Some Today, Some Tomorrow

Woke up to my neck feeling all janky today… either from sleeping on it wrong, or just from the building stress of the last few days. But I still dragged my ass out of bed with intention today, determined to get some of the stuff on my mental to-do list done. It wasn’t until I was getting ready to leave the house that I realized it was 92 effing degrees outside today. The heat still takes a little more toll on me than it used to, and along with the neck / headache shit – I ended up scaling back my goals just a bit.

First stop was gassing up the Fusion and topping off the air in the tires, then to the bank, then to the post office – to mail out that report for my attorneys. I wish I could snap my fingers and it would just be there, but I’ll have to be okay with them getting it tomorrow and then finally actually looking at it at the start of next week. I’m gonna give Jim a call though and leave him a message, letting him know that it’s coming.

And then since my car has gone from “change oil soon” to “oil change required”, I figured I should go ahead and get that done while I was out today. It was like I suspected though… and why I like these new guys that I go to for service… he said the synthetic blend that I got last time could have actually lasted me many more miles, and the car was only crying because I forgot to inform it that it got synthetic this last time, and didn’t increase the mileage interval before it starts squawking at me. But yeah, for an oil change place to say 7,500 miles on synthetic is cake, and even 10,000 wouldn’t be that bad… that shows some honesty that you wouldn’t always expect.

But by the time the oil change was finished, the base of my skull was thumping and I was feeling pretty meh due to hanging around in the heat as I waited, so I decided that was enough “on the go” chores for the day. Hoping I’ll bounce back overnight tonight, so I can finally go get my hair cut and schedule an eye appointment tomorrow.

Ugh… I hate that the workers comp crap is still in the back of my mind though. Today is a good example of something that would be used against me. “Look! He admits to working on his car!” (Because they’d count putting air into my tires as work.) And if I didn’t specifically state that I took my car somewhere for an oil change, they’d probably claim that I didΒ that myself as well. And of course, regardless of whether I mention any levels of pain or not, there’s this strange “Robert admits to performing multiple chores, including multiple stops at various locations throughout his day.” kind of stuff that’s obviously intended to imply something…

I guess I just thought that I was past the point of having to justify doing things that I simply have to do, or pointing out every time that something causes me difficulty or pain each time I do it. It hurts to do certain things, such as folding laundry, standing and doing dishes, etc… but of course I still have to do those things. I’m not sure how pointing out that I’m still managing to get by, despite my disability and pain, somehow makes me the bad guy. Meh… but anyway… I’m okay with what I was able to accomplish today.

EDIT: After I finished this entry, I remembered something else that annoyed me enough to come back to add this. Weeks ago I learned that Skillet was having a concert at the end of September in Columbus. However, I’m not going to that concert… a concert by one of my most favorite bands… because it’s a general admission show, and it would simply hurt too much to stand and be bumped around for that hour and a half. I’ve fought with myself, trying to make myself go, but I chose not to because I don’t want to hurt. I think I even made an entry where I wondered about “disabled seating” for folks like me… but in the end, despite it being a show I’d desperately love to see, I’m not going. My life is a constant balancing act because of my disability and pain… sometimes I have to do things that hurt (like chores) that I don’t want to do, but I have to. Sometimes I choose to do something fun, despite knowing that fun thing will likely cause me pain… and I think that’s okay too. But then there are examples like this – where I really wanna do something, but I’m not willing to pay the pain-equivalent of “the price of admission” to do it, because I’m that concerned with avoiding extra pain. Yet the legitimacy of my disability and pain is still being questioned, year after year after year…Β  fml.

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Oh C’mon…

Getting a half-way decent night of sleep didn’t do anything to recharge my batteries for any significant use today. Of course I do have a little more on my mind than usual, but that wasn’t what was bothering me today. Actually, I didn’t realize that anything was bothering me today – until it did. Around noon I went outside to use my little air compressor to air up my tires, since that was something I could just do in the driveway without having to drive into town or anything. Figured that was within my ability today.

Spent about ten minutes doing that. It was in the sun, yeah, but it wasn’t like it was actually that hot out. But yeah, so I was just waiting in the normal sun as my slow compressor topped off two of my tires… and when I went back inside, I fell asleep within minutes and didn’t wake up until almost two hours later. So bizarre. I wasn’t tired, wasn’t sleepy, and that’s all that I did… but *ploop*… I was out.

It’s still frustrating, and it still bothers me… but being so close to the end of this phase, at least I can think about it at the end of the day and smirk. It would be terrifying if this was just “how I’m gonna be from now on” but that’s not how it is. But knowing that something so truly small can trigger the “nope” button in my brain, which effectively shuts me down, it’s such a weird thing. Not a fan.

Hoping that I can get one more solid night of sleep under my belt tonight, and that maybe that will be enough to at least avoid any unintentional spontaneous naps tomorrow.

Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… 😏 but cripes, that little bit of work messed me up somethin’ fierce. πŸ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. πŸ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. πŸ™πŸ»πŸ€·πŸ»β€β™‚οΈ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed 😳 yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. πŸ§Ÿβ€β™‚οΈπŸ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. πŸ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. πŸ€·πŸ»β€β™‚οΈ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. πŸ™„ Sitting here, happy that I had enough mental/physical oomph to write this. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

“Feels Like 109”

I had only been checking the upcoming weather for rain, thinking about my grass… but this evening I got an alert on my phone, advising about the extreme heat warning that will be in effect until Saturday evening for basically all of Ohio. 😳 I’m pretty sure I haven’t mentioned this, but I’ve already had two “spells” where I was outside for a relatively short time (but in the heat) where I got lightheaded and woozy enough that I knew it was time to get my ass back inside. 😬🀒

So it was strange when I saw that alert. Something whereΒ (up until recently)Β normally I’d just grumble to myself and move on, but when I read that the heat index could reach 109 degrees it actually made me anxious enough that I momentarily got butterflies in my stomach. πŸ˜• Heh… I know that sounds stupid, but heat regulation is an issue for me right now, and seeing that number… I mean, holy shit. 😯πŸ˜₯Β NBC4’s weather people are already talking about the “cool down” next week… but they’re still talking about low-to-mid 80s. πŸ™„πŸ˜’ It feels like this miserable weather is never gonna end.

Thank God that me and most folks I know have AC, but there areΒ folks that I know who only have fans… and it does cause me to have concern for them. Places are giving away fans, the power companies talking about preparing for extra load on the system, various buildings will be operating as “cool centers” for people… 😟 so I suppose all of the “scary” talk, combined with how I feel, is probably making me worry for those other folks more than I maybe need to. πŸ€·πŸ»β€β™‚οΈπŸ˜• But yeah, next couple of days are gonna be rough.

Everybody, please try to keep as cool as you can… stay safe…

Okay, This Heat Can Go Away

I’ve got all the supplies now, so today will be flea and yard day. It is miserable stinking hot out, just like it seems like it has been for the past two weeks straight – so again, as long as the rain holds off, I’m going to wait until evening before I spray on some OFF and go out to scrape up the dirt and lay down the grass seed. It just looks like we’ll have a few days of showers this week, so it might have a fighting chance even though it’s not the optimal time of the season to plant grass.

My temperature regulation and energy levels are already way out of whack due to being off the thyroid meds, so that doesn’t really encourage me to go out and sweat again, but as long as I just take my time and be conservative with my actions it should be fine. Then the flea powder for the carpets… it’s supposed to be left on for a minimum of an hour, with 24 hours actually being ideal. Of course that’s not gonna work, since animals are also not supposed to be in contact with it, so I’m hoping I’ll have the oomph to deal with that in the evening around bedtime.

Maven always follows me into the bedroom and craps out when she thinks I’m going to sleep too, so I’ll probably start that routine early tonight, get her in there, get her where she’s settled and not worried about what’s going on outside the room… and then I’ll get back up and dust the entire carpet. I should be able to leave it on for several hours before vacuuming everything up… even if it means shutting the bedroom door and annoying her if she thinks she wants out for some reason.

Then I’ve got the spray for whatever areas the powder isn’t suited for, so hopefully after tonight she’ll have far fewer itchies than the day before. She’s still actually not that annoyed by them, so they must not be too bad, but she will come over to me more often and “give me her face” so I can use the fine-toothed comb on it. She’s kinda weird, but I’m lucky that she tolerates almost any type off “fuss” now, whether its grooming or just getting eye boogies.

Been There, Done That

Trying to force my brain to take a break today… and having an evening NASCAR race helps with that. It’s actually at a track that I’ve been to, but when I went a handful of years ago it was still a traditional Sunday race. Ya know, having all the races on a Saturday night would be a good selling point for the out-of-shape, disabled, or old farts. (Of which I’m like 2.5 out of 3) Mid-day summer races, with all the blacktop and aluminum seats reflecting and radiating the heat… β˜€οΈπŸ”₯πŸ˜“πŸŽοΈπŸ’¨πŸ’₯Β Thankfully it wasn’t until I was a little older and more out of shape (after all my trips) that I realized how brutal it can really be. 😯

Tonight’s race is from Kentucky Speedway. I think it was four years ago that I went… staying free at ‘Da Boat for a couple of nights, and hopping over the river to Sparta on race day. 😎 If I remember correctly, Cassi went with – but just to enjoy the room and the getaway. It really is a fan friendly track, but woo… all that walking. πŸ€¦πŸ»β€β™‚οΈΒ It’s no Indianapolis… another track where I’m amazed that I would spend entire days walking around (miles) in the August heat. πŸ˜₯πŸ™‚Β I suppose it helps though, once you’re there, hearing the cars, seeing the drivers, getting the pics and occasional autographs… it only hurts and burns later that night. 😏

It’s funny, I remember having a Skoal Bandits matchbox car when I was a kid, but that was the extent of my interest in NASCAR until after I was out of school and Dad took me to a couple races at Indy. Since then I’ve seen two Brickyard 400s, two Indy 500s, one race at Kansas, and one race at Kentucky. πŸ˜ƒ But, probably showing early signs of what was to come, the last few times (and those were a while ago) that I went to Indy… I’d only go on qualifying / practice day. That way I could see the sights, collect all the good shots that I could, sneak in whatever areas I could manage… but not getting the “bake in the stands for however many hours” experience that actual race day would require.

I’m not saying that I’ll never go to another race, or another track around race days, but I just haven’t been able to stay as interested in the new drivers once “my drivers” or “our drivers” retired or otherwise exited the sport. 😟 Think about who you’re not seeing anymore when you go to a race, and if you’re old enough – it’ll probably make you wonder if you still wanna bother going too. πŸ€”πŸ€¨

Dale Earnhardt, Mark Martin, Dale Jarrett, Jeff and Ward Burton, Darrell and Michael Waltrip, Sterling Marlin, Bobby and Terry Labonte, Mike Skinner, Kenny Schrader, Ricky Rudd, the various Bodines, Rusty Wallace, Morgan Shepherd (oldest driver to start a NASCAR race, at 72 😯 years old), Jeff Gordon, Greg Biffle,Β Tony Stewart, Carl Edwards, and even Dale Jr. That’s how you know you’ve been a fan a while though, when you’ve watched a kid come into the sport, run for a good long time, and now even they’re gone. And yeah, I didn’t necessarily give many shits about a few of those named… but boy did they all have personality. πŸ™‚

And that’s exactly what made their presence so easy to remember and, now, miss. πŸ€·πŸ»β€β™‚οΈ