The Opposite Of Reassuring

This is the first time I’ve experienced this, probably because I was rarely sick when I was younger, so I don’t think I ever had more than one doctor that I would have regular appointments with… but regarding some of the things with my current condition, I’m getting conflicting diagnosis/treatment advice from two of my doctors. πŸ€”πŸ˜ In more ways than this I’m still a kid, so when I go to a doctor I listen to what they say and take their word as gospel… assuming that they truly know what they’re talking about, and are offering me what is definitely the best diagnosis and treatment plan. πŸ€·πŸ»β€β™‚οΈπŸ‘¨πŸ»β€βš•οΈ But I guess as with almost anything, people often end up with differing opinions. Sometimes differing quite a bit. πŸ˜•

Things have been less than ideal with me for a couple of weeks now, and this week I went back in for a couple of different appointments to discuss it. I tend not to bitch about it unless it’s really bad, but these past few days… on Wednesday I woke up early, took a short nap in the afternoon, and after waking up I wasn’t able to go back to sleep for 30 fucking hours. 😳 Doctor appointment number one wasn’t much fun, going in at the 24 hour point… I mean, I wasn’t even sure I was gonna be able to make it there and back… but at least it wasn’t like when you take your car to the shop so they can fix a rattle, but the rattle doesn’t happen. πŸ˜’ So at least Doc got to see when it can be really bad, and in a way I appreciate when that happens.

I dunno… I’m being kind of vague because I don’t really like talking about it in a lot of ways, so back to the point – I’ve got two doctors who essentially completely disagree with what the other is saying and doing, and I’m not sure exactly what to do with that. 😟 First reaction is to trust and believe that doctor who isn’t saying the scary things, but that may be the doctor who isn’t holding anything back. πŸ€·πŸ»β€β™‚οΈ Then I try to think about “what’s in it” for each of them, and even that doesn’t really help.

But in the next couple of days I’ll have to decide who I want to roll with, and that will decide how potentially fucked up my next few months could end up being. 😐 Gah… I know… vague. I don’t want people to worry.

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Buncha Nothin’

While I’m technically ready to start doing all of the adulting that I’ve got planned for the first couple of weeks of the new year, I am glad that today was essentially a “paused” day… where even if I wanted to, nothing significant could really be accomplished. πŸ€·πŸ»β€β™‚οΈπŸ™‚ I didn’t go out last night, nor did I have any company over, but I still didn’t fall asleep until around 3am. And of course I woke up too damn early, so my brain is thankful that the only real work that I’ll be doing today will be the stuff that I can address by mail. Which leaves all of the phone calls for tomorrow. 😳 Yay. 😟

Last night wasn’t totally lonely though. Brianna also stayed at home, although she was also babysitting for her sisters, so we ended up keeping each other company via messages up until the ball dropped at midnight and then a while after. β˜ΊπŸŽ‰ I think my adulting may be rubbing off on her, because a lot of what we talked about was both of our growing lists of “Shit We Gotta Do” in the next week or two. 😏 I mean, nobody is really a fan of responsibility, but I think it made her feel good (the same way it does me) to spend some of her evening coming up with a game plan of her own. πŸ“’πŸ–ŠπŸ‘§πŸ»

I wish that I didn’t have to take Cassi back home earlier last night, but she did end up staying later than we originally planned. It was a rough, dark, rainy, stressful drive up to Columbus in that horrible weather – with 80% of the traffic still breaking the speed limit, and the other 20% either scared, creeping slowly, or completely stopped along side of the highway as they waited for the rain to stop. β˜πŸŒ§πŸ˜―πŸ˜£πŸ˜§πŸ™ˆβ›ˆπŸŒ§ While she was here though, we started watching a new Korean rom/com/dram called Strong Girl Bong-soon. It’s strange how easily I take to Korean songs and shows now that I’ve been doing it for a bit. πŸ˜πŸ‡°πŸ‡·

But yeah… this is kind of a rambling post since it’s been a leisurely kind of day for the most part. All of my upcoming doctor appointments are still heavy in my mind though… I’m just trying to not let them bother me today. 😟 I will say this though. I haven’t been feeling great for the past couple of weeks. 😐 Not awful, but not how I normally feel either. So while I’m not gonna try to predict anything when it comes to my upcoming tests, I think I’m subconsciously getting myself ready for some potentially bad news. πŸ€·πŸ»β€β™‚οΈ

It doesn’t help that I’ve been having a lot of anxiety filled dreams lately as well. 😳 Not exactly nightmares, but dreams that definitely had a negative feel. And twice now I’ve had dreams where I died. πŸ˜• One was strange… I had already passed away, but I was still around to console people and to help with all of the arrangements needed in that sort of circumstance. 😬 But the bad dreams, the specific “not feeling well” things… right now I am choosing to attribute it all to the Wellbutrin that one of my docs put me on. πŸ€’

I haven’t felt this mentally and physically shitty in a long while. πŸ˜” And it’s so much so that I’m going to stop taking that new med until my next appointment with that doctor, so I can let him know the side effects that I’ve been experiencing. Over the years I’ve probably tried half-a-dozen different meds to help with depression or anxiety, and never have I made it past a month or two before the side effects outweighed the potential benefits – and I’m pretty sure this one will be the same way. 🀨 I’ve also got something more immediate for anxiety, but I haven’t noticed any bad side effects from that one, so perhaps I’ll be able to keep one-out-of-two in my rotation this time.

Alrighty then… time for some football. πŸ™‚πŸˆ Ready to push the scary thoughts to the back again for now.

“Customer Service”

Might as well continue my bitching into Tuesday.Β πŸ˜’ Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy.Β πŸ™ Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment.Β πŸ€• That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes couldΒ help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I couldΒ (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either.Β πŸ€·πŸ»β€β™‚οΈ

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.

Mundane Monday

Today has been very Monday.Β πŸ˜• Ordered something online last night and woke up to a fraud alert on my phone, where the company – and it’s one of the main, big-name ones – had attempted to charge my card five times for the one order. 😧 So that was the first bit of “customer service” shit that I had to deal with. Just to be safe I had them cancel all of the charges, which allowed me to just create the order again from scratch. So far no alerts, so I guess that all got sorted.

Then I had to get online to sign up for new Medicare Advantage insurance, and of course I ran into glitches during the process. 😠 I swear, with the way that some sites seem cobbled together and barely hanging on to their functionality – it’s a wonder that big entities like this don’t collapse in on themselves in a flaming pile of data loss.Β πŸ”₯πŸ”₯πŸ–¨πŸ–₯πŸ’ΎπŸ”₯πŸ”₯Β I could have called to get this issue fixed, but you know how I am with phone calls… so “online chat” was the way I went.Β πŸ“žπŸ˜¬β˜Ž The lady was helpful, seemed to give only 50% (or so) canned responses, and despite not really fixing anything – she said everything that needed to be in their system was in their system, so there shouldn’t be any issues.

And the third thing, which I’m still in the process of dealing with, is getting these couple of rogue hospital bills figured out. One bill is for an appointment with my workers comp doctor, which are the same every thirty days and always billed to workers comp. 🧐 And then the other one, well, it’s a big enough amount that I need to investigate – to find out if that’s the amount due even after the financial aid has been applied, or if I just need to wait it out until it eventually goes away.Β πŸ₯πŸ‘¨πŸ»β€βš•οΈπŸ€•πŸ’Έ Still waiting on a call back from those folks.

So, I’ve been dealing with this crap pretty much from the moment I woke up.Β πŸ˜΄πŸ˜’ My brain hasn’t started getting twitchy about it (yet), mainly because everyone I’ve spoken to or chatted with – they’ve been helpful… and if not actually helpful, they’ve been nice and have given me confidence with their “Everything looks fine.” type shpeal.Β πŸ™‚ And since I’m somewhat in the flow of all this bullshit, there’s a couple other things that I need to tend to as well – so I’ve probably got just as many calls to make after this blog entry as I did before.Β πŸ€·πŸ»β€β™‚οΈ

Turning The Corner

Well, the last day of the three-day weekend went by a little too quickly. πŸ˜• Got some stuff done around the house, but just as importantly, got the number of a repair guy to come look at the AC unit outside. Rick and Amy used them when they had central air installed in their house, and they’re based on Bauman Hill – not too far from where we lived when I was a kid. I can’t believe it’s still been near or in the 80s during the first week of October. πŸ˜“ Thought for sure that I’d be fine waiting…

So tomorrow morning I get to call the AC guy, the pharmacy (of course), the endocrinologist’s office, and Ricart. I have three recalls on my car, including the one that says my steering wheel could fall off, so it’s about time to get all of that looked at. 😧 I might also see about having them repair the cracked plastic around the mirror housing on the driver’s side. But yeah, lots of calls.Β Yay. πŸ™ Oh, and I almost forgot the billing office for my WC doctor, since they accidentally billed me for my last appointment. (As if I haven’t been going there on WC’s dime for over a decade… heh… wth)

Talking with Bri yesterday, she asked if I was going to be going to the fair at all this week. Jim G is already coming down on Friday, so I was planning on at least making an appearance there with him… but now it looks like I might be making a sooner-than-expected trip to the fair tomorrow with her. It’s not a done deal, but if she’s not doing anything else I know she wants to go. And between my stuff, her stuff, her mom’s stuff… we’ve got plenty to catch up on. I just hope I’m up for all the walking.

If I do end up going, I’ll probably take the new camera with me. We were talking about just looking at critters and eating shitty food, but I’m sure I can find something worth covertly recording. 😎 A viewer request has asked for a comparison between “as shot / true 360”, “standard HD with focus points / target tracking”, and “little planet” modes. One of these days I’ll even do the “bullet time” mode, even though I think I’m gonna look goofy. I guess there’s also a hyperlapse mode somewhere in there as well… this camera really is amazing compared to my first 360 camera. πŸ˜ƒ

I dunno… just trying to get back to feeling “normal” and not dwelling on medical stuff each day. 😐 I’m feeling better now that I’ve gotten the house straightened up some and got the bills all done up, so now I’ve just gotta keep doing the normal adulting that’s required and just hang out until I know what the next step’s gonna be. πŸ˜” And whatever “big” stuff that I’ve got to do… I’d rather just get to it. πŸ™„ This waiting isn’t doing my brain any favors.

Preparation

Yesterday was a strange day. 😐 I feel good, having completed a bunch of stuff that I felt neededΒ completing, but the nature of the stuff left me feeling a little uneasy – and definitely unable to fall asleep at a normal hour. πŸ˜• Despite that, I managed to have some awesome dreams. Awesome enough to have actually woken me up every hour or so – but of course I can’t remember a single detail at the moment. 😠 I’m just lucky that they weren’t about the topic at hand yesterday.

Of course I expect my upcoming surgery to go fine, but being the type of person that I am I’ve gone into “prepare” mode – just in case it doesn’t. 😳 As part of that preparation process, I spent a good amount of time typing out letters to my cousin Jim and my ex-wife Genesee, as they would be the ones handling everything in the event that things need to be handled. Those letters are just my way of easing them into the process. (Since I was the executor for my aunt, I learned a few tips and tricks.)

They won’t even get those letters unless the situation calls for it, so that allowed me to be a little more free with what I said… but for the most part it was just explaining my will, explaining my wishes when it came to my personal belongings, explaining a good deal about how the process will go, and what they will need to do to keep things moving along, hopefully without too many hiccups and at a reasonable pace. 😎 It’s a lot to ask of someone, so I also made sure that my appreciation was made super clear.

But between the several pages that I wrote for Mongo, and then the three pages that I wrote for Gen… I was just doing a whole lot of thinking about a topic that nobody wants to have to think about. It wasn’t all bad… in fact, a lot of the thinking that I did was about good memories, good times, good things with family and friends, etc. 😊 Oh, and I’m up to 19 separate audio recordings when it comes to the little archive of messages that I’m recording for people to have and listen to after I’m gone… which, like I said, I don’t anticipate happening for a good long while. πŸ™‚ I’m actually really enjoying doing that.

Don’t take this the wrong way. 🀨 All of this preparation is just being done out of necessity, and it’s something that any responsible person would want to do before a major surgery. πŸ€·πŸ»β€β™‚οΈπŸ‘¨πŸ»β€βš•οΈ It can just really mess with your head when you end up dwelling on the topic for too long. I’m still good though, and I know everyone that loves me has my back. 😏 I’m still optimistic about this surgery, I’m gonna get through it, and then whatever is next is next. One step at a time.

Wringer

Pardon the length of this entry, but yesterday was kinda tough, basically as I anticipated. Anxiety had me up most of the night, so I ended up doing all this stuff on only three hours of sleep – but at least that meant I was awake at dawn, so I could just hop up and start getting ready instead of grumbling at my multiple alarms squawking at me every two minutes until I rise and shine.

From 8am until 12.5pm I was doing “something medical.” 😐 Starting with my monthly neck doctor appointment, where we also covered my upcoming surgery, some of the medications that I might have to start taking because of it, and how they should or shouldn’t react with whatever meds I’m getting from him for my fusion spot, nerve damage, and grumpy muscles in the area. πŸ˜³πŸ‘¨πŸ»β€βš•οΈ

Next was another blood draw for multiple panels of testing. πŸ’‰ I already had this done a little over a month ago, but they not only wanted to get the most current results, but there were also specific tests that they needed that weren’t in my other test. I volunteered my right arm, and the girl did her best… I mean, she hit the biggest vein available there, but for some reason it was only spitting a little bit of blood – and it was definitely not enough to fill the three vials needed. 😯 My left arm ended up being successful, and of course now I look like a junkie with two big bruises on each elbow-pit. 😏

Next was theΒ electrocardiogram, which actually didn’t take that long due to it (thankfully) not including stress testing or anything like that. Just the normal dozen-or-so electrical leads, a few minutes of holding really still, and on to the next. πŸ™‚ But the next thing was where it started to get shitty. πŸ˜₯

Since they’re going to have to manipulate my head quite a bit while they’re working on my neck, and since they’re aware of the C5-C7 fusion, they had to take a crapload of x-rays while my head and neck were in extremely stretched, compressed, or otherwise super-uncomfortable positions. ☒😣 I do my best each day to not move my head in all of the ways that I had to do for those x-rays, so my neck was fucked after everything was said and done. πŸ™‡πŸ»β€β™‚οΈ So not only will my surgery site be painful, but the ways they are gonna have to move my huge lump-of-a-head around while I’m under anesthesia… let’s just say that I’m really not looking forward to how that area’s gonna be feeling when I wake up.

I almost wasn’t able to complete all the scans that they needed, since one of them (while standing) was given with the instructions of “Put both of your arms straight up, directly over your head.” 😧 If there was a bar or something above my head I could have done it with little issue, but the only way I could do it without my left arm shaking was to get the arm up there, then actually lean against the plate/target of the x-ray machine to basically jam it up there in that position. πŸ˜¬πŸ€·πŸ»β€β™‚οΈ The fella doing it was really patient and understanding, and after reviewing them he said that the results should be fine, including that one which I thought would be pretty uncertain.

And I know, to a healthy person that all probably doesn’t sound like much… but man was I worn out after everything was done. πŸ˜“ Between the lack of sleep, the multiple stops, the blood loss… heh, the painful x-rays, and then my leg jumping around between “fine” and “omg stop” heh… I was just thankful that I was able to knock all of that stuff out in one day, along with being able to just go home and recover at my own pace. πŸ˜” It’s all good though… all of this stuff is now done with a couple weeks to spare, so I’m just happy to keep everything on track.