I Ain’t As Good As I Once Was…

This has been on my mind, so I’mma ramble. πŸ™‚ If we’re able to come to a settlement agreement regarding the medical portion of my claim, I wonder if I’ll be able to eventually undo all of the damage that’s been done. πŸ€”πŸ˜Ÿ Not the physical stuff, of course, since that’ll slowly continue to get worse over the years… but the way the whole process has mentally changed me, especially over the past several years. 😞

It’s just that I’m guaranteed that one week out of every month will be filled with anxiety and stress, simply because I have to get my medications filled. 😐 The meds are required to be covered by my claim, and many years ago I could pick them up without issue – even being able to get them a few days early at times. πŸ€·πŸ»β€β™‚οΈ

Then the problems started. πŸ˜’ Short delays turned into long delays, and long delays became even longer. Eventually the delays were so long that I’d have to pay out-of-pocket just so I didn’t go without, and then wait and hope that I’d get paid back. πŸ˜• If my doctor prescribes a new medication, it can be denied pending an IC hearing. Even when a prescription doesn’t change they can still sometimes deny coverage pending an IC hearing to prove that it’s still necessary. (Which, after a decade, it obviously will be.)

Three weeks of “tolerable” pain at best, followed by a week of worrying, fussing, and fighting just to get the meds that they’re legally required to provide. 😠 Repeat, repeat, repeat, repeat… πŸ™„πŸ˜ž Combine that stress with fluctuating pain and lack of ability, and eventually it consumed so much of my thoughts and time that I started backing away from everything else.

(Don’t mind my rambling… like I said, this blog sometimes acts as my therapy…)

When I can’t guess how I’ll physically feel, and I can’t even count on having (or being able to get) my meds to help… things became too unpredictable to continue like I had been. πŸ™ A couple of years ago I had a long phase where I couldn’t do anything if it meant someone “counting on me” for something. Family started getting shut out, friends definitely got shut out, all because I never knew how I’d feel when I woke up that day nor if I’d be facing (or getting pulled into) another hearing or lengthy process with the pharmacy.

That hasn’t changed. 😐 The concern and worry, that is. πŸ˜’ Along with my family and friends’ understanding, I’ve been able to make some adjustments that has kept me from totally isolating myself these days… but lemme tell ya, sometimes it feels easier to just remove myself from people’s lives than to disappoint them over and over again when things are bad. πŸ₯ΊπŸ˜ž And that leads me back to my original question… how long does it take for a person to escape that mindset, if that 1/4 of each month no longer has that anxiety and stress from the fight? 😐

The stress now, for better or worse, is making sure the settlement (whether an annuity or lump sum) is truly enough to cover the things that it will need to cover. If not, I’ll just be trading the stress of fighting for meds each month for the stress of not being able to take the same meds, because I won’t have the funds to pay for them. πŸ˜’ Medicare is technically supposed to step in at that point, but they’ll require all kinds of proof that I spent the settlement money only on applicable things, and the more expensive meds still might not be covered. πŸ˜– So as you can see, there truly is “always something.”

Kinda makes all the “You’re so lucky that you don’t have to work anymore!” folks reconsider, eh? 😏

It Shouldn’t Be This Challenging

Today’s been kind of a flop. I didn’t have anything on the schedule really, but even after not getting much sleep – I still woke up with some motivation to work on one or two of my extra projects around the house. Also, between the lack of sleep and the shitty weather, I knew today wasn’t a car or glasses day either… so I’ve spent most of the day waiting for my upset stomach to go away so I could do a little of the work that I wanted to do without feeling like I was gonna yack. 🀒

It did make for a nice lazy day though, something that I sometimes struggle with allowing. Texted with Dad quite a bit, along with a few other friends, and then finally decided to go in the kitchen to chop up some green peppers to make some tuna salad for sammiches – to hopefully settle my belly, which it did. πŸ™‚ And to be honest, I was glad to just wake up today without my back being screwed up… something that it was showing signs of before I ended up falling asleep early this morning. 😯😬

So it wasn’t really that today was a flop… it was just unremarkable for the most part, so I wasn’t looking at it in the right way. πŸ€·πŸ»β€β™‚οΈπŸ˜ And now that I’m feeling better since this afternoon, I know it’ll help my mood to get some more of my “unessential” stuff done before whenever I fall asleep tonight. Normally my lack of productivity would have made me a little twitchy, but I think I’m still riding along on the thyroid med train – still seeming to get back a little more energy with each day that passes. πŸ€’πŸ€žπŸ» I wish I could explain how bad the bad days really were just a few weeks ago, to emphasize how these little improvements are still a big deal.

I think I might go ahead and pull out the 360 cam and charge it up, in case I feel up to shooting any video at the SCF here in a few days. If not that, I plan on taking a lot more regular pictures this year. It’s been a few years since I’ve bothered, especially since last year’s trip was kind of a shit show from the start. πŸ˜’ And with my mood being decent lately (for the most part anyway…) I’m hoping that it’ll also nudge me towards getting interested in my hobbies like video and photography again. 😟

Every now and then Jim will post one of goofy our old videos on Twitter and I’ll come across it, where we were just goofing off and having fun for random Squirtman themed videos, and it makes me realize how long it’s been since I could truly say that I was having fun at anything, or that I was in a good mood for more than a couple hours out of one day. 😞 I’ve gotta start trying to figure out how to get a little more of that back, despite all of the other non-fun stuff I’ll obviously have to be working on (or facing) as well. 🀨 It wasn’t that many years ago that I was a totally different person, and it’d be nice if I could find my way back toward that at least a little bit. πŸ€·πŸ»β€β™‚οΈ If my body will just stay physically un-fucked for a while, I might have a shot at it.

Meh… just thinking out loud again I guess…

Self-Preservation

Sometimes when you hear people talk about emotionally abusive relationships, they might say “Well, she knew what she was getting into when she got with him.” which implies that it’s the victim’s fault. 😟 But what I see is someone who may have been willing to give someone chance after chance to prove they weren’t that emotionally abusive person, because they care about the person and want to believe that things could change.

Well, sometimes they don’t change.Β πŸ˜” And eventually, even though it’s difficult, even though you care about that person, if their actions are really messing you up… you do have to take responsibility for how you allow yourself to be treated and get yourself out of that situation. That person might actually even care for you as well, but if it doesn’t prevent them from saying or doing hurtful things, why would a person want to keep subjecting themselves to it?

They may not realize how much what they are doing is affecting you, or they might not even realize that they are doing it at all. 😐 Who knows… they might know exactly what it’s doing but not be able to stop themselves from doing it. No matter the case, you have to do what’s right for you, even if that makes you “the bad guy” in their eyes. And if they don’t think that what they’re doing is that bad, then “the bad guy” is exactly the way you’ll seem to them.Β πŸ˜’

*sigh* … 😞 and in almost all of those types of cases, it didn’t have to be that way…