Insufficient Quantities

Another half-work / half-shlubbing-around weekend day. 😐 Cassi had the day off, so I went and got her so I’d have some company (and a helper) and so she could have time away from home. So, like the last time she was here, she’s been working on her stuff a little more and I’ve been working on my stuff more… using that bit of motivation that you get just from having someone hanging out. 😊

A couple different phone calls to the pharmacy this morning and they’re still having problems with getting any of my workers comp related medications approved. 😒 Ten minutes on the phone, then on hold, and then told that they were gonna have to make some calls to get things straightened out.  Haven’t heard anything back from them for the past couple of hours, so I’ll be calling again after I finish this entry. I’m not even trying to get them before last month’s supply ran out. 🤦🏻‍♂️

Heh… and as I’m writing this I got another text notification from the pharmacy saying that one item is on order, another is ready – but with a $12 charge, and no info about the third. 😕 But this confirms the typical problems I have every month… because if there’s a charge on one of these, that meant it was run through my regular insurance instead of the one provided by workers comp. I guess twelve bucks won’t kill me though.

And even though it’s Saturday, I got an actual registered letter that I had to sign for, from that “home care” medical provider that I mentioned a few entries ago. It says that they’re letting me go as a patient (okay?) and that I need to find someone else… despite having never used their services and not knowing who this nurse is that supposedly tended to me a couple times. 😠 So I sent them another email, despite just talking to someone from there on the phone, telling them to knock it off with the bills and the mail. It’ll probably do as much good this time as it did last.

Meh… so that’s been the first half of the day. And yeah, I know that a lot of the entries in the blog lately have just been me bitching about the mundane and trivial, but believe it or not – some people do like keeping tabs on me and knowing how things are going, even people that aren’t relatives or close friends. It’s weird to have made what are essentially digital pen pals, from people who have found the blog and have then messaged me for one reason or another.

But I guess I better throw on some pants and head in town for the one script that I can pick up. 🙄 And like I told Cassi, the reason I go in there most of the time, and deal with this shit in person – it’s because people tend to work a little bit harder when you’re standing right there, telling them exactly how things are supposed to be, and nudging them in the right direction when needed.

Heh… this was quite a ramble for just some medical billing filling bullshit. 😏

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The Rest of My Month Looks Fun

  • Pharmacy  /  monthly visit to jump through hoops for meds
  • Psychiatrist  /  intake appointment
  • Dentist  /  temp crown removal and permanent crown installation
  • Endocrinologist  /  injection #1 prior to 131 treatment
  • Endocrinologist  /  injection #2 prior to 131 treatment
  • FMC  /  nuclear medicine department for radioactive iodine (131) treatment
  • Home  /  (one week of isolating myself from the humans)
  • FMC  /  full body scan 7 days after 131 treatment
  • Psychologist  /  first “real” counseling session
  • Rehab/Pain  /  monthly WC appointment

Spent most of this morning on the phone, trying to wrangle all of my other appointments around the iodine treatment schedule – since that’s the one that is the most important, and the one that effectively removes a week of possible scheduling time from my life. 😒

EDIT: Just got off of another call with Dr Walter’s office. We’re now trying to figure out how much of a pain in the ass it’s going to cause… me being seen by his PA rather than directly by him, because Dr Walter is my “physician of record” when it comes to anything related to my workers comp claim – and they love finding any reason that they can to deny me treatment or medication. 😠 This sounds like it will be a work in progress, and we probably won’t know what the negative side effects are until they happen.

“Customer Service”

Might as well continue my bitching into Tuesday. 😒 Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy. 🙁 Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment. 🤕 That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes could help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I could (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either. 🤷🏻‍♂️

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.

Tedious Ramblin’

Doing my typical weekend thing, being half-productive / half-bum. 😐 Last week wasn’t too bad… got a few of my “must do” things done, while adding in a couple new things on the fly – and whatever wasn’t accomplished last week will just be added to the list of stuff for the upcoming week. 🤷‍♂️ I guess I got just enough of last week’s stuff done that it’s not really stressing me out today like it normally might.

Dealing with the misc “bill stuff” last week was tedious. 😒 My check for an bill that I had gotten was returned to me, with a note that said no balance was due. That same day, I got a second bill for that same amount… and it took talking to someone in person to get them to acknowledge that I was handing them a check for the amount due, at least according to their file. 😠 Not a big deal, just annoying.

Then I got a bill from one of Dad’s nurses or doctors, for an “at home visit” which I obviously don’t get here at my own home. I called and explained that our names are similar but not identical, but she still couldn’t tell me why the bill came to me, in my name. 🤨 She assured me that she fixed it in the system and that I won’t have to worry about it. It was for only ten bucks, but still… annoying.

Tried to call the hospital about some additional bill stuff on Friday afternoon, but even though it wasn’t that late in the day – apparently everyone with any authority had already left the building for the weekend. In theory, the financial assistance should absorb some bills as they’re generated, so there’s a good chance that the ones I’m calling about will have already been affected (or perhaps eliminated) by the time I actually speak to someone about them.

Everything that I ordered for Maven finally came in. There were issues because of the package being damaged in transit, then automatically refunded, then the order was automatically re-ordered – despite me doing that same thing manually… just nonsense that had to be worked out before everything was good. 🙄 But she’s feeling better, is mostly flea-free… so basically I’m handling a few things at the same time with her, like I’ve been doing appointments with myself for a few months now.

Oh, and then the “on the fly” thing that I mentioned having to make room for last week… it was an intake appointment that my PCP had made for me, to start seeing a therapist and psychiatrist. 😳👩‍⚕️ The last two PCP appointments I mentioned that I’d like to do that eventually, but that I wasn’t ready to throw it in with all of the rest of the things I’m dealing with quite yet… but my PCP apparently (and accurately) figured that I really did want to get started with the psych side of things, and that I just needed the nudge of having an appointment straight-up scheduled without any input from me. 😏

The first person I saw (and the only person, until next week) was the therapist lady, and I think I’m going to like her. 🧐 I got the typical hour-long intake visit with generic questions to start sizing me up… and I think I’ll like her not only because we share political and social views (it came up while talking about insurance and pre-existing conditions), but also because I think she’s aware that I’m relatively smart – and she seems pretty sharp herself. I always like therapy better when there seems to be a “fun” but somewhat adversarial type relationship – where we each know that what we both say will likely have merit.

Not much talk about meds yet, since that will fall under the umbrella of what the actual psychiatrist will be handling for me… so, I dunno, it may seem weird but I’ve always liked counseling for some reason. Even if it’s just because I can rant to a disconnected party for almost an hour and then just go home. 🙂 I don’t have to consider any “solutions” that they think might make me “better” compared to what I usually am. I mean, I’m open to suggestions… but do I have any specific goals or methods that I’m particularly interested in? Not really. Hey… I’m not the one who actually made this appointment.

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. 😒 They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🤨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. 🤷🏻‍♂️ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that did look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in that previous situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. 👍🏻

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill deal  – which will hopefully be a one time thing followed by close monitoring. 🤞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessing that’s gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. 🤔 It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. 🙂 Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…

Behind The Mask

So it’s been a week since the surgery, and while the incision site seems to be healing well, I can’t say that I’m too impressed with how my body is acting. I’m anxious to talk to the doctor again about this, so I can find out exactly what’s going to be done to get me back closer to “right” again.

Each day I’ve tried to do this or that, to see how I feel… and I feel stuck at about ten minutes of activity before it starts to affect me. The energy just isn’t there, and I get overheated when trying to do pretty much anything. Again, like I’ve said before, I know that there will be adjustments to my medication that should hopefully help with this – but it’s just frustrating how I’ve kinda been “waiting out” this first week to see if things would just gradually get better, when it seems like they’re not going to.

I’m gonna take a shower today though, while keeping my neck out of the water, because these cat baths aren’t cutting it – and I haven’t washed my hair since last Wednesday, so I’m far overdue. I haven’t shaved either, since I’m nervous about getting the area around my stitches, so I’m looking rather homeless right now… and that doesn’t help to make me feel any better when I look in the mirror.

Meh… it’s just been a long week and I’m feeling pretty miserable.

Wringer

Pardon the length of this entry, but yesterday was kinda tough, basically as I anticipated. Anxiety had me up most of the night, so I ended up doing all this stuff on only three hours of sleep – but at least that meant I was awake at dawn, so I could just hop up and start getting ready instead of grumbling at my multiple alarms squawking at me every two minutes until I rise and shine.

From 8am until 12.5pm I was doing “something medical.” 😐 Starting with my monthly neck doctor appointment, where we also covered my upcoming surgery, some of the medications that I might have to start taking because of it, and how they should or shouldn’t react with whatever meds I’m getting from him for my fusion spot, nerve damage, and grumpy muscles in the area. 😳👨🏻‍⚕️

Next was another blood draw for multiple panels of testing. 💉 I already had this done a little over a month ago, but they not only wanted to get the most current results, but there were also specific tests that they needed that weren’t in my other test. I volunteered my right arm, and the girl did her best… I mean, she hit the biggest vein available there, but for some reason it was only spitting a little bit of blood – and it was definitely not enough to fill the three vials needed. 😯 My left arm ended up being successful, and of course now I look like a junkie with two big bruises on each elbow-pit. 😏

Next was the electrocardiogram, which actually didn’t take that long due to it (thankfully) not including stress testing or anything like that. Just the normal dozen-or-so electrical leads, a few minutes of holding really still, and on to the next. 🙂 But the next thing was where it started to get shitty. 😥

Since they’re going to have to manipulate my head quite a bit while they’re working on my neck, and since they’re aware of the C5-C7 fusion, they had to take a crapload of x-rays while my head and neck were in extremely stretched, compressed, or otherwise super-uncomfortable positions. ☢😣 I do my best each day to not move my head in all of the ways that I had to do for those x-rays, so my neck was fucked after everything was said and done. 🙇🏻‍♂️ So not only will my surgery site be painful, but the ways they are gonna have to move my huge lump-of-a-head around while I’m under anesthesia… let’s just say that I’m really not looking forward to how that area’s gonna be feeling when I wake up.

I almost wasn’t able to complete all the scans that they needed, since one of them (while standing) was given with the instructions of “Put both of your arms straight up, directly over your head.” 😧 If there was a bar or something above my head I could have done it with little issue, but the only way I could do it without my left arm shaking was to get the arm up there, then actually lean against the plate/target of the x-ray machine to basically jam it up there in that position. 😬🤷🏻‍♂️ The fella doing it was really patient and understanding, and after reviewing them he said that the results should be fine, including that one which I thought would be pretty uncertain.

And I know, to a healthy person that all probably doesn’t sound like much… but man was I worn out after everything was done. 😓 Between the lack of sleep, the multiple stops, the blood loss… heh, the painful x-rays, and then my leg jumping around between “fine” and “omg stop” heh… I was just thankful that I was able to knock all of that stuff out in one day, along with being able to just go home and recover at my own pace. 😔 It’s all good though… all of this stuff is now done with a couple weeks to spare, so I’m just happy to keep everything on track.