I Ain’t As Good As I Once Was…

This has been on my mind, so I’mma ramble. πŸ™‚ If we’re able to come to a settlement agreement regarding the medical portion of my claim, I wonder if I’ll be able to eventually undo all of the damage that’s been done. πŸ€”πŸ˜Ÿ Not the physical stuff, of course, since that’ll slowly continue to get worse over the years… but the way the whole process has mentally changed me, especially over the past several years. 😞

It’s just that I’m guaranteed that one week out of every month will be filled with anxiety and stress, simply because I have to get my medications filled. 😐 The meds are required to be covered by my claim, and many years ago I could pick them up without issue – even being able to get them a few days early at times. πŸ€·πŸ»β€β™‚οΈ

Then the problems started. πŸ˜’ Short delays turned into long delays, and long delays became even longer. Eventually the delays were so long that I’d have to pay out-of-pocket just so I didn’t go without, and then wait and hope that I’d get paid back. πŸ˜• If my doctor prescribes a new medication, it can be denied pending an IC hearing. Even when a prescription doesn’t change they can still sometimes deny coverage pending an IC hearing to prove that it’s still necessary. (Which, after a decade, it obviously will be.)

Three weeks of “tolerable” pain at best, followed by a week of worrying, fussing, and fighting just to get the meds that they’re legally required to provide. 😠 Repeat, repeat, repeat, repeat… πŸ™„πŸ˜ž Combine that stress with fluctuating pain and lack of ability, and eventually it consumed so much of my thoughts and time that I started backing away from everything else.

(Don’t mind my rambling… like I said, this blog sometimes acts as my therapy…)

When I can’t guess how I’ll physically feel, and I can’t even count on having (or being able to get) my meds to help… things became too unpredictable to continue like I had been. πŸ™ A couple of years ago I had a long phase where I couldn’t do anything if it meant someone “counting on me” for something. Family started getting shut out, friends definitely got shut out, all because I never knew how I’d feel when I woke up that day nor if I’d be facing (or getting pulled into) another hearing or lengthy process with the pharmacy.

That hasn’t changed. 😐 The concern and worry, that is. πŸ˜’ Along with my family and friends’ understanding, I’ve been able to make some adjustments that has kept me from totally isolating myself these days… but lemme tell ya, sometimes it feels easier to just remove myself from people’s lives than to disappoint them over and over again when things are bad. πŸ₯ΊπŸ˜ž And that leads me back to my original question… how long does it take for a person to escape that mindset, if that 1/4 of each month no longer has that anxiety and stress from the fight? 😐

The stress now, for better or worse, is making sure the settlement (whether an annuity or lump sum) is truly enough to cover the things that it will need to cover. If not, I’ll just be trading the stress of fighting for meds each month for the stress of not being able to take the same meds, because I won’t have the funds to pay for them. πŸ˜’ Medicare is technically supposed to step in at that point, but they’ll require all kinds of proof that I spent the settlement money only on applicable things, and the more expensive meds still might not be covered. πŸ˜– So as you can see, there truly is “always something.”

Kinda makes all the “You’re so lucky that you don’t have to work anymore!” folks reconsider, eh? 😏

Tripped My Breaker

Everything caught up with me in a bad way today. 😞 First time in a week and a half that (for no apparent reason) I woke up with my neck frozen – combined with a splitting headache at the base of my skull. 😣

That’s never fun, but today it was apparently my tipping point. With the mental stress of all the various things getting ready to happen (as well as currently going on) with my workers comp situation, all the work I’ve been doing on it, plus still nervously waiting for my attorneys to call regarding setting up a meeting… waking up feeling utterly miserable along with all of that just flipped a switch. πŸ₯Ί

My anxiety about all of it had turned to irritation, anger, and determination over the past couple of days – but that’s when I wasn’t physically suffering at the same time. 😟 So while I’m not thrilled that I lost the entire day today – after taking my morning meds, letting the hot shower rain on the back of my head, and waiting to see if the pain was going to let up… I nodded back off and ended up sleeping the entire day away. πŸ€·πŸ»β€β™‚οΈπŸ˜•

I would have heard my phone if my attorneys reached out… but, again, the call didn’t come. A couple people texted me, but it’s late now – and I’m honestly in no condition to act like I’m “okay enough” to return messages and hold a conversation. I hate ghosting people, but today has been a bad, bad day. 😞 I’ve taken my evening meds though, so I’m hoping that’ll do something… but it’s hard to say if I’ll be back out in an hour or if I’ll end up awake all night due to sleeping all night and day. πŸ˜’ That’s just how it goes sometimes…

And when I mention this next thing, I’m not looking to be medicated… but when an injured workers is put through the ringer like I’ve been – it should honestly be a requirement that the coverage includes the option of talking to a counselor or therapist. 🀨 It’s obvious that mental and emotional stress can affect a person’s physical health, so it would truly be in everyone’s best interest. πŸ€·πŸ»β€β™‚οΈ (This blog is usually my therapy.)

Yeah, I’m thinking about my situation, but I’m also thinking about the tens of thousands of other people who’ve been in the fight for years that might not handle it as well as I have, which isn’t always that great. 😟 It should help once I get the call and the meeting is scheduled, and it’ll help even more once that’s done… no matter how it seems to go. It’s the “unknown” and the waiting that’s really tweaking me right now. 😠 If this stuff’s gonna take a different course here soon, I’d like to get the show on the road.

So today went straight into the trash, but I’ve got something to look forward to tomorrow. Map of The Soul: Seven (by BTS) is being released, it’ll be available on Spotify, so I’ll have a whole album of new music to listen to and hopefully be distracted by. πŸ™‚πŸ€·πŸ»β€β™‚οΈ Here’s hoping for a better tomorrow.

Lengthy Grumpy Ramble

I’m glad that I don’t have anything on the agenda for the rest of the week, since that allows me to take the things that I wanted to do today and move them to tomorrow. I must have slept funny or rough last night, because man did I wake up feeling beat up today. 😣😟 It looks like I’m going to have to actually go in to the pharmacy to deal with two of my WC prescriptions, since I’m gonna have to get some printouts proving that they’re unwilling to pay this month. πŸ˜’ But with my knees and neck acting up today – tomorrow just seems like the better option. (Stress can add to my physical pain, so I don’t need the BS at the pharmacy to pile on today…)

The insurance crap that I was gonna work on… that didn’t go anywhere today, since they needed all kinds of specific info that I didn’t have handy when I made the call. I figured since a bunch of paperwork had already been sent in, giving them the account number along with my name would have been enough. But nope, gotta get into my files and dig out the little notebook with a few dates and some other specifics that I need.

So I dunno… I guess the little bits that I accomplished today will serve as the “getting ready” for tomorrow, when I’ll hopefully conclude things with both of those situations. πŸ“žπŸ˜•πŸ€žπŸ» My mood is shit today anyway, so waiting until tomorrow will probably help me when it comes to not barking at the people who are trying to help me, since they aren’t the folks who are making things difficult. 😏 Those call center / customer service jobs must be awful, since most folks aren’t as considerate to their lack of power or responsibility when it comes to any given account or situation. πŸ“žπŸ™‡πŸ»β€β™€οΈπŸ“žπŸ™‡πŸ»β€β™€οΈπŸ“žπŸ™‡πŸ»β€β™€οΈπŸ“žπŸ™‡πŸ»β€β™€οΈπŸ“žπŸ™‡πŸ»β€β™€οΈ

Oh, speaking of crappy jobs… I guess Jim felt like he wasn’t gonna be able to cut it at the Whirlpool factory where he recently started working. πŸ˜• He’s worked in stocking type positions most of his life, sometimes also driving a forklift – sometimes not, so when he’s basically worked one type of job for most of his adult life – you could imagine how his first taste of assembly line work would feel intimidating. 😯😳😬

The difference between his job and my former job… the line at Whirlpool is controlled by the machines, where my line was controlled by the people. Plus, even though we worked at a ridiculous pace (that did end up eventually damaging me) we didn’t have parts that weighed upwards of 40 pounds to deal with. 😣 It’s also concerning when he tells me that he hurt his neck, and that it also caused his shoulder and arm to hurt… ‘cuz that sounds way too familiar. πŸ™πŸ€•

It just sucks that after years of being able to switch stores and jobs if he wanted to, and having an excellent employee / work record, he’s hit a phase where nobody wants him for those positions now. I mean, he didn’t “job hop” a lot, so I don’t think it’s that… so I’m wondering if it comes down to employers seeing his age on the applications. Glowing work histories don’t help if you can’t get past the HR people who see “47” and throw his application on the “nope” pile.

I was trying to think of what to say to him to keep his optimism up and his twichy-ness down, but it’s difficult when life seems to constantly bag tag a person. 😏 It sucks that he lives so far north of Columbus now, because I have a friend that could probably get him into Jiffy Lube almost immediately. But after I described the job to Jim, pointing out the ways it would be so much easier than a factory, he just replied that he doesn’t know how to work on cars, so the job wouldn’t be for him. πŸ˜’πŸ€”

It’s frustrating, because he’s almost always good at whatever job he’s working at… and you don’t have to know how to “work on cars” to work at a Jiffy Lube. Not to mention the fact that they’ll obviously train you before letting you loose on customer cars. πŸ€“πŸ‘¨πŸ»β€πŸ”§πŸš˜ For example, if he started off working in the pit, under the floor, he wouldn’t have to do much more than locate the oil plug, drain the oil, plug it back up, and perhaps change some oil filters on the cars that have them more easily accessed from the bottom.

I hate to see him not working and struggling, but I think the anxiety from all of the things that have happened… it’s got him to a point where he’s questioning his own abilities, and thinking that he’s not good enough for even basic “some skill required” type jobs. 😟 And I get not being a “car guy” but employee training will give a person the skillz required for any given position. πŸ˜žπŸ€¦πŸ»β€β™‚οΈ Meh… he’s a good d00d, and he’s done a lot of good things for other people who were struggling at various points in his life, so it just sucks watching life doing its best to chew up yet another friend who doesn’t deserve it.

It Shouldn’t Be This Challenging

Today’s been kind of a flop. I didn’t have anything on the schedule really, but even after not getting much sleep – I still woke up with some motivation to work on one or two of my extra projects around the house. Also, between the lack of sleep and the shitty weather, I knew today wasn’t a car or glasses day either… so I’ve spent most of the day waiting for my upset stomach to go away so I could do a little of the work that I wanted to do without feeling like I was gonna yack. 🀒

It did make for a nice lazy day though, something that I sometimes struggle with allowing. Texted with Dad quite a bit, along with a few other friends, and then finally decided to go in the kitchen to chop up some green peppers to make some tuna salad for sammiches – to hopefully settle my belly, which it did. πŸ™‚ And to be honest, I was glad to just wake up today without my back being screwed up… something that it was showing signs of before I ended up falling asleep early this morning. 😯😬

So it wasn’t really that today was a flop… it was just unremarkable for the most part, so I wasn’t looking at it in the right way. πŸ€·πŸ»β€β™‚οΈπŸ˜ And now that I’m feeling better since this afternoon, I know it’ll help my mood to get some more of my “unessential” stuff done before whenever I fall asleep tonight. Normally my lack of productivity would have made me a little twitchy, but I think I’m still riding along on the thyroid med train – still seeming to get back a little more energy with each day that passes. πŸ€’πŸ€žπŸ» I wish I could explain how bad the bad days really were just a few weeks ago, to emphasize how these little improvements are still a big deal.

I think I might go ahead and pull out the 360 cam and charge it up, in case I feel up to shooting any video at the SCF here in a few days. If not that, I plan on taking a lot more regular pictures this year. It’s been a few years since I’ve bothered, especially since last year’s trip was kind of a shit show from the start. πŸ˜’ And with my mood being decent lately (for the most part anyway…) I’m hoping that it’ll also nudge me towards getting interested in my hobbies like video and photography again. 😟

Every now and then Jim will post one of goofy our old videos on Twitter and I’ll come across it, where we were just goofing off and having fun for random Squirtman themed videos, and it makes me realize how long it’s been since I could truly say that I was having fun at anything, or that I was in a good mood for more than a couple hours out of one day. 😞 I’ve gotta start trying to figure out how to get a little more of that back, despite all of the other non-fun stuff I’ll obviously have to be working on (or facing) as well. 🀨 It wasn’t that many years ago that I was a totally different person, and it’d be nice if I could find my way back toward that at least a little bit. πŸ€·πŸ»β€β™‚οΈ If my body will just stay physically un-fucked for a while, I might have a shot at it.

Meh… just thinking out loud again I guess…

Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… 😏 but cripes, that little bit of work messed me up somethin’ fierce. πŸ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. πŸ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. πŸ™πŸ»πŸ€·πŸ»β€β™‚οΈ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed 😳 yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. πŸ§Ÿβ€β™‚οΈπŸ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. πŸ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. πŸ€·πŸ»β€β™‚οΈ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. πŸ™„ Sitting here, happy that I had enough mental/physical oomph to write this. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Today’s Version

While I used up most of my oomph yesterday, goofy here sure is full of it today. 😼 For some reason she loves the smell of hair product. Turns her into a weirdo. If she’s hyper enough, she’ll even attack your head. πŸ˜…

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ