Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

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“Customer Service”

Might as well continue my bitching into Tuesday.Β πŸ˜’ Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy.Β πŸ™ Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment.Β πŸ€• That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes couldΒ help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I couldΒ (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either.Β πŸ€·πŸ»β€β™‚οΈ

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.

Now We’re Cookin’

Another long day of medical stuff. Nothing really new or concerning. So, so much data from all the labs and pathology and whatever… some of the most recent stuff hadn’t even been interpreted so it was presented in its pure data form, but there was still enough “plain english” stuff for him to form his opinion and explain things very clearly. It turns out that not only was the cancer in my left lymph node, but they also found (after the fact) that there was a “micro-tumor” in the right one as well… so it’s good that they sliced them both out to be safe.

The thing that made the overall picture slightly better today is that they also tested the nearby lymph node and the results showed no cancer cells there. So, yeah, it’s just a test, it’s hard to say how accurate it really is, but I’ll take the good news… so we’re gonna go with that for now. Defective thyroid removed, and no cancer in the nearby lymph node. He also made some adjustments to my meds which should help me battle the lack of energy and accidental naps, and I’ll start taking those tomorrow.

The other positive thing from this appointment is that one of the bigger balls is now in motion. I doΒ have to go through the radioactive iodine treatment, which is meant to catch any random cancer cells that may still be hiding out, but there’s not a huge urgency to it – so I won’t start until this time next month. It had to be that way due to my other appointments and schedule, because there’s a 7-day period where I’m supposed to remain isolated so I don’t contaminate the unwashed public by my presence… so of course I wouldn’t wanna see Dr Walter and Nicole during that time.

The process will begin with me getting some sort of injection (to mask the effect of the thyroid medication) on Monday and Tuesday, followed by the actual radiation stuff on Wednesday. After that part is completed I then have to go for a full body scan. I think that’s the next thing that I’m actually nervous about. It’s meant to see if anything was missed, anywhere, and to have a scan to use as a (hopefully) successful baseline for another full scan six months after that. So yeah, it’s quite the glob of activity coming up here soon.

Trip Report: Extended Edition

This trip to ‘da boat was one of the better ones that I’ve had in recent memory, at least since the times when me, Mom, and Dad all used to go together. πŸ™‚ Great weather on the way down and back (which is more important than you’d think), awesome lightning over the Ohio River during the couple of evening thunderstorms while we were there, and Cassi and I were able to play and play and play – and I still came home with the same amount that I took to spend, andΒ she was able to go home over $200 ahead and with some comp’d jewelry and goodies from the gift shop. πŸ˜ƒ

Oh, and of course we poofed ourselves on the awesome brunch buffet. Mmm… 🀀 not just theΒ regular buffet food, but also all of the important breakfast stuff at the same time. 😁 They must be doing alright, because the entire place is in the middle of renovations. From the giant entry way, to the lobby, to the hallways, to the rooms… everything is getting cosmetic updates. 😯 They’re still in the middle of ripping up all of the faux “stone” flooring in the giant common area and laying down “wood” strips… and for the rest of the hotel, the entire color scheme has changed. The only inconvenience in all of that was that the updated WiFi wasn’t working yet. πŸ€·πŸ»β€β™‚οΈ

Our time on the actual boat was limited the first day, because the machines kicked our asses. πŸ™„πŸŽ° That was okay though, because the trip was as much about “just getting away” as it was for gambling. We got one of the nicer rooms with probably the best view of all of them, looking right out onto the boat, the river, and the outdoor patio area for the indoor pool. 😎🚒 And, as it often goes, we took our swimsuits but couldn’t muster the “oomph” required to go down and actually swim with the larger-than-normal amount of assholes already in the pool. 😏 (For some of them, I think it doubled for their weekly bath.)

Day two on the actual boat was much better. πŸ˜€ I hit a big enough bonus that I was able to set back (to take home) the amount that I took with me to lose, and still have enough to keep playing and to share with Cassi so she could do the same. πŸ€‘ And it wasn’t just that one win. (I missed catching all the winning “sevens” in that video… meh) But both of us kept hitting nice “little-big” amounts that kept us going for the better part of the day. It felt like a totally different experience than the day before. πŸ’πŸ»β€β™€οΈπŸŽ‰πŸ’πŸ»β€β™‚οΈπŸŽˆ

It sucked to wake up after that second night, knowing that we had to head back home, but the winning came at a time and in a way that it let us both come home with a decent amount money, so we sure couldn’t complain. Besides, we were both anxious to get home to our kitties… especially me, since I knew that Maven was all by herself and probably wondering if I had permanently disappeared. 😿 She was happy to see me when I got home of course, but she didn’t even act grumpy… so perhaps I wasn’t as missed as I had presumed. πŸ˜„Β We absolutely had a good time on this trip… the last one we might be able to take for a while… but it was sure nice to be home again too.

Prepared

Cassi sent me a text a couple of days ago to ask if I’d wanna join her for Thanksgiving again this year. First thing that flashed in my head was that it sure didn’t feel like an entire yearΒ could have passed since we made our premiere attempt, throwing together a (surprisingly edible) Thanksgiving dinner for everyone in the house there. (With neither of us having any bird cookin’ skillz to speak of.) 😏 We were pretty proud of ourselves.

This year she stepped up her game. 😯 She did her research and the bird was prepped, seasoned, in the oven, and half-way done before I even got there – so she alone gets the cookie when it ended up turning out amazing. πŸ˜ƒ It’s weird how the turkey was almost half the size of last year’s bird, but we somehow ended up with way more “good” meat this year… and it was every bit as good as anything that we used to have at family holidays. I was impressed.

Honestly the only tasks that I had were making the cornbread and then making the gravy, and most of the rest of the time I just tried to stay out of her way. πŸ™‚ Oh, I did the carving too… but even that I can’t take much credit for, as the bird basically fell apart in a way where all of the “good stuff” separated itself from the “ick” in nice big chunks. I didn’t let them know that though. 😁 I mean, I gotta appear useful for something.

I’m glad that I went. And it wasn’t a definite. It’s not easy to leave the bubble and go out for something uncertain, even if I know it’s gonna be at least an okay time. 😐😟 But agreeing to it when she asked “locked it in” so that even if I wasn’t feelin’ it today – that alone would have made it harder for me to cancel. Oh, and Aunt Sharon left a message about our local family’s gathering today – but she left it at 8:00Β am, I didn’t get it until I woke up aroundΒ 1:00Β pm, where I learned that “we’re gonna eat” at noon. πŸ€¦πŸ»β€β™‚οΈπŸ€·πŸ»β€β™‚οΈ Another example of how my inability to conform to human schedules kinda messed things up. But, while I love my family and love that they still invite me, our family gatherings are just shadows of their former selves these days. 😟

Bed and Breakfast

Over the past few days I’ve had 24/7 company here at the house. 😯 Genesee’s friend Tracie flew out to NJ for an extended visit with her, and then Gen provided the return trip home, depositing Tracie at her house and then starting her little break here in Ohio. I’m not sure it was really a break, now that I think about it, because she had plenty of people to see and lots of things to do. But yeah, for a few days I had her and Nesh here. πŸ˜πŸΊπŸ’πŸ»β€β™€οΈ

Of course it was impossible for me to adjust… wait… let me start by saying that I was totally glad that she was here, so I’m not bitching about that at all… but when I have trouble just existing by myself here, trying to maintain a sleep schedule that doesn’t have me feeling like death, of course it’s gonna be challenging having company in the house. 😬 But the way I looked at it, the benefit outweighed the complications, and I knew (hoped) that I’d be able to regenerate after they left anyway.

Maven wasn’t thrilled about having a horse in the house, so she generally just avoided us… but on the last day she came into the living room and sat next to me, knowing that I’d keep him away from her if he tried – as if she was thumbing her nose at him. 😏 She’s been up my butt ever since they left… heh… I mean, even more than usual.

With Genesee’s help I finally sorted away all of the boxes of memories from Mom and Dad’s apartment. They’ve been stacked in an extra bedroom for months… but having someone “in the loop” to look through the pictures, school stuff, baby stuff… it just made it so much easier to stay motivated. 😎 She was a big help in sorting out the “old old” photos into a box for Aunt Sharon to go through. Most aren’t labeled… photos of what would be my great aunts and uncles, third cousins, etc – people that really only Aunt Sharon will be able to identify / tell stories about. πŸ‘΅πŸ» I’ve already told her this is the plan, and she’s hoping to make a scrapbook for her kids so the family history doesn’t get somewhat lost as it goes down the generations.

 

Survived Human Exposure

Not stoked that it’s 1:30a and I’m not even remotely tired… but it’s probably because I ended up having a pretty decent day out of the house, so my brain is still working to process it all. πŸ€·πŸ»β€β™‚οΈ That’s my guess anyway, because I got up stinkin’ early and I should be sacked out by now. Meh… it was nice to have a non-crap day for a change though.

My first intended stop was Great Clips, but I drove by and noticed that my cousin’s car wasn’t there – and I wasn’t ready to make small talk with some random chick as she cut my hair. 🀨 I should have texted her first, but whatever… I’ll get there eventually. After that I hit a couple of thrift stores and came away with a whole lot of nothin’ despite my looking. I’ve been having a dry spell… not only with game or collectible/sell-able stuff, but even with clothes.

Having finished my overnight cat-sitting duties, I returned the kitties to their home. They’re not the biggest fan of car travel, and they were hollering and letting me know it as we drove, but all’s well that end’s well. I also stopped off at Toys R Us, a place I haven’t been for easily a decade, because I wanted to pick up one of the Tiny Arcade machines out of curiosity. (I want them all… heh) It’s weird… same building/location as when I was a kid, but totally different inside with zero familiarity. Impressive selection though.