Improving

Went out and did actual grocery shopping yesterday. It’s been a long time since I’ve gone anywhere other than Dollar General or a quicky mart to just stock up on little random amounts of this or that to keep me going. But being run down for a couple of weeks and not making those little trips… I finally burned through pretty much everything in the fridge and cupboards. That’s good, I guess – I mean, that’s what some of the food was… shit that I could eat when I ran out of stuff that I wanted to eat. Well, that’s not exactly right, but you know what I mean. “Four cans of beets? Okay, I guess I’m going to be eating some beets today.”Β πŸ˜πŸ€·πŸ»β€β™‚οΈ

It did take some energy out of me, but not like it would have done a week ago, or two weeks ago… so that’s one positive thing, that I’m definitely getting some of my energy back. Shopping is one of my least favorite things to do, so I ended up spending about $250… hopefully getting stuff that will last me a long damn time, other than stopping off for bread or pop or the other stuff that you always need to replenish before “the next shopping trip” wherever.

What’s funny though, is that when Gen and I were messaging last night, she asked me what all I got – and I legit had no idea. πŸ€”πŸ˜ Granted, I was already in bed, so my brain wasn’t trying that hard to remember… but I really think my brain put up a firewall while I was shopping. πŸ‘¨β€πŸ‘©β€πŸ‘¦πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦πŸ‘©β€πŸ‘§β€πŸ‘¦Β Β βž–πŸ›’πŸ˜βž–Β πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦πŸ‘©β€πŸ‘§β€πŸ‘§πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘§Β  Β Knowing that I was already running on much lower energy, doing something that already causes annoyingly inexplicable anxiety at times, I couldn’t tell you what a single person looked like or did as I passed them in the aisle. No, wait, I remember some lady in the frozen section yelling at her kids for wanting to get the ready-made frozen lasagna – because she had already loaded her cart with all the things to make it from scratch. Oh, and I don’t remember my cashier, but the bagger chick was lightning fast… with all my shit bagged, back in the cart, and her moving on to the next station before my receipt even finished printing. πŸ˜ƒπŸ‘πŸ»

I finally ran out of juice once I got home and unloaded, but I did get all the cold shit put away – which means I have a kitchen floor full of bags waiting for me once I drag my ass out of the bedroom today. πŸ˜’ But it was just being worn out… not that “Oops I fell asleep for three hours” shit that was happening far too often a couple weeks prior. That’s really the only reason I’m posting about what 95% of people don’t even have to think about… a typical “big” shopping trip… because it hasn’t been that long since just walking out into the back yard to spray some weeds would put me out of commission. Just glad to know the thyroid meds are pushing me back in the right direction… and hoping that my uncharacteristic optimism here doesn’t jinx me for my appointment tomorrow. Also, plans for today are very limited… not falling for that “Ahh, I’m better!” shit and then ending up wiping myself out anyway after yesterday’s progress. 😏 Basically gonna take this as another “day off” after I get the rest of the shit put away and the laundry started…

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Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Less Bad, Overall

They came and plucked / cut all of the bushes out the other day. πŸ™‚ I don’t know why it made me feel so awkward, sitting in the house doing nothing while other people were out in my yard taking care of things… but I thought about the x-ray results of my knee, how nothing was apparently wrong, and whether I wanted to do physical therapy – and all of those thoughts resulted in me doing quite a bit of work inside the house over the past couple of days.

I figure that physical therapy would be “Yeah, I know it hurts, but keep moving your knee.” so I decided if I was going to hurt, it would be for something useful… something that allowed me to feel productive instead of sitting around like a turd while other people did work outside that I still feel (even though I physically can’t) like I should be taking care of myself. 😟 They did a great job though, and left the area in a condition where all I’m gonna have to do is spray a little poison on the nubs that didn’t get plucked, and then spread some grass seed (actually, quite a bit) and cross my fingers.

Inside, it was basically just a continuation of what I’ve been off-and-on working towards. The yellow bedroom is never actually used as a bedroom, so I donated the bed from that room to Bri when she got her apartment. Now, that’s my new “auction / sale” staging area. So a lot of what I did was just moving boxes from one bedroom to another, but getting it sorted much better and stacked more efficiently… keeping the more valuable things in their own area, separate from the random household goods or whatever.

It was frustrating, only being able to do a couple boxes at a time before taking another break for my knee… but I just spent a couple of days “keepin’ at it” and even getting several more tubs and boxes packed with stuff and stacked with everything else. πŸ™‚ It’s still frustrating that it took me two days to do something that would normally have taken an afternoon at the most, but I wanted to keep moving – but with breaks so I could tell if I was making my knee worse. 🀨 Which, luckily (and surprisingly) I don’t think it was. It doesn’t feel good now, but it’s actually slightly better than before I started doing all this… so, who knows, maybe my slow-ass self-PT’ing is working. πŸ€·πŸ»β€β™‚οΈ

I did take today off though, because the next logical step that I would be taking is working in the basement, either packing stuff down there and trying to carry tubs and boxes up the stairs, or bringing individual items up one at a time and packing them upstairs… and I can’t quite trust my knee enough to consider either of those things. πŸ˜’Β I guess I could just take the laptop and go down there with the intention of staying down there and working, letting Netflix play in the background, and just wait until things are better before I try to haul anything upstairs. πŸ€” Meh… could have done that today actually… but after two days of solid “going” it’s probably better that I didn’t confine myself to the basement today.

I’ve basically stayed offline, I’ve been ignoring most of my messages… but to have the oomph to do what I’ve been doing, I needed to unplug and just do my stuff in my own little bubble here. 😞 That’s a sucky thing, I’ll admit, but at least I get to feel good about finally getting a good amount of something done around here, after over a month of my knee making sure that that wasn’t likely to happen.

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. πŸ˜’ They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🀨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. πŸ€·πŸ»β€β™‚οΈ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that didΒ look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in thatΒ previousΒ situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. πŸ‘πŸ»

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill dealΒ  – which will hopefully be a one time thing followed by close monitoring. 🀞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessingΒ that’sΒ gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. πŸ€” It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. πŸ™‚ Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…

You Might Not See It

Despite all my bitching, I can at least say that I’m doing better than I was several months ago – at least regarding my anxiety, my “twitchy”, and whatever other random weird mental things affect me. 😡 I’m obviously going to have setbacks, where I kinda just retreat into my shell (like today), but considering that just a few months ago I wasn’t talking to hardly any of my friends, wasn’t really visiting with Mom and Dad, had no desire to do pretty much anything… where I’m at right now is objectively better, even though a lot of times it doesn’t feel that way to me.

But I’ve been back on email with Dad for a couple months now, after essentially abandoning email as a whole over a year ago… and I know, it sounds weird, and it’s even harder to explain how “anxiety” and “email” can go together… but yeah, more emails, more visits, reaching out to friends – slowly, one at a time… I’m doing so much more than I was able to or wanted to do just a handful of months ago.

I don’t necessarily like admitting how messed up my brain can be, but what can I do? It’s me. 😐 So I think it’s fair to look at my slow but steady progress on these dumb, sometimes inexplicable anxiety issues and feel at least a bit better about it. I know I don’t function like a “normal” human, not by any stretch of the definition… and I know that my occasional communication drop-outs or disappearances by me are still frustrating and hard for friends and family to understand – but they pretty much “get me” now, at least as best as I can be “gotten” I suppose.

Hmm… this counts as posting something positive, right? πŸ€·πŸ»β€β™‚οΈ (Even though today is fucked. 😏)

Heat Index: 105Β°

Only slept about 4 hours, but feeling surprisingly good today. I think it helps having put my doctor appoint behind me, and then since the holiday is this week I’ve decided to not worry about the blood draw until next week… but I did go in town to pick up some meds, and OMGΒ is it hot out. 😳 Miserable, humid, hot hot hot. I only have the tiniest twinge of maybe wanting to go watch the fireworks tonight, but the heat does a pretty good job of beating that idea out of me. πŸŽ†πŸŽ‰ I know it’ll be cooler later, so we’ll see, but for now I’m back at home and trying to continue some progress.

Bills, finishing up the bedroom after building the new bed frame, maybe adding some more stuff to the “sale/auction” boxes in the purple room… I dunno… I just know that I have to take advantage of these energy bursts when I get them, so I’m gonna keep busy until I can’t keep busy any more. ️🀨 I’ll probably save all the computer stuff for this evening when I just wanna sit, so bills and e-mail and all that can wait until then.

Oh, and no emergency dental shit on the 4th, so we’ll see what tomorrow holds.Β οΈπŸ‘¨πŸ»β€βš•οΈ

Self-Inflicted

The past several days have been remarkably the same for me, so I’ve actually gotten into a flow… albeit an annoying one, since my body is still giving me a hard time. πŸ˜’ But I’ve been able to build up the energy to do a limited amount of “whatever” each day, but I also completely crash after I finish whatever it is that I was doing. So I just kinda have to go into each “thing” with that in mind…

It’s embarrassing being this worn down all the time. 😞 It’s not being lazy, but it sure looks like being lazy. As I’ve described to others, it’s like I wake up each day with only 10% – 15% in my battery, and once I use it up it’s just gone. That leads to unintentionally falling asleep for several hours during the day, and then only being able to sleep about that same amount that night – effectively splitting one 24 period into what feels like two “days” for me, with the second “day” consisting of me not being worth a shit.

But I’ve chosen my projects wisely over the past couple of weeks… getting all my laundry done and put away, the kitchen, living room, and bathroom all cleaned, I did a huge grocery shopping session today and put it all away, plus several other things that I needed to do like changing light bulbs in several ceiling fixtures. πŸ˜– And let me tell you, having only one arm that I can raise above my head… removing heavy glass light covers and screwing in several bulbs was the most difficult (painful) thing I’ve done in a long time. With my ill-advised Memorial Day Walmart shopping trip being a close second. 😏

I actually went to Logan instead of the one in Lancaster, because I feel like I “fit” more with the Logan people at the moment. Heh… that sounds bad, but it’s accurate… I’ve never seen so many grumpy looking average shlubs in a store at one time. It actually made it easier to shop… looking around at all these people who looked like they were significantly more annoyed than me to have to be there. πŸ€·πŸ»β€β™‚οΈ