The Opposite Of Reassuring

This is the first time I’ve experienced this, probably because I was rarely sick when I was younger, so I don’t think I ever had more than one doctor that I would have regular appointments with… but regarding some of the things with my current condition, I’m getting conflicting diagnosis/treatment advice from two of my doctors. πŸ€”πŸ˜ In more ways than this I’m still a kid, so when I go to a doctor I listen to what they say and take their word as gospel… assuming that they truly know what they’re talking about, and are offering me what is definitely the best diagnosis and treatment plan. πŸ€·πŸ»β€β™‚οΈπŸ‘¨πŸ»β€βš•οΈ But I guess as with almost anything, people often end up with differing opinions. Sometimes differing quite a bit. πŸ˜•

Things have been less than ideal with me for a couple of weeks now, and this week I went back in for a couple of different appointments to discuss it. I tend not to bitch about it unless it’s really bad, but these past few days… on Wednesday I woke up early, took a short nap in the afternoon, and after waking up I wasn’t able to go back to sleep for 30 fucking hours. 😳 Doctor appointment number one wasn’t much fun, going in at the 24 hour point… I mean, I wasn’t even sure I was gonna be able to make it there and back… but at least it wasn’t like when you take your car to the shop so they can fix a rattle, but the rattle doesn’t happen. πŸ˜’ So at least Doc got to see when it can be really bad, and in a way I appreciate when that happens.

I dunno… I’m being kind of vague because I don’t really like talking about it in a lot of ways, so back to the point – I’ve got two doctors who essentially completely disagree with what the other is saying and doing, and I’m not sure exactly what to do with that. 😟 First reaction is to trust and believe that doctor who isn’t saying the scary things, but that may be the doctor who isn’t holding anything back. πŸ€·πŸ»β€β™‚οΈ Then I try to think about “what’s in it” for each of them, and even that doesn’t really help.

But in the next couple of days I’ll have to decide who I want to roll with, and that will decide how potentially fucked up my next few months could end up being. 😐 Gah… I know… vague. I don’t want people to worry.

Advertisements

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

What’s This?

Only got a couple hours sleep last night and then still had to wake up at 8am to get ready for my monthly appointment with Dr Walter. πŸ˜’ I don’t know how he does it, but he always seems to be in a good mood no matter what the time of day. If nothing else, he’s got a great “game face” for when it comes to dealing with patients. 😏 I told him how my left arm was literally like a limp noodle the day that I came home after my surgery, but how since then I haven’t really had any pain – thanks to the temporarily increased meds.

So it was a good visit, with nothing for me to really complain about. Like I mentioned to him, I think that sometimes the amount of pain that I’m feeling in my shoulder and in my neck is relative. When that’s the only thing that I’ve got to focus on, there’s a good chance I’ll notice it more and feel genuinely worse – but when I’m barely two weeks out from a major surgery, my old injury is the last thing on my mind as long as it’s staying at that moderate level of pain where it’s usually at.

I filled him in about the next steps that I’ll be taking with all of that, and we agreed that next month would probably be better for evaluating any changes, since I’ll have had plenty of time to heal from the surgery. I had to leave there and head directly downstairs to have more blood drawn for a thyroid panel, but I still left in a surprisingly good mood.

It’s weird… I haven’t had much to feel good about in a while, and in a way I still don’t… so having those hints of “good mood” just felt weird, since it then caused me to sit here waiting for something or someone to come along and ruin it. 😞 Like Charlie Brown said, “I think I’m afraid to be happy… because whenever I get too happy, something bad always happens.”

But with that little boost of positive energy, I did go ahead and throw the Insta360 One camera out there on a tripod in the front yard, set to time-lapse mode. One frame every five seconds, and I had one lens directly facing the setting sun, with the lens on the other side obviously completely shielded from the sunlight. 😎 I wanted to not only do a time-lapse, but to see how bad the stitching is when there’s such an exposure difference between the two lenses. In practice, it would probably be better to turn the camera 90 degrees, where both lenses would get a similar amount of bright light on them. 🀨

Meh… I’ve gotta recharge the camera before I can hook it up to the phone and export the video, so I’ll just drop it in here later once it’s done. In the mean time I’m gonna get a notepad and start documenting all the medical bill stuff, and try to figure out what I wanna cover at my PCP appointment tomorrow. Oy… too many doctors this week, eh? And it ain’t over yet…

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. πŸ˜’ They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🀨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. πŸ€·πŸ»β€β™‚οΈ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that didΒ look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in thatΒ previousΒ situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. πŸ‘πŸ»

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill dealΒ  – which will hopefully be a one time thing followed by close monitoring. 🀞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessingΒ that’sΒ gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. πŸ€” It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. πŸ™‚ Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…

Paying For Yesterday

I’m right in the middle of a “spell” with my lower back. πŸ™ It happens a couple times a year, and I’ve even been to the ER once (several years ago) while it was happening – and the scan or x-ray or whatever that they did, it didn’t reveal any damage or specific thing that could be causing it. (Because of course it didn’t. 😠) So, even though I woke up today essentially unable to walk or take steps due to the unpredictable random jolts of pain – I’m still planning on waiting it out, and then theΒ next time that I feel this coming on I’ll make plans to go to the ER again to see if I can get some answers.

It’s hard to describe the pain and that effect that it has if you haven’t experienced something similar. Cautiously and slowly taking each step, being unable to predict what movement is going to cause a jolt of pain that would knock me over if I didn’t have a wall to grab on to. 😳😒 Even just getting out of bed required five minutes of rolling, twisting, sliding, bending – all to find the one way that allowed me to sit up. And I do mean allowed. Because no matter how much pain that I was determined to accept, there’s a point where pain dictates what the body does, and when it doesn’t wanna allow you to put your weight on one leg, it’ll be happy to let you fall to the ground to avoid it. πŸ˜”

But anyway, today is the price that I’m paying for yesterday’s activities. I went up to Columbus to take Cassi to her doctor appointment, and it was actually helpful to spend so much time sitting in my comfortable car seat with the heating elements set to max. β™¨πŸ˜‹ I think that’s actually what allowed me to function as well as I was during the moments when we were out of the car. πŸ€·πŸ»β€β™‚οΈ I also gritted my teefs and made a bunch of phone calls to handle appointments and things that I’ve been needing to take care of. πŸ“žπŸ˜¬

I had $80 in free slot play, and $30 in dining credit, so after her appointment we went over to Hollywood Casino. By the time we got there we were both starving, so we opted for the buffet and absolutely poofed ourselves before we played. πŸ§‘πŸ»πŸ‘±πŸ»β€β™€οΈπŸ•πŸ—πŸ₯™πŸ”πŸ₯©πŸ₯“πŸŸπŸ₯—πŸ– I let her play on my free money, and I took the same amount in cash to play along side of her. By the time we left she had won over $240, and I was ableΒ to (again)Β walk away with the same amount that I took, which is absolutely fine with me. 😁 So that “Meh… why not?” side trip ended up being a good experience for both of us.

We then went to the huge thrift store across the way from the casino, and she picked up a handful of new black pants for use with her work uniform, along with some extra shorts and tops thanks to the unexpected winnings. πŸ’πŸ»β€β™€οΈ I found a couple of shirts that I liked, but no jeans. πŸ˜’ I’ve finally started looking for jeans that have a waistband that’s one size up from the ones that I’ve been wearing for the past many years… not something I’m too excited about… and I’m hoping there’s still a medical explanation that can eventually be fixed so I can stick with my normal “almost fat” sized pants.

So yeah, even though I felt miserable, and feel even more miserable today, I wouldn’t have done anything differently. πŸ™‚ I like when I can do something fun with a friend and it ends up actually really helping them out at just the right time. And when I got home… I was still hurting, but no worse than I had throughout the day… so I certainly wasn’t expecting this when I woke up today. πŸ€”πŸ€¨ I’m going to be taking it super, super easy for the next couple of days though, so I can give it some time to hopefully recover a bit. πŸ§˜πŸ»β€β™‚οΈπŸ™πŸ» I mean, I know I’ll get better – because I always have – but it’s still scary when your ability to walk becomes questionable at best.

Staying Busy

I woke up early this morning so I could go up to Columbus and help Leona out with a ride to one of her appointments. No other family was available, and this particular appointment was all the way on the opposite side of town – and, without putting all her business out there, taking a bus with the unwashed masses and trying to navigate her way there while doubling the time required to do so… that just wasn’t really an option. Silver lining, it took long enough that I was able to see Cassi after she got off work, right before I had to take off to make it to my dentist appointment on time.

  1. Two dumb birds, risking death for whatever it was they were doing.
  2. Many dumb birds, risking death because lounging in the road is fun.
  3. Dire-looking rollover accident near one of the bridges on the bypass.
  4. Semi car transport jams on its brakes and smokes out all of I-70 eastbound.
  5. How do you rear-end a car that hard on the freeway?

I’m really happy with how things went at the dentist. πŸ™‚ My teefs aren’t in the greatest shape, but I didn’t get even a hint of “Shame on you for not taking care of your mouf!” from anyone in their office. πŸ™Š It was an emergency appointment, so it was strictly for my single damaged toof, but we went ahead and set up another date for a cleaning, exam, x-rays, with a little time afterwards also scheduled for the fillings I’ll likely need.

The fix that they had to do was actually at the top of one of my upper teefs, at the gum line, so I was nervous that it would be too difficult to bother saving it. 😯 But she drilled it out, the other girl carefully glopped the filler composite and hardened it layer by layer, and now you can’t even tell that it was damaged. 🀩 (I told them just to match the color that the toof is now, because it kinda just “is what it is” by this point… heh…)

Feels good to get back to a dentist to get things started again. Like I told her, I’m not worried about looking pretty, because that ship has sailed, but I’d still like to keep as many of my original teefs as possible for as long as possible. Oh, and it didn’t hurt at all during the process… but wow… once I got home and the numbness wore off… holy cow. 😣 And to top it off, the pain moved from my mouf to behind my damn eyeball. Looking forward to going to sleep tonight and being a lazy bum tomorrow.

The Pot vs. Sins of the Kettle

It’s surreal what we’re getting to see from our government these days, and specifically from our President. Donald Trump, who has been caught on tape bragging about how he can (and does) sexually assault women, how he can’t even control himself or stop himself from doing it… the same man who has at least SIXTEEN different women who have accused him of sexual assault of one kind or another… again, this man is President of The United States… but there he is on Twitter, trolling Al Franken for taking an inappropriate photo with an allegedly sleeping woman – and giving him shit for lecturing other people on not being the type of person who sexually assaults someone.

I know, that’s a little hard to follow… but yeah, Donald Trump, proud sexual predator, focus of a dozen+ sexual assault claims including the alleged rape of a 13 y/o girl and the rape of his own wife – he’s lecturing another man accused of sexual assault, for lecturing others on sexual assault. I’m not joking when I say that this is legitimately making my brain hurt and my eye twitch.

I don’t know if Donald Trump forgets that he’s on tape bragging about how he grabs at women’s vaginas without consent, or if he remembers but just doesn’t care… but whatever is going on in that man’s head, there’s no doubt that he has some serious psychological problems. Perhaps he knows that some new information is coming down the pipe tomorrow, maybe regarding his son-in-law who was once again caught withholding Russian communications from the Senate – or perhaps it will be about his biological son, who was recently caught having secret communications with Wikileaks for months despite everyone in the administration denying it. And let’s not forget about Jeff Sessions and the perjury charges that he could be facing for the many lies that he has told congress.

Because if he didn’t tweet what he did in order to distract from any or all of those topics – then the man is simply psychologically damaged, because all that this is going to do is bring all of the negative attention back on himΒ  – along with reminding the world about all of the women who have made accusations against him. Oh… and it took him less than a day to tweet something inflammatory about (Democrat) Al Franken, when it has been more than a week since theΒ (Republican) Roy Moore scandal came to light, which (instead of just being about a tasteless photo) includes allegations that Moore sexually assaulted a minor, otherwise known as child molestation. But of course Trump hasn’t said a word about that, and being the coward that he is – he wouldn’t say anything about Franken in front of reporters, but instead waited until he was back at home, sitting on the toilet, with his dick in one hand and his phone in the other. (How’s that for some mental imagery?)

Good lord… this is what we are now. This is what the world sees when they look to America as an example of how people and countries should be. It’s fucking disgraceful, and has me going from being completely speechless – to where all I want to do is rant about it, because it’s disgusting, shameful, and it makes me sad that kids growing up these days will think of this as the normal way that people in government function.

I’m honestly getting sick to my stomach as I type this… but this is our inescapable reality.