Insufficient Quantities

Another half-work / half-shlubbing-around weekend day. 😐 Cassi had the day off, so I went and got her so I’d have some company (and a helper) and so she could have time away from home. So, like the last time she was here, she’s been working on her stuff a little more and I’ve been working on my stuff more… using that bit of motivation that you get just from having someone hanging out. 😊

A couple different phone calls to the pharmacy this morning and they’re still having problems with getting any of my workers comp related medications approved. 😒 Ten minutes on the phone, then on hold, and then told that they were gonna have to make some calls to get things straightened out.  Haven’t heard anything back from them for the past couple of hours, so I’ll be calling again after I finish this entry. I’m not even trying to get them before last month’s supply ran out. 🤦🏻‍♂️

Heh… and as I’m writing this I got another text notification from the pharmacy saying that one item is on order, another is ready – but with a $12 charge, and no info about the third. 😕 But this confirms the typical problems I have every month… because if there’s a charge on one of these, that meant it was run through my regular insurance instead of the one provided by workers comp. I guess twelve bucks won’t kill me though.

And even though it’s Saturday, I got an actual registered letter that I had to sign for, from that “home care” medical provider that I mentioned a few entries ago. It says that they’re letting me go as a patient (okay?) and that I need to find someone else… despite having never used their services and not knowing who this nurse is that supposedly tended to me a couple times. 😠 So I sent them another email, despite just talking to someone from there on the phone, telling them to knock it off with the bills and the mail. It’ll probably do as much good this time as it did last.

Meh… so that’s been the first half of the day. And yeah, I know that a lot of the entries in the blog lately have just been me bitching about the mundane and trivial, but believe it or not – some people do like keeping tabs on me and knowing how things are going, even people that aren’t relatives or close friends. It’s weird to have made what are essentially digital pen pals, from people who have found the blog and have then messaged me for one reason or another.

But I guess I better throw on some pants and head in town for the one script that I can pick up. 🙄 And like I told Cassi, the reason I go in there most of the time, and deal with this shit in person – it’s because people tend to work a little bit harder when you’re standing right there, telling them exactly how things are supposed to be, and nudging them in the right direction when needed.

Heh… this was quite a ramble for just some medical billing filling bullshit. 😏

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The Rest of My Month Looks Fun

  • Pharmacy  /  monthly visit to jump through hoops for meds
  • Psychiatrist  /  intake appointment
  • Dentist  /  temp crown removal and permanent crown installation
  • Endocrinologist  /  injection #1 prior to 131 treatment
  • Endocrinologist  /  injection #2 prior to 131 treatment
  • FMC  /  nuclear medicine department for radioactive iodine (131) treatment
  • Home  /  (one week of isolating myself from the humans)
  • FMC  /  full body scan 7 days after 131 treatment
  • Psychologist  /  first “real” counseling session
  • Rehab/Pain  /  monthly WC appointment

Spent most of this morning on the phone, trying to wrangle all of my other appointments around the iodine treatment schedule – since that’s the one that is the most important, and the one that effectively removes a week of possible scheduling time from my life. 😒

EDIT: Just got off of another call with Dr Walter’s office. We’re now trying to figure out how much of a pain in the ass it’s going to cause… me being seen by his PA rather than directly by him, because Dr Walter is my “physician of record” when it comes to anything related to my workers comp claim – and they love finding any reason that they can to deny me treatment or medication. 😠 This sounds like it will be a work in progress, and we probably won’t know what the negative side effects are until they happen.

Tedious Ramblin’

Doing my typical weekend thing, being half-productive / half-bum. 😐 Last week wasn’t too bad… got a few of my “must do” things done, while adding in a couple new things on the fly – and whatever wasn’t accomplished last week will just be added to the list of stuff for the upcoming week. 🤷‍♂️ I guess I got just enough of last week’s stuff done that it’s not really stressing me out today like it normally might.

Dealing with the misc “bill stuff” last week was tedious. 😒 My check for an bill that I had gotten was returned to me, with a note that said no balance was due. That same day, I got a second bill for that same amount… and it took talking to someone in person to get them to acknowledge that I was handing them a check for the amount due, at least according to their file. 😠 Not a big deal, just annoying.

Then I got a bill from one of Dad’s nurses or doctors, for an “at home visit” which I obviously don’t get here at my own home. I called and explained that our names are similar but not identical, but she still couldn’t tell me why the bill came to me, in my name. 🤨 She assured me that she fixed it in the system and that I won’t have to worry about it. It was for only ten bucks, but still… annoying.

Tried to call the hospital about some additional bill stuff on Friday afternoon, but even though it wasn’t that late in the day – apparently everyone with any authority had already left the building for the weekend. In theory, the financial assistance should absorb some bills as they’re generated, so there’s a good chance that the ones I’m calling about will have already been affected (or perhaps eliminated) by the time I actually speak to someone about them.

Everything that I ordered for Maven finally came in. There were issues because of the package being damaged in transit, then automatically refunded, then the order was automatically re-ordered – despite me doing that same thing manually… just nonsense that had to be worked out before everything was good. 🙄 But she’s feeling better, is mostly flea-free… so basically I’m handling a few things at the same time with her, like I’ve been doing appointments with myself for a few months now.

Oh, and then the “on the fly” thing that I mentioned having to make room for last week… it was an intake appointment that my PCP had made for me, to start seeing a therapist and psychiatrist. 😳👩‍⚕️ The last two PCP appointments I mentioned that I’d like to do that eventually, but that I wasn’t ready to throw it in with all of the rest of the things I’m dealing with quite yet… but my PCP apparently (and accurately) figured that I really did want to get started with the psych side of things, and that I just needed the nudge of having an appointment straight-up scheduled without any input from me. 😏

The first person I saw (and the only person, until next week) was the therapist lady, and I think I’m going to like her. 🧐 I got the typical hour-long intake visit with generic questions to start sizing me up… and I think I’ll like her not only because we share political and social views (it came up while talking about insurance and pre-existing conditions), but also because I think she’s aware that I’m relatively smart – and she seems pretty sharp herself. I always like therapy better when there seems to be a “fun” but somewhat adversarial type relationship – where we each know that what we both say will likely have merit.

Not much talk about meds yet, since that will fall under the umbrella of what the actual psychiatrist will be handling for me… so, I dunno, it may seem weird but I’ve always liked counseling for some reason. Even if it’s just because I can rant to a disconnected party for almost an hour and then just go home. 🙂 I don’t have to consider any “solutions” that they think might make me “better” compared to what I usually am. I mean, I’m open to suggestions… but do I have any specific goals or methods that I’m particularly interested in? Not really. Hey… I’m not the one who actually made this appointment.

Sing, Sing A Song

My injury that resulted in the c5-c7 disk removal / spinal fusion over a decade ago… it stole so much from my life. 😞 Not the surgery itself so much, but the resulting nerve damage that made my left arm rather useless. There are still days when I’m surprised by the discovery of something else “new” that I’m no longer able to do. 🙁 I should have kept a running list… but boy would that have been depressing to have everything I’ve lost, all in one handy notebook.

Well, my most recent neck “thing” seems determined to steal something from me as well. I’m still in the middle of the whole “cancer treatment” thing, with the first step having been the removal of the thyroid… and now while I’m waiting for the radioactive iodine treatment in a couple of weeks, in the mean time I can’t help but be a little bitter about a particular side effect of this surgery. 😠

I dunno… for all I know, this might not be something permanent – but considering that I’m about a month and a half out from the surgery, it’s probably gonna stick. You may or may not know, but music is everything to me. 🤨 Whether listening to it, playing it on a keyboard, crafting it via Amiga / PC tracker programs, or just singing in the car or even at karaoke back in the day. Well I’ve lost a big chunk of that passion, because I can no longer sing. 😟 At least in no way that I used to.

At first I just couldn’t hit the notes at all. Songs that I’ve sung out loud or in my head a thousand times… I now sound like any other shlub that might try to sing it at karaoke somewhere, to the cringes of the peanut gallery. 😒 With a conscious effort, thankfully I’ve been able to get some of my “pitch” ability back – but I’ve lost a huge amount of my higher range. 😢 I’m not sure if it’s because things got tightened up inside my neck, the same way the skin has on the outside (due to the new incision and stitches), but during those moments when I’m not hitting the higher notes – I can actually feel it pulling. 😣 It’s a difficult sensation to describe without the listener having experienced it themselves.

And yeah, I know… considering that I lost some of my range as a side effect of trying to free my body of cancer… I know that it probably sounds silly or greedy for me to be complaining about something that many people would see as frivolous, given the situation. 🙄 But seriously, when so much has already been taken from me, and singing was one of the few things that I just endlessly enjoyed, whether by myself or in front of people… it’s just another kick in the nuts that life has decided to send my way. 😡 “So… that one thing you’ve always loved doing? Yeah, well that’s about enough of all that.” Fucking awesome.

Meh… it’s not gonna stop me from singing, at least not when I’m by myself, so maybe, hopefully, things may continue healing in a way where I can get a little more of my voice back. If I would have known this was coming my way, I definitely would have recorded as many songs as I could before going under the knife. Years ago I recorded enough songs to fill 3 CDs, which I then shared with Mom and Dad and a few other people… but I never thought those would be all that I’d ever do, at least not until now. 🙁

I’ve never claimed to be a great singer. I’ve never even really claimed to be a good singer. It was more that I was good enough, and I recorded the songs that I did because I just love singing, and trying to sound like I love singing. 😏 I wanted people to be able to hear me doing something I loved, because of how it made me feel. Meh… it sounds dumb when I try to put my thoughts about it to words. 😕 Oh, and I don’t care if anyone thinks that this is all self-pity… because it is, and I think I’ve earned it.

Oh… Yeah

Today was a good day. I have some papers that I needed to sign which also required two witnesses, so this afternoon I went over to my friend Amy’s house so she and Rick could provide some initials and signatures to help me out with that. I ended up staying there about a half hour, and we stood outside talking and looking at various projects that Rick either had been working on or planned to start working on soon… and lemme tell ya, that guy can do almost anything. 💪🏻😎 And like I told him, sometimes it’s nice to live through someone else’s inspiration and motivation about their passion projects. 😏

After that I made a quick trip to the gas station in Rockbridge so I could a) fill my car with gas, b) pick up enough necessities to make it to next week, and c) grab some Burger King so I didn’t have to do any cooking tonight… all in one shot. Basically just a mini-run to keep me “good” here at the house until next week, when I intend to do a much bigger “stocking up” shopping trip before my surgery… just in case I don’t feel like leaving the house and mixing with the unwashed public for a while afterwards.

But what I actually did while I was out today isn’t the point. The point is that I did all of that stuff today without thinking about the problem with my leg at all. 😃 I may have had some pain as I was getting in and out of the car, but I don’t remember it. 🤷🏻‍♂️ And as I was walking around to get ready, or over at Amy’s house, or while I was filling the car and doing my shopping… once I got home I realized that I hadn’t been limping, at least as far as I know, through any of it. 😯

I’m not going to start cheering just yet, since I’ve had my fair share of ups and downs as I’ve been going through this… but yeah, it feels good to have not been nagged by pain for at least that small part of my day. I’m hoping that sitting on this giant silly yoga ball is actually making a positive impact, because I’m going to keep doing it. I’m also going to change the sheets on my bed and add that fluffy mattress topper thing that I bought a few weeks back.

I really needed something like this today. 🙂 I mean, I’ve got much less on my mental agenda today than yesterday, but it really was an uplifting surprise to have (for the first time in a couple of months) such a span of painless walking. And the older and more broken that I get, the more that I’m learning to appreciate these small victories.

Gimp Limp Pain Cane

I had my one-month followup with the chiropractor today, and despite me still having some hiccups in the performance and reliability of my right leg – he’s still impressed with the progress since I initially went in, nearly unable to walk. The biggest improvement, of course, is that the problem is only rarely in my back anymore. (All of this is “knock on wood” by the way…) He says that the problems that I’m noticing with my leg can still likely be improved upon – and he convinced me that I really do need that inflatable yoga/rehabilitation ball, even if I can’t do many of the “standard” exercises due to my gimpy left shoulder.

He says that even just sitting on the ball as I watch TV or work on the computer would help. It makes sense, in the same way that you can feel all sorts of little muscles working and correcting your balance if you try to stand on one leg as someone pushes against you – that’s what the muscles in my leg and lower back will be doing as I maintain my balance on the ball. So, he’s sold me on giving that a try for a while… much better than the “real” exercises did, which caused me to accidentally jack up my shoulder by over-doing it on my first attempt.

I stopped by CVS because I figured I could get some bread, pop, and chips at the same time as grabbing a cane and one of those balls… but of course they don’t stock them. (Next stop, Amazon) I guess it’s more rehab or exercise than “medical” but I thought for sure they’d have a few. I did grab a more practical and size-appropriate cane though, since the wooden one that I won at the fair years ago (and it was one of the “real” ones) is just too tall for the way that I need to use it. So that’ll help during the moments when I still need one.

But my leg… he said everything is still fine, and I shouldn’t feel any urgent need to bring it up with my family doctor yet. I mean, I could, obviously, but he reassured me that there’s nothing going on there that I need to be overly concerned about. And he’s probably right with everything he told me… it’s just that everyone wants to snap their fingers and be better, and sometimes things just take way longer than you expect.

Alright, gonna try to hit the sack early again tonight. I got plenty of sleep last night, probably from being worn out from all the crap that I was nervous about that day, so I’m gonna see if I can make it two in a row. Had some good conversation with friends today, lots of things that made me forget about things for large part of the day, so I’m hoping to get a little more of that tomorrow. G’night, all.

Compressed

Made the mistake of sleeping in my bed last night. Originally I thought that the cushion of the mattress would help, but after waking up worse this morning – I’m pretty sure it’s because my butt sinks down into the mattress (like it’s supposed to) but that means there’s also constant pressure on the area where that nerve is acting up. 😣 Sitting on the hard floor, which you’d think would be bad, is the one way that I can get the pain to stop… so I’ve gotta think about how I wanna try to sleep tonight. 🤔😔

Haven’t decided what I’m going to do with my day today, but I’m 99% sure that not only will I not be going anywhere, but I’ll also probably spend most of my time on my ass, on the floor, in the living room. 🤷🏻‍♂️ I’m gonna give this until Thursday morning to show some improvement, and if it hasn’t by then I’ll probably go ahead and go to the ER. Gawd I hate the ER… 😒