Overdue For One Of These

Had my monthly WC doctor visit today. Good timing for two reason… first, because it looks like we’re gonna get our first measurable snow tonight (possibility of 2 to 3 inches) and second, because my shoulder was bad this morning. 😣 Most of the time when I have my appointments with him, I’m in my typical / average condition. Not good, but not too bad. But luckily, every now and then, my shoulder has one of its little fits while I’m in the office so he can see in real-time what I deal with a lot of days. Of course I never want to hurt, but it’s like when you take your car to the repair shop and it just won’t “make that noise” for the guy… yeah… my shoulder was making all kinds of “noise” for the doctor today.

It kinda doesn’t matter though… πŸ˜• and that sucks. πŸ˜’ I mean, my treatment is based on my condition, and he already knows that’s part of my condition – so seeing it happening “live” isn’t gonna change anything about it. It’s hard to describe the frustration of just wanting to “feel okay” while also knowing that there really isn’t anything that can make that happen. 😐 (And yeah, I know, I’m far from the only person that feels that way.) I’m gonna have to ask him at my next appointment, how much WC is affecting what he’s able to do for me. Lord knows they look for any reason to fight even paying for the meds that I’m on now, so I could see where he might know that some options would just be “off the table” from the start.

Meh… gotta try to not dwell on that stuff. πŸ™πŸ» But that’s why I’m a little more twitchy than usual once a month. Every time my WC appointment comes around, it just brings up all the frustration that I go through, for treatment that just makes things tolerable, and the fun waiting and wondering if / when my pharmacy will be given approval for each of my meds, etc, only to do it all over again a month later. πŸ€¦πŸ»β€β™‚οΈ It’s just a shitty cycle that it seems I’m gonna be stuck in forever.

But like I told the doctor today… yeah, I might have times where I bitch about this stuff more than usual, but I also know that things could be a lot worse. I see the other people as they walk into the office… or, sometimes, as they’re rolled by in a wheelchair. 😟 I know that while my disability is definitely full of suck, there’s a lot of folks that have it a lot worse than me – so I try to keep my perspective. (But it doesn’t stop me from thinking that there’s got to be something out there that could still help me more.)

So, yeah, I haven’t done one of these rants for a little while… so there it is. πŸ˜πŸ€·πŸ»β€β™‚οΈ Honestly, if you took my doctor appointment off of today’s schedule, everything was about the same as any other day – a random mix of good, bad, frustrating, okay, painful, tolerable, etc. πŸ™„ It just happened that today, the worst of the tremors happened at the most influential time. So despite several paragraphs of complaining, I’m fine… just thinking out loud and getting shit off my chest like usual. πŸ™‚πŸ‘πŸ»Β It’s all good…

Giveth Taketh

Found out late last night that one of my friends has become unexpectedly unemployed. He was actually working at one place, but had been tentatively hired at another place, so he put in his two weeks notice… only for the job to fall through due to unforeseen circumstances. 😟 He’s already been putting in applications at other places, including companies where he used to work, but in different locations… so hopefully this will just be a small blip – and that his wife’s check will get them by until he gets things back on track.

And apparently it happened on the same day that I posted about my other friend’s boyfriend getting hired on as an assistant manager with a buttload of hours. So maybe I didn’t “knock on wood” correctly. It’s like snapping with the Infinity Gauntlet, or howΒ The Monkey PawΒ works… where things can work out, but maybe not exactly as you expected. I was concentrating on not jinxing them, but didn’t consider that a different friend could be having exactly the opposite experience. πŸ˜• I mean, I know I didn’t jinx him, but the irony of talking about it when I posted about it isn’t lost on me.

And I know I had some funky dreams last night, because I actually woke up because of them a couple different times… but I can’t remember the details. πŸ˜’ Woke up still thinking about his situation though, so I wouldn’t be surprised if the dreams had something to do with all that. I’ve gotta implement a “winding down” period before I go to bed each night, where I avoid caffeine, avoiding worrying about the next day’s stuff, and where I avoid allowing myself to absorb crappy news right before I sack out.

Lazy Sunday

Wasn’t able to fall asleep until about 5am this morning, but my alarms woke me up at 11am to see that Genesee had made it home safely without any further airline incidents. πŸ™‚ I’m glad that it’s sunny out, ‘cuz man did I wake up feeling like crap. In this case, I’ll take the nice view out the front window, even though I’m not gonna be going out to do anything in it. 😏 Same old story… a few days where I was doing more stuff than usual, so today everything gets to hurt more than usual – at least for a while. It’s fine though… nothing important on the agenda today, and I’ll gladly pay the “price of admission” (the pain, for the slow folks) whenever she wants to come for a visit. 😊 I’m really glad I don’t have to do anything today though. πŸ˜…πŸ€·πŸ»β€β™‚οΈ

Meds should slowly make things better in that regard, then there’s the race in Texas to watch in the afternoon, and while that’s going on I’ll probably dig through some old blankets and sheets in the basement to get the cat house done and put outside. I don’t really want an outside cat, but if he insists on hanging around, I figure that’s the least I can do for him. πŸ€·πŸ»β€β™‚οΈπŸ˜Ί Somewhat unrelated, I had another one of those weird, split-second thoughts about Mom when I was waking up earlier. I’m not sure what triggered it, but it just popped into my head that I needed to e-mail Mom to tell her about Gen’s visit. 😟 A thought so brief that you realize the problem with it, before that thought even has the chance to be completed…

I only mention it today because when I told Genesee about it, she said she had a similar thing happen when she was out with her friend and the horses. The natural thought of her wanting to stop by and tell her dad about the horses and show him the pictures when they were done. πŸ§πŸ»β€β™€οΈπŸŽ It’s strange how that still happens, and makes me wonder if it will always happen… those instinctive thoughts that pop into your brain and stay only long enough to make you sad. πŸ˜• Not sad sad… because I’m confident that Paul had already been watching her mini-adventure, and that Mom has been happy about Genesee coming to visit from the moment I picked her up at the airport… but you know what I mean. πŸ˜‡ It’s a weird feeling.

But I’m gonna hop off here, tidy the living room, and then try to take it easy for the rest of the day – saving the “returning to my normal routine / responsibilities” stuff for tomorrow. 🀘🏻😎

You Never Get Used To It

(Oh yeah… this is quite a rambling one.Β  Strap in…)

While I was off of my thyroid meds, losing energy with each day that passed, preparing to have my second cancer scan done, as you may remember – I still had to drive over an hour up to NW Columbus, to go to the “Independent Medical Evaluation” initiated at the request of my former employer’s WC insurer. πŸ˜’πŸ€’ For those who haven’t been through it, it’s essentially one of the methods that can be used to try to get medication or treatments disallowed from a claim, based off of a report from a doctor (like in this instance) who has seen you as little as one single time. 🀨 That almost always sets up an Industrial Commission hearing, where (in my case) that report will be compared against the records of my own doctor, who has been treating me consistently for this work injury and disability for well over a decade. 😯

Of course my thoughts were more focused on the upcoming cancer scan at that point, so I went up, had my exam, went back home, and then mostly forgot about it while I dealt with my other medical concerns. But upon collecting my mail from the box a couple of days ago – I saw that enough time had passed for that doctor to have generated his report, which is easily 30-40 pages (if not more), and have copies sent to me, my attorneys, and my own doctor. I waited a few days to open it, because I knew there would be nothing good about it, nor would there be anything that I could do about that fact. 😟 It might as well have been labeled “Envelope Full of Frustration” but I finally made myself open and read it all yesterday.

I’m going to sugar-coat the shit out of this as I continue. πŸ™„πŸ˜ For my second pass through this thick report, I grabbed a yellow highlighter and began to mark and number the areas where more info was needed. 🧐 Whether it was adding context, pointing out inconsistencies, noting conflicting statements within the same report, or bringing attention to things that were implied, inferred, or assumption… I ended up with 48 different sections that required a response. And, unfortunately, there were several things that were simply false. Absolutely false. But still written in this report as if it were fact. 😠 I’m not saying that this doctor just pulled some things straight out of his ass, but it’s a shame how many “inaccuracies” were made by someone that shouldΒ have the presumption of being knowledgeable and accurate, especially given the duty that he’s performing and the way it could affect the future of anyone that he evaluates.

So now my copy of that doctor’s report has 48 highlighted areas, to go along with a numbered “rebuttal report” that I created to address each of those problem areas. So when I give it to my attorneys, they’ll be able to read my comments right along with the numbered and highlighted areas on the original report. πŸ€“ And despite having another doctor appointment at 11am this morning, I was up until after 2am last night… because correcting or clarifying (what I believe to be) inaccurate things in that report is really the only thing that I can do right now when it comes to “defending myself” or possibly helping my attorneys with their argument points. πŸ€·πŸ»β€β™‚οΈπŸ˜ž But yeah, once I started, the areas that needed my attention just kept coming, and I wasn’t going to stop and go to sleep until I had addressed everything that I felt needed it.

Of course my doctor will write a rebuttal report… something that he’s done many times before, to the point where he’s often repeating himself – because the facts are the facts, and they don’t change over time. But when there’s a hearing, it’s just expected that the doctor of record will submit a report, so he’s unfortunately stuck in this situation just like I am. πŸ˜• Thankfully, my doctor is awesome. And like me, he’s not a fan of having his words twisted, his knowledge and methods belittled… and he’s definitely not a fan of any claims, implications, or “facts” that seem to be based on little-to-no actual evidence. So not only will he write a truthful and accurate rebuttal based on all of the medical evidence, but it also serves as a way for him to “defend” himself – which is the same feeling that I have, and why I wrote my index of rebuttal points. 🀨

I have a ton of other things that I would like to say about the doctor’s report, but it’s in my best interest to just stop at this point. I’ve covered the basics, and you’re more than welcome to imagine the non-sugar-coated version… but even if you did that, there’d still be some things that would legitimately shock you. So now I can only hope that my rebuttal points will be helpful and useful to whichever attorney ends up representing me at the actual hearing. πŸ‘¨πŸ»β€πŸ’ΌπŸ‘©πŸ»β€πŸ’ΌπŸ—’οΈπŸ‘¨πŸ»β€βš–οΈΒ (And I’ve always felt the “commission” folks do seem to care as well.)

But the law firm that represents me is great, and we’ve (knock on wood) got a great track record from the beginning through today… so I know that they’ll have already picked apart many of the same things that I’m bringing attention to, but there still might be something that I say here or there that will contribute to the arguments that they use on the day of the hearing. πŸ€·πŸ»β€β™‚οΈ And at the very least, having more information “straight from the horse’s mouth” will be beneficial in general, since we usually only have about a half hour to sit and quickly discuss the case before the hearing starts.

It would be hard for anyone to find the words to accurately express the feeling and level of frustration that comes along with this situation. πŸ™‡πŸ»β€β™€οΈ To have decisions being made by other people, about things that will dramatically affect your future, knowing that “the truth” is the only weapon that you have… it’s such a helpless feeling, especially when you’re already feeling pretty damn helpless most of the time, due to the disability and pain that this whole thing is about in the first place. 😒 So other than the info I’ll be giving my attorneys, it comes down to sitting, waiting, and hoping… and there’s nothing relaxing or reassuring about that. 😞

Any good luck or positive juju that you want to mentally send my way is greatly appreciated. πŸ€žπŸ»πŸ™‚πŸ™πŸ»

I Have My Reasons

Still hangin’ in there, still waiting through this process… 😟 of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. πŸ’‰πŸ˜¬πŸ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. 😐 Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. πŸ₯Ί My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. πŸ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldΒ be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” πŸ™‚πŸ€·πŸ»β€β™‚οΈπŸ™πŸ»

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Bubble Doesn’t Always Work

It’s been a rough, rough week… but I’m not even gonna talk about all of it. I don’t want to take the chance of spreading more negative emotions just because it helps me to get things off my chest. Going to bed early tonight. Hoping for a reset of my body and mind. Glad I made it through the week… sadly, the same can’t be said for one of my old friends from school. He was a couple grades ahead of me, so I was actually closer to his little brother. Definitely one of those things where nobody even saw it coming. But yeah, I’m tired of this week… so the sooner I get to sleep, the sooner it will be over and I can try to start fresh.

Happy (late) birthday, Dad…Β  trying to get good enough where I can visit soon. Sorry… that’s all I can say. 😞