Not What I Planned

Yup, like I said, last night was fun, but I’ll be paying for it today. Thinking that this would be a lazy Sunday, I made the mistake of pushing a bunch of things from last week off until today. I’ve gotta handle my mail, work on a bunch of stuff regarding my upcoming IC hearing, listen to my voice mails and deal with whatever those require, plus I’ve gotta call the pharmacy to continue trying to get my current prescriptions filled…. and that’s all gonna be a lot harder now with a frozen neck.

Of course because of the physical aspect, but also because it’s particularly stressful to be coordinating my fight against workers comp and struggling to get my meds filled while I’m experiencing the exact thing that they’re fighting me over. It’s emotional stress that makes the physical stress worse, which makes the emotional stress worse, ad infinitum… the ouroboros of my disability. 😞

When that cycle starts it’s hard to escape. That’s why I worry so much about things like my planned concert trip later this year. Yesterday, my only concern with meeting up with my friends was that I might be too tired to do it, but then my shoulder shows up too, goes nuts, and now today is screwed. If I make just the smallest misstep, things can go downhill so quickly.

So I’m gonna wait a little longer for the morning meds to kick in, then I’ll start slowly tackling this stuff. But ugh… cringing about what else the mail might contain, cringing about what the voice mails might say, cringing about yet another hearing that will determine the quality of my life for the indefinite future… it would just be nice if I felt like I had some control of where my life is heading.

It’s probably partially my fault for not dealing with stuff as it showed up, but again I made the mistake of thinking that because I felt okay on those particular days that I’d feel okay today when I planned to deal with everything. Meh… I have very little control over how this will all turn out, so I might as well just power through it as best as I can and then give it up to God. And yeah… this counts as a negative post.

Taste of Spring (and optimism?)

The mild weather continued yesterday, so that made it a lot easier to go in town for the bit of running that I needed to do. Mid-60s and mostly sunny at the beginning of February, so I rolled down the windows and took a meandering path into the city. Stopped at Tim’s for some dark roast, dropped off some mail that needed to go out, made a quick stop at a thrift store, and then before heading over to Dad’s I went out to Meijer to continue my grocery shopping from the other day.

It sure triggered my spring fever, as well as a hint of the photography bug… so, I dunno, maybe I’m slowly finding that missing motivation (and eventual ability) that I’ve been waiting for. Just gotta try to keep my gimpy bits moving enough so that when spring does actually get here, I might be worth a shit.

After messaging with Genesee last night about her art projects and my photography stuff, that’ll probably be what I do this afternoon… finding where I stashed my good cameras, and getting them out to make sure they’ll be ready to go, should I ever be. She got me a View Master as a gift a couple years, and there is a site that will create “reels / disks” from 2D or 3D digital images – and that’s something that I’ve yet to really try.

I’m still apprehensive or anxious when I start feeling more optimistic about things than usual, because of course any number of things could pop up between now and then. Things that might make it difficult for me to find the time (or energy) to spend on “frivolous” hobbies. But now more than ever, I think it’s important that I don’t allow those ideas to be written off completely. I should at least have some of these fun things waiting in the wings, just in case the stars align.

This is just my typical “overthinking it” way of saying I’m still feelin’ pretty alright today. 😏

Figuring It Out?

I’ve been bitching a lot here in the blog lately, so I figured I’d drop in to make a more positive post about the weekend. I actually ended up getting pretty much what I was hoping for – putting the stress of my WC stuff to the back of my mind for a couple days, and just letting Saturday and Sunday work themselves out however they wanted. I didn’t even put any self-imposed obligations of “chores” or “being productive” on myself, and it actually worked.

I went in town to grab some groceries and some stuff for Dad, so I ended up making my visit with him on Saturday instead of Sunday. We were talking about maybe watching the race together, but after the visit on the day prior – we ended up just watching the race at the same time and texting back and forth about it. And that track… Homestead… I still think that it’s a little too generic to be the final race, and the one that determines the season champion. The racing from Phoenix, the week prior, was actually more exciting and entertaining… but meh, racing throughout the 2019 season felt improved overall, so at least things are moving in the right direction.

Caught up with some friends and family on Sunday, through messages, since I’d been flying under the radar most of the week. Toni sent me a few pics and vids from their Philly trip, where Matt participated in the Rocky Run, and also sent me a clip of Matt and Wendi’s gender reveal party thing. But she just wanted to check in on me to make sure I was okay. She jokingly offered to get a life-sized cardboard cut-out of me, which she could then take around town and take pictures with it every few days and post the pictures to Facebook – so my friends would “see” that I’m okay. (Since I still haven’t been able to make myself get back on there and socializing again… heh)

Also got caught up with Bri and Cassi… both of whom are dealing with various crap, but they also both seem to have a pretty good handle on things – or at least are doing their best to fake it as they deal with their respective crap. Not only did Bri have to take her youngest son to Children’s for some more tests on Friday, but then today she has her final custody hearing. However it all goes, I’m still impressed with how well she’s dealing with it all, despite obviously being nervous (and me being nervous right along with her), she’s just facing things and tackling them as they come. Same thing with Cassi, just with different issues. I could learn something from both of them when it comes to that.

In fact, I think that’s what helped my weekend (and even today, so far) feel pretty decent. Living a little more “in the moment” than usual. Reminding myself that constantly worrying about things that might not happen for several weeks… there’s just no point to it. You get things settled in your mind and in your plans as best as you can, and then you put it out of your thoughts until it’s time to actually deal with whatever it is. I mean, that’s not a new theory to me, but it’s something I’ve always struggled with. But watching and listening as others deal with some serious shit, and seeing how they do it without letting it crush them, it could be in my best interest to emulate how they do it.

And for good reasons and bad reasons, I found that “cats” ended up being a frequent topic of the weekend… and while talking to Genesee, I had her remind me about the whole story of Maven’s birth. I won’t go through it all, but basically Maven was lucky to have even survived – which made me remark how lucky she (Maven) was. And Genesee replied thatΒ she and IΒ were the lucky ones, considering the influence that Maven has had on both of our lives… and I definitely can’t disagree with that. But it was neat hearing the whole story again, with her lazy butt sleeping next to me by the space heater, and realizing how much she overcame in her first few days and weeks.

So, yeah… I guess it’s sort of crappy that just an “okay” weekend like that feels like such a positive improvement, but it really was a decent couple of days – and I needed it. And like I said, I’m gonna try to follow the lead of the folks that I know who are dealing with just as much as me, if not more, to try and keep the stressful stuff from weighing me down so much. Disability and pain are a couple of challenging adversaries when it comes to that… so not only do I need to embrace the good days when they come, but I also need to do more to nudge the “less good” days in the right direction whenever possible.

(Sorry, I can’t be arsed to go back through and add all the normal emojis today… just gonna hop off here and see where the rest of the day takes me since I’m not feeling too gimped up at the moment.)

Lazy Sunday

Wasn’t able to fall asleep until about 5am this morning, but my alarms woke me up at 11am to see that Genesee had made it home safely without any further airline incidents. πŸ™‚ I’m glad that it’s sunny out, ‘cuz man did I wake up feeling like crap. In this case, I’ll take the nice view out the front window, even though I’m not gonna be going out to do anything in it. 😏 Same old story… a few days where I was doing more stuff than usual, so today everything gets to hurt more than usual – at least for a while. It’s fine though… nothing important on the agenda today, and I’ll gladly pay the “price of admission” (the pain, for the slow folks) whenever she wants to come for a visit. 😊 I’m really glad I don’t have to do anything today though. πŸ˜…πŸ€·πŸ»β€β™‚οΈ

Meds should slowly make things better in that regard, then there’s the race in Texas to watch in the afternoon, and while that’s going on I’ll probably dig through some old blankets and sheets in the basement to get the cat house done and put outside. I don’t really want an outside cat, but if he insists on hanging around, I figure that’s the least I can do for him. πŸ€·πŸ»β€β™‚οΈπŸ˜Ί Somewhat unrelated, I had another one of those weird, split-second thoughts about Mom when I was waking up earlier. I’m not sure what triggered it, but it just popped into my head that I needed to e-mail Mom to tell her about Gen’s visit. 😟 A thought so brief that you realize the problem with it, before that thought even has the chance to be completed…

I only mention it today because when I told Genesee about it, she said she had a similar thing happen when she was out with her friend and the horses. The natural thought of her wanting to stop by and tell her dad about the horses and show him the pictures when they were done. πŸ§πŸ»β€β™€οΈπŸŽ It’s strange how that still happens, and makes me wonder if it will always happen… those instinctive thoughts that pop into your brain and stay only long enough to make you sad. πŸ˜• Not sad sad… because I’m confident that Paul had already been watching her mini-adventure, and that Mom has been happy about Genesee coming to visit from the moment I picked her up at the airport… but you know what I mean. πŸ˜‡ It’s a weird feeling.

But I’m gonna hop off here, tidy the living room, and then try to take it easy for the rest of the day – saving the “returning to my normal routine / responsibilities” stuff for tomorrow. 🀘🏻😎

I Have My Reasons

Still hangin’ in there, still waiting through this process… 😟 of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. πŸ’‰πŸ˜¬πŸ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. 😐 Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. πŸ₯Ί My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. πŸ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldΒ be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” πŸ™‚πŸ€·πŸ»β€β™‚οΈπŸ™πŸ»

Self-Preservation

Sometimes when you hear people talk about emotionally abusive relationships, they might say “Well, she knew what she was getting into when she got with him.” which implies that it’s the victim’s fault. 😟 But what I see is someone who may have been willing to give someone chance after chance to prove they weren’t that emotionally abusive person, because they care about the person and want to believe that things could change.

Well, sometimes they don’t change.Β πŸ˜” And eventually, even though it’s difficult, even though you care about that person, if their actions are really messing you up… you do have to take responsibility for how you allow yourself to be treated and get yourself out of that situation. That person might actually even care for you as well, but if it doesn’t prevent them from saying or doing hurtful things, why would a person want to keep subjecting themselves to it?

They may not realize how much what they are doing is affecting you, or they might not even realize that they are doing it at all. 😐 Who knows… they might know exactly what it’s doing but not be able to stop themselves from doing it. No matter the case, you have to do what’s right for you, even if that makes you “the bad guy” in their eyes. And if they don’t think that what they’re doing is that bad, then “the bad guy” is exactly the way you’ll seem to them.Β πŸ˜’

*sigh* … 😞 and in almost all of those types of cases, it didn’t have to be that way…

Mixed Emotions

While Genesee was here we were of course talking about all sorts of memories, and we even watched some old home videos that I’ve got uploaded to YouTube in an “unlisted” area. As we watched some of the Atlantic City videos we got to talking about the story behind how I found and got her a key from The Continental motel for Christmas last year, which just so happened to be a key to a room that we actually stayed in – with video proof, as I walked up to and recorded the number on the door (like the nerd that I am) with the camcorder. 😏 It really was amazing…

That then immediately made me remember how I made an awesome, lengthy blog post about it… but then due to certain people reading my blog and giving me shit about the choices I was making in my life – I ended up deleting the entire blog without archiving it. πŸ˜” So unless I find some internet archiving site that managed to capture it, that post (and all the others from that short era) is gone forever. And if you know me, you know that’s not like me at all – just impulsively wiping out a significant chunk of my own history. 😠

That’s what happens though when you’ve got someone who’s words meant everything to you, suddenly and repeatedly getting really fucking shitty about things. πŸ˜’ Rather than leaving my words up here to be picked apart and used against me, I just instinctively made them go away – theorizing that without a detailed view into my life, there’d be less for anyone to be shitty about. πŸ™‡πŸ»β€β™‚οΈπŸ€·πŸ»β€β™‚οΈ Meh… I still deal with internal mental fallout from that (and other things) every single day. πŸ€¦πŸ»β€β™‚οΈ In fact, it’s usually the first thing on my mind when I wake up and the last thing I think about before falling asleep. Good times.

But anyway… speaking of memories… another fun thing to come from going through the old photos was discovering a stack that focused on school parties, birthdays, and holidays with friends when I was little. And thanks to Facebook, I’m still linked to a lot of the friends that were also in those photos – so it was a good time when I scanned and posted a bunch of them. πŸ™‚ My god… the outfits and haircuts are so embarrassing, but everyone was excited to see them and laugh.

That’s one thing that I’m glad of, and one thing that a lot of friends are jealous about… how Mom and Dad documented and saved so, so much stuff from when I was little. 😊 Tons of photos, stacks of old school papers, favorite books, favorite stuffed animals, baby books filled out with all sorts of details about me… it’s just an amazing amount of stuff from my birth onward that I’ve got here – stuff that a lot of people’s parents never bothered doing/saving. I’m lucky to have it all.