Christmas Day

Oh hell… I completely forgot to come back here and update this entry to reflect the crap that I did on Christmas day. πŸ™„ And now that it’s not all fresh in my memory, I’m afraid that I won’t be able to paint a very vivid picture of how things went. πŸ€” Let’s see…

Went up to Columbus fairly early, and Cassi and I threw together our “exclusively microwaved” Christmas dinner for me, her, her mom, and her little cousin. This was also his first “good” Christmas where he had a bunch of packages to open, so it was nice to vibe off of his excitement and enthusiasm. πŸ™‚ And since he knew that I got him a couple things as well, he made sure to have Cassi take him to the dollar store so he could buy me a few little gifts of his own choosing. 😊

Didn’t get back home until late, and like I’ve done in previous years – I saved the gifts that Genesee had gotten me for opening once my day was essentially done and I was settled back in at home. Lots of neat “baby game console” keychains, ranging from a tiny Atari 2600 to a tiny Sony PlayStation. A View-Master viewer with a couple reels of custom photos that she picked from my huge archive of pics from my past… so I’ll probably be able to use my 3D camera for making actual 3D reels for the thing. πŸ˜„ Lots of new candy and wrappers, a big ol’ heavy handmade throw blanket… just lots of unexpected goodies that put a nice cap on a day that was already pretty good.

I’m having deja vu right now… 🀨 really feeling like I’ve already written an entry like this for the day, but I’m guessing it’s probably just familiar typing – since I texted with a few different people as well and told them about how my day went. πŸ€·πŸ»β€β™‚οΈ The only real glitch was the amount of time I had to spend up in Columbus. I mean, I didn’t have to… I wanted to… but after our lunch-time dinner my brain decided to go into protection mode, with Cassi and I both actually taking a nap for a few hours.

That’s about all I’ve got. πŸ€·πŸ»β€β™‚οΈ I know it doesn’t sound like much, but it really was a better day than I had been expecting, for this reason and that. Okay, now I’m all “worded out” so I don’t know if I’m gonna make that “pre-NYE” entry that I actually came here to make… before realizing that I hadn’t even gotten this one done yet. 😐 I should probably avoid any optimistic “coming soon” promises in the future. 😏

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Amish Country

So, the very next day after all of that dumb shit happened around my doctor appointment, that was the day that we had already set aside for going up to the “Amish Country” up in NE Ohio. 😐 The entire evening before, I was still livid – so I already knew what my plan was… stay up all damn light, do as much research and “planning” regarding my WC stuff as possible, and then as soon as the sun came up (as long as Genesee woke up early)Β we could be on our way. πŸ™‚ And that’s actually pretty much how it went, thankfully.

I’m not sure how I did it… all of it… but the trip was a success, we had a good time, I kept my mind fairly free of the previous day’s drama, and I also didn’t feel myself falling asleep until we were about a half-hour from home. πŸ€·πŸ»β€β™‚οΈ Despite it being off-season, and rather gray and plain up there, we still made it a “full sized” trip – leaving home around 8a and getting back somewhere around 7p. 😧 And I even made myself to stay awake for several more hours, which allowed me to force my sleep schedule back on a “normal” track. Honestly though, I give all of the credit for anything “good” like that from the day to Genesee. (Actually, she gets the credit for that for the entire duration of her trip here. 😏)

I drove, so we did the official Batina path and itinerary – as if we were traveling with Aunt Carol. πŸ™‚ I’m not gonna spell check any of this… but we started by going up through Charm, then to the Guggisberg Cheese place – where I got some gummy bears and meat sticks, over to Miller’s Bakery – where we stocked up on cheese crowns, followed by a short drive to Hershberger’s farm store – where there were unfortunately no flowers or critters, but I did get some Amish sweet pickles, and then it was off to Berlin for a stop at an antique/craft mall and thrift store, along with the mandatory stop at Heini’s Cheese – where we taste tested all sorts of weird cheese and fudge, and I left with some co-jack and green onion varieties… 😳 and then the last stop was at Wendell August… the place where they create every type of carved and stamped metal “thing” that you could imagine. 😊

Dinner was also at the traditional Aunt Carol place… a huge pretty-much-Amish-style restaurant / buffet – where we both poofed ourselves on potatoes, noodles, stuffing, shredded chicken, rolls, misc salad goodness, etc. 😁 It was too cold to sit out on their long wrap-around porch to un-poof a bit before hitting the road again, and we were starting to lose the light anyway – so we decided to just keep moving. (We took 77 south to 70, and even stopped off at Gabriel’s in Zanesville… and I’ve got no idea how I summoned the energy for that.) Then we took 22 to Lancaster from Zanesville, basically cutting a south-western path that saved us quite a few miles compared to taking the freeway over to Millersport and down. πŸ€”

It wasn’t an ideal trip on paper… off season, cold, no sleep, having already been busy all week… but it ended up being perfect. ☺ Got all the goodies that we wanted, kept myself distracted from anything that might have made me angry, had quite a few flashback memories from different trips with Aunt Carol and my grandparents, and the “goody” from the trip lasted through the evening, even after I was home and Gen was off to her next stop. πŸ™‚

Sorting

Genesee’s spring visit here got cut short, so she’s making up for it on this trip. She got to Ohio early last week and plans to stay through my birthday. She’ll be visiting this person and that person, but she’s using here as a “home base” for most of her stay.

That was the plan from quite a while ago actually, with her helping me go through all of the tubs of Batina family stuff. For both my grandparents and my aunt, when they passed away I ended up saving way too many of their things that were important or keepsakes to them but hold no meaning to anyone else. As much as I want to save all of those things, it only makes sense to narrow it all down to something manageable.

Cards that they had received from decades back, candles, keychains, weird little nick knacks, photos of their friends, photos of me… where each one seemed to have at least one duplicate of random size… heh… and then of course there were receipts and manuals galore… and you might ask, “Why did you save that stuff in the first place?” Well, if they had stuff stored or marked as something important, I assumed it was all important. But just knowing that they saved it made me feel like I had to save it.

So that’s where Gen comes in. Without assistance I don’t think I’d be able to get rid of any of that stuff… so she and I sat a couple nights and went through most of the tubs and boxes and finally got it to where I’m keeping only the stuff that needs to be kept. There’s still some more things to go through, but I’m betting that by time she leaves to head home we’ll have taken care of all of it. Plus it’s nice that it means we’re stopping and looking at each thing before deciding its fate, which I think they would be happy about.

Checking In

Haven’t been able to shake this funk.Β πŸ˜• Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now.Β πŸ˜”

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery.Β πŸ€• The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day.Β πŸ™πŸ»

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point.Β πŸ˜·πŸ’‰πŸ˜ It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this.Β πŸ˜” They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup.Β πŸ˜’ Next on the agenda, though, is my first full appointment with the new shrink on Monday.Β πŸ™„ I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.

LOAD”*”,8,1 … READY … RUN

I don’t want tomorrow to feel like today did, so I’m gonna try my hardest to push aside all of the bad things in my mind – and hopefully do some things that I know should be fun. It’s so strange how the past few years have kinda stolen “fun” in general from me. I’ve got two current game systems, several different cameras, that Playstation VR system I haven’t even set up yet, a couple decent musical keyboards, the C64 Mini system I got the other day… and all of it just sits here.

I think the more that bad, sad, or unfortunate things started happening to me, my friends, and my family… the less able I’ve been to allow myself to have fun. Even if I have moments where I’m not feeling bad about my own shit, I guess I sorta feel like it’s not right for me to have fun when some of my friends and family are dealing with their own bad, sad, unfortunate shit. I know it’s dumb, and I kinda know how I got here… but that doesn’t matter… what matters is changing my way of thinking and letting myself just enjoy shit now and then.

I have to just accept that some people might roll their eyes or have something shitty to say if they think I should be doing “this” when I decide to do “that” – because if I live my life making sure I make everyone else happy… well, that’s just some bullshit… but believe it or not that’s how I’ve been for a long while now.

Meh… but anyway, tomorrow has to be different. I think once I straighten up the living room a little bit I’m gonna hook up both the C64 Mini and the PSVR. Who would have thought, back in the late 80s, when Mom, Dad, and Aunt C bought me a C64C, 1541-II disk drive, Okidata 120 dot matrix printer, and 13″ color TV… that almost 30 years later I’d be so excited to have a baby version of that old computer that I can play on my 50″ HDTV. Oh, and I also have that CD of scanned slides that I still need to check out.

So many things stuck with me from my childhood. The computers, the classic video games, the nerdy interest in photography, radio, musical keyboards, and tech in general -and even a lot of the music from back then that still means the most to me… all of those started as these little seeds that were planted back then, which are still growing strong in me to this day. Well, maybe not “strong” for some of them, but I still want them to be…

Tomorrow’s gonna be different. Even if it’s just tomorrow.

Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got backΒ home I learned that Christina was gone. πŸ˜”

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

Unique Blog Entry Title

A month or two ago, Dad asked me if I’ve ever had moments where for no real reason, you just get a “content” or unexplained happy feeling that comes over you. πŸ€” At the time I said no, but I think that how I’ve been feeling these past couple of days is what he was talking about. No real reason to be in a good mood, but here it is… for me to not exactly know what to do with it. 😏 Genesee keeps telling me to not dwell on it and just let it be, which is obviously the correct answer. 😁

After all of my appointments this week, I agreed with myself that today should be a day off. I did that with the intention of tricking myself though, because whatever I actually do accomplish by the end of the day – it’s now all just “bonus” stuff. 😊 So that’s been today… staying at home, inside my bubble (so nothing can accidentally crap up my mood), while working on office/organizational type things. πŸ€“ No need for details because I’ve already covered it in recent entries.

My PCP appointment yesterday was a mix of good and bad, which is what I expected. πŸ˜• And rather than doing the referral to the psychiatrist (that I never got around to from the last visit) I told her that I’d compromise and set up some appointments with a therapist. πŸ‘©πŸ»β€πŸ’Ό I already had plenty of stuff that I could have talked about, and that was before learning about my whammy medical condition. But I’ve always liked therapy, the handful of times that I’ve gone… so why not.

If my mood maintains I might go for a walk around Alley or Rising Park tomorrow. I need to stop doing an impersonation of a potato every day… so I’m gonna try to find my misplaced passion for photography/videography and maybe use that as an excuse to leave the house. Oh, and every damn human that I encountered while out doing my runnin’ this week… they’ve been nice, polite, friendly, jokey, etc. 😯 Local society acting so welcoming that I almost felt “normal” being out among them.

Oh, and the hospital finally called today to let me know that they read my letter, and that they’ve talked about it with the people involved. 😳 That’s good enough for me. Acknowledgement. Being heard. I’m hoping that they did take my concerns seriously, but not so seriously that anyone got hollered at or suspended or worse. I ended the call by joking with her, saying that I don’t wanna end upΒ “The Patient with The Scarlet Letter” though, should I ever have to return there for another procedure. πŸ˜…

So between feeling a little accomplished today, and then hopefully doing something distracting over the weekend, I should have a few good days before I have to field calls from the two new doctors’ offices that are supposed to be setting up appointments for me. 😬☎ I really hope that the next steps don’t interfere with the fair and Phil Collins concert. I could live without going to the fair, but I’ll be damned if I’m gonna miss that concert. 😠 Especially since Jim got my ticket as a “no particular reason” gift.

Okay, time to find something good on Netflix and get back to work, but not.