I Ain’t As Good As I Once Was…

This has been on my mind, so I’mma ramble. πŸ™‚ If we’re able to come to a settlement agreement regarding the medical portion of my claim, I wonder if I’ll be able to eventually undo all of the damage that’s been done. πŸ€”πŸ˜Ÿ Not the physical stuff, of course, since that’ll slowly continue to get worse over the years… but the way the whole process has mentally changed me, especially over the past several years. 😞

It’s just that I’m guaranteed that one week out of every month will be filled with anxiety and stress, simply because I have to get my medications filled. 😐 The meds are required to be covered by my claim, and many years ago I could pick them up without issue – even being able to get them a few days early at times. πŸ€·πŸ»β€β™‚οΈ

Then the problems started. πŸ˜’ Short delays turned into long delays, and long delays became even longer. Eventually the delays were so long that I’d have to pay out-of-pocket just so I didn’t go without, and then wait and hope that I’d get paid back. πŸ˜• If my doctor prescribes a new medication, it can be denied pending an IC hearing. Even when a prescription doesn’t change they can still sometimes deny coverage pending an IC hearing to prove that it’s still necessary. (Which, after a decade, it obviously will be.)

Three weeks of “tolerable” pain at best, followed by a week of worrying, fussing, and fighting just to get the meds that they’re legally required to provide. 😠 Repeat, repeat, repeat, repeat… πŸ™„πŸ˜ž Combine that stress with fluctuating pain and lack of ability, and eventually it consumed so much of my thoughts and time that I started backing away from everything else.

(Don’t mind my rambling… like I said, this blog sometimes acts as my therapy…)

When I can’t guess how I’ll physically feel, and I can’t even count on having (or being able to get) my meds to help… things became too unpredictable to continue like I had been. πŸ™ A couple of years ago I had a long phase where I couldn’t do anything if it meant someone “counting on me” for something. Family started getting shut out, friends definitely got shut out, all because I never knew how I’d feel when I woke up that day nor if I’d be facing (or getting pulled into) another hearing or lengthy process with the pharmacy.

That hasn’t changed. 😐 The concern and worry, that is. πŸ˜’ Along with my family and friends’ understanding, I’ve been able to make some adjustments that has kept me from totally isolating myself these days… but lemme tell ya, sometimes it feels easier to just remove myself from people’s lives than to disappoint them over and over again when things are bad. πŸ₯ΊπŸ˜ž And that leads me back to my original question… how long does it take for a person to escape that mindset, if that 1/4 of each month no longer has that anxiety and stress from the fight? 😐

The stress now, for better or worse, is making sure the settlement (whether an annuity or lump sum) is truly enough to cover the things that it will need to cover. If not, I’ll just be trading the stress of fighting for meds each month for the stress of not being able to take the same meds, because I won’t have the funds to pay for them. πŸ˜’ Medicare is technically supposed to step in at that point, but they’ll require all kinds of proof that I spent the settlement money only on applicable things, and the more expensive meds still might not be covered. πŸ˜– So as you can see, there truly is “always something.”

Kinda makes all the “You’re so lucky that you don’t have to work anymore!” folks reconsider, eh? 😏

Ramping Up

It’s barely past noon and I’m already needing to disengage my brain for a little bit, before I put it back in gear and get to work on various upcoming shit. And today was supposed to be a day off. 😏

Rather than calling my doctor’s office about the pharmacy’s weirdness, I decided to just go in to talk to them so I could better convey what was going on, and so I could also check to see if my MRI request had been approved or denied yet. (It has been submitted but so far there has been no further action.) That was also the only way I could avoid making a phone call, since my anxiety re: that has been increasing lately. πŸ“žπŸ˜³

But just like my pharmacy problem reached out to inject itself back into my sphere of shit to handle, my workers comp stuff in general has reached a point where my lead attorney had to contact me today. By phone, of course. πŸ˜πŸ€·πŸ»β€β™‚οΈ (And it happened right as I was preparing to go through the car wash.) So I drove into the Target parking lot, turned the car off, and had a 20 minute conversation with him.

Twenty minutes of unexpected, serious legal conversation… when my brain is already mostly full with my concerns about the upcoming Industrial Commission hearing as well as the actual court case that is meant to bring my situation to a resolution. I took in everything that he said, but I need to take a break here at home for a little bit before I can start lining it all up. 😐 Right now it’s bouncing around in my head, waiting for me to find a place for it among all the other WC nonsense.

It was an overall positive conversation, but still… anything regarding workers comp, meds, treatment, settlements, court, etc… it’s still friggin’ exhausting to process after having been in the system and fighting the good fight for well over a decade. πŸ˜• And while he is the lead attorney, handling all the bigger issues, he isn’t the one that handles my case on a day to day basis, for lack of a better term.

So he said he’s gonna talk to my trial attorney, and they’re going to set up a time when I can go up to Columbus again to their main office (which is an entire floor of a downtown high rise) to meet with the team. πŸ€“πŸ‘¨πŸ»β€πŸ’ΌπŸ‘¨πŸ»β€πŸ’ΌπŸ‘©πŸ»β€πŸ’ΌπŸ‘¨πŸ»β€πŸ’ΌπŸ—ƒοΈ Even though “the other side” is the party that initiates all the complications, it seems that they’re finally getting tired of fighting these same fights over and over again. Especially since the IC almost always finds in my favor. The total billable hours they’ve spent to challenge me must be insane.

So I’m kinda in the driver’s seat right now, but I’m well aware how quickly that could change. Once I’m done with this little break I’m gonna have to figure out the implications of all of the things we discussed, and then I’ll start a list of my questions and concerns that I’ll need to discuss with him and my other attorneys about before I make any decisions. πŸ€”πŸ€¨ Okay… I could probably ramble on with more details, but I think that’s good for now. I need to sit on this for a bit and not screw it up.

Thursday Mission

Woke up stupid early yesterday so I could help out a friend. She’s been in an ongoing custody “disagreement” with her former SO for quite a while now, where they’ve each been representing themselves in court due to how expensive an attorney can be. 😟 And without having a lawyer on her side, while things have been going in her favor, it’s just happening so slowly. With another hearing coming up in about a month and a half, she knew she had to start doing something differently, so I looked up a few places that claim to offer pro bono representation for people who otherwise wouldn’t be able to afford it.

She’s got an aversion to talking on the phone, just like me, but on Wednesday I encouraged her to start making some calls… and by that afternoon she had spoken with someone at SEOLSΒ who seemed open to the idea of taking her case, or at least hearing her out and looking at all of the information to figure out the best way for her to proceed. πŸ™‚ So that evening I printed out all of her case information to date, a ton of things meant to show that she’s the “more ideal” parent, and got it all sorted and organized in a way that would make it easy for an attorney to look through. πŸ€“πŸ“’

So then yesterday morning I picked her up to take her to the closest SEOLS office serving Fairfield County, which is unfortunately way down in Chillicothe. πŸ˜’ I left the house around 9:30a, and by time I got back home it was after 3p. That’s a long friggin’ time (for me) to be out and about, working on a stressful project… even though, obviously, she’s the one bearing the most amount of that stress. I just really want things to go well for her, and being familiar with the frustration of facing hearings with unknown outcomes, the empath in me kicked in and I couldn’t help but feel many of the things she was feeling. πŸ˜•

I didn’t go in with her when she actually met with the attorney, but she said things seemed to go well and that it felt more positive than negative. He made copies of all of the information that he needed and said that he wanted to talk to some folks who specialize more in custody cases on Monday… so while things sounds good, she’s still gotta wait a few more days before she’ll know for sure if they will provide someone to represent her. It was worth the trip regardless, because at the very least they’ll be able to hold her hand through what she should do next, even if they end up not being able to actually be with her on the day of her hearing. I’m gonna stay hopeful though, because having an attorney could make all the difference.

But I was wiped out by time I got home. πŸ˜₯ I’ve done very little “out of the house all day” stuff lately, and especially for something that’s as “high stakes” as this. And of course helping her with her legal stuff kept my legal stuff in the back of my mind… the upcoming WC stuff, that is… and starting off the day so early, with my shoulder already bugging me, all of the time in the car didn’t help. 😣 But it was a small sacrifice to help her with something that could end up being a game-changer in the long run, and I knew that I’d have all day today to recover if I needed to.

Well, my body didn’t wanna wait until today. 😏 Shortly after getting home I knew I wanted to take a short nap, but also not screw up my sleep schedule. But my nap lasted until the evening, and when I did wake up I went ahead and took my evening meds and thankfully ended up falling back to sleep – not waking again until a little after 6a today. πŸ˜―πŸ˜ƒ So I’m just now starting to catch up from messages from all day yesterday, but I’m gonna wait a while to reply so I’m not waking people up as early as it is.

I’ve still got a friend or two that gets concerned if I don’t reply in an undefined amount of time. That’s thoughtful of them, but boy I wish that folks in general would consider that even the most nerdy of humans don’t necessarily get online every day, or multiple times a day… and that sometimes whatever is going on during a particular day might cause messages to be ignored until the next. πŸ˜•πŸ€·πŸ»β€β™‚οΈ Yesterday’s situation was based on necessity, but I still do wanna try to take “days off” from the digital world every now and then… a luxury that younger people these days probably don’t really have. Imagine taking a teenager from today and transplanting them to 1985, during summer break from school, living out in the country, with only a landline telephone as means of keeping in touch with friends. πŸ˜…

Heh… another “old fart” thing to add to the growing library of “old fart things” in my head. πŸ™„πŸ‘΄πŸ»

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Buncha Nothin’

While I’m technically ready to start doing all of the adulting that I’ve got planned for the first couple of weeks of the new year, I am glad that today was essentially a “paused” day… where even if I wanted to, nothing significant could really be accomplished. πŸ€·πŸ»β€β™‚οΈπŸ™‚ I didn’t go out last night, nor did I have any company over, but I still didn’t fall asleep until around 3am. And of course I woke up too damn early, so my brain is thankful that the only real work that I’ll be doing today will be the stuff that I can address by mail. Which leaves all of the phone calls for tomorrow. 😳 Yay. 😟

Last night wasn’t totally lonely though. Brianna also stayed at home, although she was also babysitting for her sisters, so we ended up keeping each other company via messages up until the ball dropped at midnight and then a while after. β˜ΊπŸŽ‰ I think my adulting may be rubbing off on her, because a lot of what we talked about was both of our growing lists of “Shit We Gotta Do” in the next week or two. 😏 I mean, nobody is really a fan of responsibility, but I think it made her feel good (the same way it does me) to spend some of her evening coming up with a game plan of her own. πŸ“’πŸ–ŠπŸ‘§πŸ»

I wish that I didn’t have to take Cassi back home earlier last night, but she did end up staying later than we originally planned. It was a rough, dark, rainy, stressful drive up to Columbus in that horrible weather – with 80% of the traffic still breaking the speed limit, and the other 20% either scared, creeping slowly, or completely stopped along side of the highway as they waited for the rain to stop. β˜πŸŒ§πŸ˜―πŸ˜£πŸ˜§πŸ™ˆβ›ˆπŸŒ§ While she was here though, we started watching a new Korean rom/com/dram called Strong Girl Bong-soon. It’s strange how easily I take to Korean songs and shows now that I’ve been doing it for a bit. πŸ˜πŸ‡°πŸ‡·

But yeah… this is kind of a rambling post since it’s been a leisurely kind of day for the most part. All of my upcoming doctor appointments are still heavy in my mind though… I’m just trying to not let them bother me today. 😟 I will say this though. I haven’t been feeling great for the past couple of weeks. 😐 Not awful, but not how I normally feel either. So while I’m not gonna try to predict anything when it comes to my upcoming tests, I think I’m subconsciously getting myself ready for some potentially bad news. πŸ€·πŸ»β€β™‚οΈ

It doesn’t help that I’ve been having a lot of anxiety filled dreams lately as well. 😳 Not exactly nightmares, but dreams that definitely had a negative feel. And twice now I’ve had dreams where I died. πŸ˜• One was strange… I had already passed away, but I was still around to console people and to help with all of the arrangements needed in that sort of circumstance. 😬 But the bad dreams, the specific “not feeling well” things… right now I am choosing to attribute it all to the Wellbutrin that one of my docs put me on. πŸ€’

I haven’t felt this mentally and physically shitty in a long while. πŸ˜” And it’s so much so that I’m going to stop taking that new med until my next appointment with that doctor, so I can let him know the side effects that I’ve been experiencing. Over the years I’ve probably tried half-a-dozen different meds to help with depression or anxiety, and never have I made it past a month or two before the side effects outweighed the potential benefits – and I’m pretty sure this one will be the same way. 🀨 I’ve also got something more immediate for anxiety, but I haven’t noticed any bad side effects from that one, so perhaps I’ll be able to keep one-out-of-two in my rotation this time.

Alrighty then… time for some football. πŸ™‚πŸˆ Ready to push the scary thoughts to the back again for now.

Preparation

Yesterday was a strange day. 😐 I feel good, having completed a bunch of stuff that I felt neededΒ completing, but the nature of the stuff left me feeling a little uneasy – and definitely unable to fall asleep at a normal hour. πŸ˜• Despite that, I managed to have some awesome dreams. Awesome enough to have actually woken me up every hour or so – but of course I can’t remember a single detail at the moment. 😠 I’m just lucky that they weren’t about the topic at hand yesterday.

Of course I expect my upcoming surgery to go fine, but being the type of person that I am I’ve gone into “prepare” mode – just in case it doesn’t. 😳 As part of that preparation process, I spent a good amount of time typing out letters to my cousin Jim and my ex-wife Genesee, as they would be the ones handling everything in the event that things need to be handled. Those letters are just my way of easing them into the process. (Since I was the executor for my aunt, I learned a few tips and tricks.)

They won’t even get those letters unless the situation calls for it, so that allowed me to be a little more free with what I said… but for the most part it was just explaining my will, explaining my wishes when it came to my personal belongings, explaining a good deal about how the process will go, and what they will need to do to keep things moving along, hopefully without too many hiccups and at a reasonable pace. 😎 It’s a lot to ask of someone, so I also made sure that my appreciation was made super clear.

But between the several pages that I wrote for Mongo, and then the three pages that I wrote for Gen… I was just doing a whole lot of thinking about a topic that nobody wants to have to think about. It wasn’t all bad… in fact, a lot of the thinking that I did was about good memories, good times, good things with family and friends, etc. 😊 Oh, and I’m up to 19 separate audio recordings when it comes to the little archive of messages that I’m recording for people to have and listen to after I’m gone… which, like I said, I don’t anticipate happening for a good long while. πŸ™‚ I’m actually really enjoying doing that.

Don’t take this the wrong way. 🀨 All of this preparation is just being done out of necessity, and it’s something that any responsible person would want to do before a major surgery. πŸ€·πŸ»β€β™‚οΈπŸ‘¨πŸ»β€βš•οΈ It can just really mess with your head when you end up dwelling on the topic for too long. I’m still good though, and I know everyone that loves me has my back. 😏 I’m still optimistic about this surgery, I’m gonna get through it, and then whatever is next is next. One step at a time.

All I Have To Give

I’m finally sending up the white flag and giving in to this nerve twinge thing that I’ve got going on. After talking to Dad, Cassi, and Genesee about it, and after suffering with this infuriating pain for the better part of a week, I’ve decided that I better go get it checked out. πŸ€•πŸ˜Ÿ Gen worked at a local doctor’s office when she was still living around here, so she’s possibly got an “in” with a couple different chiropractors. She’s gonna call tomorrow and see if she can get something worked out for me… oh, and I decided to try a chiropractor before the ER for a number of reasons. 🀨 Besides, the ER is still there if it turns out that a back doctor can’t help me.

Rather than sitting around all day and letting my frustration and anger build, I’ve decided to just stay in a comfortable seated position on the floor and get some work done… while watching a bunch of YouTube videos about stuff that gives me the “goody” feels. 😏 (History about Atari, Sega, Samantha Fox, Commodore, Jane Child, Nintendo, Klonoa, etc.) As for the “work” part… just a few minutes ago I printed out the final versions of my will, living will, health care directive, final arrangements, and a durable power of attorney for my finances. πŸ˜―πŸ˜ƒπŸ€“

Heh… no… I don’t expect to be going anywhere anytime soon, but I’ve had all these documents about 90% done for a while now. 🧐 So I just had to check the details and make a few tweaks, and now I just need to seek out a couple of witnesses and visit the notary at my bank. πŸ‘©β€πŸ‘¦πŸ‘¨πŸ»β€βš–οΈ Oh, and there will be no more sleeping in my bed until I get this nerve problem sorted. πŸ™„ My dumb ass… I knew it was a trap… but my bed can be so comfortable, and I wanted a good night of sleep so badly… but nope, constant pressure on that area = a bad idea, so it looks like I’ll be sleeping in the recliner until further notice.

I keep reminding myself how much worse it could be. 😳 I try to put myself in the shoes of the folks who still have to go to their jobs and put in a full eight hours while dealing with this pain. Sure, a TENS device helps mask the pain, but that’s no way to spend your day… working for “the man” while worrying about a) nerve pain randomly zapping you, and b) the TENS unit randomly zapping you. ⚑😣⚑ So, yeah… just trying to make the best of the day.