You Never Get Used To It

(Oh yeah… this is quite a rambling one.Β  Strap in…)

While I was off of my thyroid meds, losing energy with each day that passed, preparing to have my second cancer scan done, as you may remember – I still had to drive over an hour up to NW Columbus, to go to the “Independent Medical Evaluation” initiated at the request of my former employer’s WC insurer. πŸ˜’πŸ€’ For those who haven’t been through it, it’s essentially one of the methods that can be used to try to get medication or treatments disallowed from a claim, based off of a report from a doctor (like in this instance) who has seen you as little as one single time. 🀨 That almost always sets up an Industrial Commission hearing, where (in my case) that report will be compared against the records of my own doctor, who has been treating me consistently for this work injury and disability for well over a decade. 😯

Of course my thoughts were more focused on the upcoming cancer scan at that point, so I went up, had my exam, went back home, and then mostly forgot about it while I dealt with my other medical concerns. But upon collecting my mail from the box a couple of days ago – I saw that enough time had passed for that doctor to have generated his report, which is easily 30-40 pages (if not more), and have copies sent to me, my attorneys, and my own doctor. I waited a few days to open it, because I knew there would be nothing good about it, nor would there be anything that I could do about that fact. 😟 It might as well have been labeled “Envelope Full of Frustration” but I finally made myself open and read it all yesterday.

I’m going to sugar-coat the shit out of this as I continue. πŸ™„πŸ˜ For my second pass through this thick report, I grabbed a yellow highlighter and began to mark and number the areas where more info was needed. 🧐 Whether it was adding context, pointing out inconsistencies, noting conflicting statements within the same report, or bringing attention to things that were implied, inferred, or assumption… I ended up with 48 different sections that required a response. And, unfortunately, there were several things that were simply false. Absolutely false. But still written in this report as if it were fact. 😠 I’m not saying that this doctor just pulled some things straight out of his ass, but it’s a shame how many “inaccuracies” were made by someone that shouldΒ have the presumption of being knowledgeable and accurate, especially given the duty that he’s performing and the way it could affect the future of anyone that he evaluates.

So now my copy of that doctor’s report has 48 highlighted areas, to go along with a numbered “rebuttal report” that I created to address each of those problem areas. So when I give it to my attorneys, they’ll be able to read my comments right along with the numbered and highlighted areas on the original report. πŸ€“ And despite having another doctor appointment at 11am this morning, I was up until after 2am last night… because correcting or clarifying (what I believe to be) inaccurate things in that report is really the only thing that I can do right now when it comes to “defending myself” or possibly helping my attorneys with their argument points. πŸ€·πŸ»β€β™‚οΈπŸ˜ž But yeah, once I started, the areas that needed my attention just kept coming, and I wasn’t going to stop and go to sleep until I had addressed everything that I felt needed it.

Of course my doctor will write a rebuttal report… something that he’s done many times before, to the point where he’s often repeating himself – because the facts are the facts, and they don’t change over time. But when there’s a hearing, it’s just expected that the doctor of record will submit a report, so he’s unfortunately stuck in this situation just like I am. πŸ˜• Thankfully, my doctor is awesome. And like me, he’s not a fan of having his words twisted, his knowledge and methods belittled… and he’s definitely not a fan of any claims, implications, or “facts” that seem to be based on little-to-no actual evidence. So not only will he write a truthful and accurate rebuttal based on all of the medical evidence, but it also serves as a way for him to “defend” himself – which is the same feeling that I have, and why I wrote my index of rebuttal points. 🀨

I have a ton of other things that I would like to say about the doctor’s report, but it’s in my best interest to just stop at this point. I’ve covered the basics, and you’re more than welcome to imagine the non-sugar-coated version… but even if you did that, there’d still be some things that would legitimately shock you. So now I can only hope that my rebuttal points will be helpful and useful to whichever attorney ends up representing me at the actual hearing. πŸ‘¨πŸ»β€πŸ’ΌπŸ‘©πŸ»β€πŸ’ΌπŸ—’οΈπŸ‘¨πŸ»β€βš–οΈΒ (And I’ve always felt the “commission” folks do seem to care as well.)

But the law firm that represents me is great, and we’ve (knock on wood) got a great track record from the beginning through today… so I know that they’ll have already picked apart many of the same things that I’m bringing attention to, but there still might be something that I say here or there that will contribute to the arguments that they use on the day of the hearing. πŸ€·πŸ»β€β™‚οΈ And at the very least, having more information “straight from the horse’s mouth” will be beneficial in general, since we usually only have about a half hour to sit and quickly discuss the case before the hearing starts.

It would be hard for anyone to find the words to accurately express the feeling and level of frustration that comes along with this situation. πŸ™‡πŸ»β€β™€οΈ To have decisions being made by other people, about things that will dramatically affect your future, knowing that “the truth” is the only weapon that you have… it’s such a helpless feeling, especially when you’re already feeling pretty damn helpless most of the time, due to the disability and pain that this whole thing is about in the first place. 😒 So other than the info I’ll be giving my attorneys, it comes down to sitting, waiting, and hoping… and there’s nothing relaxing or reassuring about that. 😞

Any good luck or positive juju that you want to mentally send my way is greatly appreciated. πŸ€žπŸ»πŸ™‚πŸ™πŸ»

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Pace Yourself, Dummy

Felt like I had a little more energy than usual yesterday, so I trimmed my hobo beard here in the living room (with a trimmer that allegedly catches all the trimmed hairs) but then of course I still wanted to vacuum up whatever it didn’t get. Turned it on, but the vacuum wasn’t sucking, and then it just shut itself off. πŸ˜’ Awesome. Didn’t realize how many filters were inside this thing, but they had become clogged with the flea dust that I spread and vacuumed up a couple weeks ago. πŸ€·πŸ»β€β™‚οΈπŸ”§ So I had it in pieces, took out and washed all the filters, and that was it for me.

Not that I had anything that I needed to do after that, since the filters needed to dry overnight anyway before I could even try it again… but yeah, went from “okay” to completely whupped without any warning. Took a shower to see if that would jump-start things, but nope… just made me ready for bed. 😏 And yeah, I was thinking about how I’d be missing the meteor shower, but there were enough passing clouds that I didn’t feel too crappy about not having the oomph to stay awake and set up the camera to do things properly. πŸ”­πŸ§ Looks like it might end up even more cloudy tonight, but we’ll see.

But yeah, as I was starting to fear as the time got closer – just a few days of being back on my thyroid meds hasn’t quite done the trick yet. I’m noticing a difference, so that’s good, but I just have to be patient and stop trying to do more than I should. I mean, taking apart the vacuum wasn’t even physically difficult… but yeah, I just gotta keep taking it easy for a while. That’s what I did today, and the most I plan to do tonight or tomorrow is maybe that time-lapse video and then getting through the current stack of mail. πŸ™‚πŸ° No physical stuff, even though I’ve got a basket-and-a-half of somewhat radioactive clothes that I will need to get to sooner than later. (But it’s out of the way and not hurting anybody, so meh…)

Only real obligation tomorrow is my workers comp appointment, which is typically just in and out unless we get chatty… but it’s my doctor’s assistant that will be seeing me tomorrow, so other than letting him know how run down I’ve been for the last month and why, it’s just gonna be getting those meds on track. I’m barely out of the window where I’m technically supposed to be avoiding people for extended periods of time anyway, so I’ll make sure to let everyone in the office know that when I get there, which should also help to keep this visit short and to the point.

And whether this jinxes me or not, I like that I haven’t gotten a call from my thyroid doctor’s office on either of the business days since I had the scan done. πŸ€” Different, unfortunately, from one of my friends who has been having some heart testing done – and she got one of those “Let’s go ahead and get you in here as soon as possible…” calls, which always makes your stomach drop. 😳😟 Can’t dwell though… all this shit is in the doctors’ and God’s hands, and we all just have to hope for the best. πŸ™πŸ»

Oh C’mon…

Getting a half-way decent night of sleep didn’t do anything to recharge my batteries for any significant use today. Of course I do have a little more on my mind than usual, but that wasn’t what was bothering me today. Actually, I didn’t realize that anything was bothering me today – until it did. Around noon I went outside to use my little air compressor to air up my tires, since that was something I could just do in the driveway without having to drive into town or anything. Figured that was within my ability today.

Spent about ten minutes doing that. It was in the sun, yeah, but it wasn’t like it was actually that hot out. But yeah, so I was just waiting in the normal sun as my slow compressor topped off two of my tires… and when I went back inside, I fell asleep within minutes and didn’t wake up until almost two hours later. So bizarre. I wasn’t tired, wasn’t sleepy, and that’s all that I did… but *ploop*… I was out.

It’s still frustrating, and it still bothers me… but being so close to the end of this phase, at least I can think about it at the end of the day and smirk. It would be terrifying if this was just “how I’m gonna be from now on” but that’s not how it is. But knowing that something so truly small can trigger the “nope” button in my brain, which effectively shuts me down, it’s such a weird thing. Not a fan.

Hoping that I can get one more solid night of sleep under my belt tonight, and that maybe that will be enough to at least avoid any unintentional spontaneous naps tomorrow.

I Have My Reasons

Still hangin’ in there, still waiting through this process… 😟 of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. πŸ’‰πŸ˜¬πŸ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. 😐 Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. πŸ₯Ί My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. πŸ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldΒ be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” πŸ™‚πŸ€·πŸ»β€β™‚οΈπŸ™πŸ»

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Run Down

Not bitching, just noting… I’m really starting to feel the affects of going without my thyroid meds. πŸ˜’ I had every intention last night of doing those two things that I mentioned, and while I did get the grass seed down (and the rain clouds that were coming dried up, thanks) I absolutely crapped out as soon as I came back in.

I remember washing my hands, to get rid of whatever the “blue” is on all of that seed, but after that – I was just out. 😴 I don’t even remember falling asleep, but it couldn’t have been much past dark. I’ve experienced a wide variety of side effects from the various meds I’ve tried or been on, but never has my energy dropped to zero (in what felt like)Β instantly like that.

And surprisingly, even after sleeping a long time last night, it doesn’t seem to have done anything for my energy today. Thankfully nothing was on the schedule for today, so I’ve just been tending to Maven and hoping that this is just an anomaly – and not the lack of meds catching up to me and showing it how it’s gonna go for the next two weeks. 😬

I’ve yet to call my attorneys, to see if I should maybe try to reschedule the “independent” workers comp exam (which is currently scheduled a few days before the radiation dose) to another date, because up until last night and today things did feel sucky, but still manageable. πŸ€”πŸ€·πŸ»β€β™‚οΈ I suppose the next couple of days will help me figure that out on its own. I’ll admit though, this is gonna suck even if it just stays the same… so I really do hope this is just a hiccup rather than a sign of things to come.

The other symptom… feeling like I’ve got a much shorter fuse than usual, and less ability to bite my lip when I probably should. I guess it’s just a good thing that I’m not interacting with too many people right now. (But it is a good reason to consider moving my workers comp exam, I suppose.) Toni was the first person to tell me that I might notice that general feeling… and she’s still got her thyroid, but has that kind of reaction if she misses a few days for whatever reason. Makes me wonder if people with “anger management” issues might also have a funky thyroid and not even realize that could be part of the problem. πŸ€·πŸ»β€β™‚οΈπŸ€¨

Okay, This Heat Can Go Away

I’ve got all the supplies now, so today will be flea and yard day. It is miserable stinking hot out, just like it seems like it has been for the past two weeks straight – so again, as long as the rain holds off, I’m going to wait until evening before I spray on some OFF and go out to scrape up the dirt and lay down the grass seed. It just looks like we’ll have a few days of showers this week, so it might have a fighting chance even though it’s not the optimal time of the season to plant grass.

My temperature regulation and energy levels are already way out of whack due to being off the thyroid meds, so that doesn’t really encourage me to go out and sweat again, but as long as I just take my time and be conservative with my actions it should be fine. Then the flea powder for the carpets… it’s supposed to be left on for a minimum of an hour, with 24 hours actually being ideal. Of course that’s not gonna work, since animals are also not supposed to be in contact with it, so I’m hoping I’ll have the oomph to deal with that in the evening around bedtime.

Maven always follows me into the bedroom and craps out when she thinks I’m going to sleep too, so I’ll probably start that routine early tonight, get her in there, get her where she’s settled and not worried about what’s going on outside the room… and then I’ll get back up and dust the entire carpet. I should be able to leave it on for several hours before vacuuming everything up… even if it means shutting the bedroom door and annoying her if she thinks she wants out for some reason.

Then I’ve got the spray for whatever areas the powder isn’t suited for, so hopefully after tonight she’ll have far fewer itchies than the day before. She’s still actually not that annoyed by them, so they must not be too bad, but she will come over to me more often and “give me her face” so I can use the fine-toothed comb on it. She’s kinda weird, but I’m lucky that she tolerates almost any type off “fuss” now, whether its grooming or just getting eye boogies.