New Rule

I have to stop letting how I feel when I wake up each day be an indicator of how I’m going to feel for the rest of the day. 🀨 Especially since I usually have the luxury of waiting it out… taking my morning meds, giving it a little time, and eventually feeling at least somewhat better. And yeah, I know that this is such a “Yeah, no shit.” thing for normal people, so of course my brain just instinctively resists the idea. πŸ™„

I’m gonna be so bad at getting older and more broken if I don’t keep trying to recognize my flawed ways of thinking and trying to change them. πŸ‘¨πŸ»β€πŸ¦³ The other thing that I have to work on is learning to accept that some of the physical things just aren’t going to get better. What’s that Garth Brooks song? Much Too Young (To Feel This Damn Old) 😏 Heh… I really hate that my blog is like 90% “bitching about things” these days though… like today, it was only four hours of sleep, waking up because I could feel my pulse in my friggin’ jaw, and then (when I got up to go to the bathroom)Β discovering that my back is trying to re-fuck itself.

I swear, there’s an invisible hat in my house somewhere, filled with bits of paper listing all of my various potential ailments or irritants for the day, and some unseen force just grabs three or four of them at random and there ya go. πŸ€•πŸ€’πŸ˜–πŸ˜·πŸ˜ŸπŸ€’πŸ˜“β™Ώ The unending uncertainty of each day is such shit… so waking up depressed or mad is understandable, but I gotta stop letting it stick… especially if that’s the only thing that seems to be triggering it on that particular day.

But it’s been a few hours now since I woke up, my meds are kicking in, things are sucking a bit less, but I’m still gonna take it easy today. I’ve got another appointment tomorrow, plus I need to build up some positive juju because I wanna get back in to see Dad again next week, Bri is gonna be induced and have her baby next week as well – starting at 6 friggin’ AM, then on Saturday Jim’s going to Buckeye Lake to meet up with his dad, brother, and Adam at Pizza Cottage and I’ve also been invited. I’ve missed the last couple of hang-outs with them, so I really wanna try to make it this time. πŸ˜”πŸ€žπŸ»

And that leads me back to the new rule. Well, let’s call it a guideline, since I know that I’m going to fail at it at least as often as I succeed…. but without being able to “shake off” how I feel when I wake up, none of that fun stuff on my potential to-do list will be possible. History has proven that more times than I’d like to admit. πŸ˜’ Trying to adjust my attitude each day will let me hopefully be less flakey to my friends and family, and being less flakey to my friends and family in itself will help keep my mood going in the right direction. I just have to hope that my meds decide to start pulling their weight again soon too.

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Five? Damn. Okay…

My apologies to anyone that’s had to deal with me, tried to deal with me, or wanted to deal with me over the past few days but couldn’t… I was kinda going through a thing. 😟 Pretty sure I’m still going through a thing – but tonight I’m feeling slightly better, or at least good enough to bang out a quick blog entry.

My first appointment this morning… when I made the appointment, I was sure feeling a whole lot better than the past few days – but I had already cancelled it once a few months ago, so I had to just suck it up and get it done. 🀨 Getting me out of the house to blow some stink off and interact with the humans was just a beneficial side effect. But yeah, this morning was reserved for my dentist. 😳 This would be “step three” of a four step plan that we came up with many months ago.

So what type of fun stuff was included in step three? Four injections of novacaine to numb the entire top half of my mouf, two hours in the chair, and five of my teefs drilled and filled. πŸ‘©πŸ»β€βš•οΈπŸ˜¬ Yeah, not the ideal appointment when you’re already anxious about shit. The first four were what people would consider “normal cavities” and were filled with the typical nasty tasting filling material. 🀒 The fifth one though, it was actually on the front of the toof at the gum line. 🦷 But just like the one last year, they were able to match the color and smooth it out in a way where you’d never even know that it was there. 😁

I’ve explained it like this before, but I look at these dentist appointments the same way as I’d look at taking an old car into the shop for maintenance. πŸ€” It’s less about trying to get things looking “beautiful” or “perfect” again, and more about “Hey, let’s just try to keep this thing running as long as possible, okay?” πŸ€·πŸ»β€β™‚οΈπŸ˜ But the extra care that they show doesn’t go unnoticed. There really is an “art” to much of what they do, and you can tell that they’re justifiably proud of that.

Doing The Things

Haven’t had the energy to spend much time online the past week or so… gettin’ shit done, as required. Saw my primary care provider, saw specialist for my back, got labs done for my PCP, got scans done for the back specialist, then did my normal workers comp deal yesterday. Also went to the dentist’s office and scheduled what is technically the third part of a four part plan that started like a year ago… but with the cancer scare, Mom stuff, etc… it kinda got put on the back burner. But that appointment is now made as well.

Next couple of things I’m hoping to do today or tomorrow is making an eye appointment for some new glasses, taking some pics of my semi-broken HVAC unit outside and making a couple calls about getting the AC compressor replaced, and then I need to figure out what I want to have done outside regarding all the growing shit – and touch base with my lawn guy so we can get this spring and summer’s plan in action soon,

Bri is also super duper pregnant… I think she’s approaching 36 weeks here in a few days… so I’ll probably be taking her to one of her OB appointments, plus she’s been on the ball as well and will soon be moving into her first apartment – so I’m making available some different furniture from here in the house if she needs some stuff to fill her new place until she’s able or decides to get what she really wants. So yeah, it’s just been mostly mentally busy – and when my brain isn’t doing that type of processing, it’s preferred to have been doing none.

Had to be in Columbus the other day and caught my first crash on the dashcam. I’m lucky that I wasn’t just one car in front of where I was, because whatever happened to this d00d – he ended up slamming into an old lady and nearly pushing her car into the intersection. All from a dead stop, while appearing to have his foot on the brake the entire time. I saw them get out and they were both fine, and there’s no ambiguity when it comes to fault, so I didn’t stick around… plus I had somewhere I needed to be anyway.

Sometime today I’ve also gotta get into my e-mail and messages… Aunt Sharon and Dad are probably both waiting to hear from me about some things, and I’m still working on getting my brain to get used to using e-mail again.

The Opposite Of Reassuring

This is the first time I’ve experienced this, probably because I was rarely sick when I was younger, so I don’t think I ever had more than one doctor that I would have regular appointments with… but regarding some of the things with my current condition, I’m getting conflicting diagnosis/treatment advice from two of my doctors. πŸ€”πŸ˜ In more ways than this I’m still a kid, so when I go to a doctor I listen to what they say and take their word as gospel… assuming that they truly know what they’re talking about, and are offering me what is definitely the best diagnosis and treatment plan. πŸ€·πŸ»β€β™‚οΈπŸ‘¨πŸ»β€βš•οΈ But I guess as with almost anything, people often end up with differing opinions. Sometimes differing quite a bit. πŸ˜•

Things have been less than ideal with me for a couple of weeks now, and this week I went back in for a couple of different appointments to discuss it. I tend not to bitch about it unless it’s really bad, but these past few days… on Wednesday I woke up early, took a short nap in the afternoon, and after waking up I wasn’t able to go back to sleep for 30 fucking hours. 😳 Doctor appointment number one wasn’t much fun, going in at the 24 hour point… I mean, I wasn’t even sure I was gonna be able to make it there and back… but at least it wasn’t like when you take your car to the shop so they can fix a rattle, but the rattle doesn’t happen. πŸ˜’ So at least Doc got to see when it can be really bad, and in a way I appreciate when that happens.

I dunno… I’m being kind of vague because I don’t really like talking about it in a lot of ways, so back to the point – I’ve got two doctors who essentially completely disagree with what the other is saying and doing, and I’m not sure exactly what to do with that. 😟 First reaction is to trust and believe that doctor who isn’t saying the scary things, but that may be the doctor who isn’t holding anything back. πŸ€·πŸ»β€β™‚οΈ Then I try to think about “what’s in it” for each of them, and even that doesn’t really help.

But in the next couple of days I’ll have to decide who I want to roll with, and that will decide how potentially fucked up my next few months could end up being. 😐 Gah… I know… vague. I don’t want people to worry.

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Grumble

I had Bri around for a few days. I hadn’t been able to spend much time with her since Christina passed, partly due to schedules, partly due to my radiation stuff still going on… but yeah, the last few days have been nice with her around. I don’t need to entertain her, there was plenty of Netflix, Plex, and YouTube, and we were both probably more productive with whatever stuff we needed to work on than had we not been each other’s company. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Had to wake up before the sun rose this morning, to make sure I’d make it to my 8-o-fucking-clock doctor appointment, and I’m still in a shit mood about it. 😠 I’ve never been excited about any type of mental health care… heh… and I suppose it shows sometimes, but yeah, this was my first real session with a shrink shrink, and getting medications that he thinks will help me be less twitchy. Meh… I’m trying to not even think about it much right now and I’m gonna just see how it goes.

I can’t be bothered with all that stuff right now though because, yet again, I’m doing the monthly fight to get my workers comp medications. 🀬 You know, the same medication that I’m apparently being accused of not getting filled and not picking up like I should. Is that what they’re trying to use against me? That they force me to completely run out and sometimes have to wait days before the next prescription is finally approved? Are they holding that “delay” against me? Yeah, I don’t feel like talking about that right now. πŸ˜’

I swear though, next month’s calendar is already peppered with doctor and other appointments. Half of them are actually still related to the thyroid cancer treatment, but now there’s PCP appt, workers comp doc appt, thyroid stuff, talky shrink, pill shrink… bleh… it’s making me tired just looking at it. Gonna try to continue to make some changes at my next WC appointment as well, which might not go easily… I’m just tired of going to a pain management place while still being in pain each day. πŸ˜– Something obviously isn’t working quite right and I deserve to have it changed in order to improve my treatment and my condition.

Yeah… already done with today, man…

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)