Much Doctoring

It’s only half way through the week but I’ve taken care of the blood draw, the appointment for my off-and-on lower back issues, and then another appointment to go over the lab results and schedule some additional things that need to be checked off of the “Post ’18 Surgery / Keep an Eye on Stuff” list at some point during the next six months. 😯😊 That was a pleasant surprise to hear that last part… that my lab numbers didn’t trigger any sense of urgency from the doctor, and that I can just do those next things at my leisure. πŸ™‚πŸ‘πŸ»

Tomorrow is gonna be a partial day off… probably gonna make a couple more phone calls (yay?) that need to be made, but other than that I’ll probably just potato in the AC here at home. It’s been effing hot so far this week, and looks like it’ll be just as bad (if not worse) as Independence Day approaches. πŸ˜“ Some of us are meeting up on Friday for my friend Jim’s birthday, and that’s gonna be outside, so I’m gonna cross my fingers and hope that we can find a place around here with both a low human count and lots of shade. 😎

Had a nice surprise towards the end of the day. πŸ™‚ Well, nice for me, but slightly less nice for Dad. He wasn’t feeling great so he had someone take him over to the ER to get things checked out, and once they were done I went and picked him up and gave him a lift back home. πŸ’πŸ»β€β™‚οΈπŸš– He seemed like he was feeling pretty good, relative to the reason for his trip out. I’m glad my car was cleaned out since a couple weeks ago though… heh… ‘cuz not only would I have been embarrassed for him to see it, but he also would have been sitting with his knees pinned to his chest due to all of the trash clutter in my passenger-side footwell. πŸ™„πŸ€¦πŸ»β€β™‚οΈπŸ˜…

My sleep is still pretty screwy, so I’m almost positive that I’m gonna be up half the night tonight – but I’m not even gonna sweat it one way or the other. πŸ€·πŸ»β€β™‚οΈ Half the time, when I can’t sleep, it’s ‘cuz I’m stressing that I can’t sleep. But with nothing major on the agenda tomorrow, it doesn’t matter when I crap out or wake up. 😴 My nap today was solid though. 😊 I didn’t even hear when the lawn guys came and mowed… only noticing it once I was backing my car out of the driveway later in the day.

Still Stalling

It’s late in the evening on Sunday, and I find myself still staring at all of the unopened envelopes from Medicare, CMS, Workers Comp, Social Security… 😳πŸ₯Ί ‘cuz c’mon, there’s no way that all of this stuff could be good news for me. I did get all of my laundry done up, and I’ve just gotta fold the last basket here in a few minutes – so I’ll be doing that while the NASCAR race from today plays, since with all of the weather delays and stuff I’ve just started watching and am on about lap 30. Lots of good racing so far, but two delays for lightning. πŸ€”πŸ€·πŸ»β€β™‚οΈ I guess there’s a few people in the stands for this one.

But all this mail… πŸ€¦πŸ»β€β™‚οΈπŸ˜ž I just have a feeling that some of it is going to be PITA revolving around workers comp and my insurance not agreeing which meds they’re each willing to pay for, and then I wouldn’t be surprised if they’re ready to put me through my paces again to prove that I’m broken enough to count as officially disabled. πŸ‘¨πŸ»β€πŸ¦½ I’ve been banged up for a long, long time now… and with each month that passes I get a little bit worse, so man do I not feel like jumping through their hoops yet again. 😠 I’m sure it’ll stop at some point, but probably not until my age is more in line with my shitty condition.

I can’t complain too much about this weekend though. πŸ™‚ I had two nights of decent sleep, I got a little bit of my “to do” stuff done, so that was nice, plus I got the entire living room tidied up and vacuumed so I can bring out the new cat tree that Genesee got me for the girls. 😺😁😼 Doctor appointments coming up this week though, and I should probably go ahead and schedule that cancer followup that I was supposed to do sometime around late spring / early summer, since technically we’re there. πŸ˜’ Sure not looking forward to that either. 😟 It’ll be even less fun dealing with that crap if I’ve got a bunch of SS/WC/Med/Ins stuff on my plate as well. Man… I would be so fucked if I somehow got booted from the system. (I have a feeling that my mental defect of having so much anxiety that I’m unable to talk on the phone and often am too stressed to open mail or emails… that could at least add points to my “crazy” meter… heh)

I guess I’ll know more here before the night ends…

Partial Reprieve

I’m half disappointed and half relieved. πŸ€” Lead attorney said I’d probably get a call to set up a meeting with everyone towards the end of the week… and now the week is over. So, I’m gonna guess that the letter I sent with my concerns, pre-meeting, may have caused a little more research and discussion among the team. Or I’m a piddly case and they’re working on something bigger and didn’t even think of me this week. πŸ€·πŸ»β€β™‚οΈπŸ˜

Obviously I’m torn… part of me is ready to get this shit taken care of as quickly (but firmly) as possible, but part of me is glad that it’s the weekend so I’ll have two whole days of not having to think about it. πŸ™‚ (For the most part.) I did get a printout from the pharmacy though, with the records for all of my meds from 2019… and at some point this weekend I have to go through that and figure out when the WC insurer did pay for things and when they didn’t. 🀨 (As well as calculating the true total cost of all my meds.) That’ll be fun, considering the printouts have no payment info other than the type, date, and cost. πŸ˜’ Meh… I’ll figure it out.

I’m gonna go to the rarely-used “sitting room” in the basement this evening, to watch my shows in complete isolation from the world… 😊 then the weekend is supposed to be nice, or at least sunny, so I’m gonna try to go see Dad on one of those days. The one year anniversary of Mom being called Home is coming up, so of course that’s been bouncing around in my thoughts along with all of the other stuff. 😒😌

It sure doesn’t seem like it has been a year already…

I Ain’t As Good As I Once Was…

This has been on my mind, so I’mma ramble. πŸ™‚ If we’re able to come to a settlement agreement regarding the medical portion of my claim, I wonder if I’ll be able to eventually undo all of the damage that’s been done. πŸ€”πŸ˜Ÿ Not the physical stuff, of course, since that’ll slowly continue to get worse over the years… but the way the whole process has mentally changed me, especially over the past several years. 😞

It’s just that I’m guaranteed that one week out of every month will be filled with anxiety and stress, simply because I have to get my medications filled. 😐 The meds are required to be covered by my claim, and many years ago I could pick them up without issue – even being able to get them a few days early at times. πŸ€·πŸ»β€β™‚οΈ

Then the problems started. πŸ˜’ Short delays turned into long delays, and long delays became even longer. Eventually the delays were so long that I’d have to pay out-of-pocket just so I didn’t go without, and then wait and hope that I’d get paid back. πŸ˜• If my doctor prescribes a new medication, it can be denied pending an IC hearing. Even when a prescription doesn’t change they can still sometimes deny coverage pending an IC hearing to prove that it’s still necessary. (Which, after a decade, it obviously will be.)

Three weeks of “tolerable” pain at best, followed by a week of worrying, fussing, and fighting just to get the meds that they’re legally required to provide. 😠 Repeat, repeat, repeat, repeat… πŸ™„πŸ˜ž Combine that stress with fluctuating pain and lack of ability, and eventually it consumed so much of my thoughts and time that I started backing away from everything else.

(Don’t mind my rambling… like I said, this blog sometimes acts as my therapy…)

When I can’t guess how I’ll physically feel, and I can’t even count on having (or being able to get) my meds to help… things became too unpredictable to continue like I had been. πŸ™ A couple of years ago I had a long phase where I couldn’t do anything if it meant someone “counting on me” for something. Family started getting shut out, friends definitely got shut out, all because I never knew how I’d feel when I woke up that day nor if I’d be facing (or getting pulled into) another hearing or lengthy process with the pharmacy.

That hasn’t changed. 😐 The concern and worry, that is. πŸ˜’ Along with my family and friends’ understanding, I’ve been able to make some adjustments that has kept me from totally isolating myself these days… but lemme tell ya, sometimes it feels easier to just remove myself from people’s lives than to disappoint them over and over again when things are bad. πŸ₯ΊπŸ˜ž And that leads me back to my original question… how long does it take for a person to escape that mindset, if that 1/4 of each month no longer has that anxiety and stress from the fight? 😐

The stress now, for better or worse, is making sure the settlement (whether an annuity or lump sum) is truly enough to cover the things that it will need to cover. If not, I’ll just be trading the stress of fighting for meds each month for the stress of not being able to take the same meds, because I won’t have the funds to pay for them. πŸ˜’ Medicare is technically supposed to step in at that point, but they’ll require all kinds of proof that I spent the settlement money only on applicable things, and the more expensive meds still might not be covered. πŸ˜– So as you can see, there truly is “always something.”

Kinda makes all the “You’re so lucky that you don’t have to work anymore!” folks reconsider, eh? 😏

Tripped My Breaker

Everything caught up with me in a bad way today. 😞 First time in a week and a half that (for no apparent reason) I woke up with my neck frozen – combined with a splitting headache at the base of my skull. 😣

That’s never fun, but today it was apparently my tipping point. With the mental stress of all the various things getting ready to happen (as well as currently going on) with my workers comp situation, all the work I’ve been doing on it, plus still nervously waiting for my attorneys to call regarding setting up a meeting… waking up feeling utterly miserable along with all of that just flipped a switch. πŸ₯Ί

My anxiety about all of it had turned to irritation, anger, and determination over the past couple of days – but that’s when I wasn’t physically suffering at the same time. 😟 So while I’m not thrilled that I lost the entire day today – after taking my morning meds, letting the hot shower rain on the back of my head, and waiting to see if the pain was going to let up… I nodded back off and ended up sleeping the entire day away. πŸ€·πŸ»β€β™‚οΈπŸ˜•

I would have heard my phone if my attorneys reached out… but, again, the call didn’t come. A couple people texted me, but it’s late now – and I’m honestly in no condition to act like I’m “okay enough” to return messages and hold a conversation. I hate ghosting people, but today has been a bad, bad day. 😞 I’ve taken my evening meds though, so I’m hoping that’ll do something… but it’s hard to say if I’ll be back out in an hour or if I’ll end up awake all night due to sleeping all night and day. πŸ˜’ That’s just how it goes sometimes…

And when I mention this next thing, I’m not looking to be medicated… but when an injured workers is put through the ringer like I’ve been – it should honestly be a requirement that the coverage includes the option of talking to a counselor or therapist. 🀨 It’s obvious that mental and emotional stress can affect a person’s physical health, so it would truly be in everyone’s best interest. πŸ€·πŸ»β€β™‚οΈ (This blog is usually my therapy.)

Yeah, I’m thinking about my situation, but I’m also thinking about the tens of thousands of other people who’ve been in the fight for years that might not handle it as well as I have, which isn’t always that great. 😟 It should help once I get the call and the meeting is scheduled, and it’ll help even more once that’s done… no matter how it seems to go. It’s the “unknown” and the waiting that’s really tweaking me right now. 😠 If this stuff’s gonna take a different course here soon, I’d like to get the show on the road.

So today went straight into the trash, but I’ve got something to look forward to tomorrow. Map of The Soul: Seven (by BTS) is being released, it’ll be available on Spotify, so I’ll have a whole album of new music to listen to and hopefully be distracted by. πŸ™‚πŸ€·πŸ»β€β™‚οΈ Here’s hoping for a better tomorrow.

Push Through It

I thought I might have better luck if I went in to the pharmacy rather than calling them, but nope. πŸ˜’ Tomorrow’s technically a holiday, so I’m gonna wait until Tuesday before I go back in and make them go through any kind of fuss, in case they need to call the insurer or my doctor to get things moving.

Next stop was Walmart, since about a week ago I went ahead and ordered a second pair of glasses from them. I was originally just gonna grab my prescription and send it off to somewhere online so I could get a cheap pair of distance-only lenses and frames, but I was able to order a pair from Walmart for only $68 so I figured that was good enough. πŸ€“

After that I made it out to see Dad for a while. πŸ™‚ We were gonna watch some of the Daytona 500, but weather came and put it on a rain delay. I wouldn’t have been able to stay through the whole thing anyway though. πŸ˜• My neck was still pretty locked up through my whole trip out, but towards the end of my visit with Dad my shoulder started shaking and being uncooperative again, so I headed home to get it back in front of the space heater.

Oh great… speaking of meds. I just nowΒ got a text from the pharmacy that says “We are contacting your doctor for an alternative med for Rx Metaxalone. We will text when ready.” 😳 No idea what that’s all about, but if my doctor wanted me to be taking something different he would prescribe me something different. 😣 Oy… looks like I’ll be calling the pharmacy in the morning to find out what’s going on, and then my doctor’s office to let them know there’s some new sort of nonsense that they might be getting a call about.

I swear, man… πŸ˜’ it’s almost 7p on a Sunday before a holiday – and I’m still getting hassled. Meh… no sense in worrying tonight since I can’t do anything about it anyway. You see how this stuff goes though? 😟 I went in and tried to get that situation settled, I wasn’t able to, so I was trying to put it out of my thoughts… so the situation reached out and poked me, like “Hey, don’t forget about me. Here’s something confusing for you to ponder all night… and you might wanna get up stupid early to make even more phone calls tomorrow. Sleep tight.”

Not What I Planned

Yup, like I said, last night was fun, but I’ll be paying for it today. Thinking that this would be a lazy Sunday, I made the mistake of pushing a bunch of things from last week off until today. I’ve gotta handle my mail, work on a bunch of stuff regarding my upcoming IC hearing, listen to my voice mails and deal with whatever those require, plus I’ve gotta call the pharmacy to continue trying to get my current prescriptions filled…. and that’s all gonna be a lot harder now with a frozen neck.

Of course because of the physical aspect, but also because it’s particularly stressful to be coordinating my fight against workers comp and struggling to get my meds filled while I’m experiencing the exact thing that they’re fighting me over. It’s emotional stress that makes the physical stress worse, which makes the emotional stress worse, ad infinitum… the ouroboros of my disability. 😞

When that cycle starts it’s hard to escape. That’s why I worry so much about things like my planned concert trip later this year. Yesterday, my only concern with meeting up with my friends was that I might be too tired to do it, but then my shoulder shows up too, goes nuts, and now today is screwed. If I make just the smallest misstep, things can go downhill so quickly.

So I’m gonna wait a little longer for the morning meds to kick in, then I’ll start slowly tackling this stuff. But ugh… cringing about what else the mail might contain, cringing about what the voice mails might say, cringing about yet another hearing that will determine the quality of my life for the indefinite future… it would just be nice if I felt like I had some control of where my life is heading.

It’s probably partially my fault for not dealing with stuff as it showed up, but again I made the mistake of thinking that because I felt okay on those particular days that I’d feel okay today when I planned to deal with everything. Meh… I have very little control over how this will all turn out, so I might as well just power through it as best as I can and then give it up to God. And yeah… this counts as a negative post.

Pre-Dawn Thought-Stream

Got notice yesterday that my IC hearing has finally been rescheduled. πŸ˜’ It’s gonna fall right in the middle between my most recent WC doctor appointment and the one scheduled for next month. I’ve gotta get two of my WC meds filled later today (I’m not gonna rehash how that normally goes) but with the hearing now on the schedule again, I wouldn’t be surprised if there’s even more trouble.

The past few months I’ve had to pay out-of-pocket to be able to get my meds on schedule, and then just wait and hope that the WC insurer would pay me back. 😐 I feel bad for the folks who are in the same situation as me but aren’t able to do that. And all this crap each month… that’s despite nearly every previous IC hearing over the past decade being found in my favor. πŸ€·πŸ»β€β™‚οΈπŸ˜’ (Making “winning” somewhat of an inaccurate term.)

That’s the thing, you can “win” over and over again, but they can come at you again for those same things, repeatedly, after a certain amount of time elapses. It’s literally a never-ending process, if they want it to be. 😟 No emotional investment from their side, but it can sure wear down the injured worker. I know I don’t mean this, but I’m almost “ready to lose” just to be done with it. Can’t quit now though…

Jim and Adam are coming to town this evening, and they’re gonna pick up Brad so we can all meet up for dinner somewhere. πŸ™‚ Jim lives so far away now, in the past few years I’ve only seen him probably a couple times each year, so (especially since he’s coming all the way down here) I’m really hoping that I can make it. Doesn’t help that I fell asleep early yesterday and have therefore been awake since 3a today. πŸ™„πŸ˜

It’s after 5a now, it doesn’t appear that I’ll be falling back to sleep, so that means I’ll likely need a nap sometime in the early afternoon. 😴 Heh… being old and broken sure has a way of changing how you plan for things and recover from them afterwards. πŸ‘¨πŸ»β€πŸ¦³ Thankfully this has been an okay week re: my neck, so with any luck that will remain true tonight. (Unlike the 2018 Sweet Corn Festival when we all met up… 😳)

I was an absolute mess that day. πŸ₯Ί Dealing not just with my neck, shoulder, and some horrible random lower back pain – but also, being right before my thyroid cancer surgery, I had like 1/10th of the energy that I’d normally have when it came to getting around the place. I could tell by how they acted that I must have appeared like I was on Death’s door. πŸ€•πŸ˜·πŸ˜‘β˜ οΈ So, while things aren’t perfect now by any means, they’re at least better than that, eh? So I don’t wanna miss it tonight. Gotta make the moments count.