Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got backΒ home I learned that Christina was gone. πŸ˜”

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

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Tedious Ramblin’

Doing my typical weekend thing, being half-productive / half-bum. 😐 Last week wasn’t too bad… got a few of my “must do” things done, while adding in a couple new things on the fly – and whatever wasn’t accomplished last week will just be added to the list of stuff for the upcoming week.Β πŸ€·β€β™‚οΈ I guess I got just enough of last week’s stuff done that it’s not really stressing me out today like it normally might.

Dealing with the misc “bill stuff” last week was tedious.Β πŸ˜’ My check for an bill that I had gotten was returned to me, with a note that said no balance was due. That same day, I got a second bill for that same amount… and it took talking to someone in person to get them to acknowledge that I was handing them a check for the amount due, at least according to their file. 😠 Not a big deal, just annoying.

Then I got a bill from one of Dad’s nurses or doctors, for an “at home visit” which I obviously don’t get here at my own home. I called and explained that our names are similar but not identical, but she still couldn’t tell me why the bill came to me, in my name. 🀨 She assured me that she fixed it in the system and that I won’t have to worry about it. It was for only ten bucks, but still… annoying.

Tried to call the hospital about some additional bill stuff on Friday afternoon, but even though it wasn’t that late in the day – apparently everyone with any authority had already left the building for the weekend. In theory, the financial assistance should absorb some bills as they’re generated, so there’s a good chance that the ones I’m calling about will have already been affected (or perhaps eliminated) by the time I actually speak to someone about them.

Everything that I ordered for Maven finally came in. There were issues because of the package being damaged in transit, then automatically refunded, then the order was automatically re-orderedΒ – despite me doing that same thing manually… just nonsense that had to be worked out before everything was good.Β πŸ™„ But she’s feeling better, isΒ mostly flea-free… so basically I’m handling a few things at the same time with her, like I’ve been doing appointments with myself for a few months now.

Oh, and then the “on the fly” thing that I mentioned having to make room for last week… it was an intake appointment that my PCP had made for me, to start seeing a therapist and psychiatrist.Β πŸ˜³πŸ‘©β€βš•οΈ The last two PCP appointments I mentioned that I’d like to do that eventually, but that I wasn’t ready to throw it in with all of the rest of the things I’m dealing with quite yet… but my PCP apparently (and accurately) figured that I really did want to get started with the psych side of things, and that I just needed the nudge of having an appointment straight-up scheduled without any input from me. 😏

The first person I saw (and the only person, until next week) was the therapist lady, and I think I’m going to like her. 🧐 I got the typical hour-long intake visit with generic questions to start sizing me up… and I think I’ll like her not only because we share political and social views (it came up while talking about insurance and pre-existing conditions), but also because I think she’s aware that I’m relatively smart – and she seems pretty sharp herself. I always like therapy better when there seems to be a “fun” but somewhat adversarial type relationship – where we each know that what we both say will likely have merit.

Not much talk about meds yet, since that will fall under the umbrella of what the actual psychiatrist will be handling for me… so, I dunno, it may seem weird but I’ve always liked counseling for some reason. Even if it’s just because I can rant to a disconnected party for almost an hour and then just go home.Β πŸ™‚ I don’t have to consider any “solutions” that they think might make me “better” compared to what I usually am. I mean, I’m open to suggestions… but do I have any specific goals or methods that I’m particularly interested in? Not really. Hey… I’m not the one who actually made this appointment.

Hard To Accept

With a lot of stuff going on in my life, I kinda extracted myself from social media and real life friends for the better part of three months now… but after seeing Dez, it convinced me to get back on and start talking to my friends again. I’m just not anxious to figure out how to explain my absence, since it’s a combination of health problems, mental problems… you know… stuff that people always assume other people won’t really understand.

One of the first people that I checked in on was one of my friends who was just starting to go to his doctor for possible cancer related symptoms the last time we spoke. I talked to him today and he confirmed that it’s indeed cancer, and that it’s so bad they’re not trying to cure it. 😒 So he’s terminal, and the chemo is just to give him as much time as possible. He says it could be a couple of years, or it could be a couple of months. 😳 One of those deals where the doctors can’t be much more certain than that. 😞 It’s hard to know what to say to someone when you hear that kind of news.

I also checked in on my buddy Rick, from school, and it looks like his fight against hairy cell leukemia is still going strong. I haven’t spoken to him, but I see he’s posted pics from chemo treatments as well as something regarding bone marrow… so it’s good to see that he’s still got the required fight in him. πŸ‹πŸ»β€β™‚οΈπŸ’ͺ🏻 There’s one more friend that I need to check in on like that, but she’s currently enjoying vacation time with her awesome boyfriend… and the last thing I wanna do is poop on the good mood by asking about her cancer status. 😬

Oh, the video above… it’s just one of my typical Hyperlapse videos, but shot out the side window instead of the windshield. πŸ€·πŸ»β€β™‚οΈ I don’t know what it is about the movement of the clouds that feels so peaceful. It makes me feel so small, and the beauty of the world feel so big. ☺ I’m hoping that I can get past all of the stuff that’s keeping me down right now, so I can get out and do some video or photos or something somewhere… watching the clouds churn makes me wanna be out among them.

Woozy

I’m glad when the weather is crappy on the days that I feel crappy. Today was one of those days, for both things. πŸ˜• It’s hotter than shit outside, but there was even a little bit of hail for a couple of minutes earlier. But I don’t know if it was something I ate or what, but yesterday afternoon through today… bleh… 🀒 Thankfully it never got to the point where I was kneeling at the porcelain throne, and I think that by the time I wake up tomorrow I’ll be alright. 🀞🏻 Might try to eat some soup later. πŸ€·πŸ»β€β™‚οΈ

Even though I don’t accomplish a lot each day, being sorta laid up for an entire day is making me twitchy. I’ve got all these little things in my mind that I’d like to work on around here, some of which wouldn’t involve much more than sitting here at the laptop, so I’m hoping to maybe at least get some of that stuff done this evening – while being careful not to do anything to provoke the gurgle… heh

Maybe it was all those frozen taquitos the other day. πŸ€”

Same Ol’ Song and Dance

Ended up staying awake for 28 hours straight, then slept from 8a to 3p today… so now I’m likely to be up all night, which doesn’t really help with my plans for tomorrow in the early afternoon. I’ll keep my fingers crossed regarding that, but man… so glad to finally have my medication in hand. It took some oomph to get up and go in town to get it, but yeah… this month was ridiculous when it came to getting these filled. They weren’t even new scripts, just refills.

If I didn’t know how much I’d hurt, and how negatively my ability would be affected, I’d try to wean myself off of this shit. Not only do I have to go through this routine nearly every month, but in the days leading up to when I call for my refills – I’m already starting to worry what type of clusterfuck will happen this time, that will end up with me going through temporary withdrawals. So basically 1/3 of every month is either spent worrying about my refills, waiting for my refills, or suffering withdrawals from being delayed from getting my refills.

Gah… so tired of it. But yeah, I think frustration built up over the past couple of days, which is why I ended up barfing out those two super-long recent blog entries about all the stuff going on down in Florida. I needed something to take my mind off of how I was feeling, and that seemed to do the trick. But it looks like I’m going to have to set back even more of my meds for the end of the month from here on out. Shouldn’t have to short myself each day just to make sure I don’t run out when I get screwed over, but yeah, I guess that’s what I have to do.

Believe it or not, even though my court case was back in the middle of February, they still haven’t made a determination. That might account for some of the delay, if they were waiting and hoping that I’d lose my right to those meds, but who knows. Whenever I do get a chance to talk to my lawyers next though, I do intend to point out what’s being done each month to see if there’s something that they can do – or even if it could be seen as some sort of spiteful or unjust action that could carry some sort of penalties for them.

Reality tells me there’s not shit they can do, that I can be yanked around basically as much as they wanna yank me around, and that it’s up to me to figure out how to protect myself towards the end of each month. Ahh, what a feeling.

Unpredictable

I’ve had a couple of days that were pretty good, or at least not bad… and yesterday ended with me feeling good enough that I thought for sure that I would wake up today and probably be able to make something of it. πŸ™‚πŸ€·πŸ»β€β™‚οΈ But nope, it wasn’t meant to be. πŸ˜’ Thankfully (I guess) today was more “normal” headache rather than something revolving around my neck and shoulder… but still… I feel like crap, but I wanted to take a minute to throw something out here so people would know that I’m still around. πŸ™‡πŸ»β€β™‚οΈ

I’m just not likely to be very social for the rest of the night and possibly tomorrow. (Shit, maybe even longer…) Gotta try to take care of myself, and sometimes that requires tuning the rest of the world out.

Oh Yeah, I’m Still Quite Broken

I enjoyed having some company for a few days, but the one reason why I’m glad that she’s back at her own house now? So I can have my damn chair back. πŸ˜… She’s like me… for whatever reason, we both find the recliner to be the best place to sleep. So while she’s here she sleeps in the living room and I sleep in my bedroom… on my crappy mattress. πŸ˜’ It’s not always bad… but the odds say that you’re more likely to wake up feeling like shit than not – and every night that she’s been here recently I’ve woken up wishing that someone would just put me out of my misery. 😣 Thankfully, hot hot shower “until the hot runs out” makes a lot of it go away.

I think that steroid injection did work, and I think it is starting to wear off… so I’m just having to get used to regularly waking up in pain again. It’s almost enough to make me not want to do an injection again – because, believe it or not, I can get used to the pain… but not if some magic shot makes it go away for a few weeks before letting it get me again. πŸ˜ͺ I’m not meaning to bitch though… I just wanted to say that I’m happy that I’ll be able to sleep in my recliner again and at least give myself a shot at feeling decent in the morning.

The past few days have been really good for me though. I went and did my own grocery shopping without any problems, and then yesterday I went with Cassi when she did her shopping… and at neither time did I feel like running from the store or stabbing anyone in the face. 😈 I think it’s because she’s one of the few people that I can feel human around, which sometimes lets me do human things. Lemme tell you, as weird as this stuff probably sounds to “normal” folks, it’s even more confusing and frustrating to me, the one experiencing it all. 😐

I’m not gonna make any concrete plans based on how I’m feeling after the past few days, but I will say that I’m gonna try to keep rolling with the positive vibes and see where that takes me. 🀞🏻 I’ve got some things in mind, but I don’t wanna pressure myself by laying it all out. See, it is possible to really hurt and still feel somewhat okay. πŸ€” Some days are obviously worse than others, but I have to convince myself that feeling physically miserable doesn’t always mean that my entire day will be destroyed. I know it’s possible.