Learn To Relax

I know it’s only Thursday, but I think I’m gonna mentally start my weekend now. Had all kinds of horrible nightmares last night, even though I can’t tell you a damn thing regarding what they were about. 😟 I just know that multiple times throughout the night I’d wake up in a sweat from whatever I was dreaming about… I dunno, maybe bits will come back to me throughout the day as dreams sometimes do. Just takes hearing the right word or seeing the right image on TV and stuff can start coming back into view.

So, not much sleep, headache when I finally woke up for good… although at least it’s a normal headache and doesn’t seem related to my neck, so hopefully some Aleve will be able to help with that. I think it’s just the stuff that has been occupying my thoughts for the first part of the week kinda building up… worrying about my friend’s surgery, thinking about and helping out another friend who has a custody hearing today… and then despite doing pretty good at keeping my WC stuff out of my thoughts, struggling while shopping yesterday agitated my frustration – by barely being able to handle a few relatively small bags of dirt and gravel – I think my brain just got a little full, and last night’s dreams may have been a product of that. πŸ€·πŸ»β€β™‚οΈ

Regardless, I’m gonna take it easy today, stay relatively disconnected from the digital world, and probably do a little work around the house. Lawn guys were here yesterday, bills and paperwork have been handled, no appointments to worry about, no calls to make or people to see… so I can just chill here in my bubble and not worry about any of the stuff that might stress me out. 😌 I mean, I’m definitely interested in politics and all of the “goings on” when it comes to all that, but I’m even gonna try to avoid that today… and today sounds like it could be pretty “big” when it comes to potential news. (I’m sure I’ll catch Maddow later, though… I just like the long-form way that she sums up the day’s biggest stories.)

But yeah, just figured I’d go ahead and get some “me time” before the weekend gets here. It’s funny, even though I don’t have a traditional Monday-thru-Friday type schedule since I don’t work anymore, I still feel like I have to justify it to myself if I wanna take a “day off” during the week. πŸ™„πŸ€¦πŸ»β€β™‚οΈ Hell, even at that, I’m still gonna do some laundry, put away the groceries from yesterday, other light misc chores… and I’ve gotta learn to give myself credit, even for small crap like that, when I’m not feeling great. So, yeah, I’ll probably be a little slower at reading and responding to any messages today… it’s not you, it’s me. 😏

Sweet Corn Festival

A few months ago, when I was still looking at the then-upcoming schedule of medical stuff, it looked like everything would be wrapped up well before this year’s SCF in Millersport. It’s tradition that me, Jim, Adam, and sometimes Brad will meet up for at least one of the days there to walk around, catch up, and see how many former classmates or teachers we can spot. But Jim messaged me yesterday to let me know where and when he’d be there… and it wasn’t until then that I realized that this week was already festival week. 😯⌚

The surprise is from bouncing back a little more slowly than I originally anticipated, so as my mind has been on all that stuff, I guess it just snuck up on me. I’ve got every intention of going… and in fact, I’m pretty sure I’ll be able to handle it much better than last year. 😬🀞🏻 Last year, I hadn’t had my surgery yet, so my energy levels were all over the place, and I was also stuck using my cane at the time. πŸ‘¨πŸ»β€πŸ¦― I can’t remember if it was for my back or for my knee, but I do remember that I only had enough oomph to make a single meandering “pass” with them from the ride area through to the food booths a bit past the covered bridge area. πŸ˜•

I was trying to “mind over matter” myself through the evening, but it just wasn’t happening. I feel kinda bad about how I was, because I know that my friends were concerned about me – and seeing me struggle to just walk around probably ended up being somewhat of a buzzkill for the rest of their evening. 😟 I think I was there for an hour at most before I realized that I was gonna have to call it a night, so it was nice that they walked me all the way back to where I parked so we could get in as much time as possible. There were a lot more unknowns at that point in time.

Since then I’ve had my thyroid removed, been dosed with radioactive iodine twice, been to doctors and a chiropractor for my back, learned of some new damage in my neck… but when it comes to the thyroid stuff, most of that ended up going about as well as it could, and the new “neck stuff” isn’t something that’s an urgent or immediate issue – so this year’s Sweet Corn Festival meet-up should be a heck of a lot better for all of us than the last one. πŸ™‚πŸ€·πŸ»β€β™‚οΈ I suppose anyone with visible health problems feel the same way… for certain moments in time you wanna act like nothing’s wrong, you don’t wanna let your friends or family see how bad it can get, ‘cuz you don’t want them worrying about you – whether the worry is justified or not. You want your “normal thing” to be that normal thing.

Meh… I’m just thinking out loud here. πŸ˜’ I’m obviously still not 100%, so I think I’m talking about it to keep myself motivated and optimistic. πŸ€” I did fix my sleep last night, something that actually surprised me, so I (hopefully) know what I need to do to not screw up my sleep or energy the day before we’re supposed to meet up. (Man, am I trying to jinx myself lately or what? 😏)Β I’m just really looking forward to the possibility of having a normal day with my friends at our old stomping grounds, with the thoughts of all my current “other stuff” being pushed from my brain as we have a good time being reminiscing old farts, eating overpriced crappy-but-awesome fair food, and maybe seeing some other old fart friends in the process. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Why Do I Make Plans?

(Alternate / Extended Title:Β  Haven’t You Learned By Now? You Should Know Better…)

Another day, another disappointment. Not forΒ me… well, yeah, actually for me too… but the night before last I was feeling pretty good, planned on having a productive day yesterday, maybe even go grab Bri and take her somewhere so she could get groceries… but nope. πŸ˜’ I just haven’t found the “trick” when it comes to sleeping and my knee in its current state. One night it’ll be fine, next night… fucked. 😠 Last thing I really wanna do is have another round of xrays and scans, fearing that they’ll all “look fine” like with my lower back recently… but yeah, definitely gonna request xrays when I see the doc at the beginning of next week. 😣 Hopefully it’ll be something where a steroid injection will help, because I’m much more inclined to let them do that to my knee than to let them do it in my spine at the base of my neck. 😳

I think I’ve got it through my head now that “feeling better” on one day doesn’t mean it’s actually getting better. It’s not like I’m even pushing myself, but yeah, when I have a slightly better day – I do slightly more stuff… but that’s not working this time. So I’ve been in a shit mood, kinda disappeared from people for a couple of days, haven’t done most of the stuff that I had on my mental “maybe” list, but today – even though it hasn’t been quite as bad – I still haven’t pushed it, and I’m not feeling too bad. πŸ˜’ So that’ll keep my mental mood good enough to finally get through the bills (that I skipped the other night due to an instant headache) and probably check and respond to e-mails and messages. 🀞🏻 I think it being the weekend actually helps too, even though that’s sorta dumb when I don’t really keep a normal M-F human schedule except when appointments dictate.

But yeah, I’m around… and I’ll get around to the stuff that I need to get around to, whenever I end up getting around to it. 😏 It’s funny, when you’re young and healthy… and someone older tells you to enjoy it while you can, and tells you about all the random aches and pains and whatever… when you’re young, your brain just won’t allow that idea to register. (And therefore I don’t think anyone is really prepared for it, or accepts it gracefully.)Β Your brain doesn’t realize that you’ll eventually be the one with all the defective pieces, telling someone younger than you that this is what they’ve got to look forward to. πŸ™„ Heh… see… this is why it’s better that I just avoid people when I’m like this. Not exactly a ray of sunshine right now.

And say what ya’ want… but I still don’t think I’m old enough to feel this consistently beat up. πŸ˜•Β </whining>

Your Warranty Has Expired

I wish that I felt more capable of adjusting to whatever illness or injury that might be affecting me at any given time. πŸ˜’ I don’t usually complain directly to anyone about such things, instead saving it for shouting into the void here, so I dunno… maybe everyone else has just as hard of a time adjusting to certain things like I do. But for example, the better part of the last couple of weeks have been really good – and then out of nowhere my knee just decides that it’s going to hurt. Hurt hurt. 😣 And my past couple of days have been mentally, physically, and socially fucked up because of it.

It makes sense that physical pain, along with losing some ability and motion, would also trigger my twitchy… I just hate that I don’t have any more control over it than what I do. 😠 But after a few days of hobbling around, and a few nights of long but often-interrupted sleep due to feeling the pain throughout the night, I wish I could just say “Well, I guess I’ll just take it easy and stay off my feet today.” but instead I let it fuck up my day, being irritated about being so irritated about it.

One problem, almost all of my friends (for a long time now) tend to be younger than me. It keeps my mind young, but my body doesn’t get that memo. So I’m not surrounded by similarly aged people with similar aches and pains. 😏 Another problem, with my work injury happening to me as young as I was, I’ve been dealing with that pain / disability for over a decade now… and it is pain that I feel like I didn’t really earn. πŸ˜•

I’ve joked with my cousin Matt and Dad about how “At least I was never in great shape when I was young…” compared to Matt, who loves / loved playing basketball, and Dad who is a Marine and served during Vietnam. In a way it’s a joke, but you’d also like to think it would be true… if you were never in great shape when you were young, it should be less of a deal when parts start to get defective when you get older. That’s turning out not to be the case. Now it’s more like “Dammit, I didn’t use myself up when I was young, so I shouldn’t be breaking down like this already.” πŸ™„

And I’m not making this entry to complain… it’s actually something I’ve thought about as I’ve faced various things, and it has also made me wonder how I’m gonna handle things when it inevitably gets worse as I get older. πŸ€” Like my Aunt Carol, she was in all kinds of awful shape, but she didn’t bitch about it or let it slow her down – let alone stop her. πŸ™‚ I just hope I can eventually become more like that. Everybody gets old, everybody sooner or later starts feeling worse and worse, and I just don’t want to end up a grouchy old recluse because I’m still struggling to handle the changes that every other human just seems to handle.

One thing I’ve noticed though, even my younger friends don’t give me shit about it – when either my neck and shoulder are extra screwed, or when my back or knee just randomly decides to go to shit for a while. I think it’s that insecurity of (in most ways)Β being on the same page as someone regardless of our ages, and worrying that if I have to hobble around or use a cane for a few days that they’re gonna look at me like “Oh my gosh… I forgot how old he is.” Heh… but so far that’s not been an issue, and if anything it just ends up being something that we joke about rather than it being some eye-opening revelation… heh… as if they don’t know my age until a physical sign appears. πŸ™„πŸ˜„

Meh… it’s just a gimpy knee, it’s not gonna be permanent, I’m gonna be fine, and I’ll surely have plenty of otherΒ “fun” new things like this to deal with in the future. πŸ€·πŸ»β€β™‚οΈ Gotta figure out how to just start sucking it up.

Insufficient Quantities

Another half-work / half-shlubbing-around weekend day. 😐 Cassi had the day off, so I went and got her so I’d have some company (and a helper) and so she could have time away from home. So, like the last time she was here, she’s been working on her stuff a little more and I’ve been working on my stuff more… using that bit of motivation that you get just from having someone hanging out. 😊

A couple different phone calls to the pharmacy this morning and they’re still having problems with getting any of my workers comp related medications approved. πŸ˜’ Ten minutes on the phone, then on hold, and then told that they were gonna have to make some calls to get things straightened out.Β  Haven’t heard anything back from them for the past couple of hours, so I’ll be calling again after I finish this entry. I’m not even trying to get them before last month’s supply ran out. πŸ€¦πŸ»β€β™‚οΈ

Heh… and as I’m writing this I got another text notification from the pharmacy saying that one item is on order, another is ready – but with a $12 charge, and no info about the third. πŸ˜• But this confirms the typical problems I have every month… because if there’s a charge on one of these, that meant it was run through my regular insurance instead of the one provided by workers comp. I guess twelve bucks won’t kill me though.

And even though it’s Saturday, I got an actual registered letter that I had to sign for, from that “home care” medical provider that I mentioned a few entries ago. It says that they’re letting me go as a patient (okay?)Β and that I need to find someone else… despite having never used their services and not knowing who this nurse is that supposedly tended to me a couple times. 😠 So I sent them another email, despite just talking to someone from there on the phone, telling them to knock it off with the bills and the mail. It’ll probably do as much good this time as it did last.

Meh… so that’s been the first half of the day. And yeah, I know that a lot of the entries in the blog lately have just been me bitching about the mundane and trivial, but believe it or not – some people do like keeping tabs on me and knowing how things are going, even people that aren’t relatives or close friends. It’s weird to have made what are essentially digital pen pals, from people who have found the blog and have then messaged me for one reason or another.

But I guess I better throw on some pants and head in town for the one script that I can pick up. πŸ™„ And like I told Cassi, the reason I go in there most of the time, and deal with this shit in person – it’s because people tend to work a littleΒ bit harder when you’re standing right there, telling them exactly how things are supposed to be, and nudging them in the right direction when needed.

Heh… this was quite a ramble for just some medical billing filling bullshit. 😏

The Rest of My Month Looks Fun

  • γ€°PharmacyΒ  /Β  monthly visit to jump through hoops for meds
  • γ€°PsychiatristΒ  /Β Β intake appointment
  • γ€°DentistΒ  /Β  temp crown removal and permanent crown installation
  • γ€°EndocrinologistΒ  /Β  injection #1 prior to 131 treatment
  • γ€°EndocrinologistΒ  /Β  injection #2 prior to 131 treatment
  • γ€°FMCΒ  /Β  nuclear medicine department for radioactive iodine (131) treatment
  • γ€°HomeΒ  /Β  (one week of isolating myself from the humans)
  • γ€°FMCΒ  /Β  full body scan 7 days after 131 treatment
  • γ€°PsychologistΒ  /Β  first “real” counseling session
  • γ€°Rehab/PainΒ  /Β Β monthly WC appointment

Spent most of this morning on the phone, trying to wrangle all of my other appointments around the iodine treatment schedule – since that’s the one that is the most important, and the one that effectively removes a week of possible scheduling time from my life.Β πŸ˜’

EDIT: Just got off of another call with Dr Walter’s office. We’re now trying to figure out how much of a pain in the ass it’s going to cause… me being seen by his PA rather than directly by him, because Dr Walter is my “physician of record” when it comes to anything related to my workers comp claim – and they loveΒ finding any reason that they can to deny me treatment or medication. 😠 This sounds like it will be a work in progress, and we probably won’t know what the negative side effects are until they happen.