Wringer

Pardon the length of this entry, but yesterday was kinda tough, basically as I anticipated. Anxiety had me up most of the night, so I ended up doing all this stuff on only three hours of sleep – but at least that meant I was awake at dawn, so I could just hop up and start getting ready instead of grumbling at my multiple alarms squawking at me every two minutes until I rise and shine.

From 8am until 12.5pm I was doing “something medical.” 😐 Starting with my monthly neck doctor appointment, where we also covered my upcoming surgery, some of the medications that I might have to start taking because of it, and how they should or shouldn’t react with whatever meds I’m getting from him for my fusion spot, nerve damage, and grumpy muscles in the area. πŸ˜³πŸ‘¨πŸ»β€βš•οΈ

Next was another blood draw for multiple panels of testing. πŸ’‰ I already had this done a little over a month ago, but they not only wanted to get the most current results, but there were also specific tests that they needed that weren’t in my other test. I volunteered my right arm, and the girl did her best… I mean, she hit the biggest vein available there, but for some reason it was only spitting a little bit of blood – and it was definitely not enough to fill the three vials needed. 😯 My left arm ended up being successful, and of course now I look like a junkie with two big bruises on each elbow-pit. 😏

Next was theΒ electrocardiogram, which actually didn’t take that long due to it (thankfully) not including stress testing or anything like that. Just the normal dozen-or-so electrical leads, a few minutes of holding really still, and on to the next. πŸ™‚ But the next thing was where it started to get shitty. πŸ˜₯

Since they’re going to have to manipulate my head quite a bit while they’re working on my neck, and since they’re aware of the C5-C7 fusion, they had to take a crapload of x-rays while my head and neck were in extremely stretched, compressed, or otherwise super-uncomfortable positions. ☒😣 I do my best each day to not move my head in all of the ways that I had to do for those x-rays, so my neck was fucked after everything was said and done. πŸ™‡πŸ»β€β™‚οΈ So not only will my surgery site be painful, but the ways they are gonna have to move my huge lump-of-a-head around while I’m under anesthesia… let’s just say that I’m really not looking forward to how that area’s gonna be feeling when I wake up.

I almost wasn’t able to complete all the scans that they needed, since one of them (while standing) was given with the instructions of “Put both of your arms straight up, directly over your head.” 😧 If there was a bar or something above my head I could have done it with little issue, but the only way I could do it without my left arm shaking was to get the arm up there, then actually lean against the plate/target of the x-ray machine to basically jam it up there in that position. πŸ˜¬πŸ€·πŸ»β€β™‚οΈ The fella doing it was really patient and understanding, and after reviewing them he said that the results should be fine, including that one which I thought would be pretty uncertain.

And I know, to a healthy person that all probably doesn’t sound like much… but man was I worn out after everything was done. πŸ˜“ Between the lack of sleep, the multiple stops, the blood loss… heh, the painful x-rays, and then my leg jumping around between “fine” and “omg stop” heh… I was just thankful that I was able to knock all of that stuff out in one day, along with being able to just go home and recover at my own pace. πŸ˜” It’s all good though… all of this stuff is now done with a couple weeks to spare, so I’m just happy to keep everything on track.

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Oh Yeah? Hmm… Okay

No updates for a while due to various circumstances. Thyroid biopsy was done a little over a week ago, which wasn’t as bad as I expected – but also more serious than I expected. πŸ€”πŸ‘¨πŸ»β€βš•οΈ Other than the doctor using a needle rather than actually cutting me open, it was actually a real deal procedure. Hooked up to monitors, in my gown, rolled from the waiting room to the procedure room… and then a couple nurses or technicians dealing with the ultrasound and instruments, while the doctor repeatedly jabbed me in the neck with a thicker-than-I’d-have-preferred needle. πŸ˜―πŸ’‰ It took three different “pokes” to get enough cells for the tests that they needed to run, but the folks were all great, and always spoke in a very calming way that made it not nearly as anxiety inducing as it could have been.

Then on Monday I made it to my first of four dentist appointments. 😳 Rather than attack my whole mouf at once, they figured it would be easier on my face (and at least psychologically, on my wallet) if we split up the work on my teefs. So that appointment was a deep cleaning on the bottom, and then a gum line filling on one of the right rear molars. A little uncomfortable since they had to use a tool to push my gums down until the filling was complete, but I was good and numb so it didn’t really hurt until much later into the day.

Things have been hit and miss with my sciatic issue. Some days it’s almost unnoticeable, and then others there’s a continuous mild pain with some sharp bursts that also come with some weakness. πŸ€·πŸ»β€β™‚οΈ I’ve got a followup appointment with my chiropractor in the first week of next month, and I guess I’m still gonna go see him – just so I can update him in case I have my doctor doctor contact him for my info, when I ask her to look into this problem for me through whatever avenue she thinks might help.

And then my biopsy results… they came back a day sooner than I was expecting, and I actually got the call from the specialist on my way home from the dentist. πŸ˜’ They can’t really tell you anything definite from a small sample like that, so he says surgery is in my future. 😐 I actually had an appointment with him earlier yesterday, and I left feeling about as optimistic as possible when talking about this sort of thing. Like I had already been doing myself, he pointed out many reasons that I should feel far more optimistic than the average person when it comes to this – especially noting that sometimes people have thyroid defects that grow for years and years, and are never even discovered until they’ve grown to a size where it interferes with a person’s swallowing or breathing. 😧

There’s way too much to the situation to get into real detail, but I’ll just say that his “matter of fact” way (in a good way) of talking about the surgery, the treatment, the positive results that he expects and has gotten many times before in others… it helped provide a little ease to a decidedly uneasy thing to think about. So, it’ll come, we’ll hope for the best, and if that isn’t enough, we’ll just face whatever the next thing is after that. I think that things will be fine, even if not on the first try.

Birthday Eve

The stars aligned yesterday and I woke up feeling good and was able to go in to visit with Mom and Dad like I had planned a few days earlier. πŸ™‚ Everyone knows that when it comes to planning things, my brain often won’t cooperate when the day actually comes – so that’s why it was nice to wake up yesterday feeling decent and ready to go. It’s actually Dad’s birthday today, but rather than showing up with decorations and hats and horns I just came with several bags full of goodies and junk food – and some Sonic double burgers that seemed especially good that day. πŸ€€πŸ”πŸŸ

Mom was extra talkative, and seemed to be in a pretty good mood, although she did say that she was tired of the CD that always plays in her radio – so I told her that I’d bring her some Elton John music next time I visited. 🀩🎹 I stayed a couple of hours, and was considering doing a couple of other things on my way home, but when I got in my car my brain decided that it was just time to go straight home.

I think I overdid it with my arm throughout the day somehow, because by the time I was supposed to be going to sleep I had a pulsing headache at the base of my skull from the muscles being all meh. 😣 That kept me awake a couple hours longer than planned, so I decided last night that I’d put today’s planned activities on delay… and now that half the day is gone, I’ve actually just pushed everything off until tomorrow. πŸ™„β° Nothing is urgent, other than dealing with the BS surrounding my medication approvals, and I actually dealt with that on my way in to see Dad yesterday… so today, for the most part, will be a nothing day so I can have a little more recovery time for my oush and brain.

I’ve gotta keep reminding myself that the schedule that I sometimes feel compelled to keep (for my “responsibility/adulting” stuff) … it’s just an arbitrary timeline that I’ve pulled out of my ass. 😳😁 So it’s not so much that I really have to do this or that by a certain time or day, but it’s more that I just trick myself into thinking that those things are mandatory and unchangeable… which often isn’t the case. I gotta quit stressing myself out with dumb shit like that.

Same Ol’ Song and Dance

Ended up staying awake for 28 hours straight, then slept from 8a to 3p today… so now I’m likely to be up all night, which doesn’t really help with my plans for tomorrow in the early afternoon. I’ll keep my fingers crossed regarding that, but man… so glad to finally have my medication in hand. It took some oomph to get up and go in town to get it, but yeah… this month was ridiculous when it came to getting these filled. They weren’t even new scripts, just refills.

If I didn’t know how much I’d hurt, and how negatively my ability would be affected, I’d try to wean myself off of this shit. Not only do I have to go through this routine nearly every month, but in the days leading up to when I call for my refills – I’m already starting to worry what type of clusterfuck will happen this time, that will end up with me going through temporary withdrawals. So basically 1/3 of every month is either spent worrying about my refills, waiting for my refills, or suffering withdrawals from being delayed from getting my refills.

Gah… so tired of it. But yeah, I think frustration built up over the past couple of days, which is why I ended up barfing out those two super-long recent blog entries about all the stuff going on down in Florida. I needed something to take my mind off of how I was feeling, and that seemed to do the trick. But it looks like I’m going to have to set back even more of my meds for the end of the month from here on out. Shouldn’t have to short myself each day just to make sure I don’t run out when I get screwed over, but yeah, I guess that’s what I have to do.

Believe it or not, even though my court case was back in the middle of February, they still haven’t made a determination. That might account for some of the delay, if they were waiting and hoping that I’d lose my right to those meds, but who knows. Whenever I do get a chance to talk to my lawyers next though, I do intend to point out what’s being done each month to see if there’s something that they can do – or even if it could be seen as some sort of spiteful or unjust action that could carry some sort of penalties for them.

Reality tells me there’s not shit they can do, that I can be yanked around basically as much as they wanna yank me around, and that it’s up to me to figure out how to protect myself towards the end of each month. Ahh, what a feeling.

Oh Yeah, I’m Still Quite Broken

I enjoyed having some company for a few days, but the one reason why I’m glad that she’s back at her own house now? So I can have my damn chair back. πŸ˜… She’s like me… for whatever reason, we both find the recliner to be the best place to sleep. So while she’s here she sleeps in the living room and I sleep in my bedroom… on my crappy mattress. πŸ˜’ It’s not always bad… but the odds say that you’re more likely to wake up feeling like shit than not – and every night that she’s been here recently I’ve woken up wishing that someone would just put me out of my misery. 😣 Thankfully, hot hot shower “until the hot runs out” makes a lot of it go away.

I think that steroid injection did work, and I think it is starting to wear off… so I’m just having to get used to regularly waking up in pain again. It’s almost enough to make me not want to do an injection again – because, believe it or not, I can get used to the pain… but not if some magic shot makes it go away for a few weeks before letting it get me again. πŸ˜ͺ I’m not meaning to bitch though… I just wanted to say that I’m happy that I’ll be able to sleep in my recliner again and at least give myself a shot at feeling decent in the morning.

The past few days have been really good for me though. I went and did my own grocery shopping without any problems, and then yesterday I went with Cassi when she did her shopping… and at neither time did I feel like running from the store or stabbing anyone in the face. 😈 I think it’s because she’s one of the few people that I can feel human around, which sometimes lets me do human things. Lemme tell you, as weird as this stuff probably sounds to “normal” folks, it’s even more confusing and frustrating to me, the one experiencing it all. 😐

I’m not gonna make any concrete plans based on how I’m feeling after the past few days, but I will say that I’m gonna try to keep rolling with the positive vibes and see where that takes me. 🀞🏻 I’ve got some things in mind, but I don’t wanna pressure myself by laying it all out. See, it is possible to really hurt and still feel somewhat okay. πŸ€” Some days are obviously worse than others, but I have to convince myself that feeling physically miserable doesn’t always mean that my entire day will be destroyed. I know it’s possible.

So, I Went Out

Yesterday was an all around recipe for failure. πŸ˜’ I was still dealing with the pharmacy issues andΒ already feeling like shit, but I had made a promise to a friend and I was determined to not be a disappointment again. 😞 For her birthday, a couple of months ago I bought Cassi two tickets to a concert she wanted to see at the Newport, and that show was last night. It was never my intention to go with her, as I just can’t do it right now (I didn’t even go see Skillet at Winter Jam) but I wanted her to be able to take a friend or her sister to share the fun with.

Unfortunately they didn’t have a ride to get to the show, so I went up there, picked them up, took them to the show, dropped ’em off, and then I had to find something to do until the show was over and I could pick them up again, take them home, and then make my way back home myself. πŸ€” I didn’t mind doing that at all… it was part of the gift. But I was already in bad shape before I left, and the sea of humans and traffic on campus only made things worse. 😬 I was gonna just find some thrift stores or something to kill time, but there were just too many people so I needed to go elsewhere.

That lead to one of the high points of my evening at least, after deciding to go over to Hollywood Casino. I hadn’t been there since maybe last summer, and I remembered that being in a casino often masks my pain… but not so much last night. 😐 It was fun, but not fun, if that makes sense. 😏 Too much time in the car, too much sitting in uncomfortable chairs… and it just kept getting worse. The one saving grace is that I kept losing and winning at a rate that had me only slightly down from when I walked in – and then right when I was leaving, I hit on a machine that Jim always says I should play. πŸ˜ƒπŸ€·πŸ»β€β™‚οΈ This makes the second time he’s picked a winner for me.

But anyway, by the time I got home around 11pm… omg… worst neck pain that I’ve had in months. πŸ˜“ I’m not yet going to assume that the steroid injection is wearing off, since there were other factors, but yeah… it took exhaustion to finally make me sleep, because there wasn’t a single position that I could turn to that would make it go away. That sort of pain that makes a person go, “Oh shit… I’m really screwed if it just stays like this.” But like I said, thankfully, today the pain was down probably 90% from yesterday.

I guess I should wrap this up. 😏 Waking up feeling somewhat okay today… it’s allowed me to sit and plan my way towards the weekend in a way that I might be functional and okay. Don’t get me wrong, I hate that have to do any of this, and I hate that I have these days where I know I should do absolutely nothing, before baby-stepping my way out of it… but despite how it makes me look or how it may affect others, I have to start figuring out how to not be physically miserable and emotionally fucked because of it. πŸ€·πŸ»β€β™‚οΈ

That’s Just The Way It Is

It looks like I can just count on one week out of every month being horrible thanks to the runaround I get regarding my medication. πŸ˜’ A full one-quarter of my current existence on this planet, already set aside for fuckery and feeling physically and mentally miserable. 😣 So, starting this month, I’m gonna have to start rationing – so that way when there are extended delays in getting stuff approved, I won’t be going completely without and feeling the affect of that accordingly.

I don’t even have the energy to get into it. πŸ˜” I’m just hoping that it doesn’t mean that I lost my court hearing weeks ago. πŸ€·πŸ»β€β™‚οΈ I still haven’t gotten any paperwork on it, but I’m guessing the magistrate is probably close to making a ruling if he hasn’t already. But yeah, when I’m already having a hard time functioning like a human, knowing that I’ll lose a week each month like this certainly doesn’t help matters.

But anyway… in an attempt to not think about that for a while tonight, I put my phone on airplane mode and set up a short time-lapse shot. I think the elapsed time was actually about two hours, but it plays out in a minute or so. I used an ISO of about 1200, an exposure of 1/3 of a second, with digital light trail enhancement of 3 seconds. πŸ€“ I’m actually fairly pleased with the result, although I’ve already thought of what adjustments I need to make next time so there’s less grain, brighter stars, and longer light trails.

So yeah… this is just another thing I have to adjust for, the same way that I need to adjust the amount of shit that I do when I’m feeling good – since I know that too much moving around will screw me up. 😐 Meh… it’s almost too hard to explain how complicated it actually is – the stuff that I can actually somewhat control – so when stuff that I can’t control gets added on top of it… yeah, things start to get bad bad. I’ll figure it out. Eventually. But hey, that video is kinda neat, no? πŸ™‚

(I might try to capture the movement of just the stars next time we have a new moon.)