Medically Deferred Deportation?

I’m gonna try to do a mental reset tomorrow, and get all this workers comp stuff out of my head until a hearing is scheduled and things are closer to being in motion in that regard. I did what I needed to do in so far as writing a response to claims in the report, so I can’t let the frustration and annoyance linger when there’s nothing else that I can do.

Plus I’m watching Rachel Maddow right now, and she’s covering the topic of people who are in the United States who have been receiving some sort of deferred deportation due to medical conditions that they have, for which they are receiving treatment within the United States. Apparently there are still plans in place which will remove that protection from at least some of the people who are getting life-saving treatment here. Treatment that they wouldn’t be able to get if they were sent out of the country… so that helps to put my problems into context.

Yeah, all of the stuff I’m going through is a giant pain in the ass, and there are significant implications to my future medical care that will be decided based on these current reports I’ve been talking about… and yeah, it’s really working my anxiety. But it’s nothing like what those people are facing. I can’t even imagine being previously allowed to stay in the country because you’re getting life-saving treatment, only to be told that nope – you have to leave the country within the next 30 days, which essentially sentences some of those people to death. It must be nearly impossible to process that news.

So yeah, what I’m dealing with feels unfair, unjust, and uncalled for… and I know how awful just that makes me feel – but man, how does your mind react when you find out that the country is kicking you out, and sorry about your luck when it comes to your medical treatment. Ugh…

And this isn’t even meant to be a political post. I don’t know how these “medically deferred deportation” people got here… whether they have visas, whether they were brought illegally as kids, whether they were originally granted entrance because they were seeking medical care and the administration changed its mind… because it kind of doesn’t matter. What matters is one moment they’re legally allowed to be here and get their treatment, and the next moment someone has decided that that particular program is no longer going to be allowed, at least in some circumstances, and they just have to go.

When you’re upset about your own shit, sometimes you forget how bad other people’s shit can be. πŸ˜•

Advertisements

Nuclear Medicine

Had the same lady as last time give me the radioactive iodine dose today. I’m not sure if they all act this way, but she’s fun… not intentionally, but in the way that she makes it feel so dramatic. 😏 And I get it, she works in that department every day, so a person’s gonna want to keep as far away from all the radioactive stuff as possible, so I don’t blame her. πŸ‘©πŸ»β€βš•οΈΒ …Β πŸ₯’πŸ’Šβ˜’οΈΒ Β πŸ€’Β It also has the side effect of making it seem like this pill is reallyΒ going to be doing something, whatever that something may be.

Before they even bring the pill in, she had me go through a practice run – having me put my hands exactly where they need to be, telling me how to get the pill out of the container without touching it or anything else, and then how to gtfo while having to pass near as few people as possible. Of course once the lead container is opened and the pill is out, she stays as far away from it and me as possible – but, probably just from habit, that’s mostly how she acts even through all of the tedious paperwork and talking beforehand.

img_3525

Don’t mind how dusty my entertainment screen is (or the custom commands 😏), but I’ve decided to take this as a sign… this was the first song that played (at random)Β in the car as I left the hospital parking lot. (Video Link: Back to Life – Hailee Steinfeld)Β I’ll even give credit to Mom, since I was talking to her on the way in, asking that if she was able to give any help guiding the medicine during the process this morning, that I’d be happy to take it. 😌 Oh, and they remarked how shit my thyroid levels are (in a good way, for the dose/scan anyway) and it’s no wonder I feel like utter shit and fall asleep all the time. So, there’s that. πŸ€·πŸ»β€β™‚οΈπŸ˜Ÿ

Still can’t start up my meds until after the scan, and until after the doctor has reviewed the results to make sure that they “came out okay” for lack of a better term. It’s a typical long test where you have to lie still in a tube for about 45 minutes, so there’s always a chance there could be some sort of blur or error or something, to where they’d wanna do it again in a few days or whatever. 🀨 But with any luck, by this weekend I’ll be on my way “back to life” at least in as far as my thyroid and energy levels are concerned. πŸ€πŸ™πŸ»πŸ™‚

Unfortunately, I’ll have to avoid stuff likeΒ this until I’m less radioactive. 😟 Wish she could understand.

I Have My Reasons

Still hangin’ in there, still waiting through this process… 😟 of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. πŸ’‰πŸ˜¬πŸ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. 😐 Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. πŸ₯Ί My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. πŸ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldΒ be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” πŸ™‚πŸ€·πŸ»β€β™‚οΈπŸ™πŸ»

“Feels Like 109”

I had only been checking the upcoming weather for rain, thinking about my grass… but this evening I got an alert on my phone, advising about the extreme heat warning that will be in effect until Saturday evening for basically all of Ohio. 😳 I’m pretty sure I haven’t mentioned this, but I’ve already had two “spells” where I was outside for a relatively short time (but in the heat) where I got lightheaded and woozy enough that I knew it was time to get my ass back inside. 😬🀒

So it was strange when I saw that alert. Something whereΒ (up until recently)Β normally I’d just grumble to myself and move on, but when I read that the heat index could reach 109 degrees it actually made me anxious enough that I momentarily got butterflies in my stomach. πŸ˜• Heh… I know that sounds stupid, but heat regulation is an issue for me right now, and seeing that number… I mean, holy shit. 😯πŸ˜₯Β NBC4’s weather people are already talking about the “cool down” next week… but they’re still talking about low-to-mid 80s. πŸ™„πŸ˜’ It feels like this miserable weather is never gonna end.

Thank God that me and most folks I know have AC, but there areΒ folks that I know who only have fans… and it does cause me to have concern for them. Places are giving away fans, the power companies talking about preparing for extra load on the system, various buildings will be operating as “cool centers” for people… 😟 so I suppose all of the “scary” talk, combined with how I feel, is probably making me worry for those other folks more than I maybe need to. πŸ€·πŸ»β€β™‚οΈπŸ˜• But yeah, next couple of days are gonna be rough.

Everybody, please try to keep as cool as you can… stay safe…

Me? You Sure About That?

Another big part of my yesterday and the day before was spent trying to help a friend who’s going through some serious shit. 😒 Granted, if you’ve read many of my posts here, you’ll already know that I’ve got plenty of acquaintances, friends, and family that are going through their own personalized flavor of shit at the moment. πŸ˜• Some worse than others, some where I can help, and some where all I can do is just listen, try to understand, and hope and pray for the best. 😟 But man, this person’s state of mind over the past two days… let’s just say that it was very concerning. 😳

(I know this person doesn’t read my blog, nor does anyone that really know this person, so even though I’m sorta putting their business out here… it’s not something that will affect them, and even if they knew, I think they’d actually be okay with me posting about it anonymously like this. They know how I am… how a lot of times, processing my thoughts on the site here is just how I have to do things if I want to attempt to clear my brain of all the clutter…)

I am glad that I have people in my life who feel like I’m the right person to open up to, even when the topic is something as serious as it was… 😬 but I am so not the right person to be able to handle something like that right now. I mean, I did… because I had to… but not without getting completely emotionally drainedΒ (and actually physically ill from the stress of the conversation) and realizing how little I could do about any of their problems. πŸ₯ΊπŸ€’ But despite that, of course I’m glad that they turned to me… even if I was essentially helpless and basically only able to listen and talk things through with them.

The hardest thing about the drawn out text conversation was that as they’d mention this thing, the next thing, the thing after that… I could absolutely understand how the weight of all of those things piling up on them, seemingly all at once, could push them (or anybody, for that matter…) to the point where they’d just be ready to give up. 😒 It’s scary because it’s hard to know if you’re making a difference with what you say, when in the back of your mind, it’s like “Wow, yeah… I get it.”

But at least for now, I feel like our conversations helped. πŸ˜πŸ€·πŸ»β€β™‚οΈ Enough so that I might be able to sleep sometime tonight, and I’m finally able to eat something and keep it down. And I’m not saying that to give anyone any crap. If someone feels like their last resort is reaching out to someone, they do so knowing that it’s not going to be an easy conversation for either side, and that the person they are talking to cares enough about them that they’re going to get pretty messed up by the whole thing as well. πŸ˜• But as stressful as it is to be on the receiving end of that sort of conversation, I just know that I can only pray that someone would be willing to be that person for me if I ever felt like I’d run out of reasons to keep going.

I dunno, I just had to post this. πŸ€” Often times I still feel like people, in general, who know me… they’ve got this mental image of what I’m like, what my days are like, and that it usually falls somewhere between lazy” / “boring” / “uneventful” / “a little stressful” / “what’s he complaining about nowheh 😏 Sometimes I wish that they could spend a couple days in my head… to know how things reallyΒ can be. And as I typed that…Β just now realizing it, that’s probably what all of us want – even the people who feel like everything is crashing down around them… we just want someone to know, to try to understand, to realize that there’s so, so much more going on behind our “game faces” and other people’s assumptions. πŸ™πŸ»

Gap

I know it’s been a good chunk of time since my last entry, but I’m not even gonna bother going back to catch up on what I’ve already written… because honestly not a whole hell of a lot has been different, so I don’t have that much to write about. We’ve had a couple decent snow storms, and a couple days where the temps were in the negativesΒ in the morning, so that’s managed to keep me at home just as much as my normal anxiety issues usually do. 😏

One out of the ordinary thing… I did take a trip to ‘Da Boat with Bri for two nights last week. 😊 We’ve talked about it for months, and have had it in the planning stages for the past several weeks – so we were relieved to have pulled it off, considering that both of us have any number of things that could have popped up to wreck the plan. 😳 Last time she was down there with me was years ago when Dezzy also came along, and they couldn’t even get onto the boat back then.

So of course that’s why we were really looking forward to this trip, since she could see and do everything along with me this time. We took a bunch of outfits and props and shit, just in case we decided to do baby belly photos, but it was too easy to just be lazy in the room or going up to the boat to have fun… so very few pics were actually taken, and that was absolutely fine with us. πŸ˜‹ Our luck would come and go, but it was good enough at times that I could actively see the gambling bug taking hold of her brain right before my very eyes. πŸ˜… Heh… it wasn’t really like that, but she did have a good time and played enough to where she developed favorite machines and everything.

This past week or so has been nice… not having any appointments, not forcing myself to worry about any responsibility stuff. 😐 Heh… that sounds bad. I just mean that I let myself take a break from all of the adulting for a while, although I’m picking back up where I left off here in a bit. (Catching up on the bills that have been stacking up in the mean time) Oh… I do have another “since our last episode” story that I almost forgot about. It’ll be coming up a bit later, if I manage to get through all the bills this evening…

But this trip… I dunno… the more that I think about my medical stuff, the more that I want to do stuff with my friends while I still can. πŸ€’ I have no reason to think that I won’t be able to do things for years to come – but just in case, ya know? Even Dad, a while back, reiterated that point to me a few times… that I need to stop worrying so much, and sometimes just do the fun thing while not worrying about anything else. πŸ€·πŸ»β€β™‚οΈ

Hard To Accept

With a lot of stuff going on in my life, I kinda extracted myself from social media and real life friends for the better part of three months now… but after seeing Dez, it convinced me to get back on and start talking to my friends again. I’m just not anxious to figure out how to explain my absence, since it’s a combination of health problems, mental problems… you know… stuff that people always assume other people won’t really understand.

One of the first people that I checked in on was one of my friends who was just starting to go to his doctor for possible cancer related symptoms the last time we spoke. I talked to him today and he confirmed that it’s indeed cancer, and that it’s so bad they’re not trying to cure it. 😒 So he’s terminal, and the chemo is just to give him as much time as possible. He says it could be a couple of years, or it could be a couple of months. 😳 One of those deals where the doctors can’t be much more certain than that. 😞 It’s hard to know what to say to someone when you hear that kind of news.

I also checked in on my buddy Rick, from school, and it looks like his fight against hairy cell leukemia is still going strong. I haven’t spoken to him, but I see he’s posted pics from chemo treatments as well as something regarding bone marrow… so it’s good to see that he’s still got the required fight in him. πŸ‹πŸ»β€β™‚οΈπŸ’ͺ🏻 There’s one more friend that I need to check in on like that, but she’s currently enjoying vacation time with her awesome boyfriend… and the last thing I wanna do is poop on the good mood by asking about her cancer status. 😬

Oh, the video above… it’s just one of my typical Hyperlapse videos, but shot out the side window instead of the windshield. πŸ€·πŸ»β€β™‚οΈ I don’t know what it is about the movement of the clouds that feels so peaceful. It makes me feel so small, and the beauty of the world feel so big. ☺ I’m hoping that I can get past all of the stuff that’s keeping me down right now, so I can get out and do some video or photos or something somewhere… watching the clouds churn makes me wanna be out among them.