my thyroid removed, been dosed with radioactive iodine twice, been to doctors and a chiropractor for my back, learned of some new damage in my neck… but when it comes to the thyroid stuff, most of that ended up going about as well as it could, and the new “neck stuff” isn’t something that’s an urgent or immediate issue – so this year’s Sweet Corn Festival meet-up should be a heck of a lot better for all of us than the last one. πŸ™‚πŸ€·πŸ»β€β™‚οΈ I suppose anyone with visible health problems feel the same way… for certain moments in time you wanna act like nothing’s wrong, you don’t wanna let your friends or family see how bad it can get, ‘cuz you don’t want them worrying about you – whether the worry is justified or not. You want your “normal thing” to be that normal thing.

Meh… I’m just thinking out loud here. πŸ˜’ I’m obviously still not 100%, so I think I’m talking about it to keep myself motivated and optimistic. πŸ€” I did fix my sleep last night, something that actually surprised me, so I (hopefully) know what I need to do to not screw up my sleep or energy the day before we’re supposed to meet up. (Man, am I trying to jinx myself lately or what? 😏)Β I’m just really looking forward to the possibility of having a normal day with my friends at our old stomping grounds, with the thoughts of all my current “other stuff” being pushed from my brain as we have a good time being reminiscing old farts, eating overpriced crappy-but-awesome fair food, and maybe seeing some other old fart friends in the process. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Oh Yeah, I’m Still Quite Broken

I enjoyed having some company for a few days, but the one reason why I’m glad that she’s back at her own house now? So I can have my damn chair back. πŸ˜… She’s like me… for whatever reason, we both find the recliner to be the best place to sleep. So while she’s here she sleeps in the living room and I sleep in my bedroom… on my crappy mattress. πŸ˜’ It’s not always bad… but the odds say that you’re more likely to wake up feeling like shit than not – and every night that she’s been here recently I’ve woken up wishing that someone would just put me out of my misery. 😣 Thankfully, hot hot shower “until the hot runs out” makes a lot of it go away.

I think that steroid injection did work, and I think it is starting to wear off… so I’m just having to get used to regularly waking up in pain again. It’s almost enough to make me not want to do an injection again – because, believe it or not, I can get used to the pain… but not if some magic shot makes it go away for a few weeks before letting it get me again. πŸ˜ͺ I’m not meaning to bitch though… I just wanted to say that I’m happy that I’ll be able to sleep in my recliner again and at least give myself a shot at feeling decent in the morning.

The past few days have been really good for me though. I went and did my own grocery shopping without any problems, and then yesterday I went with Cassi when she did her shopping… and at neither time did I feel like running from the store or stabbing anyone in the face. 😈 I think it’s because she’s one of the few people that I can feel human around, which sometimes lets me do human things. Lemme tell you, as weird as this stuff probably sounds to “normal” folks, it’s even more confusing and frustrating to me, the one experiencing it all. 😐

I’m not gonna make any concrete plans based on how I’m feeling after the past few days, but I will say that I’m gonna try to keep rolling with the positive vibes and see where that takes me. 🀞🏻 I’ve got some things in mind, but I don’t wanna pressure myself by laying it all out. See, it is possible to really hurt and still feel somewhat okay. πŸ€” Some days are obviously worse than others, but I have to convince myself that feeling physically miserable doesn’t always mean that my entire day will be destroyed. I know it’s possible.

At Ease

I’m doing my best to make the remainder of my evening peaceful. ☺ I’ve straightened up the living room a bit, I’ve got my new spiral bound journal/notepads and extra-fine tipped Pilot Precise V5 rolling ball pens sitting nearby (Mmm… office supplies… 🀀) just in case I feel like writing, and I just ordered the latest Pirates of The Caribbean movie on PPV so I have something to distract me from the “real” and transport me somewhere else.

See, when all I have to worry about is myself, I’m quite capable of not being a mess. 😏 But things like earlier today, where I was simply asked to a family gathering… something that I do appreciate still even being invited to… that messed me up for the better part of the day, feeling bad because I couldn’t make myself go – and knowing that I was letting people down again.

That’s definitely the “mom” in me – how it really does a number on me when something (even unintentionally) makes me feel like a disappointment. 😞 I just gotta remind myself, especially when I’m already struggling, that I can’t live my life to please others – and as long as it isn’t being done maliciously, there’s nothing wrong with that.

So once again I’ll finish this evening by hoping that the feeling continues into the next day, and that maybe my Sunday will truly feel like a day off – where nobody is counting on me for anything, so I can start the day with a clean slate when it comes to what I want to accomplish, if anything. I just really wanna start turning things around, and it doesn’t even matter where it starts. πŸ™‡β€β™‚οΈ I’m not giving up just yet.

Heavy

I’ve been basically worthless this week. I’m fortunate that nothing really required my attention, but that also made the prospect of being a potato far too easy. Not exactly sure what got me this time, other than the normal combination of things that I sometimes can’t process in a way that isn’t self-destructive.

  • One friend’s father died just the other day
  • Another friend’s mom has cancer that’s no longer responding to treatment
  • Another friend… she was just given a 50/50 chance of making it another year
  • And then a buddy of mine from school has leukemia and isn’t doing great.

People dying, friends struggling, so many folks I know that are deeply unhappy… and I wasn’t able to avoid absorbing too much of the feelings that go along with the knowledge of all of these things, combined with everything I already carry. A couple friends wanted to do something on the weekend, but despite kinda wanting to get out and do something as well – depression won, and I stayed in.