Ray of Sunshine

No updates this past week because there hasn’t really been that much worth talking about. I did go to my first appointment with the WC doctor at the new facilities. About a month ago they moved to the brand new FMC-connected health care center / emergency room building, from the older medical center directly next door. It’s quite the upgrade. Big open waiting room areas with tall ceilings and tall windows, many more rooms to see patients, and even a few new doctors on the payroll.

But, especially right now, anything revolving around my workers comp case kinda has me anxious – so I did the typical thing the night before, where I couldn’t fall asleep at a reasonable hour and then I also woke up way too early. πŸ˜’ The appointment went fine… they always do… but it also involved going over some things about the rebuttal report that he’s going to be writing for the upcoming IC hearing – and to say that I’m tired of thinking about, talking about, and working on that topic… that would be an understatement.

After not getting enough sleep that night, it managed to shift my schedule to where I’m falling asleep around 8p each night, and then waking up around 3a… while also getting interrupted throughout the night by shitty, stress-themed dreams. (Of which I can’t even usually remember the details.)Β πŸ˜• I’m hoping I can shake things up this weekend and get out of thatΒ rut. Several people I know haven’t been feeling good, a couple friends got some crappy news that they didn’t need, my knee and shoulder are still meh… it’s just been one of those weeks for a bunch of us. 😟 Crossing fingers that next week will bring some positive change.

So, yeah… πŸ€·πŸ»β€β™‚οΈ that’s about it. I mean, there’s been positive things this past week too… got a new mailbox (that I’ve yet to try and install), the little ring of grass around the light post is actually growing, I got the trash cleaned out of my car, completed some random light chores around the house, etc. But yeah, like I said, not stuff that’s really worth blogging about. (I know… when have I ever let that stop me… heh) 😏

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Some Today, Some Tomorrow

Woke up to my neck feeling all janky today… either from sleeping on it wrong, or just from the building stress of the last few days. But I still dragged my ass out of bed with intention today, determined to get some of the stuff on my mental to-do list done. It wasn’t until I was getting ready to leave the house that I realized it was 92 effing degrees outside today. The heat still takes a little more toll on me than it used to, and along with the neck / headache shit – I ended up scaling back my goals just a bit.

First stop was gassing up the Fusion and topping off the air in the tires, then to the bank, then to the post office – to mail out that report for my attorneys. I wish I could snap my fingers and it would just be there, but I’ll have to be okay with them getting it tomorrow and then finally actually looking at it at the start of next week. I’m gonna give Jim a call though and leave him a message, letting him know that it’s coming.

And then since my car has gone from “change oil soon” to “oil change required”, I figured I should go ahead and get that done while I was out today. It was like I suspected though… and why I like these new guys that I go to for service… he said the synthetic blend that I got last time could have actually lasted me many more miles, and the car was only crying because I forgot to inform it that it got synthetic this last time, and didn’t increase the mileage interval before it starts squawking at me. But yeah, for an oil change place to say 7,500 miles on synthetic is cake, and even 10,000 wouldn’t be that bad… that shows some honesty that you wouldn’t always expect.

But by the time the oil change was finished, the base of my skull was thumping and I was feeling pretty meh due to hanging around in the heat as I waited, so I decided that was enough “on the go” chores for the day. Hoping I’ll bounce back overnight tonight, so I can finally go get my hair cut and schedule an eye appointment tomorrow.

Ugh… I hate that the workers comp crap is still in the back of my mind though. Today is a good example of something that would be used against me. “Look! He admits to working on his car!” (Because they’d count putting air into my tires as work.) And if I didn’t specifically state that I took my car somewhere for an oil change, they’d probably claim that I didΒ that myself as well. And of course, regardless of whether I mention any levels of pain or not, there’s this strange “Robert admits to performing multiple chores, including multiple stops at various locations throughout his day.” kind of stuff that’s obviously intended to imply something…

I guess I just thought that I was past the point of having to justify doing things that I simply have to do, or pointing out every time that something causes me difficulty or pain each time I do it. It hurts to do certain things, such as folding laundry, standing and doing dishes, etc… but of course I still have to do those things. I’m not sure how pointing out that I’m still managing to get by, despite my disability and pain, somehow makes me the bad guy. Meh… but anyway… I’m okay with what I was able to accomplish today.

EDIT: After I finished this entry, I remembered something else that annoyed me enough to come back to add this. Weeks ago I learned that Skillet was having a concert at the end of September in Columbus. However, I’m not going to that concert… a concert by one of my most favorite bands… because it’s a general admission show, and it would simply hurt too much to stand and be bumped around for that hour and a half. I’ve fought with myself, trying to make myself go, but I chose not to because I don’t want to hurt. I think I even made an entry where I wondered about “disabled seating” for folks like me… but in the end, despite it being a show I’d desperately love to see, I’m not going. My life is a constant balancing act because of my disability and pain… sometimes I have to do things that hurt (like chores) that I don’t want to do, but I have to. Sometimes I choose to do something fun, despite knowing that fun thing will likely cause me pain… and I think that’s okay too. But then there are examples like this – where I really wanna do something, but I’m not willing to pay the pain-equivalent of “the price of admission” to do it, because I’m that concerned with avoiding extra pain. Yet the legitimacy of my disability and pain is still being questioned, year after year after year…Β  fml.

See, I’ll Still Ramble…

I had a good day out of the house yesterday. Well, afternoon anyway… did some “chore” running that I had to do, stopped off at a couple thrift stores, and then went out to visit with Dad for an hour or so before heading back home. πŸ™‚ Did quite a bit, relative to the same time several weeks ago, and it didn’t take too much out of me… but I did fall asleep way too damn early yesterday. πŸ™„πŸ˜ It wasn’t that “drained” type of sleep… I just went back to the bedroom early, figuring I’d watch a couple movies before I sacked out, but I ended up actually falling asleep around 7pm. 😴

Woke back up at midnight, watched the 2nd and 3rd Matrix movies (since I watched the first one again a couple days ago), then fell asleep near the end of the last one and didn’t wake up until around 10am this morning. πŸ€·πŸ»β€β™‚οΈ So it’s 11pm now, I’m in bed, and I’m tired – but not sleepy – so I really have no idea when I’m gonna fall asleep or when I’ll wake up. πŸ€ͺ Luckily the only thing on my agenda tomorrow is going out to see Bri at some point. She’s one of my friends that I didn’t want to see me in as bad of condition as I was for those several weeks, especially considering that she lost her mom to cancer last year. 😟

Two totally different kinds, so any symptoms shouldn’t be compared at all – but I just know that if people saw me during the really bad week or two, they could definitely get the wrong idea about how good or bad I was doing. 😳 But anyway, I’m feeling “better enough” now that I don’t think I come off as “concerning” anymore… at least no more than usual. 😏 So I’m 99% sure I’ll still end up seeing her tomorrow, it’ll probably just be later in the day than I was thinking when I talked to her earlier. She’s great though… and a little frustrated with me at the moment… because like she repeatedly tells me – she’s been through the worst of the worst with her mom, so she doesn’t want me to feel like I have to hide anything from her for her sake. πŸ˜ŠπŸ’•

But my little thrifting trip… it was productive as well. I got a couple shirts, picked up some cheap stereo speakers for Cassi’s receiver that she got, and then found this strange, lone drinking glass with the silhouette of just a woman’s black hair and old-school glasses. 🧐😯 It immediately reminded me of Mom… from a few of her photos when she was really young… and when I showed it to Dad, unprompted, he immediately saw the same thing that I did. 😊 So that was kinda neat, and such a random thing for me to have spotted on a shelf where I normally wouldn’t have even been looking. I’ll have to take a better photo of that glass and then find one or two of the pictures of Mom that it resembles. πŸ™‚

Even more random, Genesee was heading back home from a trip she had taken with her family over the long weekend – and at the same time that I spotted that glass, she sent me a photo of an exit sign that they had just passed under, showing that they were only a couple of miles from the Atlantic City Expressway. 😊🎰 So, yeah… even though I think about her every day, it seems like Mom wanted to make sureΒ that she definitely got our attention that day. πŸ™‚Β And it worked…

It’ll Be Fine

I’ve developed a bad habit of letting my mail sit and gather dust for a week or two before getting to it, but sometimes that procrastination yields interesting results. For example, in the current batch I got two bills from the hospital for relatively small amounts… but I also got two checks from the hospital as well, which total about five times more than what the bills are asking for. πŸ€¨πŸ€” Part of me wants to say nothing and mark it up as a win, but the twitchy side of me insists that I go in and talk to someone in the billing office and get my account in order before the actual expensive things start up again here soon. πŸ˜’

Toni actually messaged me a few hours ago (before I got into my mail) to see if I wanted to go with her when she cuts Dad’s hair tomorrow. I told her I’d have to sleep on it, since every day is basically a crap shoot lately – but between the hospital mail and some other mail that I got, I’m hoping it’s a sign that I’ll feel good enough to at least go see Dad, and then hopefully hit the hospital on the way home. Didn’t start feeling extra shitty until half the day was done today, so hopefully tomorrow can be the same. πŸ€·πŸ»β€β™‚οΈ I just hate feeling so off of my game… 😟 and worry that being around me could be mostly depressing.

And yeah, I know I instantly jinx myself whenever I “make plans” for something, but both of those things are things that I want and need to do, so I’m gonna do what I can to make it happen. Now, when it comes to my car crying about an oil change, or that one of my tires is low on air… (and how rude is it that it knows which tire, but won’t specifically tell me?) 🀨 yeah, that stuff can definitely wait. No pushing of the luck tomorrow. 😠 In fact, no pushing of the luck tonight… I’m not even gonna waste any energy cleaning up all the sorted mail and trash and whatever. Time to hit the recliner for some Avengers: Endgame and hopefully sleep soon after.

Checking Off Boxes

Typical “workers comp, beginning of the month, get my scripts filled” day today. Three different calls to the pharmacy, issues with my information in the computer, problems with certain ones not being approved… same bullshit as usual, except due to the incorrect information in their system I even had to stop in myself, with receipts and printouts and crap from last month. The folks that work there are great. It’s never the people there that I have a problem with… and after my visit we think everything is now updated, correct, and in process of being authorized – so maybe sometime today I’ll actually be able to pick them up.

I had to be out today anyway, so stopping in to get all this stuff sorted out wasn’t a big deal. I mean, I actually feel kinda bad for them – with how much of a pain in the ass “my case” is for them each month. It makes me wonder if any pharmacies have ever decided that certain customers’ situations were just too much work, too many calls, and too big of a PITA – and just told them to take their business elsewhere. ‘Cuz I can see how they could feel that way about me, if they weren’t such understanding and helpful folks.

But at my other stops, along with having several vials of blood drawn, we’ve started getting a lot more things set in stone. I’ve now got dates (if not exact times, yet) for the next blood draw, the administration of the radiation dose, how long I’ll need to stay away from people (which included rearranging another unrelated doctor appointment), when the full scan at FMC will be, and then the followup with my main thyroid doctor after all of the results are back and interpreted.

It’s surreal… how this is such a “big deal mind fuck” thing for me as I’m going through it, yet I’m just one of many. There are enough people needing this kind of treatment that once a week, every week, it’s radioactive “dosing day” for thyroid patients at FMC. But for whatever reason, even as you’re out in town, seeing other people doing whatever… it’s easy to feel like you’re the only person going through this shit, while actually we probably pass by people each day who are going through the same thing or worse. Working in nuclear medicine, giving the doses… I can see how that job could start feeling pretty heavy after a short while.

Woozy & Wobbly

Got my few hours of sleep, spent another hour just trying to get up and get moving so I could head in town… but then I stepped outside, and I don’t know if it was the heat or lack of sleep or what, but I instantly felt woozy and a little dizzy. 🀒 So despite my aversion to making phone calls, I gritted my teefs and phoned up the doctor’s office rather than driving all the way in there, not feeling the greatest.

Left a message a while ago, letting them know that I needed to get the next scan scheduled, to also reschedule my followup appointment with them after that, and also that I’d need to know when / and for how long I’ll need to stop taking my thyroid meds – and if I’ll need to make the same temporary but drastic changes to my diet like I did last time. πŸ˜•

A few hours later… still no call back. πŸ™‚πŸ€·πŸ»β€β™‚οΈ And that actually makes me feelΒ better. I guess it makes me feel like my condition isn’t as “Shit, we need to hurry up… call him back right away.” as I sometimes think it is. 😏 So yeah, just waiting for word either today or Monday, and of course once I get all the details I’ll be sharing most of them here. Hoping that I can make something good of the weekend in the mean time.

Five? Damn. Okay…

My apologies to anyone that’s had to deal with me, tried to deal with me, or wanted to deal with me over the past few days but couldn’t… I was kinda going through a thing. 😟 Pretty sure I’m still going through a thing – but tonight I’m feeling slightly better, or at least good enough to bang out a quick blog entry.

My first appointment this morning… when I made the appointment, I was sure feeling a whole lot better than the past few days – but I had already cancelled it once a few months ago, so I had to just suck it up and get it done. 🀨 Getting me out of the house to blow some stink off and interact with the humans was just a beneficial side effect. But yeah, this morning was reserved for my dentist. 😳 This would be “step three” of a four step plan that we came up with many months ago.

So what type of fun stuff was included in step three? Four injections of novacaine to numb the entire top half of my mouf, two hours in the chair, and five of my teefs drilled and filled. πŸ‘©πŸ»β€βš•οΈπŸ˜¬ Yeah, not the ideal appointment when you’re already anxious about shit. The first four were what people would consider “normal cavities” and were filled with the typical nasty tasting filling material. 🀒 The fifth one though, it was actually on the front of the toof at the gum line. 🦷 But just like the one last year, they were able to match the color and smooth it out in a way where you’d never even know that it was there. 😁

I’ve explained it like this before, but I look at these dentist appointments the same way as I’d look at taking an old car into the shop for maintenance. πŸ€” It’s less about trying to get things looking “beautiful” or “perfect” again, and more about “Hey, let’s just try to keep this thing running as long as possible, okay?” πŸ€·πŸ»β€β™‚οΈπŸ˜ But the extra care that they show doesn’t go unnoticed. There really is an “art” to much of what they do, and you can tell that they’re justifiably proud of that.