Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Advertisements

Run Down

Not bitching, just noting… I’m really starting to feel the affects of going without my thyroid meds. πŸ˜’ I had every intention last night of doing those two things that I mentioned, and while I did get the grass seed down (and the rain clouds that were coming dried up, thanks) I absolutely crapped out as soon as I came back in.

I remember washing my hands, to get rid of whatever the “blue” is on all of that seed, but after that – I was just out. 😴 I don’t even remember falling asleep, but it couldn’t have been much past dark. I’ve experienced a wide variety of side effects from the various meds I’ve tried or been on, but never has my energy dropped to zero (in what felt like)Β instantly like that.

And surprisingly, even after sleeping a long time last night, it doesn’t seem to have done anything for my energy today. Thankfully nothing was on the schedule for today, so I’ve just been tending to Maven and hoping that this is just an anomaly – and not the lack of meds catching up to me and showing it how it’s gonna go for the next two weeks. 😬

I’ve yet to call my attorneys, to see if I should maybe try to reschedule the “independent” workers comp exam (which is currently scheduled a few days before the radiation dose) to another date, because up until last night and today things did feel sucky, but still manageable. πŸ€”πŸ€·πŸ»β€β™‚οΈ I suppose the next couple of days will help me figure that out on its own. I’ll admit though, this is gonna suck even if it just stays the same… so I really do hope this is just a hiccup rather than a sign of things to come.

The other symptom… feeling like I’ve got a much shorter fuse than usual, and less ability to bite my lip when I probably should. I guess it’s just a good thing that I’m not interacting with too many people right now. (But it is a good reason to consider moving my workers comp exam, I suppose.) Toni was the first person to tell me that I might notice that general feeling… and she’s still got her thyroid, but has that kind of reaction if she misses a few days for whatever reason. Makes me wonder if people with “anger management” issues might also have a funky thyroid and not even realize that could be part of the problem. πŸ€·πŸ»β€β™‚οΈπŸ€¨

Okay, This Heat Can Go Away

I’ve got all the supplies now, so today will be flea and yard day. It is miserable stinking hot out, just like it seems like it has been for the past two weeks straight – so again, as long as the rain holds off, I’m going to wait until evening before I spray on some OFF and go out to scrape up the dirt and lay down the grass seed. It just looks like we’ll have a few days of showers this week, so it might have a fighting chance even though it’s not the optimal time of the season to plant grass.

My temperature regulation and energy levels are already way out of whack due to being off the thyroid meds, so that doesn’t really encourage me to go out and sweat again, but as long as I just take my time and be conservative with my actions it should be fine. Then the flea powder for the carpets… it’s supposed to be left on for a minimum of an hour, with 24 hours actually being ideal. Of course that’s not gonna work, since animals are also not supposed to be in contact with it, so I’m hoping I’ll have the oomph to deal with that in the evening around bedtime.

Maven always follows me into the bedroom and craps out when she thinks I’m going to sleep too, so I’ll probably start that routine early tonight, get her in there, get her where she’s settled and not worried about what’s going on outside the room… and then I’ll get back up and dust the entire carpet. I should be able to leave it on for several hours before vacuuming everything up… even if it means shutting the bedroom door and annoying her if she thinks she wants out for some reason.

Then I’ve got the spray for whatever areas the powder isn’t suited for, so hopefully after tonight she’ll have far fewer itchies than the day before. She’s still actually not that annoyed by them, so they must not be too bad, but she will come over to me more often and “give me her face” so I can use the fine-toothed comb on it. She’s kinda weird, but I’m lucky that she tolerates almost any type off “fuss” now, whether its grooming or just getting eye boogies.

Comb, Goo, Powder, & Spray

Several days ago I went around the inside and outside of the house, spraying the porches and squirting down “poison barriers” at all the doorways, to kill and/or keep out the spiders, ants, bees, silverfish, etc… and while that seems to have actually worked pretty well, one of the potential pests that I hadn’tΒ thought of managed to make their way into the house somehow. πŸ˜’

I noticed Bubba scratching a little more than usual, but I figured it was just from it being so hot and her fur starting to get kinda long again. But nope… took a closer look yesterday evening when she came and plopped down on me, and somehow she’s managed to get fleas. 😞 Well… fleas are managing to get her. 😿 I didn’t see too many, and with her being mostly white they’re usually easy to spot, so hopefully I caught it somewhat at the beginning. πŸ₯ΊπŸ€žπŸ» And we do go outside for a few minutes at a time now and then, but always with her lazily & happily slung over my shoulder – cuz she’s a priss and doesn’t really care to touch the grass. πŸ™„πŸ™‚

Luckily I still had one dose of that “between the shoulder blades” goo treatment that Genesee suggested, from last year when I had to give her (and the house) the treatment. So I went ahead and completely combed her out, applied the goo while she was distracted with lovins, and then immediately got online to order flea powder for the carpet and flea spray for the other areas and soft furniture. Surprisingly (and I did google it extensively) this type can not only be used on “stuff” but it can be used directly on your critter as well. πŸ˜³πŸ€”

Rather than spraying it on her, which she would of course hate, I’ll probably spray it on one of her favorite brushes – doing the “Don’t worry, nothing going on, nothing to see here…” routine while I squirt and brush, squirt and brush. πŸ™€πŸšΏπŸ§Β And honestly, with the flea goo already applied, once I get the carpet and furniture treated I might not even have to do anything more than get the dead ones and their dirt off of her with the fine-toothed comb that she also already likes. πŸ€·πŸ»β€β™‚οΈ

Poor kitty. πŸ˜• She can be old and grumpy like me. 😾 Last thing she needs is this annoyance. It’ll be handled.

Bubble Doesn’t Always Work

It’s been a rough, rough week… but I’m not even gonna talk about all of it. I don’t want to take the chance of spreading more negative emotions just because it helps me to get things off my chest. Going to bed early tonight. Hoping for a reset of my body and mind. Glad I made it through the week… sadly, the same can’t be said for one of my old friends from school. He was a couple grades ahead of me, so I was actually closer to his little brother. Definitely one of those things where nobody even saw it coming. But yeah, I’m tired of this week… so the sooner I get to sleep, the sooner it will be over and I can try to start fresh.

Happy (late) birthday, Dad…Β  trying to get good enough where I can visit soon. Sorry… that’s all I can say. 😞

Checking Off Boxes

Typical “workers comp, beginning of the month, get my scripts filled” day today. Three different calls to the pharmacy, issues with my information in the computer, problems with certain ones not being approved… same bullshit as usual, except due to the incorrect information in their system I even had to stop in myself, with receipts and printouts and crap from last month. The folks that work there are great. It’s never the people there that I have a problem with… and after my visit we think everything is now updated, correct, and in process of being authorized – so maybe sometime today I’ll actually be able to pick them up.

I had to be out today anyway, so stopping in to get all this stuff sorted out wasn’t a big deal. I mean, I actually feel kinda bad for them – with how much of a pain in the ass “my case” is for them each month. It makes me wonder if any pharmacies have ever decided that certain customers’ situations were just too much work, too many calls, and too big of a PITA – and just told them to take their business elsewhere. ‘Cuz I can see how they could feel that way about me, if they weren’t such understanding and helpful folks.

But at my other stops, along with having several vials of blood drawn, we’ve started getting a lot more things set in stone. I’ve now got dates (if not exact times, yet) for the next blood draw, the administration of the radiation dose, how long I’ll need to stay away from people (which included rearranging another unrelated doctor appointment), when the full scan at FMC will be, and then the followup with my main thyroid doctor after all of the results are back and interpreted.

It’s surreal… how this is such a “big deal mind fuck” thing for me as I’m going through it, yet I’m just one of many. There are enough people needing this kind of treatment that once a week, every week, it’s radioactive “dosing day” for thyroid patients at FMC. But for whatever reason, even as you’re out in town, seeing other people doing whatever… it’s easy to feel like you’re the only person going through this shit, while actually we probably pass by people each day who are going through the same thing or worse. Working in nuclear medicine, giving the doses… I can see how that job could start feeling pretty heavy after a short while.

Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…