Birthday Eve

The stars aligned yesterday and I woke up feeling good and was able to go in to visit with Mom and Dad like I had planned a few days earlier. πŸ™‚ Everyone knows that when it comes to planning things, my brain often won’t cooperate when the day actually comes – so that’s why it was nice to wake up yesterday feeling decent and ready to go. It’s actually Dad’s birthday today, but rather than showing up with decorations and hats and horns I just came with several bags full of goodies and junk food – and some Sonic double burgers that seemed especially good that day. πŸ€€πŸ”πŸŸ

Mom was extra talkative, and seemed to be in a pretty good mood, although she did say that she was tired of the CD that always plays in her radio – so I told her that I’d bring her some Elton John music next time I visited. 🀩🎹 I stayed a couple of hours, and was considering doing a couple of other things on my way home, but when I got in my car my brain decided that it was just time to go straight home.

I think I overdid it with my arm throughout the day somehow, because by the time I was supposed to be going to sleep I had a pulsing headache at the base of my skull from the muscles being all meh. 😣 That kept me awake a couple hours longer than planned, so I decided last night that I’d put today’s planned activities on delay… and now that half the day is gone, I’ve actually just pushed everything off until tomorrow. πŸ™„β° Nothing is urgent, other than dealing with the BS surrounding my medication approvals, and I actually dealt with that on my way in to see Dad yesterday… so today, for the most part, will be a nothing day so I can have a little more recovery time for my oush and brain.

I’ve gotta keep reminding myself that the schedule that I sometimes feel compelled to keep (for my “responsibility/adulting” stuff) … it’s just an arbitrary timeline that I’ve pulled out of my ass. 😳😁 So it’s not so much that I really have to do this or that by a certain time or day, but it’s more that I just trick myself into thinking that those things are mandatory and unchangeable… which often isn’t the case. I gotta quit stressing myself out with dumb shit like that.

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Oh Yeah, I’m Still Quite Broken

I enjoyed having some company for a few days, but the one reason why I’m glad that she’s back at her own house now? So I can have my damn chair back. πŸ˜… She’s like me… for whatever reason, we both find the recliner to be the best place to sleep. So while she’s here she sleeps in the living room and I sleep in my bedroom… on my crappy mattress. πŸ˜’ It’s not always bad… but the odds say that you’re more likely to wake up feeling like shit than not – and every night that she’s been here recently I’ve woken up wishing that someone would just put me out of my misery. 😣 Thankfully, hot hot shower “until the hot runs out” makes a lot of it go away.

I think that steroid injection did work, and I think it is starting to wear off… so I’m just having to get used to regularly waking up in pain again. It’s almost enough to make me not want to do an injection again – because, believe it or not, I can get used to the pain… but not if some magic shot makes it go away for a few weeks before letting it get me again. πŸ˜ͺ I’m not meaning to bitch though… I just wanted to say that I’m happy that I’ll be able to sleep in my recliner again and at least give myself a shot at feeling decent in the morning.

The past few days have been really good for me though. I went and did my own grocery shopping without any problems, and then yesterday I went with Cassi when she did her shopping… and at neither time did I feel like running from the store or stabbing anyone in the face. 😈 I think it’s because she’s one of the few people that I can feel human around, which sometimes lets me do human things. Lemme tell you, as weird as this stuff probably sounds to “normal” folks, it’s even more confusing and frustrating to me, the one experiencing it all. 😐

I’m not gonna make any concrete plans based on how I’m feeling after the past few days, but I will say that I’m gonna try to keep rolling with the positive vibes and see where that takes me. 🀞🏻 I’ve got some things in mind, but I don’t wanna pressure myself by laying it all out. See, it is possible to really hurt and still feel somewhat okay. πŸ€” Some days are obviously worse than others, but I have to convince myself that feeling physically miserable doesn’t always mean that my entire day will be destroyed. I know it’s possible.

So, I Went Out

Yesterday was an all around recipe for failure. πŸ˜’ I was still dealing with the pharmacy issues andΒ already feeling like shit, but I had made a promise to a friend and I was determined to not be a disappointment again. 😞 For her birthday, a couple of months ago I bought Cassi two tickets to a concert she wanted to see at the Newport, and that show was last night. It was never my intention to go with her, as I just can’t do it right now (I didn’t even go see Skillet at Winter Jam) but I wanted her to be able to take a friend or her sister to share the fun with.

Unfortunately they didn’t have a ride to get to the show, so I went up there, picked them up, took them to the show, dropped ’em off, and then I had to find something to do until the show was over and I could pick them up again, take them home, and then make my way back home myself. πŸ€” I didn’t mind doing that at all… it was part of the gift. But I was already in bad shape before I left, and the sea of humans and traffic on campus only made things worse. 😬 I was gonna just find some thrift stores or something to kill time, but there were just too many people so I needed to go elsewhere.

That lead to one of the high points of my evening at least, after deciding to go over to Hollywood Casino. I hadn’t been there since maybe last summer, and I remembered that being in a casino often masks my pain… but not so much last night. 😐 It was fun, but not fun, if that makes sense. 😏 Too much time in the car, too much sitting in uncomfortable chairs… and it just kept getting worse. The one saving grace is that I kept losing and winning at a rate that had me only slightly down from when I walked in – and then right when I was leaving, I hit on a machine that Jim always says I should play. πŸ˜ƒπŸ€·πŸ»β€β™‚οΈ This makes the second time he’s picked a winner for me.

But anyway, by the time I got home around 11pm… omg… worst neck pain that I’ve had in months. πŸ˜“ I’m not yet going to assume that the steroid injection is wearing off, since there were other factors, but yeah… it took exhaustion to finally make me sleep, because there wasn’t a single position that I could turn to that would make it go away. That sort of pain that makes a person go, “Oh shit… I’m really screwed if it just stays like this.” But like I said, thankfully, today the pain was down probably 90% from yesterday.

I guess I should wrap this up. 😏 Waking up feeling somewhat okay today… it’s allowed me to sit and plan my way towards the weekend in a way that I might be functional and okay. Don’t get me wrong, I hate that have to do any of this, and I hate that I have these days where I know I should do absolutely nothing, before baby-stepping my way out of it… but despite how it makes me look or how it may affect others, I have to start figuring out how to not be physically miserable and emotionally fucked because of it. πŸ€·πŸ»β€β™‚οΈ

That’s Just The Way It Is

It looks like I can just count on one week out of every month being horrible thanks to the runaround I get regarding my medication. πŸ˜’ A full one-quarter of my current existence on this planet, already set aside for fuckery and feeling physically and mentally miserable. 😣 So, starting this month, I’m gonna have to start rationing – so that way when there are extended delays in getting stuff approved, I won’t be going completely without and feeling the affect of that accordingly.

I don’t even have the energy to get into it. πŸ˜” I’m just hoping that it doesn’t mean that I lost my court hearing weeks ago. πŸ€·πŸ»β€β™‚οΈ I still haven’t gotten any paperwork on it, but I’m guessing the magistrate is probably close to making a ruling if he hasn’t already. But yeah, when I’m already having a hard time functioning like a human, knowing that I’ll lose a week each month like this certainly doesn’t help matters.

But anyway… in an attempt to not think about that for a while tonight, I put my phone on airplane mode and set up a short time-lapse shot. I think the elapsed time was actually about two hours, but it plays out in a minute or so. I used an ISO of about 1200, an exposure of 1/3 of a second, with digital light trail enhancement of 3 seconds. πŸ€“ I’m actually fairly pleased with the result, although I’ve already thought of what adjustments I need to make next time so there’s less grain, brighter stars, and longer light trails.

So yeah… this is just another thing I have to adjust for, the same way that I need to adjust the amount of shit that I do when I’m feeling good – since I know that too much moving around will screw me up. 😐 Meh… it’s almost too hard to explain how complicated it actually is – the stuff that I can actually somewhat control – so when stuff that I can’t control gets added on top of it… yeah, things start to get bad bad. I’ll figure it out. Eventually. But hey, that video is kinda neat, no? πŸ™‚

(I might try to capture the movement of just the stars next time we have a new moon.)

Prior Authorization

It’s crazy to think that I’m going to be 45 years old tomorrow. 😐 It just doesn’t seem possible… that I’m… old. 😏 Thankfully, I very rarely feel my age… and even when I do, it’s usually because of my old work injury and the effects that I still feel each day because of it and the surgery. And as the fates would have it, right now it’s particularly bad – because I haven’t been able to get my medication refilled for three days now (due to mysterious insurance processing delays)Β and the withdrawal symptoms from Lyrica and Skelaxin are no joke. 😟

They aren’t even new prescriptions. I just need refills. Refills for meds that I’ve taken regularly for the better part of a decade. And while I won’t say that the two are related, it is curious to me that when I’ve got a court case pending and settlement talks ongoing… that’s when I’m suddenly forced to go “cold turkey” and suffer due to delays in processing the payment by the insurer. πŸ˜’ I’ll probably have to go in tomorrow and pay out of pocket (and hope for a refund eventually) in order to not feel like I’m dying. πŸ€¦πŸ»β€β™‚οΈ Trying to conceal my anger has been challenging. I just keep telling myself that it’ll get taken care of, because eventually it always does.

Bear with me… just a bit more complaining…

It’s just a helpless feeling to know that due to delays, clerical errors, product shortages, tactical fuckery, or whatever it is… to know that each time that my medication is due to be refilled, that it simply might not happen… and then while suffering from the understandable withdrawals, having to gather the motivation and energy to fight and figure out what to do to get those meds… ugh… it’s a fucking nightmare.

It doesn’t help that I’m slowly but consistently getting worse. Like I told my doctor, the pain and disability that I have right now… several years ago I would have been complaining loudly about it at each visit, but I’ve learned to live with it – that it’s just going to be there, and that’s that. But it shouldn’t be like that. 😠 So at my most recent appointment we decided that I should go in for another MRI to find out why I’m getting random pops and seizing of my neck when I’m less active now than I’ve ever been in my life. I can’t stop fighting to feel better, as frustrating as the workers comp process is. πŸ˜“

I should find out soon if they’ll allow me the test or if I’ll have to fight for that too…