New Rule

I have to stop letting how I feel when I wake up each day be an indicator of how I’m going to feel for the rest of the day. 🀨 Especially since I usually have the luxury of waiting it out… taking my morning meds, giving it a little time, and eventually feeling at least somewhat better. And yeah, I know that this is such a “Yeah, no shit.” thing for normal people, so of course my brain just instinctively resists the idea. πŸ™„

I’m gonna be so bad at getting older and more broken if I don’t keep trying to recognize my flawed ways of thinking and trying to change them. πŸ‘¨πŸ»β€πŸ¦³ The other thing that I have to work on is learning to accept that some of the physical things just aren’t going to get better. What’s that Garth Brooks song? Much Too Young (To Feel This Damn Old) 😏 Heh… I really hate that my blog is like 90% “bitching about things” these days though… like today, it was only four hours of sleep, waking up because I could feel my pulse in my friggin’ jaw, and then (when I got up to go to the bathroom)Β discovering that my back is trying to re-fuck itself.

I swear, there’s an invisible hat in my house somewhere, filled with bits of paper listing all of my various potential ailments or irritants for the day, and some unseen force just grabs three or four of them at random and there ya go. πŸ€•πŸ€’πŸ˜–πŸ˜·πŸ˜ŸπŸ€’πŸ˜“β™Ώ The unending uncertainty of each day is such shit… so waking up depressed or mad is understandable, but I gotta stop letting it stick… especially if that’s the only thing that seems to be triggering it on that particular day.

But it’s been a few hours now since I woke up, my meds are kicking in, things are sucking a bit less, but I’m still gonna take it easy today. I’ve got another appointment tomorrow, plus I need to build up some positive juju because I wanna get back in to see Dad again next week, Bri is gonna be induced and have her baby next week as well – starting at 6 friggin’ AM, then on Saturday Jim’s going to Buckeye Lake to meet up with his dad, brother, and Adam at Pizza Cottage and I’ve also been invited. I’ve missed the last couple of hang-outs with them, so I really wanna try to make it this time. πŸ˜”πŸ€žπŸ»

And that leads me back to the new rule. Well, let’s call it a guideline, since I know that I’m going to fail at it at least as often as I succeed…. but without being able to “shake off” how I feel when I wake up, none of that fun stuff on my potential to-do list will be possible. History has proven that more times than I’d like to admit. πŸ˜’ Trying to adjust my attitude each day will let me hopefully be less flakey to my friends and family, and being less flakey to my friends and family in itself will help keep my mood going in the right direction. I just have to hope that my meds decide to start pulling their weight again soon too.

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Oh… My Scan / Blood Tests

I guess I never got back on here to update about my follow-up appointment with the endocrinologist. πŸ€” Before the doctor even came in, the pre-doctor person took my blood pressure and asked me if a student and intern could join the doctor when he came in to talk to me. Meh… what do I care? Sure… all are welcome, all are welcome… 😏 Gotta let the young people learn so they can fix the old people like me in the future.

He’s an interesting guy… doesn’t seem bothered to convert “data” into user friendly word blurbs for the average schmo to understand, but that’s actually okay with me. πŸ‘¨πŸ»β€βš•οΈ I’d much rather have a shitload of numbers and charts than a generic “You seem fine.” or whatever. πŸ€“ And with four tubes of blood, and more than four different comprehensive tests – I was surprised to hear him read off all of the numbers while also saying that almost all of them fall within the appropriate range for someone who is getting better. πŸ€·πŸ»β€β™‚οΈ

And then the full-body scan, which looked for glowing remnants of thyroid tissue that had absorbed all of the radioiodine 131 or whatever it was… this one is more subjective than objective, since it’s looking at an image rather than something that produces numbers against a chart. πŸ€” But on the scan, he said that he saw nothing that indicated that there were any stray thyroid cells left in my neck, which also means that if the cancer truly started in the thyroid and hasn’t spread to anywhere else… then it’s pretty good news, eh? πŸ™‚

He did make sure that I understood that even though the results of the scan seemed ideal, that it doesn’t mean “Woohoo! Cancer free!” of course. But it does mean that as of right now I’m in pretty good shape, so when I go through my next round of treatment in about five months, I’m starting off in a better position than a lot of folks that have had the same surgery as me. But yeah… five months from now… 😳

This next round of treatment is actually going to be worse than the first. Something to do with having the thyroid medication in my body for so long, so I’ll have to actually stop taking it for at least three weeks before they can even consider moving on to the next step. πŸ˜’ Several more blood draws, another round of radioactive iodine treatment, another full scan… and at that point, if the results are the same as this last one, they can feel pretty confident about saying that I’m cancer free. I mean, as much as anyone, even a doctor, can really “declare” something like that. πŸ˜•

I’m sure it’ll be one of those deals where if I’m good on the next one, then we’ll probably wait a year until we do it all over again… I dunno, I’m just assuming at this point, but you’d figure that each time all this fuss comes back as “Looks good.” they’d let me wait a decent bit longer before we start at the beginning with the treatment and testing. So, yeah, pretty good news… I just wish I physically felt better than what I do. 😟 Seriously, the way I’ve been feeling over the past few months, I’d have put money on the results coming back with something concerning. But I’ll take the good news and try not to dwell on it too much. I’ll just put this one behind me, and when it’s time to worry about round two, that’s when I’ll start worrying about it.

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Checking In

Haven’t been able to shake this funk.Β πŸ˜• Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now.Β πŸ˜”

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery.Β πŸ€• The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day.Β πŸ™πŸ»

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point.Β πŸ˜·πŸ’‰πŸ˜ It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this.Β πŸ˜” They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup.Β πŸ˜’ Next on the agenda, though, is my first full appointment with the new shrink on Monday.Β πŸ™„ I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.

Now We’re Cookin’

Another long day of medical stuff. Nothing really new or concerning. So, so much data from all the labs and pathology and whatever… some of the most recent stuff hadn’t even been interpreted so it was presented in its pure data form, but there was still enough “plain english” stuff for him to form his opinion and explain things very clearly. It turns out that not only was the cancer in my left lymph node, but they also found (after the fact) that there was a “micro-tumor” in the right one as well… so it’s good that they sliced them both out to be safe.

The thing that made the overall picture slightly better today is that they also tested the nearby lymph node and the results showed no cancer cells there. So, yeah, it’s just a test, it’s hard to say how accurate it really is, but I’ll take the good news… so we’re gonna go with that for now. Defective thyroid removed, and no cancer in the nearby lymph node. He also made some adjustments to my meds which should help me battle the lack of energy and accidental naps, and I’ll start taking those tomorrow.

The other positive thing from this appointment is that one of the bigger balls is now in motion. I doΒ have to go through the radioactive iodine treatment, which is meant to catch any random cancer cells that may still be hiding out, but there’s not a huge urgency to it – so I won’t start until this time next month. It had to be that way due to my other appointments and schedule, because there’s a 7-day period where I’m supposed to remain isolated so I don’t contaminate the unwashed public by my presence… so of course I wouldn’t wanna see Dr Walter and Nicole during that time.

The process will begin with me getting some sort of injection (to mask the effect of the thyroid medication) on Monday and Tuesday, followed by the actual radiation stuff on Wednesday. After that part is completed I then have to go for a full body scan. I think that’s the next thing that I’m actually nervous about. It’s meant to see if anything was missed, anywhere, and to have a scan to use as a (hopefully) successful baseline for another full scan six months after that. So yeah, it’s quite the glob of activity coming up here soon.

One More Day

I’m taking one more day, tomorrow, and then I plan on doing my best to return to society and engage with the humans again when necessary. 😐 I already know that I have a crapload of phone calls to make and take, but I’m actually talking about not looking like a hobo anymore, and actually leaving the house more than once a week. See, I haven’t shaved since the day before my surgery, so that means I’ve got 18 daysΒ of mostly gray beard that needs to get gone. πŸ§”πŸ» I haven’t shaved through this point because I didn’t want to risk mowing over my stitches and ripping the incision open. 🚜😯

Being somewhat laid up, unable and/or unwilling to go out in public… it’s been grand. 😊 It’s selfish, yes, but “me doing me” for the better part of two weeks, even though I’ve been physically “bleh” for most of it, has done wonders for my mood. 😏 And discussing with friends, when I noted my unusually “okay” mood lately, they suggested that maybe my thyroid was actually causing some of the “mood disorders” – and now that it’s out and its function is being replaced by medication, it’s a possibility that it could be easier for me to maintain an okay mood because of it all. (There’s also a good chance the whole idea is psychological trickery, and I’m psyching myself into a decent mood under false pretenses. πŸ˜…)

I did get a ton of shit done yesterday. 🀨 Pretty sure I’m completely caught up on medical, mail, and bills… and it’s a good thing that I’m going through the medical stuff in such detail, because I’ve already caught a fraudulent bill for over $100 – for services that I know I shouldn’t have been charged for. (That’s one of the folks on the list of Tuesday calls…)Β The side effect is that my living room floor, where I do my work, is covered with various piles of paperwork, pens, envelopes, receipts, file folders, etc. 😯 I”ll take care of that tonight though, so tomorrow can be reserved for just laundry and a shave.

I’ll probably make sure the Insta360 is charged up tonight. Oh… yeah, I didn’t go out today – except for a quick trip to the truck stop down the highway for foodstuffs. 🌯🍩🍞πŸ₯€ But I’m gonna have that cam charged in case I wanna try anything, and then there’s also the Dover NASCAR race, the premiere episode of Series 11 of Doctor Who, and then I think the new season of The Walking Dead airs tomorrow evening as well. πŸ˜ƒπŸ§Ÿ Haven’t yet decided what I’m gonna do with my Monday though. When I made that “Three Day Weekend” post, I was only joking – because I was treating Friday as part of the weekend… and I didn’t even realize that there actually was a legitimate holiday this Monday. πŸ€” Hmm, note to self, don’t put all these envelopes out in the mailbox until Monday night.

What’s This?

Only got a couple hours sleep last night and then still had to wake up at 8am to get ready for my monthly appointment with Dr Walter. πŸ˜’ I don’t know how he does it, but he always seems to be in a good mood no matter what the time of day. If nothing else, he’s got a great “game face” for when it comes to dealing with patients. 😏 I told him how my left arm was literally like a limp noodle the day that I came home after my surgery, but how since then I haven’t really had any pain – thanks to the temporarily increased meds.

So it was a good visit, with nothing for me to really complain about. Like I mentioned to him, I think that sometimes the amount of pain that I’m feeling in my shoulder and in my neck is relative. When that’s the only thing that I’ve got to focus on, there’s a good chance I’ll notice it more and feel genuinely worse – but when I’m barely two weeks out from a major surgery, my old injury is the last thing on my mind as long as it’s staying at that moderate level of pain where it’s usually at.

I filled him in about the next steps that I’ll be taking with all of that, and we agreed that next month would probably be better for evaluating any changes, since I’ll have had plenty of time to heal from the surgery. I had to leave there and head directly downstairs to have more blood drawn for a thyroid panel, but I still left in a surprisingly good mood.

It’s weird… I haven’t had much to feel good about in a while, and in a way I still don’t… so having those hints of “good mood” just felt weird, since it then caused me to sit here waiting for something or someone to come along and ruin it. 😞 Like Charlie Brown said, “I think I’m afraid to be happy… because whenever I get too happy, something bad always happens.”

But with that little boost of positive energy, I did go ahead and throw the Insta360 One camera out there on a tripod in the front yard, set to time-lapse mode. One frame every five seconds, and I had one lens directly facing the setting sun, with the lens on the other side obviously completely shielded from the sunlight. 😎 I wanted to not only do a time-lapse, but to see how bad the stitching is when there’s such an exposure difference between the two lenses. In practice, it would probably be better to turn the camera 90 degrees, where both lenses would get a similar amount of bright light on them. 🀨

Meh… I’ve gotta recharge the camera before I can hook it up to the phone and export the video, so I’ll just drop it in here later once it’s done. In the mean time I’m gonna get a notepad and start documenting all the medical bill stuff, and try to figure out what I wanna cover at my PCP appointment tomorrow. Oy… too many doctors this week, eh? And it ain’t over yet…