You Never Get Used To It

(Oh yeah… this is quite a rambling one.Β  Strap in…)

While I was off of my thyroid meds, losing energy with each day that passed, preparing to have my second cancer scan done, as you may remember – I still had to drive over an hour up to NW Columbus, to go to the “Independent Medical Evaluation” initiated at the request of my former employer’s WC insurer. πŸ˜’πŸ€’ For those who haven’t been through it, it’s essentially one of the methods that can be used to try to get medication or treatments disallowed from a claim, based off of a report from a doctor (like in this instance) who has seen you as little as one single time. 🀨 That almost always sets up an Industrial Commission hearing, where (in my case) that report will be compared against the records of my own doctor, who has been treating me consistently for this work injury and disability for well over a decade. 😯

Of course my thoughts were more focused on the upcoming cancer scan at that point, so I went up, had my exam, went back home, and then mostly forgot about it while I dealt with my other medical concerns. But upon collecting my mail from the box a couple of days ago – I saw that enough time had passed for that doctor to have generated his report, which is easily 30-40 pages (if not more), and have copies sent to me, my attorneys, and my own doctor. I waited a few days to open it, because I knew there would be nothing good about it, nor would there be anything that I could do about that fact. 😟 It might as well have been labeled “Envelope Full of Frustration” but I finally made myself open and read it all yesterday.

I’m going to sugar-coat the shit out of this as I continue. πŸ™„πŸ˜ For my second pass through this thick report, I grabbed a yellow highlighter and began to mark and number the areas where more info was needed. 🧐 Whether it was adding context, pointing out inconsistencies, noting conflicting statements within the same report, or bringing attention to things that were implied, inferred, or assumption… I ended up with 48 different sections that required a response. And, unfortunately, there were several things that were simply false. Absolutely false. But still written in this report as if it were fact. 😠 I’m not saying that this doctor just pulled some things straight out of his ass, but it’s a shame how many “inaccuracies” were made by someone that shouldΒ have the presumption of being knowledgeable and accurate, especially given the duty that he’s performing and the way it could affect the future of anyone that he evaluates.

So now my copy of that doctor’s report has 48 highlighted areas, to go along with a numbered “rebuttal report” that I created to address each of those problem areas. So when I give it to my attorneys, they’ll be able to read my comments right along with the numbered and highlighted areas on the original report. πŸ€“ And despite having another doctor appointment at 11am this morning, I was up until after 2am last night… because correcting or clarifying (what I believe to be) inaccurate things in that report is really the only thing that I can do right now when it comes to “defending myself” or possibly helping my attorneys with their argument points. πŸ€·πŸ»β€β™‚οΈπŸ˜ž But yeah, once I started, the areas that needed my attention just kept coming, and I wasn’t going to stop and go to sleep until I had addressed everything that I felt needed it.

Of course my doctor will write a rebuttal report… something that he’s done many times before, to the point where he’s often repeating himself – because the facts are the facts, and they don’t change over time. But when there’s a hearing, it’s just expected that the doctor of record will submit a report, so he’s unfortunately stuck in this situation just like I am. πŸ˜• Thankfully, my doctor is awesome. And like me, he’s not a fan of having his words twisted, his knowledge and methods belittled… and he’s definitely not a fan of any claims, implications, or “facts” that seem to be based on little-to-no actual evidence. So not only will he write a truthful and accurate rebuttal based on all of the medical evidence, but it also serves as a way for him to “defend” himself – which is the same feeling that I have, and why I wrote my index of rebuttal points. 🀨

I have a ton of other things that I would like to say about the doctor’s report, but it’s in my best interest to just stop at this point. I’ve covered the basics, and you’re more than welcome to imagine the non-sugar-coated version… but even if you did that, there’d still be some things that would legitimately shock you. So now I can only hope that my rebuttal points will be helpful and useful to whichever attorney ends up representing me at the actual hearing. πŸ‘¨πŸ»β€πŸ’ΌπŸ‘©πŸ»β€πŸ’ΌπŸ—’οΈπŸ‘¨πŸ»β€βš–οΈΒ (And I’ve always felt the “commission” folks do seem to care as well.)

But the law firm that represents me is great, and we’ve (knock on wood) got a great track record from the beginning through today… so I know that they’ll have already picked apart many of the same things that I’m bringing attention to, but there still might be something that I say here or there that will contribute to the arguments that they use on the day of the hearing. πŸ€·πŸ»β€β™‚οΈ And at the very least, having more information “straight from the horse’s mouth” will be beneficial in general, since we usually only have about a half hour to sit and quickly discuss the case before the hearing starts.

It would be hard for anyone to find the words to accurately express the feeling and level of frustration that comes along with this situation. πŸ™‡πŸ»β€β™€οΈ To have decisions being made by other people, about things that will dramatically affect your future, knowing that “the truth” is the only weapon that you have… it’s such a helpless feeling, especially when you’re already feeling pretty damn helpless most of the time, due to the disability and pain that this whole thing is about in the first place. 😒 So other than the info I’ll be giving my attorneys, it comes down to sitting, waiting, and hoping… and there’s nothing relaxing or reassuring about that. 😞

Any good luck or positive juju that you want to mentally send my way is greatly appreciated. πŸ€žπŸ»πŸ™‚πŸ™πŸ»

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Bad At Feeling Bad

Saw my workers comp doctor on Thursday, discussed the additional pain in my neck and shoulder from relying on my cane (for my unrelated knee pain) this past month, but mostly discussed the upcoming WC mandated “review” – and he’s just as frustrated by what they’re trying to do as I am. πŸ˜’ Then I finally went back in to my prescribing shrink after taking a couple months’ break to get used to my new WC doc meds… and ended up spending an entire hour with him.

Granted, when you talk to a counselor you usually get an hour, but typically the pill shrink just wants to get you in and out of there, prescribing what he feels is appropriate based on the counselors notes and maybe a few followup questions. He talked to me about so many different possible meds, I have to admit that I don’t even know which ones he ended up calling in for me. I guarantee you that I’m going to be doing a lot of googling before I start taking anything… especially considering the other meds I’m already taking, and that in about a month I’ll have to stop taking my thyroid meds to prep for the next radiation pill treatment.

Meh… I’m not gonna get into all that. But I’m gonna try what he thinks I should, as long as I don’t find anything concerning that he maybe didn’t consider. πŸ€·πŸ»β€β™‚οΈ But for the past hour or so, I’ve been waking up and psyching myself up for the trip into the pharmacy. Three different doctors, multiple prescriptions, many new, some to be covered by WC, but still might not be, and then others meant to go through my regular insurance. 😣 For some reason they can’t mark it in their system, which meds go through which insurance, nor can I count on some of them being approved anyway, so this’ll be a fucking process today. 😠

I know. 😐 This is just what people have to do. The medical / workers comp / insurance programs in the US are shit, nobodyΒ does it without jumping through hoops, dealing with delays and irritation… but I’m still gonna bitch about it. 😏 And sure, whether it’s WC or traditional insurance… once, maybe twice, do what you have to do to verify that “Yeah he’s broken. Yeah he needs those meds.”Β (I get it… fraud prevention) but then just cover the shit plz. πŸ€• Go through that sort of bullshit long enough and you can totally understand why people, as they get older and feel more broken, just can’t or don’t want to have constant adversarial engagements with the whole system – and just stop bothering with some of it. 😒 Especially when the doctor’s hands are tied and they can’t even prescribe you the meds that could actually make you feel better – whether due to WC guidelines, insurance not covering it, or it simply being too cost prohibitive. 😠 Man it fucking pisses me off…

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I’m just bad at feeling bad when a)Β I’m denied treatments that could make me feel better, and b) people are still fighting to take the things away from me that merely keep my pain tolerable. πŸ˜–

Oh, and my insurance company… they keep leaving messages, saying that they want to schedule an in-home visit from a doctor that can evaluate me and give me his or her opinions as well. πŸ™„ Yeah, um, no. You’re insurance. Just be insurance. Get my health info from my records like a normal company… and don’t expect me to invite you into my house with another handful of hidden hoops behind your back. 🀨 Okay, I guess I’ve dragged my feet long enough, and should get in town and see what kind of luck I have with all this shit.

So, I Went Out

Yesterday was an all around recipe for failure. πŸ˜’ I was still dealing with the pharmacy issues andΒ already feeling like shit, but I had made a promise to a friend and I was determined to not be a disappointment again. 😞 For her birthday, a couple of months ago I bought Cassi two tickets to a concert she wanted to see at the Newport, and that show was last night. It was never my intention to go with her, as I just can’t do it right now (I didn’t even go see Skillet at Winter Jam) but I wanted her to be able to take a friend or her sister to share the fun with.

Unfortunately they didn’t have a ride to get to the show, so I went up there, picked them up, took them to the show, dropped ’em off, and then I had to find something to do until the show was over and I could pick them up again, take them home, and then make my way back home myself. πŸ€” I didn’t mind doing that at all… it was part of the gift. But I was already in bad shape before I left, and the sea of humans and traffic on campus only made things worse. 😬 I was gonna just find some thrift stores or something to kill time, but there were just too many people so I needed to go elsewhere.

That lead to one of the high points of my evening at least, after deciding to go over to Hollywood Casino. I hadn’t been there since maybe last summer, and I remembered that being in a casino often masks my pain… but not so much last night. 😐 It was fun, but not fun, if that makes sense. 😏 Too much time in the car, too much sitting in uncomfortable chairs… and it just kept getting worse. The one saving grace is that I kept losing and winning at a rate that had me only slightly down from when I walked in – and then right when I was leaving, I hit on a machine that Jim always says I should play. πŸ˜ƒπŸ€·πŸ»β€β™‚οΈ This makes the second time he’s picked a winner for me.

But anyway, by the time I got home around 11pm… omg… worst neck pain that I’ve had in months. πŸ˜“ I’m not yet going to assume that the steroid injection is wearing off, since there were other factors, but yeah… it took exhaustion to finally make me sleep, because there wasn’t a single position that I could turn to that would make it go away. That sort of pain that makes a person go, “Oh shit… I’m really screwed if it just stays like this.” But like I said, thankfully, today the pain was down probably 90% from yesterday.

I guess I should wrap this up. 😏 Waking up feeling somewhat okay today… it’s allowed me to sit and plan my way towards the weekend in a way that I might be functional and okay. Don’t get me wrong, I hate that have to do any of this, and I hate that I have these days where I know I should do absolutely nothing, before baby-stepping my way out of it… but despite how it makes me look or how it may affect others, I have to start figuring out how to not be physically miserable and emotionally fucked because of it. πŸ€·πŸ»β€β™‚οΈ