Hard To Accept

With a lot of stuff going on in my life, I kinda extracted myself from social media and real life friends for the better part of three months now… but after seeing Dez, it convinced me to get back on and start talking to my friends again. I’m just not anxious to figure out how to explain my absence, since it’s a combination of health problems, mental problems… you know… stuff that people always assume other people won’t really understand.

One of the first people that I checked in on was one of my friends who was just starting to go to his doctor for possible cancer related symptoms the last time we spoke. I talked to him today and he confirmed that it’s indeed cancer, and that it’s so bad they’re not trying to cure it. 😒 So he’s terminal, and the chemo is just to give him as much time as possible. He says it could be a couple of years, or it could be a couple of months. 😳 One of those deals where the doctors can’t be much more certain than that. 😞 It’s hard to know what to say to someone when you hear that kind of news.

I also checked in on my buddy Rick, from school, and it looks like his fight against hairy cell leukemia is still going strong. I haven’t spoken to him, but I see he’s posted pics from chemo treatments as well as something regarding bone marrow… so it’s good to see that he’s still got the required fight in him. πŸ‹πŸ»β€β™‚οΈπŸ’ͺ🏻 There’s one more friend that I need to check in on like that, but she’s currently enjoying vacation time with her awesome boyfriend… and the last thing I wanna do is poop on the good mood by asking about her cancer status. 😬

Oh, the video above… it’s just one of my typical Hyperlapse videos, but shot out the side window instead of the windshield. πŸ€·πŸ»β€β™‚οΈ I don’t know what it is about the movement of the clouds that feels so peaceful. It makes me feel so small, and the beauty of the world feel so big. ☺ I’m hoping that I can get past all of the stuff that’s keeping me down right now, so I can get out and do some video or photos or something somewhere… watching the clouds churn makes me wanna be out among them.

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Woozy

I’m glad when the weather is crappy on the days that I feel crappy. Today was one of those days, for both things. πŸ˜• It’s hotter than shit outside, but there was even a little bit of hail for a couple of minutes earlier. But I don’t know if it was something I ate or what, but yesterday afternoon through today… bleh… 🀒 Thankfully it never got to the point where I was kneeling at the porcelain throne, and I think that by the time I wake up tomorrow I’ll be alright. 🀞🏻 Might try to eat some soup later. πŸ€·πŸ»β€β™‚οΈ

Even though I don’t accomplish a lot each day, being sorta laid up for an entire day is making me twitchy. I’ve got all these little things in my mind that I’d like to work on around here, some of which wouldn’t involve much more than sitting here at the laptop, so I’m hoping to maybe at least get some of that stuff done this evening – while being careful not to do anything to provoke the gurgle… heh

Maybe it was all those frozen taquitos the other day. πŸ€”

Same Ol’ Song and Dance

Ended up staying awake for 28 hours straight, then slept from 8a to 3p today… so now I’m likely to be up all night, which doesn’t really help with my plans for tomorrow in the early afternoon. I’ll keep my fingers crossed regarding that, but man… so glad to finally have my medication in hand. It took some oomph to get up and go in town to get it, but yeah… this month was ridiculous when it came to getting these filled. They weren’t even new scripts, just refills.

If I didn’t know how much I’d hurt, and how negatively my ability would be affected, I’d try to wean myself off of this shit. Not only do I have to go through this routine nearly every month, but in the days leading up to when I call for my refills – I’m already starting to worry what type of clusterfuck will happen this time, that will end up with me going through temporary withdrawals. So basically 1/3 of every month is either spent worrying about my refills, waiting for my refills, or suffering withdrawals from being delayed from getting my refills.

Gah… so tired of it. But yeah, I think frustration built up over the past couple of days, which is why I ended up barfing out those two super-long recent blog entries about all the stuff going on down in Florida. I needed something to take my mind off of how I was feeling, and that seemed to do the trick. But it looks like I’m going to have to set back even more of my meds for the end of the month from here on out. Shouldn’t have to short myself each day just to make sure I don’t run out when I get screwed over, but yeah, I guess that’s what I have to do.

Believe it or not, even though my court case was back in the middle of February, they still haven’t made a determination. That might account for some of the delay, if they were waiting and hoping that I’d lose my right to those meds, but who knows. Whenever I do get a chance to talk to my lawyers next though, I do intend to point out what’s being done each month to see if there’s something that they can do – or even if it could be seen as some sort of spiteful or unjust action that could carry some sort of penalties for them.

Reality tells me there’s not shit they can do, that I can be yanked around basically as much as they wanna yank me around, and that it’s up to me to figure out how to protect myself towards the end of each month. Ahh, what a feeling.

Unpredictable

I’ve had a couple of days that were pretty good, or at least not bad… and yesterday ended with me feeling good enough that I thought for sure that I would wake up today and probably be able to make something of it. πŸ™‚πŸ€·πŸ»β€β™‚οΈ But nope, it wasn’t meant to be. πŸ˜’ Thankfully (I guess) today was more “normal” headache rather than something revolving around my neck and shoulder… but still… I feel like crap, but I wanted to take a minute to throw something out here so people would know that I’m still around. πŸ™‡πŸ»β€β™‚οΈ

I’m just not likely to be very social for the rest of the night and possibly tomorrow. (Shit, maybe even longer…) Gotta try to take care of myself, and sometimes that requires tuning the rest of the world out.

Oh Yeah, I’m Still Quite Broken

I enjoyed having some company for a few days, but the one reason why I’m glad that she’s back at her own house now? So I can have my damn chair back. πŸ˜… She’s like me… for whatever reason, we both find the recliner to be the best place to sleep. So while she’s here she sleeps in the living room and I sleep in my bedroom… on my crappy mattress. πŸ˜’ It’s not always bad… but the odds say that you’re more likely to wake up feeling like shit than not – and every night that she’s been here recently I’ve woken up wishing that someone would just put me out of my misery. 😣 Thankfully, hot hot shower “until the hot runs out” makes a lot of it go away.

I think that steroid injection did work, and I think it is starting to wear off… so I’m just having to get used to regularly waking up in pain again. It’s almost enough to make me not want to do an injection again – because, believe it or not, I can get used to the pain… but not if some magic shot makes it go away for a few weeks before letting it get me again. πŸ˜ͺ I’m not meaning to bitch though… I just wanted to say that I’m happy that I’ll be able to sleep in my recliner again and at least give myself a shot at feeling decent in the morning.

The past few days have been really good for me though. I went and did my own grocery shopping without any problems, and then yesterday I went with Cassi when she did her shopping… and at neither time did I feel like running from the store or stabbing anyone in the face. 😈 I think it’s because she’s one of the few people that I can feel human around, which sometimes lets me do human things. Lemme tell you, as weird as this stuff probably sounds to “normal” folks, it’s even more confusing and frustrating to me, the one experiencing it all. 😐

I’m not gonna make any concrete plans based on how I’m feeling after the past few days, but I will say that I’m gonna try to keep rolling with the positive vibes and see where that takes me. 🀞🏻 I’ve got some things in mind, but I don’t wanna pressure myself by laying it all out. See, it is possible to really hurt and still feel somewhat okay. πŸ€” Some days are obviously worse than others, but I have to convince myself that feeling physically miserable doesn’t always mean that my entire day will be destroyed. I know it’s possible.

Stigma

It’s out of a feeling of obligation that I am writing this blog entry today. πŸ˜’ After bringing my site out of stasis a while ago, I’ve gotten pretty good at adding entries at a rate which allows people to at least know that I am still here, plodding along… but I’ve been experiencing a rough patch IRL lately – so I’ve reverted to my customary regeneration strategy of avoiding basically everyone and everything. 😐

See, sometimes it actually does work… but often times it doesn’t. πŸ€” I’m still trying to figure it out, I’ll admit. But when I don’t have my nose in my Facebook feed every 15 minutes, at least that prevents me from seeing all of the awful things that are happening to many of the people that I know. 😟 I don’t have to see the job losses, the evictions, the house fires, the custody battles, the lost pets, the family members dying… them dying. πŸ˜– I know that I can’t stay isolated forever – but sometimes it’s a necessary step towards getting my thoughts and emotions straightened out in a way where I can deal with all of it.

And it’s funny. We aren’t supposed to admit when things feel heavier than we can bear. We’re supposed to always just “suck it up” or “quit complaining” rather than admit to and (maybe) address the problem. Depression, sadness, anxiety, etc… they are weaknesses, right? And you sure can’t allow the world to see that you are weak. πŸ™„ Yeah, I talk about it rather openly in my blog… but the stigma still prevents me from feeling able to talk about it directly with my friends or family. At least most of them. (Even in my most self-imposed isolated moments, I try my hardest to allow a few good friends to get past the guards regardless, even if not in person.)

It’s amazing how much stigma can steer your thoughts, actions, and life. And while mental health “stuff” has been a significant topic throughout my years, another stigma I’ve encountered that defies logic is the stigma of being intelligent. Or at least wanting/trying to be intelligent. (NERD!!!!)Β Apparently the United States is one of only a few countries where this is a “thing” as we know it. Where one group of society actively berates and discourages another group of society that only wants to better themselves. Intelligence and aspiration… negative personality traits. Welcome to the Idiocracy. 😞

Heh… so, as you can see, there’s good reason why I’ve been keeping my eyes off of my phone and my fingers off of my keyboard. πŸ˜‘ I simply haven’t been able to shake this mood. I’m gonna keep watch over the weather for the next few days though, because I am gonna get out of the house and try to do something. Not sure what… or if I wanna seek friends to do whatever the “what” ends up being… but I’m gonna keep putting effort towards the climb out. 🀞🏻 As always, wish me luck.

An Awful Human Being

Over the past many months we’ve all become somewhat numb to the (insert negative adjective) things that come out of Donald Trump’s damaged old brain, but it’s like he has a superpower… the power to blurt out or do something even worseΒ than the week before, which shocks, saddens, and angers the majority of the people in the USA and world despite the understandable Trump fatigue. 😞

Like a majority of the voters in the last election, I was one of theΒ 65,844,610 people who knew ahead of time what we were going to get if he got elected. But even with all of the expected (and unexpected) awfulness that has come from him so far (whether through intention, indifference, or ignorance), waking up today and seeing what he’s tweeted… how can anyone not see him as anything but a horrible, irredeemable waste of flesh after today?

Through his own admission, which oddly sounded like boasting, Trump has accurately described the devastation to Puerto Rico from the recent hurricane. He’s talked about the destruction in a way where you can tell he doesn’t even really think it’s worth or able to be repaired or rebuilt, while (for some reason) talking about the billions and billions of dollars of debt the island has. πŸ€”πŸ˜§ So, the scale of the tragedy is not in question, even by him.

Any news channel that you turn to, you see the nightmare. No power grid, hospitals unable to help or relying on generators with little fuel, food and water shortages, gas shortage, no AC, etc… you can obviously go on and on. The federal government has a lot of resources and people in place, and they’re doing what they can, but the mayor of San Juan has literally been begging for more help any time she’s been given the chance… because that’s what you do when you don’t want people to die.

But Donald Trump woke up in an apparent rage about it, and decided to attack her on Twitter. Claiming the problem isn’t a lack of resources or logistics to get it to the people, but because of her poor leadership abilities. 😐 But he didn’t stop with just attacking her. πŸ˜‘ He praised his part of the response, the federal first responders, but then berated the people of Puerto Rico who are suffering – saying that they weren’t willing to help with the work, and that they wanted everything to be done for them. 😧

He continued to whine the she was “nasty” to him, which he said “the democrats” had told her to do, and then did his normal “fake news” complaints, apparently trying to make people believe that we aren’t seeing all of the things that we are seeing on all of the news programs. This is a sick, sick man. No joke. Sick. He’s tweeting these things from the comfort of his luxury golf club, while the mayor of San Juan has literally been walking through sewage-filled flood waters as they continue to look for stranded people.

The federal response was slow rolling out, he barely had anything to say about the hurricane damage for days after it hit, and once he did start talking about it – it wasn’t in the same “come together” way that he spoke about Texas and Florida. You could feel it… it was more like “Wait, they’re Americans? Fuck. I guess I won’t be able to get out of fixing up this third-world island for all of these poor brown people.”Β  He keeps bringing up their debt, he keeps talking about passports and visas for some reason… like he almost thinks they’re going to become undocumented immigrants or something. πŸ€” Everything about his response has been disgusting.

An island with over 3 million people living on it has been nearly destroyed. People have died… people are still dying… and “our President” attacks them, their leaders, and pretty much everything about who they are. 😣 Oh, and he wants it both ways. On one hand he wants everyone to think that the roll-out of disaster relief is going perfectly, and what we’re seeing on the news is all fake somehow… but on the other hand he’s admitting that the situation is a giant clusterfuck, by trying to put the blame on the leadership in San Juan and the unwillingness of their people to work or help themselves. I wish I had more eloquent words, but it’s just fucking astounding. πŸ˜” I didn’t think I could have less respect for that man, but boy was I wrong.