Small Steps… Always

Still not much going on lately. πŸ˜πŸ€·πŸ»β€β™‚οΈ I’ve been continuing the incremental bits of cleaning and packing up of stuff, spreading the work out over time so I don’t excessively aggravate any of my gimpy parts. I wish that it made a bigger visual difference in the house, but honestly most of what I’ve been doing has revolved around cleaning out closets, working in the (rarely used) basement, and cleaning out various junk drawers. It’s nice to get my desk organized though, with all the “office stuff” that used to be scattered around the house. πŸ€“

It’s still being done mostly for the sake of “doing something” during my otherwise lackluster days, along with the feeling of accomplishment when a long-delayed project / task is finally finished. πŸ˜•πŸ€·πŸ»β€β™‚οΈ I’m not usually thinking about it, but it’s feeling more and more like I’m subconsciously preparing the house and myself to eventually move out of here. πŸ€”πŸ€¨ I’ve talked about the reasons before, which are all still valid, but when I’m not getting any younger and have been dealing with my various health problems – I think I just wanna be closer to town, people, stores, fast food, civilization, etc… just for convenience sake, if nothing else.

Meh… like I said, it’s not something that’s in my thoughts most days, but the idea is there. And in the same way that I’ve had to make adjustments to my daily life due to my disability and thyroid / energy issues, I can just see how being closer to all that stuff in general could make life easier and more bearable when it comes to the things that are a little more challenging for me. πŸ‘¨πŸ»β€πŸ¦―πŸ€• I’ve got several friends that are feeling similarly, as they realize they’re a little more isolated than they’d like, so I think that’s also partially motivating me. Where do I want to live? 😐 Who knows. πŸ˜… But at least the chores that I do, essentially just to give myself some purpose, is preparing me for whenever I might be ready for whatever the next phase will be.

A Little of This, A Little of That

The past several days have been kind of mundane, but I suppose that could be considered a good thing. I did make it out to see Bri on Sunday, and Ariel and the girls were also there when I first got there, so it was nice to get to see all of them in one pop like that. πŸ™‚ Bryson’s growing like a weed, and man is he a happy baby… always giggling and smiling at his mama, and for whatever reason he thought I was particularly funny and worth staring / laughing at for most of the time that I was there too. πŸ™„πŸ˜

Once the week started, everything’s just been kinda meh. Tending to bills, various paperwork, doctor calls, dealing with insurance, dropping off medical release forms at my attorneys’ office, etc. πŸ˜’ I could have just mailed those back to them, but because I let my mail sit for over a week before realizing that their correspondence was in one of those envelopes, I didn’t wanna cause any further delay – so taking the forms directly to them was the quickest option. πŸ€·πŸ»β€β™‚οΈπŸ™‚Β (I wanna do whatever I can to help them help me.)

The bills from the hospital didn’t end up being as bad as I was fearing. Six envelopes arrived from them within a day of each other, all having the same appearance as their typical “amount due” mail… 😟 so I just cringed and put them off to the side for a while, not quite ready to start writing checks. But when I opened them the other night, each one was just a form letter that let me know that because I have a fixed income, their financial assistance program covered the difference between what everything cost and what my insurance actually paid. πŸ˜―πŸ˜ƒΒ Nice to have something go my way, particularly right now.

Then today I had to go to pick up some soda, so I decided to go out to Meijer – where I could also grab a bag of dirt, some grass seed, and a couple bags of pebble-type stone. 🀨 The lawn guys kinda “over-whacked” some weed areas, like around my light post and the clothesline poles out back – so the next time we’re gonna have a few days of rain, I’m gonna try to cover those areas. πŸ€” Nobody was working in their garden department to help me get the bags over to my cart, but luckily I was able to just slide them over from the stack and onto the underneath rack of my buggy. πŸ˜₯ Getting them into my trunk, however… that required creative use of my right arm and right leg.Β (And that crap can stay in my trunk until I’m ready to use it, thankyouverymuch.)

Oh, the pebble stones… that’s for out by my mailbox. When it rains a little more than average, that area turns to slop – and not only does it make it slick for the mailman, but their vehicle also then continues to wear away that spot each time they drive through it. πŸ˜• I put sand there a couple of years ago, but it’s just time for me to try something else. I’m gonna wait until it’s wet for that as well, when I’ll drive my car out to the end of the driveway and just spill the new gravel directly out of the trunk instead of effing with the heavy bags.

But that’s been the tone of the first half of the week… just thinking about or working on “meh” stuff and getting it out of the way. πŸ€·πŸ»β€β™‚οΈπŸ˜ Some good, some bad, but most just “whatever.” I’ve been sleeping in the recliner, and that’s actually helped when it comes to getting sleep and waking up in a little better condition, but I’m starting to miss my comfy bed. πŸ˜΄πŸ’­πŸ›οΈΒ  Β (Well, it’s comfy as I’m going to sleep, at least… heh)

One more night in the chair and then my bed gets another shot. This all makes me sound so old… πŸ˜πŸ€•πŸ‘΄πŸ»
Oh… and my friend had her pacemaker installed yesterday, they had her in and out of surgery before noon, and she was back in her room and texting with me like normal by the early afternoon. πŸ˜ŒπŸ™πŸ» We’re fortunate to live in a time where there’s such a thing as “minor” heart surgery like that. I’ve got a short list of things that I wish we had cures or fixes for though, that’s for sure… but overall we’re lucky with what’s available to us when it comes to procedures and treatments for a whole lot of stuff. πŸ₯πŸ‘©πŸ»β€βš•οΈπŸ‘¨πŸ»β€βš•οΈ

Method To My Madness

You may or may not have noticed, but over the past many weeks – especially in the time right before and after my scan – I’ve been posting a lot more entries to the blog than usual. Even if not in quantity, I’ve definitely been ramblingΒ more than I typically do. Now that I’m most of the way past that phase, I’m probably gonna end up slowing a little with my postings – not necessarily on purpose, but because as things start to feel like they’re returning to normal I have a feeling I just won’t feel like I need to post quite as much.

There’s no way to explain to someone who hasn’t gone through it, how it feels to sit with an unspecified amount of cancer in your body, jumping through all of the hoops for the tests, which includes gradually wearing down your energy levels to nothing, and then just sitting there, not knowing, waiting, worrying, hoping, etc. 😟 There isn’t an emotion that you don’t experience, ranging from hoping that it’s completely gone – to hoping that if it isn’t gone, that you at least get an expiration date… just to finally get rid of the uncertaintyΒ more than anything else. 😞 I suppose I can only speak for myself, but I don’t see how anyone wouldn’t feel most of the things / ways that I’ve felt. πŸ€·πŸ»β€β™‚οΈ

But my way of dealing with all of that (or distracting myself from all of that) was by posting here. Didn’t necessarily want to talk to anyone about it in person, or in any detail or whatever… but also couldn’t just sit here and stay all bottled up about it. So whether my posts had something to do with my medical stuff or not, it’s been a big reason why I’ve been so active lately. Now, I’m not saying that I’m gonna stop blogging… I mean, rambling is sort of my thing, it’s more that I just wanted to come here and finally explain.

Of course it doesn’t help when in the middle of all that, I get new “neck stuff” (unrelated to cancer) to eventually be concerned about. πŸ˜’ It’s hard to stay positive and try to get back to normal when just as you’re finishing up with one thing, something else fairly big comes along right on the tail of the last thing. And that’s what a lot of my postings have been, whether they seem like it or not… trying to find the silver linings, trying to reassure or even convince myself that I have the ability to take the good for what it is, and work around whatever negatives are left after that. (Bleh… that sounds cheezy.)

I’m still not back to normal, but I’m definitely getting there. I found out, thanks to the festival, that even though my energy levels are a whole lot better – there’s still a wall there to be hit, and I still don’t get a sign when I’m approaching it. I’m assuming that’ll just continue to get better though, because it has so far. I’ve barely been doing anything with friends yet, and still haven’t been on Facebook for over a month now… so I’ve still got a few of those types of hurdles to get over, but it’ll all come in time. πŸ™‚ I’m not setting goals or time-frames or anything like that… just trying to always make sure that I keep moving forward with all of it. And as for the stuff that I’ll have to face in the future, whether it is spine related or cancer related (or something as of yet unforeseen), I can’t let it chew up all my thoughts and actions between now and whenever that will be.

So whether it helps me because I’m just getting stuff out, or because it also helps to reinforce the positive thoughts… whatever it is, it’s just what I’ve needed to do during this more-uncertain time in my life. πŸ€·πŸ»β€β™‚οΈ But as I continue to get better, it should require less energy (or rambling about it) in order to keep the progress going. I made it up and over the most recent hill, so now I can hopefully start to coast a little more if that’s what I decide to do.

Meh… I could obviously continue with more on this topic, but this basically explains what I wanted to be explained. We’re all works in progress, and I’m no different. And if it’s not one of the issues that I’m currently focused on, there’s always gonna be something else that tries to damage my calm and toss some grenades in my life’s direction. 😟 I’m just hoping that I can take the things that I’ve learned from dealing with the current situations and apply them to those other things when needed. πŸ™‚ Maybe get a little better with the “ups and downs” since we all seem to come with an endless supply.

Pace Yourself, Dummy

Felt like I had a little more energy than usual yesterday, so I trimmed my hobo beard here in the living room (with a trimmer that allegedly catches all the trimmed hairs) but then of course I still wanted to vacuum up whatever it didn’t get. Turned it on, but the vacuum wasn’t sucking, and then it just shut itself off. πŸ˜’ Awesome. Didn’t realize how many filters were inside this thing, but they had become clogged with the flea dust that I spread and vacuumed up a couple weeks ago. πŸ€·πŸ»β€β™‚οΈπŸ”§ So I had it in pieces, took out and washed all the filters, and that was it for me.

Not that I had anything that I needed to do after that, since the filters needed to dry overnight anyway before I could even try it again… but yeah, went from “okay” to completely whupped without any warning. Took a shower to see if that would jump-start things, but nope… just made me ready for bed. 😏 And yeah, I was thinking about how I’d be missing the meteor shower, but there were enough passing clouds that I didn’t feel too crappy about not having the oomph to stay awake and set up the camera to do things properly. πŸ”­πŸ§ Looks like it might end up even more cloudy tonight, but we’ll see.

But yeah, as I was starting to fear as the time got closer – just a few days of being back on my thyroid meds hasn’t quite done the trick yet. I’m noticing a difference, so that’s good, but I just have to be patient and stop trying to do more than I should. I mean, taking apart the vacuum wasn’t even physically difficult… but yeah, I just gotta keep taking it easy for a while. That’s what I did today, and the most I plan to do tonight or tomorrow is maybe that time-lapse video and then getting through the current stack of mail. πŸ™‚πŸ° No physical stuff, even though I’ve got a basket-and-a-half of somewhat radioactive clothes that I will need to get to sooner than later. (But it’s out of the way and not hurting anybody, so meh…)

Only real obligation tomorrow is my workers comp appointment, which is typically just in and out unless we get chatty… but it’s my doctor’s assistant that will be seeing me tomorrow, so other than letting him know how run down I’ve been for the last month and why, it’s just gonna be getting those meds on track. I’m barely out of the window where I’m technically supposed to be avoiding people for extended periods of time anyway, so I’ll make sure to let everyone in the office know that when I get there, which should also help to keep this visit short and to the point.

And whether this jinxes me or not, I like that I haven’t gotten a call from my thyroid doctor’s office on either of the business days since I had the scan done. πŸ€” Different, unfortunately, from one of my friends who has been having some heart testing done – and she got one of those “Let’s go ahead and get you in here as soon as possible…” calls, which always makes your stomach drop. 😳😟 Can’t dwell though… all this shit is in the doctors’ and God’s hands, and we all just have to hope for the best. πŸ™πŸ»

Checking Off Boxes

Typical “workers comp, beginning of the month, get my scripts filled” day today. Three different calls to the pharmacy, issues with my information in the computer, problems with certain ones not being approved… same bullshit as usual, except due to the incorrect information in their system I even had to stop in myself, with receipts and printouts and crap from last month. The folks that work there are great. It’s never the people there that I have a problem with… and after my visit we think everything is now updated, correct, and in process of being authorized – so maybe sometime today I’ll actually be able to pick them up.

I had to be out today anyway, so stopping in to get all this stuff sorted out wasn’t a big deal. I mean, I actually feel kinda bad for them – with how much of a pain in the ass “my case” is for them each month. It makes me wonder if any pharmacies have ever decided that certain customers’ situations were just too much work, too many calls, and too big of a PITA – and just told them to take their business elsewhere. ‘Cuz I can see how they could feel that way about me, if they weren’t such understanding and helpful folks.

But at my other stops, along with having several vials of blood drawn, we’ve started getting a lot more things set in stone. I’ve now got dates (if not exact times, yet) for the next blood draw, the administration of the radiation dose, how long I’ll need to stay away from people (which included rearranging another unrelated doctor appointment), when the full scan at FMC will be, and then the followup with my main thyroid doctor after all of the results are back and interpreted.

It’s surreal… how this is such a “big deal mind fuck” thing for me as I’m going through it, yet I’m just one of many. There are enough people needing this kind of treatment that once a week, every week, it’s radioactive “dosing day” for thyroid patients at FMC. But for whatever reason, even as you’re out in town, seeing other people doing whatever… it’s easy to feel like you’re the only person going through this shit, while actually we probably pass by people each day who are going through the same thing or worse. Working in nuclear medicine, giving the doses… I can see how that job could start feeling pretty heavy after a short while.

Hands Off The Controls: Autopilot Has Been Engaged

I didn’t get to sleep until almost 6am this morning, and I had posted a somewhat moody blog entry about an hour before that… but I went ahead and deleted it when I woke up, deciding that I should wait until I had a little more sleep, time, and information under my belt before commenting on the stuff I was commenting on.

It was just really bad timing last night… first, forgetting to drag the trash buggy out to the road, so I ended up doing that around 3:00am. And of course since I was out there, I grabbed whatever was in the mailbox from the past couple of days. And the letter on top had to be from my WC attorneys, letting me know that my mandatory “independent” WC exam has been rescheduled. That was the appointment where I got up at dawn to drive to the NW side of Columbus, with my bum knee at the time, and they cancelled on me about five minutes away from their office. 🀨 Yeah, so that’s now rescheduled near the end of the July.

It had actually slipped my mind, since my brain has been in a state of constant anxiousness regarding my lengthy but (hopefully) finalΒ thyroid cancer treatment beginning. So with that and other other crappy stuff on my mind, having had to deal with the kitten situation yesterday, and then just not being able to sleep because of all of it – seeing that envelope pushed me past sad, mad, frustrated, nervous, or whatever… eventually to just numb. 😐 It’s happened before… I’ve simply “felt” to the point of no longer being able to feel. πŸ€·πŸ»β€β™‚οΈπŸ˜• And I don’t know… with the way I’ve been, numb is probably better.

I’ll let my attorneys know that the appointment is just days before I’m due to begin the radiation part of my treatment, so we’ll see if WC still demands that I show up – or if they’ll decide to wait until it’s over and I’m at what they’d consider my “normal” physical self. The latter would give a more accurate representation of how my disability and meds affect me, but who knows what they really want.

The last handful of entries should give you a good idea of where I’m at and where things are heading. I don’t know how much time I’m going to be spending online in the near future, and there’s a good chance that I’m going to be even more difficult to reach than usual. I apologize that I’m probably going to come off as more inconsiderate than typical… but I can’t really do anything for anyone, I can’t see how my presence right now could possibly be a good thing… so I might end up in my bubble for a while. 😐 If anything significant happens though, good or bad, I’ll make sure I at least make a small post – just to keep the people who still care in the loop. Try not to worry about me though. Whatever happens next is all out of our hands.

Trying To Not Read In To This

I got a message two days ago from the doctor’s office that is handling my thyroid cancer treatment. My next session with the radioactive iodine treatment, which should be my final session (if everything goes well), was scheduled to start near the end of July… but they now actually want to schedule that as soon as possible. 😐 They asked me to call in yesterday so we could start making a plan, but to be honest the message had me a little too shook… πŸ˜₯ and since I was actually having a decent day yesterday, I didn’t wanna risk nuking that by bringing all of my thoughts back to the “unknown” about what’s remaining inside me, if anything.

That’s also why I took advantage of the day yesterday to get caught up with some things around the house, because I know that this next step is gonna be a bit of a nightmare. 😣 I have to completely stop taking my thyroid meds for a couple of weeks, and they were clear about how it could have drastic physical and mental side effects. (Also part of the reason that I stopped the Paxil, so I didn’t have one crap thing on top of another.)Β Then once the thyroid medication is completely out of my system, that’s when I’ll go to the hospital for the radioactive pill and another full body scan about a week later. πŸ˜•

Confession… I didn’t call them back today either. 😞 Instead, what I’m going to do is just go into the office tomorrow and talk to them in person. To be sure that I understand the details of the plan, to be sure that everything is scheduled properly… and also to see if I can catch some kind of vibe by the way that they speak with me about it. 🧐 Like I said, I’m trying to not assume that something has gotten worse just because they want to start things sooner. 😳 It could be as simple as being easier on their schedule, and just better for me (or anyone) to do all of this “second phase” stuff sooner rather than later anyway.

So yeah, that’s the next thing on the radar… movin’ in fast. 😟 And lemme tell ya’ something. πŸ˜’ Uncertainty, when it comes to something like this… it’s a special kind of slow, drawn-out torture. I’m ready though. I was doing good at keeping it out of my thoughts up until now – but whether I got that call a couple days ago, or whether we stuck to the original end-of-July starting point… either way the anxiety was gonna come. So I agree… let’s get this shit started. 🀨

Unrelated: I just updated my Windows 10 and all of my emojis now have thick black outlines. πŸ€”πŸ€·πŸ»β€β™‚οΈ