Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. πŸ˜’ They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🀨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. πŸ€·πŸ»β€β™‚οΈ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that didΒ look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in thatΒ previousΒ situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. πŸ‘πŸ»

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill dealΒ  – which will hopefully be a one time thing followed by close monitoring. 🀞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessingΒ that’sΒ gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. πŸ€” It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. πŸ™‚ Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…

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Behind The Mask

So it’s been a week since the surgery, and while the incision site seems to be healing well, I can’t say that I’m too impressed with how my body is acting. I’m anxious to talk to the doctor again about this, so I can find out exactly what’s going to be done to get me back closer to “right” again.

Each day I’ve tried to do this or that, to see how I feel… and I feel stuck at about ten minutes of activity before it starts to affect me. The energy just isn’t there, and I get overheated when trying to do pretty much anything. Again, like I’ve said before, I know that there will be adjustments to my medication that should hopefully help with this – but it’s just frustrating how I’ve kinda been “waiting out” this first week to see if things would just gradually get better, when it seems like they’re not going to.

I’m gonna take a shower today though, while keeping my neck out of the water, because these cat baths aren’t cutting it – and I haven’t washed my hair since last Wednesday, so I’m far overdue. I haven’t shaved either, since I’m nervous about getting the area around my stitches, so I’m looking rather homeless right now… and that doesn’t help to make me feel any better when I look in the mirror.

Meh… it’s just been a long week and I’m feeling pretty miserable.

Wringer

Pardon the length of this entry, but yesterday was kinda tough, basically as I anticipated. Anxiety had me up most of the night, so I ended up doing all this stuff on only three hours of sleep – but at least that meant I was awake at dawn, so I could just hop up and start getting ready instead of grumbling at my multiple alarms squawking at me every two minutes until I rise and shine.

From 8am until 12.5pm I was doing “something medical.” 😐 Starting with my monthly neck doctor appointment, where we also covered my upcoming surgery, some of the medications that I might have to start taking because of it, and how they should or shouldn’t react with whatever meds I’m getting from him for my fusion spot, nerve damage, and grumpy muscles in the area. πŸ˜³πŸ‘¨πŸ»β€βš•οΈ

Next was another blood draw for multiple panels of testing. πŸ’‰ I already had this done a little over a month ago, but they not only wanted to get the most current results, but there were also specific tests that they needed that weren’t in my other test. I volunteered my right arm, and the girl did her best… I mean, she hit the biggest vein available there, but for some reason it was only spitting a little bit of blood – and it was definitely not enough to fill the three vials needed. 😯 My left arm ended up being successful, and of course now I look like a junkie with two big bruises on each elbow-pit. 😏

Next was theΒ electrocardiogram, which actually didn’t take that long due to it (thankfully) not including stress testing or anything like that. Just the normal dozen-or-so electrical leads, a few minutes of holding really still, and on to the next. πŸ™‚ But the next thing was where it started to get shitty. πŸ˜₯

Since they’re going to have to manipulate my head quite a bit while they’re working on my neck, and since they’re aware of the C5-C7 fusion, they had to take a crapload of x-rays while my head and neck were in extremely stretched, compressed, or otherwise super-uncomfortable positions. ☒😣 I do my best each day to not move my head in all of the ways that I had to do for those x-rays, so my neck was fucked after everything was said and done. πŸ™‡πŸ»β€β™‚οΈ So not only will my surgery site be painful, but the ways they are gonna have to move my huge lump-of-a-head around while I’m under anesthesia… let’s just say that I’m really not looking forward to how that area’s gonna be feeling when I wake up.

I almost wasn’t able to complete all the scans that they needed, since one of them (while standing) was given with the instructions of “Put both of your arms straight up, directly over your head.” 😧 If there was a bar or something above my head I could have done it with little issue, but the only way I could do it without my left arm shaking was to get the arm up there, then actually lean against the plate/target of the x-ray machine to basically jam it up there in that position. πŸ˜¬πŸ€·πŸ»β€β™‚οΈ The fella doing it was really patient and understanding, and after reviewing them he said that the results should be fine, including that one which I thought would be pretty uncertain.

And I know, to a healthy person that all probably doesn’t sound like much… but man was I worn out after everything was done. πŸ˜“ Between the lack of sleep, the multiple stops, the blood loss… heh, the painful x-rays, and then my leg jumping around between “fine” and “omg stop” heh… I was just thankful that I was able to knock all of that stuff out in one day, along with being able to just go home and recover at my own pace. πŸ˜” It’s all good though… all of this stuff is now done with a couple weeks to spare, so I’m just happy to keep everything on track.

Birthday Eve

The stars aligned yesterday and I woke up feeling good and was able to go in to visit with Mom and Dad like I had planned a few days earlier. πŸ™‚ Everyone knows that when it comes to planning things, my brain often won’t cooperate when the day actually comes – so that’s why it was nice to wake up yesterday feeling decent and ready to go. It’s actually Dad’s birthday today, but rather than showing up with decorations and hats and horns I just came with several bags full of goodies and junk food – and some Sonic double burgers that seemed especially good that day. πŸ€€πŸ”πŸŸ

Mom was extra talkative, and seemed to be in a pretty good mood, although she did say that she was tired of the CD that always plays in her radio – so I told her that I’d bring her some Elton John music next time I visited. 🀩🎹 I stayed a couple of hours, and was considering doing a couple of other things on my way home, but when I got in my car my brain decided that it was just time to go straight home.

I think I overdid it with my arm throughout the day somehow, because by the time I was supposed to be going to sleep I had a pulsing headache at the base of my skull from the muscles being all meh. 😣 That kept me awake a couple hours longer than planned, so I decided last night that I’d put today’s planned activities on delay… and now that half the day is gone, I’ve actually just pushed everything off until tomorrow. πŸ™„β° Nothing is urgent, other than dealing with the BS surrounding my medication approvals, and I actually dealt with that on my way in to see Dad yesterday… so today, for the most part, will be a nothing day so I can have a little more recovery time for my oush and brain.

I’ve gotta keep reminding myself that the schedule that I sometimes feel compelled to keep (for my “responsibility/adulting” stuff) … it’s just an arbitrary timeline that I’ve pulled out of my ass. 😳😁 So it’s not so much that I really have to do this or that by a certain time or day, but it’s more that I just trick myself into thinking that those things are mandatory and unchangeable… which often isn’t the case. I gotta quit stressing myself out with dumb shit like that.

Oh Yeah, I’m Still Quite Broken

I enjoyed having some company for a few days, but the one reason why I’m glad that she’s back at her own house now? So I can have my damn chair back. πŸ˜… She’s like me… for whatever reason, we both find the recliner to be the best place to sleep. So while she’s here she sleeps in the living room and I sleep in my bedroom… on my crappy mattress. πŸ˜’ It’s not always bad… but the odds say that you’re more likely to wake up feeling like shit than not – and every night that she’s been here recently I’ve woken up wishing that someone would just put me out of my misery. 😣 Thankfully, hot hot shower “until the hot runs out” makes a lot of it go away.

I think that steroid injection did work, and I think it is starting to wear off… so I’m just having to get used to regularly waking up in pain again. It’s almost enough to make me not want to do an injection again – because, believe it or not, I can get used to the pain… but not if some magic shot makes it go away for a few weeks before letting it get me again. πŸ˜ͺ I’m not meaning to bitch though… I just wanted to say that I’m happy that I’ll be able to sleep in my recliner again and at least give myself a shot at feeling decent in the morning.

The past few days have been really good for me though. I went and did my own grocery shopping without any problems, and then yesterday I went with Cassi when she did her shopping… and at neither time did I feel like running from the store or stabbing anyone in the face. 😈 I think it’s because she’s one of the few people that I can feel human around, which sometimes lets me do human things. Lemme tell you, as weird as this stuff probably sounds to “normal” folks, it’s even more confusing and frustrating to me, the one experiencing it all. 😐

I’m not gonna make any concrete plans based on how I’m feeling after the past few days, but I will say that I’m gonna try to keep rolling with the positive vibes and see where that takes me. 🀞🏻 I’ve got some things in mind, but I don’t wanna pressure myself by laying it all out. See, it is possible to really hurt and still feel somewhat okay. πŸ€” Some days are obviously worse than others, but I have to convince myself that feeling physically miserable doesn’t always mean that my entire day will be destroyed. I know it’s possible.

So, I Went Out

Yesterday was an all around recipe for failure. πŸ˜’ I was still dealing with the pharmacy issues andΒ already feeling like shit, but I had made a promise to a friend and I was determined to not be a disappointment again. 😞 For her birthday, a couple of months ago I bought Cassi two tickets to a concert she wanted to see at the Newport, and that show was last night. It was never my intention to go with her, as I just can’t do it right now (I didn’t even go see Skillet at Winter Jam) but I wanted her to be able to take a friend or her sister to share the fun with.

Unfortunately they didn’t have a ride to get to the show, so I went up there, picked them up, took them to the show, dropped ’em off, and then I had to find something to do until the show was over and I could pick them up again, take them home, and then make my way back home myself. πŸ€” I didn’t mind doing that at all… it was part of the gift. But I was already in bad shape before I left, and the sea of humans and traffic on campus only made things worse. 😬 I was gonna just find some thrift stores or something to kill time, but there were just too many people so I needed to go elsewhere.

That lead to one of the high points of my evening at least, after deciding to go over to Hollywood Casino. I hadn’t been there since maybe last summer, and I remembered that being in a casino often masks my pain… but not so much last night. 😐 It was fun, but not fun, if that makes sense. 😏 Too much time in the car, too much sitting in uncomfortable chairs… and it just kept getting worse. The one saving grace is that I kept losing and winning at a rate that had me only slightly down from when I walked in – and then right when I was leaving, I hit on a machine that Jim always says I should play. πŸ˜ƒπŸ€·πŸ»β€β™‚οΈ This makes the second time he’s picked a winner for me.

But anyway, by the time I got home around 11pm… omg… worst neck pain that I’ve had in months. πŸ˜“ I’m not yet going to assume that the steroid injection is wearing off, since there were other factors, but yeah… it took exhaustion to finally make me sleep, because there wasn’t a single position that I could turn to that would make it go away. That sort of pain that makes a person go, “Oh shit… I’m really screwed if it just stays like this.” But like I said, thankfully, today the pain was down probably 90% from yesterday.

I guess I should wrap this up. 😏 Waking up feeling somewhat okay today… it’s allowed me to sit and plan my way towards the weekend in a way that I might be functional and okay. Don’t get me wrong, I hate that have to do any of this, and I hate that I have these days where I know I should do absolutely nothing, before baby-stepping my way out of it… but despite how it makes me look or how it may affect others, I have to start figuring out how to not be physically miserable and emotionally fucked because of it. πŸ€·πŸ»β€β™‚οΈ

That’s Just The Way It Is

It looks like I can just count on one week out of every month being horrible thanks to the runaround I get regarding my medication. πŸ˜’ A full one-quarter of my current existence on this planet, already set aside for fuckery and feeling physically and mentally miserable. 😣 So, starting this month, I’m gonna have to start rationing – so that way when there are extended delays in getting stuff approved, I won’t be going completely without and feeling the affect of that accordingly.

I don’t even have the energy to get into it. πŸ˜” I’m just hoping that it doesn’t mean that I lost my court hearing weeks ago. πŸ€·πŸ»β€β™‚οΈ I still haven’t gotten any paperwork on it, but I’m guessing the magistrate is probably close to making a ruling if he hasn’t already. But yeah, when I’m already having a hard time functioning like a human, knowing that I’ll lose a week each month like this certainly doesn’t help matters.

But anyway… in an attempt to not think about that for a while tonight, I put my phone on airplane mode and set up a short time-lapse shot. I think the elapsed time was actually about two hours, but it plays out in a minute or so. I used an ISO of about 1200, an exposure of 1/3 of a second, with digital light trail enhancement of 3 seconds. πŸ€“ I’m actually fairly pleased with the result, although I’ve already thought of what adjustments I need to make next time so there’s less grain, brighter stars, and longer light trails.

So yeah… this is just another thing I have to adjust for, the same way that I need to adjust the amount of shit that I do when I’m feeling good – since I know that too much moving around will screw me up. 😐 Meh… it’s almost too hard to explain how complicated it actually is – the stuff that I can actually somewhat control – so when stuff that I can’t control gets added on top of it… yeah, things start to get bad bad. I’ll figure it out. Eventually. But hey, that video is kinda neat, no? πŸ™‚

(I might try to capture the movement of just the stars next time we have a new moon.)