Rambling Elaboration

Yesterday’s entry was admittedly pretty bleak… but not all of yesterday was completely full of suck, so I figured I should come back in here and sprinkle a little bit of that “good” around – even though I know it won’t really do much to balance out the tone of the blog lately or overall. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ๐Ÿ˜•

Knowing that soon I’ll be runnin’ completely without my thyroid meds, there were a few things inside and outside of the house that I wanted to get to… just in case the next several weeks are as “challenging” as I’m expecting them to be. ๐Ÿ˜Ÿ The inside stuff was whatever… but the outside stuff, that’s the kind of stuff that kicks my ass even when I’m at my relative best these days. It also didn’t help that it was still 87 degrees in the late afternoon, when I finally went outside, since “waiting for the heat to die down” wasn’t really gonna work unless I intended to do my yard work in the dark.

When they took out my line of bushes, they plucked about a 1/3 of them, and the remaining 2/3 were cut off at the base – as close to the ground as possible. I told Jason that I had plenty of poison spray when they were doing it, and he suggested that after they were done I should probably go out and hit all the remaining “nubs” in the ground, to discourage them from trying to make a comeback – and to hopefully make them brittle enough that anything still above ground will eventually just start breaking off. So, that was mini-project number one, and luckily I didn’t need my cane nor did I have any neighbors eyeballing me as I worked.

I still had juice left in the sprayer when I was done, so I started hitting weeds along the fence, under a bunch of the evergreen bushes, all over the empty-but-weedy spot (where a big bush used to be) beside the garage, and then all around the AC unit just to make sure nothing considers growing up around it. I was sweating balls at this point. Actually, I was sweating balls within the first 10 minutes of being outside… but yeah, it was time for a break in the cool air inside.

It felt nice, but when it became obvious that I wasn’t gonna stop sweating, I sucked it up and went back outside. I’ve got a couple different sprays for spiders, wasps, bees, and ants – so I treated all the areas that needed it. ๐Ÿ˜ท Front porch got most of the spider attention, back porch had the bees, and then I sprayed what amounts to an “ant barrier” at the bottom and lowers sides of all of the doors that go outside or into the garage. (They’re a fan of Maven’s messy eating habits, usually leaving bits of cat food on the floor for them to sniff out and come after.)ย Bugs don’t really count as “critters” I suppose, but I still hate to be an exterminator. ๐Ÿ˜• But when they won’t stay outside, or try to take over certain areas when they do, they’ve gotta go.

Don’t you love how I can take “Sprayed some poison on the bush stumps and weeds, then killed some bugs” and turn it into a multi-paragraph blog entry? This time it’s intended… to make it sound as time-consuming and exhausting as it actually was. ๐Ÿ˜“ I ended up sweating so much that the mosquito repellent finally quit working, but I had done everything that I wanted – so it was time for a shower, and to stop friggin’ sweating.

Throughout the process, I learned that I have another mutant ability. ๐Ÿ™„ I can work outside for a little less than an hour, come inside into the cold air conditioning, take a shower to get all the stink, grass, and stray poison mist off of me… but I can continue sweating for a full two hours after everything was done and I should have been good. ๐Ÿคฆ๐Ÿปโ€โ™‚๏ธ I’m guessing it’s a thyroid thing that I just hadn’t discovered yet, since I’m usually too gimpy to work that much outside. But yeah… cool shower, cold air, and two more hours of sitting here with a towel to keep drying myself off.

It’s fine though… because as much as this all might sound like bitching, it felt good to accomplish so many things when there were so many other things trying to mentally or physically discourage me from doing so. Until I started to not be able to do a lot of things, I didn’t realize how important that it could be to be able to do something with purpose. So even though this stuff is probably most people’s typical weekend, it’s my little thing to grab hold of and feel good about. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ

And, obviously, I have to take what I get when it comes to stuff like that these days.

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Bad At Feeling Bad

Saw my workers comp doctor on Thursday, discussed the additional pain in my neck and shoulder from relying on my cane (for my unrelated knee pain) this past month, but mostly discussed the upcoming WC mandated “review” – and he’s just as frustrated by what they’re trying to do as I am. ๐Ÿ˜’ Then I finally went back in to my prescribing shrink after taking a couple months’ break to get used to my new WC doc meds… and ended up spending an entire hour with him.

Granted, when you talk to a counselor you usually get an hour, but typically the pill shrink just wants to get you in and out of there, prescribing what he feels is appropriate based on the counselors notes and maybe a few followup questions. He talked to me about so many different possible meds, I have to admit that I don’t even know which ones he ended up calling in for me. I guarantee you that I’m going to be doing a lot of googling before I start taking anything… especially considering the other meds I’m already taking, and that in about a month I’ll have to stop taking my thyroid meds to prep for the next radiation pill treatment.

Meh… I’m not gonna get into all that. But I’m gonna try what he thinks I should, as long as I don’t find anything concerning that he maybe didn’t consider. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ But for the past hour or so, I’ve been waking up and psyching myself up for the trip into the pharmacy. Three different doctors, multiple prescriptions, many new, some to be covered by WC, but still might not be, and then others meant to go through my regular insurance. ๐Ÿ˜ฃ For some reason they can’t mark it in their system, which meds go through which insurance, nor can I count on some of them being approved anyway, so this’ll be a fucking process today. ๐Ÿ˜ 

I know. ๐Ÿ˜ This is just what people have to do. The medical / workers comp / insurance programs in the US are shit, nobodyย does it without jumping through hoops, dealing with delays and irritation… but I’m still gonna bitch about it. ๐Ÿ˜ And sure, whether it’s WC or traditional insurance… once, maybe twice, do what you have to do to verify that “Yeah he’s broken. Yeah he needs those meds.”ย (I get it… fraud prevention) but then just cover the shit plz. ๐Ÿค• Go through that sort of bullshit long enough and you can totally understand why people, as they get older and feel more broken, just can’t or don’t want to have constant adversarial engagements with the whole system – and just stop bothering with some of it. ๐Ÿ˜ข Especially when the doctor’s hands are tied and they can’t even prescribe you the meds that could actually make you feel better – whether due to WC guidelines, insurance not covering it, or it simply being too cost prohibitive. ๐Ÿ˜  Man it fucking pisses me off…

giphy

I’m just bad at feeling bad when a)ย I’m denied treatments that could make me feel better, and b) people are still fighting to take the things away from me that merely keep my pain tolerable. ๐Ÿ˜–

Oh, and my insurance company… they keep leaving messages, saying that they want to schedule an in-home visit from a doctor that can evaluate me and give me his or her opinions as well. ๐Ÿ™„ Yeah, um, no. You’re insurance. Just be insurance. Get my health info from my records like a normal company… and don’t expect me to invite you into my house with another handful of hidden hoops behind your back. ๐Ÿคจ Okay, I guess I’ve dragged my feet long enough, and should get in town and see what kind of luck I have with all this shit.

New Rule

I have to stop letting how I feel when I wake up each day be an indicator of how I’m going to feel for the rest of the day. ๐Ÿคจ Especially since I usually have the luxury of waiting it out… taking my morning meds, giving it a little time, and eventually feeling at least somewhat better. And yeah, I know that this is such a “Yeah, no shit.” thing for normal people, so of course my brain just instinctively resists the idea. ๐Ÿ™„

I’m gonna be so bad at getting older and more broken if I don’t keep trying to recognize my flawed ways of thinking and trying to change them. ๐Ÿ‘จ๐Ÿปโ€๐Ÿฆณ The other thing that I have to work on is learning to accept that some of the physical things just aren’t going to get better. What’s that Garth Brooks song? Much Too Young (To Feel This Damn Old)ย ๐Ÿ˜ Heh… I really hate that my blog is like 90% “bitching about things” these days though… like today, it was only four hours of sleep, waking up because I could feel my pulse in my friggin’ jaw, and then (when I got up to go to the bathroom)ย discovering that my back is trying to re-fuck itself.

I swear, there’s an invisible hat in my house somewhere, filled with bits of paper listing all of my various potential ailments or irritants for the day, and some unseen force just grabs three or four of them at random and there ya go. ๐Ÿค•๐Ÿคข๐Ÿ˜–๐Ÿ˜ท๐Ÿ˜Ÿ๐Ÿค’๐Ÿ˜“โ™ฟ The unending uncertainty of each day is such shit… so waking up depressed or mad is understandable, but I gotta stop letting it stick… especially if that’s the only thing that seems to be triggering it on that particular day.

But it’s been a few hours now since I woke up, my meds are kicking in, things are sucking a bit less, but I’m still gonna take it easy today. I’ve got another appointment tomorrow, plus I need to build up some positive juju because I wanna get back in to see Dad again next week, Bri is gonna be induced and have her baby next week as well – starting at 6 friggin’ AM, then on Saturday Jim’s going to Buckeye Lake to meet up with his dad, brother, and Adam at Pizza Cottage and I’ve also been invited. I’ve missed the last couple of hang-outs with them, so I really wanna try to make it this time. ๐Ÿ˜”๐Ÿคž๐Ÿป

And that leads me back to the new rule. Well, let’s call it a guideline, since I know that I’m going to fail at it at least as often as I succeed…. but without being able to “shake off” how I feel when I wake up, none of that fun stuff on my potential to-do list will be possible. History has proven that more times than I’d like to admit. ๐Ÿ˜’ Trying to adjust my attitude each day will let me hopefully be less flakey to my friends and family, and being less flakey to my friends and family in itself will help keep my mood going in the right direction. I just have to hope that my meds decide to start pulling their weight again soon too.

That’s Just The Way It Is

It looks like I can just count on one week out of every month being horrible thanks to the runaround I get regarding my medication. ๐Ÿ˜’ A full one-quarter of my current existence on this planet, already set aside for fuckery and feeling physically and mentally miserable. ๐Ÿ˜ฃ So, starting this month, I’m gonna have to start rationing – so that way when there are extended delays in getting stuff approved, I won’t be going completely without and feeling the affect of that accordingly.

I don’t even have the energy to get into it. ๐Ÿ˜” I’m just hoping that it doesn’t mean that I lost my court hearing weeks ago. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ I still haven’t gotten any paperwork on it, but I’m guessing the magistrate is probably close to making a ruling if he hasn’t already. But yeah, when I’m already having a hard time functioning like a human, knowing that I’ll lose a week each month like this certainly doesn’t help matters.

But anyway… in an attempt to not think about that for a while tonight, I put my phone on airplane mode and set up a short time-lapse shot. I think the elapsed time was actually about two hours, but it plays out in a minute or so. I used an ISO of about 1200, an exposure of 1/3 of a second, with digital light trail enhancement of 3 seconds. ๐Ÿค“ I’m actually fairly pleased with the result, although I’ve already thought of what adjustments I need to make next time so there’s less grain, brighter stars, and longer light trails.

So yeah… this is just another thing I have to adjust for, the same way that I need to adjust the amount of shit that I do when I’m feeling good – since I know that too much moving around will screw me up. ๐Ÿ˜ Meh… it’s almost too hard to explain how complicated it actually is – the stuff that I can actually somewhat control – so when stuff that I can’t control gets added on top of it… yeah, things start to get bad bad. I’ll figure it out. Eventually. But hey, that video is kinda neat, no? ๐Ÿ™‚

(I might try to capture the movement of just the stars next time we have a new moon.)

But It’ll Be Fun

Feeling pretty miserable today. ๐Ÿ˜ž Christina’s cancer fund-raiser is this evening, but I just can’t make myself go. They’re doing it as a “bar crawl” since she used to be a bartender, and therefore has a ton of friends/acquaintances that would be likely to come out in that fashion… but me, with my twitchy social anxiety and introversion, it’s just not my scene anymore.

I feel bad, because I’d really like to be able to go and show my support, but there’s not really anything that I can do about it. I sent a message to Chelsea a bit ago, explaining why I wouldn’t be there, and I think she’ll understand for the most part. The shirts they had made for the event… it marks the third “cancer support” t-shirt that I’ve bought this summer in regards to a friend who’s fighting that battle, and that’s three shirts too many. (And that’s only my cancer-fightin’ friends who are doing that sort of fund raising.)

But like I told her, I’m not doing very good at accepting “bad” these days, and when there’s an option of being reminded of that “bad” vs. hopefully just being able to avoid the thought of that “bad” altogether and acting like it’s not real… heh… well, I think you know which option my brain chooses for me. I mean, I know they’re gonna have fun and that it will be hopeful, goofy, optimistic, etc… but right now everything just feels too heavy and I can’t be there. (And yet here I am, still feeling “bleh” about it since my brain won’t let me go. ๐Ÿ˜’ It can be frustrating being me sometimes.)

Paused

I’m trying to make myself write a new entry… trying to make myself do anything. Just having an extremely bad stretch of days here, with paralyzing depression – but without sadness. It’s weird. I’m not sitting here dwelling on any one specific thing, I’m just kind of existing… waiting for this latest blast of “meh” to pass. I mean, I’ve got some stuff to talk about, but right now I just can’t. (Which, I know, seems odd since I’m able to sit here and produce the words that you’re reading right now.) Wish me luck. Hopefully I’ll feel better later this evening. It’s the weekend… everybody feels good on the weekend, right? ๐Ÿ˜’

“Wake Up, Case 1485729-4”

Fell asleep around dawn and then was awoken by a phone call from one of my attorneys a few hours later. ๐Ÿ˜’ We’ve got quite a bit of outstanding issues right now, and after the long weekend I could almost feel this call coming… so much so that I didn’t turn my ringer off, since I did need to talk to him.

This entry might as well be titled “What Else Is Wrong?” since, in part, it’s essentially going to be a sequel to my most recent post. As you may or may not know, I try to keep my online presence as free as possible from a) bitching about my pain/disability, and b) talking about specifics of my workers comp case. Partially out of pride, partially because nobody really wants to hear about it anyway.

I’m not sure I even remember what I used to be like before all of this dominated my life. I know it’s not pleasant now, to put it extremely mildly, and I know it’s a constant pain in the ass… so even though it’s hard to remember, I do miss the time when my life was my own and I wasn’t being led by the nose through by doctor visits, IC hearings, physical disability, medication requirements, mental stress, pharmacy policies, insurance companies, and now actual an actual court case. ๐Ÿ˜ž

I’m just frustrated because we’re less than two months away from the court stuff starting and so far the settlement stuff is going nowhere. ๐Ÿ˜• Their side will submit their brief to the court, my side will have a few weeks to reply, and then it starts getting serious. The court will likely want to depose any doctors that have seen or treated me, on both sides, which means I’d have to hope that I could essentially “rent” my doctor for half a day to give testimony – which would be ridiculously expensive. ๐Ÿ˜ฃย (Not to mention ridiculously annoying since he’s already submitted report, after report, after report, in writing.)

So my attorney is going to find out how much they’ve paid each year, on average, for my treatment and medication – and then tomorrow or the next day, when I go to the pharmacy to pick up this month’s meds, I’m going to have them print out what the “out of pocket” cost would be for each medication if I was paying for them with no insurance at all. ๐Ÿค“ With those figures we’ll again try to come up with what we believe is a fair settlement, and then they’ll have to decide if the continuing costs of fighting me are worth it – rather than just settling this and making me go away.

I’m just worried that we won’t be able to get this done before the date of the first hearing. I’m sure it’ll be (us) “Here’s our offer.” followed by (them) “Well, that’s nice, but this is what we’re willing to pay.” followed by (us) “C’mon, get out of here… we need at least (this much)” and then (them) “We’re gonna have to think on this.” with (us) “Well we’re gonna have to think on this too.” Heh… so I don’t know what the odds are of avoiding this court case at this point, but I’d think they are slim.