Birthday Eve

The stars aligned yesterday and I woke up feeling good and was able to go in to visit with Mom and Dad like I had planned a few days earlier. 🙂 Everyone knows that when it comes to planning things, my brain often won’t cooperate when the day actually comes – so that’s why it was nice to wake up yesterday feeling decent and ready to go. It’s actually Dad’s birthday today, but rather than showing up with decorations and hats and horns I just came with several bags full of goodies and junk food – and some Sonic double burgers that seemed especially good that day. 🤤🍔🍟

Mom was extra talkative, and seemed to be in a pretty good mood, although she did say that she was tired of the CD that always plays in her radio – so I told her that I’d bring her some Elton John music next time I visited. 🤩🎹 I stayed a couple of hours, and was considering doing a couple of other things on my way home, but when I got in my car my brain decided that it was just time to go straight home.

I think I overdid it with my arm throughout the day somehow, because by the time I was supposed to be going to sleep I had a pulsing headache at the base of my skull from the muscles being all meh. 😣 That kept me awake a couple hours longer than planned, so I decided last night that I’d put today’s planned activities on delay… and now that half the day is gone, I’ve actually just pushed everything off until tomorrow. 🙄⏰ Nothing is urgent, other than dealing with the BS surrounding my medication approvals, and I actually dealt with that on my way in to see Dad yesterday… so today, for the most part, will be a nothing day so I can have a little more recovery time for my oush and brain.

I’ve gotta keep reminding myself that the schedule that I sometimes feel compelled to keep (for my “responsibility/adulting” stuff) … it’s just an arbitrary timeline that I’ve pulled out of my ass. 😳😁 So it’s not so much that I really have to do this or that by a certain time or day, but it’s more that I just trick myself into thinking that those things are mandatory and unchangeable… which often isn’t the case. I gotta quit stressing myself out with dumb shit like that.

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Same Ol’ Song and Dance

Ended up staying awake for 28 hours straight, then slept from 8a to 3p today… so now I’m likely to be up all night, which doesn’t really help with my plans for tomorrow in the early afternoon. I’ll keep my fingers crossed regarding that, but man… so glad to finally have my medication in hand. It took some oomph to get up and go in town to get it, but yeah… this month was ridiculous when it came to getting these filled. They weren’t even new scripts, just refills.

If I didn’t know how much I’d hurt, and how negatively my ability would be affected, I’d try to wean myself off of this shit. Not only do I have to go through this routine nearly every month, but in the days leading up to when I call for my refills – I’m already starting to worry what type of clusterfuck will happen this time, that will end up with me going through temporary withdrawals. So basically 1/3 of every month is either spent worrying about my refills, waiting for my refills, or suffering withdrawals from being delayed from getting my refills.

Gah… so tired of it. But yeah, I think frustration built up over the past couple of days, which is why I ended up barfing out those two super-long recent blog entries about all the stuff going on down in Florida. I needed something to take my mind off of how I was feeling, and that seemed to do the trick. But it looks like I’m going to have to set back even more of my meds for the end of the month from here on out. Shouldn’t have to short myself each day just to make sure I don’t run out when I get screwed over, but yeah, I guess that’s what I have to do.

Believe it or not, even though my court case was back in the middle of February, they still haven’t made a determination. That might account for some of the delay, if they were waiting and hoping that I’d lose my right to those meds, but who knows. Whenever I do get a chance to talk to my lawyers next though, I do intend to point out what’s being done each month to see if there’s something that they can do – or even if it could be seen as some sort of spiteful or unjust action that could carry some sort of penalties for them.

Reality tells me there’s not shit they can do, that I can be yanked around basically as much as they wanna yank me around, and that it’s up to me to figure out how to protect myself towards the end of each month. Ahh, what a feeling.