Gap

I know it’s been a good chunk of time since my last entry, but I’m not even gonna bother going back to catch up on what I’ve already written… because honestly not a whole hell of a lot has been different, so I don’t have that much to write about. We’ve had a couple decent snow storms, and a couple days where the temps were in the negativesΒ in the morning, so that’s managed to keep me at home just as much as my normal anxiety issues usually do. 😏

One out of the ordinary thing… I did take a trip to ‘Da Boat with Bri for two nights last week. 😊 We’ve talked about it for months, and have had it in the planning stages for the past several weeks – so we were relieved to have pulled it off, considering that both of us have any number of things that could have popped up to wreck the plan. 😳 Last time she was down there with me was years ago when Dezzy also came along, and they couldn’t even get onto the boat back then.

So of course that’s why we were really looking forward to this trip, since she could see and do everything along with me this time. We took a bunch of outfits and props and shit, just in case we decided to do baby belly photos, but it was too easy to just be lazy in the room or going up to the boat to have fun… so very few pics were actually taken, and that was absolutely fine with us. πŸ˜‹ Our luck would come and go, but it was good enough at times that I could actively see the gambling bug taking hold of her brain right before my very eyes. πŸ˜… Heh… it wasn’t really like that, but she did have a good time and played enough to where she developed favorite machines and everything.

This past week or so has been nice… not having any appointments, not forcing myself to worry about any responsibility stuff. 😐 Heh… that sounds bad. I just mean that I let myself take a break from all of the adulting for a while, although I’m picking back up where I left off here in a bit. (Catching up on the bills that have been stacking up in the mean time) Oh… I do have another “since our last episode” story that I almost forgot about. It’ll be coming up a bit later, if I manage to get through all the bills this evening…

But this trip… I dunno… the more that I think about my medical stuff, the more that I want to do stuff with my friends while I still can. πŸ€’ I have no reason to think that I won’t be able to do things for years to come – but just in case, ya know? Even Dad, a while back, reiterated that point to me a few times… that I need to stop worrying so much, and sometimes just do the fun thing while not worrying about anything else. πŸ€·πŸ»β€β™‚οΈ

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Hard To Accept

With a lot of stuff going on in my life, I kinda extracted myself from social media and real life friends for the better part of three months now… but after seeing Dez, it convinced me to get back on and start talking to my friends again. I’m just not anxious to figure out how to explain my absence, since it’s a combination of health problems, mental problems… you know… stuff that people always assume other people won’t really understand.

One of the first people that I checked in on was one of my friends who was just starting to go to his doctor for possible cancer related symptoms the last time we spoke. I talked to him today and he confirmed that it’s indeed cancer, and that it’s so bad they’re not trying to cure it. 😒 So he’s terminal, and the chemo is just to give him as much time as possible. He says it could be a couple of years, or it could be a couple of months. 😳 One of those deals where the doctors can’t be much more certain than that. 😞 It’s hard to know what to say to someone when you hear that kind of news.

I also checked in on my buddy Rick, from school, and it looks like his fight against hairy cell leukemia is still going strong. I haven’t spoken to him, but I see he’s posted pics from chemo treatments as well as something regarding bone marrow… so it’s good to see that he’s still got the required fight in him. πŸ‹πŸ»β€β™‚οΈπŸ’ͺ🏻 There’s one more friend that I need to check in on like that, but she’s currently enjoying vacation time with her awesome boyfriend… and the last thing I wanna do is poop on the good mood by asking about her cancer status. 😬

Oh, the video above… it’s just one of my typical Hyperlapse videos, but shot out the side window instead of the windshield. πŸ€·πŸ»β€β™‚οΈ I don’t know what it is about the movement of the clouds that feels so peaceful. It makes me feel so small, and the beauty of the world feel so big. ☺ I’m hoping that I can get past all of the stuff that’s keeping me down right now, so I can get out and do some video or photos or something somewhere… watching the clouds churn makes me wanna be out among them.

Be Flat

I tried to get moving today but it just didn’t happen. When I woke up and started working on information for appointments and doctor stuff or whatever… I realized that this Wednesday, when I intended to go to the walk-in clinic, I’ve actually already got my monthly appointment with my neck doctor. πŸ˜’ And it can’t be missed.

So after my regular visit, I’ll then have to make my way across town, an hour later than everyone else has already gotten there to the walk-in clinic… so I’m probably gonna be sitting there for hours, if I’m able to be seen at all. πŸ˜‘ I think if that all fails, I’ll probably have to go to urgent care and (first) ask nicely for the tests I need, and if that doesn’t work (second) I’ll make it very clear that someone needs to order the tests that I need.

So rather than lie around like a blob today, I dragged the big-ass keyboard out of the extra bedroom and tried to teach myself a couple of new songs. Both of them feature chords, one of them with four-finger chords… heh… I don’t know what the actual term is. πŸ€·πŸ»β€β™‚οΈ Nor do I know what a “B flat chord” is by just reading it. It’s all effing trial and error… but at least I eventually manage to bang out something that sounds close to what I’m trying to emulate.

Interestingly, I notice that I rarely use my middle fingers to hit any keys… which I’m sure isn’t how it is supposed to be done. 😳 And my left hand is just stupid in general, and almost always refuses to do what I want it to – so I end up sticking with “banged out” chords without anything much fancier.

And because each of these songs push my brain and fingers a little further than they’re actually able to go, I can guarantee that I won’t remember how to play either of these songs in a few days. And one of them is just a teeny part of a song. But I like when I can do something that makes it almost sound like I know what I’m doing, and those are two examples. πŸ™‚

Catching Up (More Later?)

Okay, I’ll put some effort into this entry. Things have been rough lately. Cassi and her family moved to a new apartment, and I was asked to help out where I could – and that’s all I could do, help out where I could. But basically what you had was a rag tag crew of broken people, trying to move an entire apartment’s worth of stuff as quickly as possible. 😬 I didn’t do much more than move boxes from the basement, up the stairs, and into the kitchen (what feels like 100 times) and then I did help Cassi with the actual packing of her room and taking those boxes downstairs too. πŸ˜₯ So even though what I was doing was mostly lifting dead weight, which doesn’t kill my neck and shoulder when done in moderation – of course I’m still dying today just due to the scale of what we were trying to do. (I wasn’t there for unloading day, handled by Cassi, Athena, and Athena’s new d00d.)

But anyway, I’ve done enough bitching on Twitter. We did have some other help for the bigger items, so everything that needed to get done got done. Of course we all wish we didn’t have to kill ourselves like we did, but it had to be done. One good thing though is that I’m pretty sure I’m still going to feel horrible by the time I get my MRI done tomorrow. Yes, thankfully it seems the scan has been approved – although now I’m remembering that I have a voice mail on my phone from the risk management company associated with my claim, so I can’t guarantee anything until I check that later. 😠 But the extra pain that I’ve been having, the random seizing that my neck is doing, the “different” noises it makes – I’m just really concerned that something is going bad in there. And I’m torn, because I want them to tell me that yes, it’s worse, and that it’s not just a coincidence… but of course I don’t want it to be something so bad that they start talking about another surgery. 😳

Oh, and in order to not stress Z out while they were getting ready to move, I decided to be cat-sitter again. 😺 I had her for several days, which was long enough this time for her to really start taking to me. No more hiding when I’d go down to the basement to see her – which was probably due in part to the liberal sharing of catnip and the regular “paper wad flipping” sessions. 😊 It’s nice to see that she hasn’t lost her excitement for that game.

So with all of that out of the way, after I get done with my MRI on Wednesday and hopefully get over to Aunt Sharon’s sometime today to help with her computer – then my life can maybe start going back to its normal boring-ness for a few days, and I can put my new vacuum together to see how she works… and do my laundry… and dishes… and bills… and continue packing away “get rid of” stuff… etc… 😏 I’m sure I’ll still pop up to Cassi’s a couple times in the near future to help her unpack things here and there, but thank God all of the ass-busting work has been done.

“Wake Up, Case 1485729-4”

Fell asleep around dawn and then was awoken by a phone call from one of my attorneys a few hours later. πŸ˜’ We’ve got quite a bit of outstanding issues right now, and after the long weekend I could almost feel this call coming… so much so that I didn’t turn my ringer off, since I did need to talk to him.

This entry might as well be titled “What Else Is Wrong?” since, in part, it’s essentially going to be a sequel to my most recent post. As you may or may not know, I try to keep my online presence as free as possible from a) bitching about my pain/disability, and b) talking about specifics of my workers comp case. Partially out of pride, partially because nobody really wants to hear about it anyway.

I’m not sure I even remember what I used to be like before all of this dominated my life. I know it’s not pleasant now, to put it extremely mildly, and I know it’s a constant pain in the ass… so even though it’s hard to remember, I do miss the time when my life was my own and I wasn’t being led by the nose through by doctor visits, IC hearings, physical disability, medication requirements, mental stress, pharmacy policies, insurance companies, and now actual an actual court case. 😞

I’m just frustrated because we’re less than two months away from the court stuff starting and so far the settlement stuff is going nowhere. πŸ˜• Their side will submit their brief to the court, my side will have a few weeks to reply, and then it starts getting serious. The court will likely want to depose any doctors that have seen or treated me, on both sides, which means I’d have to hope that I could essentially “rent” my doctor for half a day to give testimony – which would be ridiculously expensive. 😣 (Not to mention ridiculously annoying since he’s already submitted report, after report, after report, in writing.)

So my attorney is going to find out how much they’ve paid each year, on average, for my treatment and medication – and then tomorrow or the next day, when I go to the pharmacy to pick up this month’s meds, I’m going to have them print out what the “out of pocket” cost would be for each medication if I was paying for them with no insurance at all. πŸ€“ With those figures we’ll again try to come up with what we believe is a fair settlement, and then they’ll have to decide if the continuing costs of fighting me are worth it – rather than just settling this and making me go away.

I’m just worried that we won’t be able to get this done before the date of the first hearing. I’m sure it’ll be (us) “Here’s our offer.” followed by (them) “Well, that’s nice, but this is what we’re willing to pay.” followed by (us) “C’mon, get out of here… we need at least (this much)” and then (them) “We’re gonna have to think on this.” with (us) “Well we’re gonna have to think on this too.” Heh… so I don’t know what the odds are of avoiding this court case at this point, but I’d think they are slim.