I Have My Reasons

Still hangin’ in there, still waiting through this process… 😟 of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. πŸ’‰πŸ˜¬πŸ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. 😐 Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. πŸ₯Ί My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. πŸ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldΒ be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” πŸ™‚πŸ€·πŸ»β€β™‚οΈπŸ™πŸ»

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Here Comes The Rain Again

It was interesting, yesterday at the pharmacy, as I tried to get all of my medications processed through the proper insurer, etc. When the lady told me that one of my WC meds had been denied again, I sort of jokingly apologized for my situation being such a pain in the ass for them each month – and said that I could pay cash for it and hope to be able to get a refund once it does get approved, but that I was sure there are probably dozens of other customers just like me and that I didn’t want to be even more hassle than I already had to be. 😏 The interesting part, and this isn’t the first time that someone there has at least hinted this towards me… but she said that in general, they don’t have many problems with workers comp customers, and was surprised (looking at my records in their system) how I seem to have the same trouble almost every month. πŸ€¨πŸ˜’ So it’s nice to feel like the complaints in my head are justified, but it doesn’t help when I want to reassure myself that it’s “nothing personal” against me. πŸ™„ Yeah, the appointment coming up this week, the requirement that my WC adjuster be contacted personally to approve the same meds I’ve been taking for years and years… it’s hard to pretend like it’s all a coincidence. 😞

But in the evening I managed to fall asleep relatively early, and then woke up in a cold sweat about an hour later after another awful nightmare. πŸ˜₯ Dad and I were out on Shepherd Hill, it was late in the evening, a storm was blowing in, and we were walking along the fence-line of the property… where everything was all overgrown, as if our houses there had been abandoned. 🀨 My cousin Jim was at our house, and was helping to pack up all of our valuable things before the storm hit… but Dad and I were still out in the cold and wind, looking for Mom. 😟 As it turned out, she was actually out in the garage, making a safe space for all the kittens to hide and safely ride out the storm.

By this point Jim, Uncle Jay, and some others had already taken their carloads of things and left, and Dad and I were trying to get Mom to come inside the house so we could get the last of our things and then leave as well. But having grown up in that house, she didn’t want to leave… and as the storm hit, it turned into a tornado. Pieces of the walls started giving way, window were breaking, parts of the floor were being pried up from the beams and thrown into the air, and the three of us took shelter in the doorway between the foyer and the kitchen – and could only watch as the house was being torn down around us. 😒

It was then that I woke up… so I didn’t actually “go through” the worst of what would have happened if I had stayed in that dream, but it was close enough. And it was one of those dreams that felt so real that the noise and wind blowing from the fan in my room… it took me a few seconds to realize / remember that it was just my fan, and not that storm blowing things around still. Luckily I’m still exhausted… not only from the past few days, but also from that nightmare… so I think I’m gonna be able to go back to sleep fairly easily. I just hope I don’t drop right back into that dream.

That’s one of my “talents” that I usually appreciate… being able to “resume” interrupted dreams, or having dreams that take place in certain fictional locations, but locations that are always the same in my dreams, making them seem as real as if I was sitting on my porch and looking out at my back yard. It’s usually a comforting feeling to have these made up, but specific dream “destinations” over multiple decades… but that’s not even how it was this time. This was our old house, it was the house that Mom grew up in, and it was too fucking real. 😣 I have “good” Mom and Dad dreams too, but I’m really learning to hate these bad ones.

Used to be I could be screwed up during the day for whatever reason, but at least I could count on “sleep” as a time where no matter how stressed, depressed, or screwed up I was feeling during the day – it would all go away at night. But these past couple of months, more often than not, the “twitchy” of the day just follows me into my dreams. A lot of days when I wake up, my first thought is “I can’t wait until this day is over so I can go back to sleep.” but, at least right now, I can’t even say that and mean it. 😞

I’m tired, boss…

Insufficient Quantities

Another half-work / half-shlubbing-around weekend day. 😐 Cassi had the day off, so I went and got her so I’d have some company (and a helper) and so she could have time away from home. So, like the last time she was here, she’s been working on her stuff a little more and I’ve been working on my stuff more… using that bit of motivation that you get just from having someone hanging out. 😊

A couple different phone calls to the pharmacy this morning and they’re still having problems with getting any of my workers comp related medications approved. πŸ˜’ Ten minutes on the phone, then on hold, and then told that they were gonna have to make some calls to get things straightened out.Β  Haven’t heard anything back from them for the past couple of hours, so I’ll be calling again after I finish this entry. I’m not even trying to get them before last month’s supply ran out. πŸ€¦πŸ»β€β™‚οΈ

Heh… and as I’m writing this I got another text notification from the pharmacy saying that one item is on order, another is ready – but with a $12 charge, and no info about the third. πŸ˜• But this confirms the typical problems I have every month… because if there’s a charge on one of these, that meant it was run through my regular insurance instead of the one provided by workers comp. I guess twelve bucks won’t kill me though.

And even though it’s Saturday, I got an actual registered letter that I had to sign for, from that “home care” medical provider that I mentioned a few entries ago. It says that they’re letting me go as a patient (okay?)Β and that I need to find someone else… despite having never used their services and not knowing who this nurse is that supposedly tended to me a couple times. 😠 So I sent them another email, despite just talking to someone from there on the phone, telling them to knock it off with the bills and the mail. It’ll probably do as much good this time as it did last.

Meh… so that’s been the first half of the day. And yeah, I know that a lot of the entries in the blog lately have just been me bitching about the mundane and trivial, but believe it or not – some people do like keeping tabs on me and knowing how things are going, even people that aren’t relatives or close friends. It’s weird to have made what are essentially digital pen pals, from people who have found the blog and have then messaged me for one reason or another.

But I guess I better throw on some pants and head in town for the one script that I can pick up. πŸ™„ And like I told Cassi, the reason I go in there most of the time, and deal with this shit in person – it’s because people tend to work a littleΒ bit harder when you’re standing right there, telling them exactly how things are supposed to be, and nudging them in the right direction when needed.

Heh… this was quite a ramble for just some medical billing filling bullshit. 😏

I Am The Eye In The Sky

Had a bit of a setback with my back yesterday. πŸ˜₯ The pain woke me up around 4am, and a quick trip to the bathroom made me realize that the strength/ability in my right leg wasn’t really there. I probably just slept on something wrong, but rather than dwell on it and get upset about it, I decided to devote the first half of the day to staying in bed, watching movies, and eating a few boxes of that ready-to-make chicken salad and crackers. πŸ– I could still find certain ways to lay that would alleviate the pain, so I just did that and totally plucked myself from what would have been my “normal” routine, and plopped myself into this “being a potato in bed” zone that was outside of my normal timeline. πŸ§™πŸ»β€β™‚οΈ My weird way of trying to explain it anyway… but it worked… that half day of removing myself from everything but Netflix and the cat actually helped – and I was able to get up and around by the early afternoon.

As I was lying there though, I started pondering my various aches, pains, and disabilities… wondering which ones will get better, if any of them are starting to just stayΒ with me, and how I’m gonna be as I get older and have to deal with compounding issues like this. 😟 Like I told Dad, I ended up coming to the conclusion that I’m only complaining as much as I have been because I still feel like I can recover or at least improve. πŸ€·πŸ»β€β™‚οΈ If the “bleh” feels temporary, it’s easy to bitch about it when it’s slow going… but honestly, and my neck is proof of this, I can learn to live with pain and disability – to the point where eventually it’s “just there”, sucking, but something I can compartmentalize for the most part. 😐 For the most part… ‘cuz there’s always super painful exceptions. Summarized, my bitching will eventually slow. 😏

In the evening I went in town to deliver those two Yi security cameras to my cousin. I’m obviously more excited about any kind of A/V tech than they would be, but I could still tell that she was having fun playing around with the one as she went through the setup process. πŸ“ΉπŸ‘©πŸ» Matt’s already running through the possible installation locations, so as soon as they get a couple little memory cards they’ll be ready to roll. It’s crazy how even just five or ten years ago, creating any kind of home video security system was expensive and a pain in the ass. There’s no way that Yi makes any money off of these cameras. 🀨 I’m guessing they’re banking on people like me to sign up for the monthly cloud storage fee – which I don’t mind doing at all.

So anyway, despite feeling pretty rotten for the first half, it actually wasn’t that bad of a day overall – and it definitely made me happy to gift those cameras to Toni and Matt. ☺ I really hope that they never have any bad reason that they’ll need any of the footage that they record… but I’m glad that they’ll have those cameras just in case they do.

Slipped My Mind

When Toni and Matt were getting ready to move into their new place, Matt had gotten in touch with me and asked if I had any security cameras that he could use until everything was moved and they were totally settled in there. Now, at that time they didn’t have the internet activated, so there really wasn’t much I could provide that would be helpful. I had one small camera that could record to a microSD card, but it wasn’t meant for 24/7 monitoring – and besides, if someone broke in, they’d just take the camera along with whatever else they wanted, and nobody would be the wiser. 😏

Well, they’ve been living there for months now… but for some reason, after that one time of me and Matt trying to figure something out for security cameras, the whole idea of it had completely left my thoughts. 😐 Even after I set up my own house with multiple cameras, and after I got a camera for Genesee, I still didn’t think until just earlier tonight that Matt and Toni are probably the two people that need cameras like that the most. πŸ€·πŸ»β€β™‚οΈπŸ€¦πŸ»β€β™‚οΈ I wouldn’t say that their area of town is that much more sketchy than any otherΒ neighborhood you might pick on a map, but it’s an area that’s definitely more activeΒ – with random assholes on the street, on the sidewalks, in the back alleys… 😯

I don’t need to justify it, but Toni really does a lot for me, Mom, and Dad, and she’s always been that way. A “helper” like her mother. πŸ™‚ And that is just the excuse that I need to get her and Matt a couple of the security cameras like I use here at my house. If I was a good cousin I would have thought to do this for them months ago, because Toni works hard for her stuff, Matt works hard for his stuff – and neither of them should ever have to deal with any of their stuff going missing… at least not without video to show them who did it. πŸ“ΉπŸ˜―

I’m still amazed at the features of these “Yi” branded cameras, which you can still get for about $20. They’re the older models, and only 720p resolution, but they’re still absolutely fine for basic security needs like theirs. And like I told Toni, when she said she’d pay me back… I told her that I was happy to get them a couple of the cameras so they could play around with them and see what they thought – and then rather than paying me back, I told her to just take that money and put it towards a couple more cameras if they end up becoming fans and wanna expand their web of surveillance. 😎

Transfer

I had a slide scanner, so I’ve already converted all of the family photo slides over to digital on my own, but lately with all these “abandoned home” videos that I’ve been watching on YouTube it’s making me think about things that eventually get lost to time – and the reel-to-reel projection movies in the basement here could easily meet the same fate if they get too brittle, the projector stops working, or if nobody cares to even check them once I’m gone due to it being a pain in the ass. 😏

So I think I’m gonna start looking into having someone professionally convert them to digital for me. It’s been so long since I’ve even looked in that cabinet down there that I don’t know how many there are, or exactly how many of them feature a baby me. Regardless, I’d like to get them all transferred to digital so I have a way to easily share them with people now and then for after I’m gone as well.

I know there are “mail in” companies that do that sort of thing, but I think there’s also a video production company here in town that handles projects for the schools, the city, etc, and I think I remember something about them doing smaller projects like this for anyone that’s in need. More on this later if I actually get around to it.

 

Abandoned Exploration

I’ve found myself getting lost in “abandoned buildings” videos on YouTube over the past week or two… and more specifically in the ones where everything was just left behind, as if someone got up and went to work one day and just never came home again. 😯 I’m not sure why it fascinates me so much. It might be because, like Mom, I can look at any old home and imagine what life it used to hold. ☺ Families, holidays, birthdays, ups, downs, day-to-day boring life, just everything

I think the saddest part about these videos though is thinking about each of the individual items that people come across. Because you have to think… each item had a purpose, a reason at some point. πŸ€” Some more sentimental than others, but yeah… whether it’s old photos, stuffed animals, dolls, toy cars, nick knacks, CDs or cassettes, maybe even VHS or 8mm movie reels… every one of those things has a story behind it, but now those things are forgotten by the world, dissolving to time. πŸ˜”

I think that I may relate a little too much to some of these videos. 😏 Granted, it’s only because of the story that I create in my mind, but when you see an old house that is basically untouched – you sort of suspect that whoever lived there last was likely old and alone, with no kids to gift his possessions to, so for whatever reason the property just sits. That’s why exploring feels important to me, so even when someone is gone and forgotten by time, someone else comes along and does a great documentary and shares it on YouTube for those people and memories to live on.

It actually creates a moral dilemma for me though. πŸ˜’ The “rules” of urban explorers dictate that you take pictures, you take video, but you never take stuff. In theory I agree, because it still does belong to someone else, whoever that person may be… but I struggle with that rule because of the asshats that inevitably discover and vandalize such places. There’s just a large segment of the human population that would rather destroy the things that they find rather than appreciate them for what they are and what they were.

Most of the time it’s stuff that I wouldn’t even want for myself. Just stuff that deserves a better fate than to be overtaken by weather and nature and eventually destroyed. 😟 Antiques, porcelain dolls, old books, and other vintage items… it would be so hard to not collect them up just to donate them away, knowing that they’d then live on in the hands of someone that appreciated them. But maybe that’s not meant to be their fate. Maybe, sometimes, our stuff is only meant to live as long as we do, and suffer the same fate once we’re gone. I dunno… I’ll have to work this one around in my head a while.


  • PS: Having watched enough videos to say this, I think that there’s a lot of folks who don’t know the difference between “abandoned” and “unused” when it comes to the buildings they come across. For example, if you find an office complex that hasn’t been operating for six months, going inside and going “Wow! Look at all this office stuff left behind!” I feel like you’re more “breaking and entering” rather than exploring something that’s truly been abandoned. I guess this hobby has lots of moral quandaries.