Predicted? Or Jinxed…

Stayed up late last night, not only trying to get some pics of the lightning, but also watching the delayed Southern 500 which didn’t finish until 2am. I had a feeling… wasn’t really sleepy even at that hour, my neck was feeling different, so I didn’t end up falling asleep for good until around 4a – and at that, it was with the idea of trying to “sleep carefully” so I didn’t wake up with my neck feeling even worse. πŸ˜’ It worked, but only because every time I would stir in my sleep, I’d wake up a little too much – making sure that I wasn’t being rough on my neck. Meh… so five hours of not-so-solid sleep… not in the greatest mood today.

And even using a “lightning capture” app to cheat a bit, I still wasn’t able to capture a single decent photo last night. If I didn’t have the ISO and exposure either too high or too low, resulting in images that were too dark or too blown out – the other problem was just the thickness and multiple layers of the clouds. πŸ˜‘ When the lightning wasn’t bright enough it was just obscured by the clouds, and when it was bright enough – it was like a strobe light going off in the middle of a huge ball of cotton. Just no definition.

So I think today I’ll do the bills, catch up on laundry, just general meh stuff around the house. Once the week actually starts tomorrow, that’s when I’ll have to start worrying about oil changes, glasses, haircuts, and all the other “out and dealing with people” stuff… so keeping to myself and just getting some minor chores done around here actually sounds like the most appealing way to spend my time today, believe it or not. πŸ€·πŸ»β€β™‚οΈπŸ˜•

I’m sure as my morning meds kick in I’ll start to feel better, along with mentally feeling better about getting some random shit done around here. πŸ™‚ I’m just never good when I first wake up, especially when I basically predicted last night that my neck would be an issue and that I’d be glad that today was still part of the 3-day weekend. πŸ™„ Just gonna tune the world out as much as possible, put on some music, and do my thing.

Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…

Gap

I know it’s been a good chunk of time since my last entry, but I’m not even gonna bother going back to catch up on what I’ve already written… because honestly not a whole hell of a lot has been different, so I don’t have that much to write about. We’ve had a couple decent snow storms, and a couple days where the temps were in the negativesΒ in the morning, so that’s managed to keep me at home just as much as my normal anxiety issues usually do. 😏

One out of the ordinary thing… I did take a trip to ‘Da Boat with Bri for two nights last week. 😊 We’ve talked about it for months, and have had it in the planning stages for the past several weeks – so we were relieved to have pulled it off, considering that both of us have any number of things that could have popped up to wreck the plan. 😳 Last time she was down there with me was years ago when Dezzy also came along, and they couldn’t even get onto the boat back then.

So of course that’s why we were really looking forward to this trip, since she could see and do everything along with me this time. We took a bunch of outfits and props and shit, just in case we decided to do baby belly photos, but it was too easy to just be lazy in the room or going up to the boat to have fun… so very few pics were actually taken, and that was absolutely fine with us. πŸ˜‹ Our luck would come and go, but it was good enough at times that I could actively see the gambling bug taking hold of her brain right before my very eyes. πŸ˜… Heh… it wasn’t really like that, but she did have a good time and played enough to where she developed favorite machines and everything.

This past week or so has been nice… not having any appointments, not forcing myself to worry about any responsibility stuff. 😐 Heh… that sounds bad. I just mean that I let myself take a break from all of the adulting for a while, although I’m picking back up where I left off here in a bit. (Catching up on the bills that have been stacking up in the mean time) Oh… I do have another “since our last episode” story that I almost forgot about. It’ll be coming up a bit later, if I manage to get through all the bills this evening…

But this trip… I dunno… the more that I think about my medical stuff, the more that I want to do stuff with my friends while I still can. πŸ€’ I have no reason to think that I won’t be able to do things for years to come – but just in case, ya know? Even Dad, a while back, reiterated that point to me a few times… that I need to stop worrying so much, and sometimes just do the fun thing while not worrying about anything else. πŸ€·πŸ»β€β™‚οΈ

Bad, But Not Bad Bad

Well, “Doctor Visit #1” is out of the way. Going in, I definitely didn’t know what to expect. I know what I feelΒ (and hear) inside my neck, but I wasn’t sure if the MRI was going to accurately reflect that. πŸ˜• And… it did but it didn’t. πŸ€” Comparing it to an MRI from years ago, he could see more damage directly above the fusion area – but not so much that it requires more surgery. So I guess I got my wish… not that I want to hurt, but that I wanted it to show why I hurt, because I do. (Oh, and I actually have C5, C6, and C7 fused. I thought, for some reason, that it was only C5 and C6.)

It gets tricky now though, because my WC claim only allows for very specific parts of my body to be included. And even though any doctor that you’d ask would know that fused areas often end up with increased damage either above or below the fusion point, because that area isn’t specifically allowed by my claimΒ it may be a fight to get anything done in that regard. 😠 So, even though there’s a suggested course of action, if WC won’t concede that the damage is related to an area within my claim, there’s probably gonna be a delay. πŸ™„ Again.

First of all, he said there doesn’t appear to be much stenosis… a word that I’ve learned to fear from my mom’s own experience with it. 😳 But after spending a little more time than usual trying to describe the where/when/why/how of my current pain, he suggested that we try a steroid injection directly into my spinal cord area. 😯 I guess he’d inject some contrast dye first, and then while under some sort of scan – he would carefully puncture the right areas and inject the steroid, while being careful not to puncture the wrong areas. πŸ‘¨πŸ»β€βš•οΈπŸ’‰ A bit unnerving, yes, but I have to do something.

Like I told him… I can’t even explain how much this injury and surgery have stolen from me over the past decade. πŸ˜” Who I am now is not who I was back then, and I don’t hesitate to put a lot of the blame on this disability. But to have my life changed so greatly, yet still be experiencing this kind of pain on a daily basis… frustration doesn’t begin to explain it. πŸ˜‘ But anyway, he’s doing what he can, and he doesn’t like the fight against WC any more than I do, but it’s just how things have to be done. So we’ll see over the next week if it’s allowed or if I’ll have to figure it out some other way.