Today was rough. I’m not even sure why. Just couldn’t get going. 😔
I’m still sleeping in the recliner, since the last thing I need to do is be rolling around with my neck like this, especially since the hole where the drain was has obviously not healed yet. 😬 So I just woke up this morning and stayed in the chair, grabbed my laptop, and started working on a letter for the patient representative folks at the hospital.
After getting that done, it had given me enough irritable energy to go in and find someone to hand it off to. It’s the weekend staff, so I didn’t expect anyone to be there today to actually do anything more about it – but I made clear to the woman that I expected “someone important” to read it and give me a call back. 🤨 I said that even if they didn’t agree with my concerns, that I wanted to be told why… not so much that their reasons would matter to me, but more to just make sure that they read all three pages.
Just so it doesn’t seem like I’m trying to be cryptic, it’s just my way of trying to address some procedural things once I was moved to my room. Things that made my experience a lot less pleasant than it could and should have been. I wasn’t going to pursue anything further, but if things aren’t brought to their attention then they’ll have no reason to consider changing anything. I’m just trying to see that future patients don’t deal with a few of the things that I had to deal with.
But as soon as I got back home I fell asleep in the chair for about an hour, but the unexpected nap didn’t do anything to help my energy levels. 😒 I mean, I’m sure my body wants to recover and rest and sleep… not to mention get used to the physical change and new meds for that, so I dunno… I’m probably being meh about it for nothing. Hoping tomorrow is better.
The past several days have been remarkably the same for me, so I’ve actually gotten into a flow… albeit an annoying one, since my body is still giving me a hard time. 😒 But I’ve been able to build up the energy to do a limited amount of “whatever” each day, but I also completely crash after I finish whatever it is that I was doing. So I just kinda have to go into each “thing” with that in mind…
It’s embarrassing being this worn down all the time. 😞 It’s not being lazy, but it sure looks like being lazy. As I’ve described to others, it’s like I wake up each day with only 10% – 15% in my battery, and once I use it up it’s just gone. That leads to unintentionally falling asleep for several hours during the day, and then only being able to sleep about that same amount that night – effectively splitting one 24 period into what feels like two “days” for me, with the second “day” consisting of me not being worth a shit.
But I’ve chosen my projects wisely over the past couple of weeks… getting all my laundry done and put away, the kitchen, living room, and bathroom all cleaned, I did a huge grocery shopping session today and put it all away, plus several other things that I needed to do like changing light bulbs in several ceiling fixtures. 😖 And let me tell you, having only one arm that I can raise above my head… removing heavy glass light covers and screwing in several bulbs was the most difficult (painful) thing I’ve done in a long time. With my ill-advised Memorial Day Walmart shopping trip being a close second. 😏
I actually went to Logan instead of the one in Lancaster, because I feel like I “fit” more with the Logan people at the moment. Heh… that sounds bad, but it’s accurate… I’ve never seen so many grumpy looking average shlubs in a store at one time. It actually made it easier to shop… looking around at all these people who looked like they were significantly more annoyed than me to have to be there. 🤷🏻♂️