Getting By

Heh… I don’t really visit my own site, so I had to chuckle when I clicked over and was reminded that the title of the last entry was “Tired Of This Shit” because I was like, “Yeah, that sounds about right.” 😏

Things have been rough this past week too, because why wouldn’t they be, eh? πŸ™„ Gah… I’m trying not to bitch even more than I already have been, but this week was loaded with appointments – so of course I had to start it all off by being sick. 🀒 You know, I’m not even gonna cover how this week was… I’d rather just be thankful that the week is over, and that I think I’m about back to 100%. πŸ€·πŸ»β€β™‚οΈ Or at least what passes for 100% for me these days.

Only appointment I had to cancel was the dentist, and that’s because it was the first appointment of the week – right when I was feeling my worst, and in the midst of a shitty 36 hours of not being able to sleep. Great way to start the week. I guess there wasn’t anything remarkable about any of the other appointments… if anything, they went pretty good… it’s just been a little exhausting being sick, not being able to sleep, but still getting up around dawn each day to make it to this place or that place.

Today wasn’t bad though. I knew I felt good enough to eat something, even though nothing sounded good, but then since we were out that way we decided to stop at Frisch’s Big Boy for lunch. πŸ™‚ Our eyes were both a little bigger than our stomachs, but at least that meant goodies to take home. Plus we had the nicest, most genuine waitress that I can remember having for a long time.

So now it’s a couple days off before another appointment Monday, and then the follow-up with the endocrinologist later in the week. πŸ‘¨πŸ»β€βš•οΈ Four tubes of blood for several different tests, information from the scan at the hospital a while back… this will be my first appointment since then and, believe me, good or bad, waiting for info like this isn’t easy. πŸ™Β That’s probably part of the reason that I’m having even more trouble sleeping than usual.

Advertisements

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Anxious

I’m not sure how I feel about the weekend falling right before New Year’s Eve. 😟 I think it’s actually going to work out better for me this way, since I’ve already got a January’s worth of medical appointments on my mind, but I can’t even really go about changing my insurance information or anything like that until after the first of the year when the new plan kicks in. 🀨 So I’ll have at least a couple of days to start planning who I need to contact and when, and I might even get a couple days after that since some places might be closed on Monday and/or Tuesday. I’ve just got a lot of upcoming shit… I wanna hit the ground running.

I think I’m gonna have Cassi down for the night tomorrow. She can’t stay on New Year’s Eve since she has to be at work early early, but it would still be nice for her to stay – since not only has it been a little while since she has, but also because it might also be a little while until the next chance – depending on how my month goes and how I’m feeling during any given stretch. πŸ˜”

I’ve also decided that I’m going to let her take my Wii and games back up home with her to give to Junior. I can’t remember the last time that I sat down and played any of my games, let alone any of the games on that system that’s almost a decade old now. I could sell it I guess, but I’d hardly get anything for the lot of it… might as well brighten up a kid’s day a bit, eh? πŸ™‚ I’ll probably wait until she’s here to start finding all the bits and bagging it up… with the way I’ve moved stuff about since I last played, it’s hard to say what’s where.

But like I’ve described regarding my friends before… sometimes it’s just nice to have the company, because not only does it provide time to chill and (hopefully) clear the mind of “the now” for a while – something that’s always needed – but it also helps to encourage a little more productivity, since we’re both essentially able to pat each other on the back for our respective jobs well done. 😏

I’m certainly not looking forward to 2019, so a couple more days of “nothing” and some company to distract is probably exactly what I need. So I guess I do know how I’m feeling about it.

Checking In

Haven’t been able to shake this funk.Β πŸ˜• Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now.Β πŸ˜”

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery.Β πŸ€• The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day.Β πŸ™πŸ»

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point.Β πŸ˜·πŸ’‰πŸ˜ It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this.Β πŸ˜” They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup.Β πŸ˜’ Next on the agenda, though, is my first full appointment with the new shrink on Monday.Β πŸ™„ I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.

Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got backΒ home I learned that Christina was gone. πŸ˜”

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

Meh…

Well, I guess this is Day One without my meds. I’ve made calls, stopped in like I planned, but still no approval. I guess I’ll have to start banking my pills a bit again, so I’ve got a few days worth of safety net for this dumb shit. But this is definitely not what I need right now.

Frustrating, how stuck in this BS system I feel, but I have to get my mind set for this week… getting the two injections and then going to the hospital for the iodine treatment. Not really planning to do anything today, but I’ll need to go shopping one more time tomorrow to get some more low iodine crap to get me through to Friday and then I need to have stuff around the house for after that when I’m not supposed to be around the humans.

Still have a few more calls that I’d like to take care of by tomorrow… insurance stuff, hospital bill stuff (still/again), and I should probably call the office of the shrink that I missed. I know there’s more, but I can’ t be bothered to worry about it today… just not feeling that great, still waiting for my body to notice it’s not getting the meds it’s used to, so I know it’s not going to be getting any better today.

Politicalamity

It was sorta nice doing absolutely nothing today, but then I also feel a little guilty when I do that as well. It’s a long story, but yeah, I’m kinda messed up. I do know that I need to go in town and grab some more low iodine food to get me through next Wednesday though. I ate my last two baked potatoes today (but not the skins) and that’s all that I’ve had all day. I just didn’t have the oomph to get dressed and drag my ass into a grocery store today.

All the political stuff that I usually enjoy watching and learning about… good grief, today was one of the biggest shit shows that I’ve ever seen when it comes to all of that. So much anger and hate being spewed at each other online, people mocking the “losers” who supported this or that candidate that didn’t win… I dunno, for whatever reason, people prefer to just be awful to each other than try to have any productive conversation.

To me, I’m sitting here thinking “Ahh, I’m glad the Dems were able to get enough votes to take the House, but it’s a shame that we actually lost seats in the Senate.” and that was about it. I wasn’t angry about losing seats in the Senate, I didn’t gloat about Dems taking the House, I didn’t whine to anyone about Rs doing well in the Senate… but even the bigger names of the GOP were shit stirring this morning. McConnell and Graham both talking about how the Dems better think twice before investigating the President. (Probably because their boy Nunes is no longer in charge of it, and swatting away things that could hurt Trump.)

But yeah, leaders within the GOP are preemptively accusing the Democrats of “Presidential Harassment” and Donald Trump himself has threatened to politically target anyone in the House that investigates him, even if it means shutting down the government – because, like he said, he’ll just blame the Democrats. How can you really give the average human a hard time about acting like a dick, when that’s all they see from the leaders in our own government?

I actually made a big rant on Facebook this morning… I’ll probably go ahead and copy paste it here as a separate entry that will auto-publish tomorrow morning before I wake up. It basically covers the idea of raising kids to be good, decent people… how it’s good in theory, and good for the people that make it work, but generally – the humans are shitty, and once they know there’s no blowback for not being good and decent, well, then what’s the point in making that extra effort?

Trump looked like a man afraid at his press conference today though. You could smell the fear and anxiety on him, and any time that anyone started to ask even the slightest of difficult questions – he’d interrupt them, call them names, call their employer names, question why they’d hire them, etc. Then a black woman asked him if he was worried that his “nationalist” viewpoint would embolden white nationalists… and before she could finish he went in on how racist her question was. I think he said it three different times. But he’s just one of those empty doofus people that thinks that because the question had a white component and a black person was asking about it – that he could just shout about “racism” and “disrespect” to deflect from answering the question. And it worked. Because that’s how things are these days. Assholes gonna asshole, and they’re gonna get away with it.