Oops…

Obviously didn’t have the oomph for that “korean name” post that I was planning the other evening. It will still be coming… just whenever it decides to come. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ Got the gamma scan the other day, and actually felt a little worse afterwards this time. Everything went as planned, I wasn’t ever scolded for not holding still or anything – but 45 minutes to an hour lying in the machine just isn’t pleasant, especially when half of that was with my arms raised above my head, which is a position that my gimp shoulder obviously isn’t a fan of.

But you know how it goes… scan techs can’t tell you anything, other than knowing that they got the images they needed, and then I didn’t get a “next day” phone call from the thyroid doctor, so I’ll take that as a good sign. That way I have just started taking my meds as normal again, and I can get through this weekend without having to think about any of it too much hopefully.

And knowing how bad I’ve been feeling, and how I’m supposed to be avoiding people due to the radioactivity, Genesee had one of her friends drop off a bunch of food for me.ย ๐Ÿ™‚ย She basically got three or four entrees from Olive Garden, plus a big salad, slice of pie, and a bunch of cheese sticks. ๐Ÿ– That’s gonna help a lot, because my appetite is already low, as is my energy to get up and make anything to “make” myself eat, so having all that awesome food just ready to go whenever I want a few bites or more – it’ll last me through the weekend easily.

But yeah, just wanted to check in to report that everything went as planned with the scan, and that I get to treat this weekend like a weekend and not worry about any appointments or cooking or anything… so hopefully I can start to recharge my run-down ass.

Oh, and even though I still haven’t gotten on Facebook, I did see a couple posts through the Google News app, reminding me that the Perseid meteor shower happens over the next couple of nights. ๐Ÿ“น๐Ÿ˜ฏย So I’m gonna put all of the practice I’ve been doing (with planes and cars at night) to use – and hopefully will be awake to capture some of the streaks as they cross the sky. Luckily, my view from the front porch is just about the right direction for viewing. Gonna use ridiculously long exposures, to maintain the light trails despite the video playing at time-lapse speeds. ๐Ÿค“ย First thing I’ve felt a little bit excited about in a while, so hopefully my energy and the weather cooperates.

Advertisements

Makes Sense

I’m gonna make a non-bleh post today… I just have to work up to having the energy to do it. After getting dosed yesterday and coming back home, I honestly didn’t feel any worse… but my gosh, from yesterday evening on… man, am I feeling physically awful. ๐Ÿ˜Ÿ๐Ÿคฆ๐Ÿปโ€โ™‚๏ธ๐Ÿคฎ I didn’t notice many side effects the first time I had this done, but I also hadn’t gone a month without thyroid meds, already having me weak and feeling like shit. So I should have been a little more prepared that things could feel worse than last time. ๐Ÿ˜ž

That’s not why I posted though. Next post is gonna be about me choosing my Korean name. ๐Ÿคจ๐Ÿ˜ And I know that sounds bizarre and random and “What are you talking about?” but when I do have the energy to explain it all, how it’s done, why I’m doing it… basically I just wanted to do something to distract my brain for a while yesterday, and later I’ll be able to make a post about it that will help me distract myself again. Hopefully. It’s actually a really interesting process. It’s a shame I don’t know any Korean people personally though, for them to tell me how goofy or old or weird my chosen name sounds. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ

But I’m gonna lie back down and hopefully get a short nap to get rid of this headache, but hopefully I’ll be able to get back on here later tonight for all that stuff.

It’ll Be Fine

I’ve developed a bad habit of letting my mail sit and gather dust for a week or two before getting to it, but sometimes that procrastination yields interesting results. For example, in the current batch I got two bills from the hospital for relatively small amounts… but I also got two checks from the hospital as well, which total about five times more than what the bills are asking for. ๐Ÿคจ๐Ÿค” Part of me wants to say nothing and mark it up as a win, but the twitchy side of me insists that I go in and talk to someone in the billing office and get my account in order before the actual expensive things start up again here soon. ๐Ÿ˜’

Toni actually messaged me a few hours ago (before I got into my mail) to see if I wanted to go with her when she cuts Dad’s hair tomorrow. I told her I’d have to sleep on it, since every day is basically a crap shoot lately – but between the hospital mail and some other mail that I got, I’m hoping it’s a sign that I’ll feel good enough to at least go see Dad, and then hopefully hit the hospital on the way home. Didn’t start feeling extra shitty until half the day was done today, so hopefully tomorrow can be the same. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ I just hate feeling so off of my game… ๐Ÿ˜Ÿ and worry that being around me could be mostly depressing.

And yeah, I know I instantly jinx myself whenever I “make plans” for something, but both of those things are things that I want and need to do, so I’m gonna do what I can to make it happen. Now, when it comes to my car crying about an oil change, or that one of my tires is low on air… (and how rude is it that it knows which tire, but won’t specifically tell me?)ย ๐Ÿคจย yeah, that stuff can definitely wait. No pushing of the luck tomorrow. ๐Ÿ˜ ย In fact, no pushing of the luck tonight… I’m not even gonna waste any energy cleaning up all the sorted mail and trash and whatever. Time to hit the recliner for some Avengers: Endgame and hopefully sleep soon after.

Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… ๐Ÿ˜ but cripes, that little bit of work messed me up somethin’ fierce. ๐Ÿ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. ๐Ÿ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. ๐Ÿ™๐Ÿป๐Ÿคท๐Ÿปโ€โ™‚๏ธ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed ๐Ÿ˜ณ yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. ๐ŸงŸโ€โ™‚๏ธ๐Ÿ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. ๐Ÿ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. ๐Ÿ™„ Sitting here, happy that I had enough mental/physical oomph to write this. ๐Ÿ˜๐Ÿคท๐Ÿปโ€โ™‚๏ธ

I Have My Reasons

Still hangin’ in there, still waiting through this process… ๐Ÿ˜Ÿ of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. ๐Ÿ’‰๐Ÿ˜ฌ๐Ÿ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. ๐Ÿ˜ Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. ๐Ÿฅบ My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. ๐Ÿ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldย be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” ๐Ÿ™‚๐Ÿคท๐Ÿปโ€โ™‚๏ธ๐Ÿ™๐Ÿป

Run Down

Not bitching, just noting… I’m really starting to feel the affects of going without my thyroid meds. ๐Ÿ˜’ I had every intention last night of doing those two things that I mentioned, and while I did get the grass seed down (and the rain clouds that were coming dried up, thanks) I absolutely crapped out as soon as I came back in.

I remember washing my hands, to get rid of whatever the “blue” is on all of that seed, but after that – I was just out. ๐Ÿ˜ด I don’t even remember falling asleep, but it couldn’t have been much past dark. I’ve experienced a wide variety of side effects from the various meds I’ve tried or been on, but never has my energy dropped to zero (in what felt like)ย instantly like that.

And surprisingly, even after sleeping a long time last night, it doesn’t seem to have done anything for my energy today. Thankfully nothing was on the schedule for today, so I’ve just been tending to Maven and hoping that this is just an anomaly – and not the lack of meds catching up to me and showing it how it’s gonna go for the next two weeks. ๐Ÿ˜ฌ

I’ve yet to call my attorneys, to see if I should maybe try to reschedule the “independent” workers comp exam (which is currently scheduled a few days before the radiation dose) to another date, because up until last night and today things did feel sucky, but still manageable. ๐Ÿค”๐Ÿคท๐Ÿปโ€โ™‚๏ธ I suppose the next couple of days will help me figure that out on its own. I’ll admit though, this is gonna suck even if it just stays the same… so I really do hope this is just a hiccup rather than a sign of things to come.

The other symptom… feeling like I’ve got a much shorter fuse than usual, and less ability to bite my lip when I probably should. I guess it’s just a good thing that I’m not interacting with too many people right now. (But it is a good reason to consider moving my workers comp exam, I suppose.) Toni was the first person to tell me that I might notice that general feeling… and she’s still got her thyroid, but has that kind of reaction if she misses a few days for whatever reason. Makes me wonder if people with “anger management” issues might also have a funky thyroid and not even realize that could be part of the problem. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ๐Ÿคจ

It Saves You Money, But Okay…

Woke up yesterday and finally dug into my mail, did my few bills, and presto – I now have double the doctor appointments in the next seven days. ๐Ÿ˜ย I guess it’s good I opened my mail when I did, but I now have more days reserved for doctors than I do for myself. ๐Ÿ˜’ The super-earlyย involuntary one is all the way up on the NW side of Columbus.ย Another “We want you to see our guy.” appointment mandated by workers comp, to determine (yet again… I’m losing count) if my injury/disability is worthy of the meds I’m being prescribed. ๐Ÿ˜”

Keep in mind, it was only a handful of months ago that my doctor was told WC was no longer going to cover my monthly doctor visits, because (as they were allegedly claiming) I missed appointments and didn’t pick up the meds that I am subscribed… just a bunch of nonsense stuff. ๐Ÿ™„ So me, trying to do anything to avoid more forced exams, more industrial commission hearings, the potential refusal of payment for my meds… I actually asked my doctor to switch me to something different, but with what sounded like similar positive treatment results. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ๐Ÿ‘จ๐Ÿปโ€โš•๏ธ I did this because I wouldn’t have been able to afford the monthly Lyrica prescription if they decided to stop paying, and also because I legitimately never feel good and was hoping that the change might not only help me feel better, but also cost my former employer’s WC insurer much less – a possible win-win, which I foolishly thought would make them happy and maybe leave me alone.

But no… just a couple months later, now I have to see another examiner under the premise of justifying what I’m now being prescribed. ๐Ÿ˜ฃย I hate that the shit they’re doing is working… almost always delays in getting certain meds filled, that weird phase where they were making false claims and threatening to stop paying for visits, etc… and it worked. ๐Ÿคฆ๐Ÿปโ€โ™‚๏ธ It spooked me, so I made a change that I stupidly thought would make those things go away, and instead that’s probably what triggered this new exam. “If you were taking (that) for so long, why are you now okay with taking (this)?” is the direction I’m expecting this to go. Yeah, I’m sure the guy who will have seen me once will know better than my doctor who has been treating me forย over a decade.

Of course this couldn’t come at a worse time. More on that in a later entry, maybe. ๐Ÿ˜”

(Unrelated…) I honestly don’t feel like doing anything. My chill is pretty much gone for the day. ๐Ÿ˜  Oh, and the “wait, there’s more” from my “Chaos” entry the other day, when part of the town was without power? Nothing surprising. Everyone forgot how to drive, everyone was in a hurry and mad at anyone who dared to treat a dead traffic light as a 4-way stop, rude ass people in the stores acting as if the fucking sky was falling, and just the general unraveling of all the fragile humans’ brains pretty much like you’d expect. (GREAT idea, Skippy… rush to the opposite side of town to buy a whole bunch of fridge/freezer food, while also complaining that you have no idea when your power will be back on. ๐Ÿ™„๐Ÿคฆ๐Ÿปโ€โ™‚๏ธ๐Ÿ˜’)ย And then while driving again, this bizarre woman who had the right of way at our intersection actually started waving her arm wildly, mouthing something at me with an angry scowl on her face… which was her “polite” was of telling me to go ahead and turn in front of her, I guess. Fucking humans, man… a few hours without electric and they’re basically fucking cavemen again.