Your Warranty Has Expired

I wish that I felt more capable of adjusting to whatever illness or injury that might be affecting me at any given time. πŸ˜’ I don’t usually complain directly to anyone about such things, instead saving it for shouting into the void here, so I dunno… maybe everyone else has just as hard of a time adjusting to certain things like I do. But for example, the better part of the last couple of weeks have been really good – and then out of nowhere my knee just decides that it’s going to hurt. Hurt hurt. 😣 And my past couple of days have been mentally, physically, and socially fucked up because of it.

It makes sense that physical pain, along with losing some ability and motion, would also trigger my twitchy… I just hate that I don’t have any more control over it than what I do. 😠 But after a few days of hobbling around, and a few nights of long but often-interrupted sleep due to feeling the pain throughout the night, I wish I could just say “Well, I guess I’ll just take it easy and stay off my feet today.” but instead I let it fuck up my day, being irritated about being so irritated about it.

One problem, almost all of my friends (for a long time now) tend to be younger than me. It keeps my mind young, but my body doesn’t get that memo. So I’m not surrounded by similarly aged people with similar aches and pains. 😏 Another problem, with my work injury happening to me as young as I was, I’ve been dealing with that pain / disability for over a decade now… and it is pain that I feel like I didn’t really earn. πŸ˜•

I’ve joked with my cousin Matt and Dad about how “At least I was never in great shape when I was young…” compared to Matt, who loves / loved playing basketball, and Dad who is a Marine and served during Vietnam. In a way it’s a joke, but you’d also like to think it would be true… if you were never in great shape when you were young, it should be less of a deal when parts start to get defective when you get older. That’s turning out not to be the case. Now it’s more like “Dammit, I didn’t use myself up when I was young, so I shouldn’t be breaking down like this already.” πŸ™„

And I’m not making this entry to complain… it’s actually something I’ve thought about as I’ve faced various things, and it has also made me wonder how I’m gonna handle things when it inevitably gets worse as I get older. πŸ€” Like my Aunt Carol, she was in all kinds of awful shape, but she didn’t bitch about it or let it slow her down – let alone stop her. πŸ™‚ I just hope I can eventually become more like that. Everybody gets old, everybody sooner or later starts feeling worse and worse, and I just don’t want to end up a grouchy old recluse because I’m still struggling to handle the changes that every other human just seems to handle.

One thing I’ve noticed though, even my younger friends don’t give me shit about it – when either my neck and shoulder are extra screwed, or when my back or knee just randomly decides to go to shit for a while. I think it’s that insecurity of (in most ways)Β being on the same page as someone regardless of our ages, and worrying that if I have to hobble around or use a cane for a few days that they’re gonna look at me like “Oh my gosh… I forgot how old he is.” Heh… but so far that’s not been an issue, and if anything it just ends up being something that we joke about rather than it being some eye-opening revelation… heh… as if they don’t know my age until a physical sign appears. πŸ™„πŸ˜„

Meh… it’s just a gimpy knee, it’s not gonna be permanent, I’m gonna be fine, and I’ll surely have plenty of otherΒ “fun” new things like this to deal with in the future. πŸ€·πŸ»β€β™‚οΈ Gotta figure out how to just start sucking it up.

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Gap

I know it’s been a good chunk of time since my last entry, but I’m not even gonna bother going back to catch up on what I’ve already written… because honestly not a whole hell of a lot has been different, so I don’t have that much to write about. We’ve had a couple decent snow storms, and a couple days where the temps were in the negativesΒ in the morning, so that’s managed to keep me at home just as much as my normal anxiety issues usually do. 😏

One out of the ordinary thing… I did take a trip to ‘Da Boat with Bri for two nights last week. 😊 We’ve talked about it for months, and have had it in the planning stages for the past several weeks – so we were relieved to have pulled it off, considering that both of us have any number of things that could have popped up to wreck the plan. 😳 Last time she was down there with me was years ago when Dezzy also came along, and they couldn’t even get onto the boat back then.

So of course that’s why we were really looking forward to this trip, since she could see and do everything along with me this time. We took a bunch of outfits and props and shit, just in case we decided to do baby belly photos, but it was too easy to just be lazy in the room or going up to the boat to have fun… so very few pics were actually taken, and that was absolutely fine with us. πŸ˜‹ Our luck would come and go, but it was good enough at times that I could actively see the gambling bug taking hold of her brain right before my very eyes. πŸ˜… Heh… it wasn’t really like that, but she did have a good time and played enough to where she developed favorite machines and everything.

This past week or so has been nice… not having any appointments, not forcing myself to worry about any responsibility stuff. 😐 Heh… that sounds bad. I just mean that I let myself take a break from all of the adulting for a while, although I’m picking back up where I left off here in a bit. (Catching up on the bills that have been stacking up in the mean time) Oh… I do have another “since our last episode” story that I almost forgot about. It’ll be coming up a bit later, if I manage to get through all the bills this evening…

But this trip… I dunno… the more that I think about my medical stuff, the more that I want to do stuff with my friends while I still can. πŸ€’ I have no reason to think that I won’t be able to do things for years to come – but just in case, ya know? Even Dad, a while back, reiterated that point to me a few times… that I need to stop worrying so much, and sometimes just do the fun thing while not worrying about anything else. πŸ€·πŸ»β€β™‚οΈ

Buncha Nothin’

While I’m technically ready to start doing all of the adulting that I’ve got planned for the first couple of weeks of the new year, I am glad that today was essentially a “paused” day… where even if I wanted to, nothing significant could really be accomplished. πŸ€·πŸ»β€β™‚οΈπŸ™‚ I didn’t go out last night, nor did I have any company over, but I still didn’t fall asleep until around 3am. And of course I woke up too damn early, so my brain is thankful that the only real work that I’ll be doing today will be the stuff that I can address by mail. Which leaves all of the phone calls for tomorrow. 😳 Yay. 😟

Last night wasn’t totally lonely though. Brianna also stayed at home, although she was also babysitting for her sisters, so we ended up keeping each other company via messages up until the ball dropped at midnight and then a while after. β˜ΊπŸŽ‰ I think my adulting may be rubbing off on her, because a lot of what we talked about was both of our growing lists of “Shit We Gotta Do” in the next week or two. 😏 I mean, nobody is really a fan of responsibility, but I think it made her feel good (the same way it does me) to spend some of her evening coming up with a game plan of her own. πŸ“’πŸ–ŠπŸ‘§πŸ»

I wish that I didn’t have to take Cassi back home earlier last night, but she did end up staying later than we originally planned. It was a rough, dark, rainy, stressful drive up to Columbus in that horrible weather – with 80% of the traffic still breaking the speed limit, and the other 20% either scared, creeping slowly, or completely stopped along side of the highway as they waited for the rain to stop. β˜πŸŒ§πŸ˜―πŸ˜£πŸ˜§πŸ™ˆβ›ˆπŸŒ§ While she was here though, we started watching a new Korean rom/com/dram called Strong Girl Bong-soon. It’s strange how easily I take to Korean songs and shows now that I’ve been doing it for a bit. πŸ˜πŸ‡°πŸ‡·

But yeah… this is kind of a rambling post since it’s been a leisurely kind of day for the most part. All of my upcoming doctor appointments are still heavy in my mind though… I’m just trying to not let them bother me today. 😟 I will say this though. I haven’t been feeling great for the past couple of weeks. 😐 Not awful, but not how I normally feel either. So while I’m not gonna try to predict anything when it comes to my upcoming tests, I think I’m subconsciously getting myself ready for some potentially bad news. πŸ€·πŸ»β€β™‚οΈ

It doesn’t help that I’ve been having a lot of anxiety filled dreams lately as well. 😳 Not exactly nightmares, but dreams that definitely had a negative feel. And twice now I’ve had dreams where I died. πŸ˜• One was strange… I had already passed away, but I was still around to console people and to help with all of the arrangements needed in that sort of circumstance. 😬 But the bad dreams, the specific “not feeling well” things… right now I am choosing to attribute it all to the Wellbutrin that one of my docs put me on. πŸ€’

I haven’t felt this mentally and physically shitty in a long while. πŸ˜” And it’s so much so that I’m going to stop taking that new med until my next appointment with that doctor, so I can let him know the side effects that I’ve been experiencing. Over the years I’ve probably tried half-a-dozen different meds to help with depression or anxiety, and never have I made it past a month or two before the side effects outweighed the potential benefits – and I’m pretty sure this one will be the same way. 🀨 I’ve also got something more immediate for anxiety, but I haven’t noticed any bad side effects from that one, so perhaps I’ll be able to keep one-out-of-two in my rotation this time.

Alrighty then… time for some football. πŸ™‚πŸˆ Ready to push the scary thoughts to the back again for now.

Anxious

I’m not sure how I feel about the weekend falling right before New Year’s Eve. 😟 I think it’s actually going to work out better for me this way, since I’ve already got a January’s worth of medical appointments on my mind, but I can’t even really go about changing my insurance information or anything like that until after the first of the year when the new plan kicks in. 🀨 So I’ll have at least a couple of days to start planning who I need to contact and when, and I might even get a couple days after that since some places might be closed on Monday and/or Tuesday. I’ve just got a lot of upcoming shit… I wanna hit the ground running.

I think I’m gonna have Cassi down for the night tomorrow. She can’t stay on New Year’s Eve since she has to be at work early early, but it would still be nice for her to stay – since not only has it been a little while since she has, but also because it might also be a little while until the next chance – depending on how my month goes and how I’m feeling during any given stretch. πŸ˜”

I’ve also decided that I’m going to let her take my Wii and games back up home with her to give to Junior. I can’t remember the last time that I sat down and played any of my games, let alone any of the games on that system that’s almost a decade old now. I could sell it I guess, but I’d hardly get anything for the lot of it… might as well brighten up a kid’s day a bit, eh? πŸ™‚ I’ll probably wait until she’s here to start finding all the bits and bagging it up… with the way I’ve moved stuff about since I last played, it’s hard to say what’s where.

But like I’ve described regarding my friends before… sometimes it’s just nice to have the company, because not only does it provide time to chill and (hopefully) clear the mind of “the now” for a while – something that’s always needed – but it also helps to encourage a little more productivity, since we’re both essentially able to pat each other on the back for our respective jobs well done. 😏

I’m certainly not looking forward to 2019, so a couple more days of “nothing” and some company to distract is probably exactly what I need. So I guess I do know how I’m feeling about it.

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)

LOAD”*”,8,1 … READY … RUN

I don’t want tomorrow to feel like today did, so I’m gonna try my hardest to push aside all of the bad things in my mind – and hopefully do some things that I know should be fun. It’s so strange how the past few years have kinda stolen “fun” in general from me. I’ve got two current game systems, several different cameras, that Playstation VR system I haven’t even set up yet, a couple decent musical keyboards, the C64 Mini system I got the other day… and all of it just sits here.

I think the more that bad, sad, or unfortunate things started happening to me, my friends, and my family… the less able I’ve been to allow myself to have fun. Even if I have moments where I’m not feeling bad about my own shit, I guess I sorta feel like it’s not right for me to have fun when some of my friends and family are dealing with their own bad, sad, unfortunate shit. I know it’s dumb, and I kinda know how I got here… but that doesn’t matter… what matters is changing my way of thinking and letting myself just enjoy shit now and then.

I have to just accept that some people might roll their eyes or have something shitty to say if they think I should be doing “this” when I decide to do “that” – because if I live my life making sure I make everyone else happy… well, that’s just some bullshit… but believe it or not that’s how I’ve been for a long while now.

Meh… but anyway, tomorrow has to be different. I think once I straighten up the living room a little bit I’m gonna hook up both the C64 Mini and the PSVR. Who would have thought, back in the late 80s, when Mom, Dad, and Aunt C bought me a C64C, 1541-II disk drive, Okidata 120 dot matrix printer, and 13″ color TV… that almost 30 years later I’d be so excited to have a baby version of that old computer that I can play on my 50″ HDTV. Oh, and I also have that CD of scanned slides that I still need to check out.

So many things stuck with me from my childhood. The computers, the classic video games, the nerdy interest in photography, radio, musical keyboards, and tech in general -and even a lot of the music from back then that still means the most to me… all of those started as these little seeds that were planted back then, which are still growing strong in me to this day. Well, maybe not “strong” for some of them, but I still want them to be…

Tomorrow’s gonna be different. Even if it’s just tomorrow.

“Customer Service”

Might as well continue my bitching into Tuesday.Β πŸ˜’ Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy.Β πŸ™ Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment.Β πŸ€• That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes couldΒ help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I couldΒ (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either.Β πŸ€·πŸ»β€β™‚οΈ

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.