Insufficient Quantities

Another half-work / half-shlubbing-around weekend day. 😐 Cassi had the day off, so I went and got her so I’d have some company (and a helper) and so she could have time away from home. So, like the last time she was here, she’s been working on her stuff a little more and I’ve been working on my stuff more… using that bit of motivation that you get just from having someone hanging out. 😊

A couple different phone calls to the pharmacy this morning and they’re still having problems with getting any of my workers comp related medications approved. 😒 Ten minutes on the phone, then on hold, and then told that they were gonna have to make some calls to get things straightened out.  Haven’t heard anything back from them for the past couple of hours, so I’ll be calling again after I finish this entry. I’m not even trying to get them before last month’s supply ran out. 🤦🏻‍♂️

Heh… and as I’m writing this I got another text notification from the pharmacy saying that one item is on order, another is ready – but with a $12 charge, and no info about the third. 😕 But this confirms the typical problems I have every month… because if there’s a charge on one of these, that meant it was run through my regular insurance instead of the one provided by workers comp. I guess twelve bucks won’t kill me though.

And even though it’s Saturday, I got an actual registered letter that I had to sign for, from that “home care” medical provider that I mentioned a few entries ago. It says that they’re letting me go as a patient (okay?) and that I need to find someone else… despite having never used their services and not knowing who this nurse is that supposedly tended to me a couple times. 😠 So I sent them another email, despite just talking to someone from there on the phone, telling them to knock it off with the bills and the mail. It’ll probably do as much good this time as it did last.

Meh… so that’s been the first half of the day. And yeah, I know that a lot of the entries in the blog lately have just been me bitching about the mundane and trivial, but believe it or not – some people do like keeping tabs on me and knowing how things are going, even people that aren’t relatives or close friends. It’s weird to have made what are essentially digital pen pals, from people who have found the blog and have then messaged me for one reason or another.

But I guess I better throw on some pants and head in town for the one script that I can pick up. 🙄 And like I told Cassi, the reason I go in there most of the time, and deal with this shit in person – it’s because people tend to work a little bit harder when you’re standing right there, telling them exactly how things are supposed to be, and nudging them in the right direction when needed.

Heh… this was quite a ramble for just some medical billing filling bullshit. 😏

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The Rest of My Month Looks Fun

  • Pharmacy  /  monthly visit to jump through hoops for meds
  • Psychiatrist  /  intake appointment
  • Dentist  /  temp crown removal and permanent crown installation
  • Endocrinologist  /  injection #1 prior to 131 treatment
  • Endocrinologist  /  injection #2 prior to 131 treatment
  • FMC  /  nuclear medicine department for radioactive iodine (131) treatment
  • Home  /  (one week of isolating myself from the humans)
  • FMC  /  full body scan 7 days after 131 treatment
  • Psychologist  /  first “real” counseling session
  • Rehab/Pain  /  monthly WC appointment

Spent most of this morning on the phone, trying to wrangle all of my other appointments around the iodine treatment schedule – since that’s the one that is the most important, and the one that effectively removes a week of possible scheduling time from my life. 😒

EDIT: Just got off of another call with Dr Walter’s office. We’re now trying to figure out how much of a pain in the ass it’s going to cause… me being seen by his PA rather than directly by him, because Dr Walter is my “physician of record” when it comes to anything related to my workers comp claim – and they love finding any reason that they can to deny me treatment or medication. 😠 This sounds like it will be a work in progress, and we probably won’t know what the negative side effects are until they happen.

“Customer Service”

Might as well continue my bitching into Tuesday. 😒 Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy. 🙁 Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment. 🤕 That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes could help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I could (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either. 🤷🏻‍♂️

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.

Tedious Ramblin’

Doing my typical weekend thing, being half-productive / half-bum. 😐 Last week wasn’t too bad… got a few of my “must do” things done, while adding in a couple new things on the fly – and whatever wasn’t accomplished last week will just be added to the list of stuff for the upcoming week. 🤷‍♂️ I guess I got just enough of last week’s stuff done that it’s not really stressing me out today like it normally might.

Dealing with the misc “bill stuff” last week was tedious. 😒 My check for an bill that I had gotten was returned to me, with a note that said no balance was due. That same day, I got a second bill for that same amount… and it took talking to someone in person to get them to acknowledge that I was handing them a check for the amount due, at least according to their file. 😠 Not a big deal, just annoying.

Then I got a bill from one of Dad’s nurses or doctors, for an “at home visit” which I obviously don’t get here at my own home. I called and explained that our names are similar but not identical, but she still couldn’t tell me why the bill came to me, in my name. 🤨 She assured me that she fixed it in the system and that I won’t have to worry about it. It was for only ten bucks, but still… annoying.

Tried to call the hospital about some additional bill stuff on Friday afternoon, but even though it wasn’t that late in the day – apparently everyone with any authority had already left the building for the weekend. In theory, the financial assistance should absorb some bills as they’re generated, so there’s a good chance that the ones I’m calling about will have already been affected (or perhaps eliminated) by the time I actually speak to someone about them.

Everything that I ordered for Maven finally came in. There were issues because of the package being damaged in transit, then automatically refunded, then the order was automatically re-ordered – despite me doing that same thing manually… just nonsense that had to be worked out before everything was good. 🙄 But she’s feeling better, is mostly flea-free… so basically I’m handling a few things at the same time with her, like I’ve been doing appointments with myself for a few months now.

Oh, and then the “on the fly” thing that I mentioned having to make room for last week… it was an intake appointment that my PCP had made for me, to start seeing a therapist and psychiatrist. 😳👩‍⚕️ The last two PCP appointments I mentioned that I’d like to do that eventually, but that I wasn’t ready to throw it in with all of the rest of the things I’m dealing with quite yet… but my PCP apparently (and accurately) figured that I really did want to get started with the psych side of things, and that I just needed the nudge of having an appointment straight-up scheduled without any input from me. 😏

The first person I saw (and the only person, until next week) was the therapist lady, and I think I’m going to like her. 🧐 I got the typical hour-long intake visit with generic questions to start sizing me up… and I think I’ll like her not only because we share political and social views (it came up while talking about insurance and pre-existing conditions), but also because I think she’s aware that I’m relatively smart – and she seems pretty sharp herself. I always like therapy better when there seems to be a “fun” but somewhat adversarial type relationship – where we each know that what we both say will likely have merit.

Not much talk about meds yet, since that will fall under the umbrella of what the actual psychiatrist will be handling for me… so, I dunno, it may seem weird but I’ve always liked counseling for some reason. Even if it’s just because I can rant to a disconnected party for almost an hour and then just go home. 🙂 I don’t have to consider any “solutions” that they think might make me “better” compared to what I usually am. I mean, I’m open to suggestions… but do I have any specific goals or methods that I’m particularly interested in? Not really. Hey… I’m not the one who actually made this appointment.

Now We’re Cookin’

Another long day of medical stuff. Nothing really new or concerning. So, so much data from all the labs and pathology and whatever… some of the most recent stuff hadn’t even been interpreted so it was presented in its pure data form, but there was still enough “plain english” stuff for him to form his opinion and explain things very clearly. It turns out that not only was the cancer in my left lymph node, but they also found (after the fact) that there was a “micro-tumor” in the right one as well… so it’s good that they sliced them both out to be safe.

The thing that made the overall picture slightly better today is that they also tested the nearby lymph node and the results showed no cancer cells there. So, yeah, it’s just a test, it’s hard to say how accurate it really is, but I’ll take the good news… so we’re gonna go with that for now. Defective thyroid removed, and no cancer in the nearby lymph node. He also made some adjustments to my meds which should help me battle the lack of energy and accidental naps, and I’ll start taking those tomorrow.

The other positive thing from this appointment is that one of the bigger balls is now in motion. I do have to go through the radioactive iodine treatment, which is meant to catch any random cancer cells that may still be hiding out, but there’s not a huge urgency to it – so I won’t start until this time next month. It had to be that way due to my other appointments and schedule, because there’s a 7-day period where I’m supposed to remain isolated so I don’t contaminate the unwashed public by my presence… so of course I wouldn’t wanna see Dr Walter and Nicole during that time.

The process will begin with me getting some sort of injection (to mask the effect of the thyroid medication) on Monday and Tuesday, followed by the actual radiation stuff on Wednesday. After that part is completed I then have to go for a full body scan. I think that’s the next thing that I’m actually nervous about. It’s meant to see if anything was missed, anywhere, and to have a scan to use as a (hopefully) successful baseline for another full scan six months after that. So yeah, it’s quite the glob of activity coming up here soon.

One More Day

I’m taking one more day, tomorrow, and then I plan on doing my best to return to society and engage with the humans again when necessary. 😐 I already know that I have a crapload of phone calls to make and take, but I’m actually talking about not looking like a hobo anymore, and actually leaving the house more than once a week. See, I haven’t shaved since the day before my surgery, so that means I’ve got 18 days of mostly gray beard that needs to get gone. 🧔🏻 I haven’t shaved through this point because I didn’t want to risk mowing over my stitches and ripping the incision open. 🚜😯

Being somewhat laid up, unable and/or unwilling to go out in public… it’s been grand. 😊 It’s selfish, yes, but “me doing me” for the better part of two weeks, even though I’ve been physically “bleh” for most of it, has done wonders for my mood. 😏 And discussing with friends, when I noted my unusually “okay” mood lately, they suggested that maybe my thyroid was actually causing some of the “mood disorders” – and now that it’s out and its function is being replaced by medication, it’s a possibility that it could be easier for me to maintain an okay mood because of it all. (There’s also a good chance the whole idea is psychological trickery, and I’m psyching myself into a decent mood under false pretenses. 😅)

I did get a ton of shit done yesterday. 🤨 Pretty sure I’m completely caught up on medical, mail, and bills… and it’s a good thing that I’m going through the medical stuff in such detail, because I’ve already caught a fraudulent bill for over $100 – for services that I know I shouldn’t have been charged for. (That’s one of the folks on the list of Tuesday calls…) The side effect is that my living room floor, where I do my work, is covered with various piles of paperwork, pens, envelopes, receipts, file folders, etc. 😯 I”ll take care of that tonight though, so tomorrow can be reserved for just laundry and a shave.

I’ll probably make sure the Insta360 is charged up tonight. Oh… yeah, I didn’t go out today – except for a quick trip to the truck stop down the highway for foodstuffs. 🌯🍩🍞🥤 But I’m gonna have that cam charged in case I wanna try anything, and then there’s also the Dover NASCAR race, the premiere episode of Series 11 of Doctor Who, and then I think the new season of The Walking Dead airs tomorrow evening as well. 😃🧟 Haven’t yet decided what I’m gonna do with my Monday though. When I made that “Three Day Weekend” post, I was only joking – because I was treating Friday as part of the weekend… and I didn’t even realize that there actually was a legitimate holiday this Monday. 🤔 Hmm, note to self, don’t put all these envelopes out in the mailbox until Monday night.

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. 😒 They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🤨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. 🤷🏻‍♂️ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that did look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in that previous situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. 👍🏻

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill deal  – which will hopefully be a one time thing followed by close monitoring. 🤞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessing that’s gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. 🤔 It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. 🙂 Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…