Figuring It Out?

I’ve been bitching a lot here in the blog lately, so I figured I’d drop in to make a more positive post about the weekend. I actually ended up getting pretty much what I was hoping for – putting the stress of my WC stuff to the back of my mind for a couple days, and just letting Saturday and Sunday work themselves out however they wanted. I didn’t even put any self-imposed obligations of “chores” or “being productive” on myself, and it actually worked.

I went in town to grab some groceries and some stuff for Dad, so I ended up making my visit with him on Saturday instead of Sunday. We were talking about maybe watching the race together, but after the visit on the day prior – we ended up just watching the race at the same time and texting back and forth about it. And that track… Homestead… I still think that it’s a little too generic to be the final race, and the one that determines the season champion. The racing from Phoenix, the week prior, was actually more exciting and entertaining… but meh, racing throughout the 2019 season felt improved overall, so at least things are moving in the right direction.

Caught up with some friends and family on Sunday, through messages, since I’d been flying under the radar most of the week. Toni sent me a few pics and vids from their Philly trip, where Matt participated in the Rocky Run, and also sent me a clip of Matt and Wendi’s gender reveal party thing. But she just wanted to check in on me to make sure I was okay. She jokingly offered to get a life-sized cardboard cut-out of me, which she could then take around town and take pictures with it every few days and post the pictures to Facebook – so my friends would “see” that I’m okay. (Since I still haven’t been able to make myself get back on there and socializing again… heh)

Also got caught up with Bri and Cassi… both of whom are dealing with various crap, but they also both seem to have a pretty good handle on things – or at least are doing their best to fake it as they deal with their respective crap. Not only did Bri have to take her youngest son to Children’s for some more tests on Friday, but then today she has her final custody hearing. However it all goes, I’m still impressed with how well she’s dealing with it all, despite obviously being nervous (and me being nervous right along with her), she’s just facing things and tackling them as they come. Same thing with Cassi, just with different issues. I could learn something from both of them when it comes to that.

In fact, I think that’s what helped my weekend (and even today, so far) feel pretty decent. Living a little more “in the moment” than usual. Reminding myself that constantly worrying about things that might not happen for several weeks… there’s just no point to it. You get things settled in your mind and in your plans as best as you can, and then you put it out of your thoughts until it’s time to actually deal with whatever it is. I mean, that’s not a new theory to me, but it’s something I’ve always struggled with. But watching and listening as others deal with some serious shit, and seeing how they do it without letting it crush them, it could be in my best interest to emulate how they do it.

And for good reasons and bad reasons, I found that “cats” ended up being a frequent topic of the weekend… and while talking to Genesee, I had her remind me about the whole story of Maven’s birth. I won’t go through it all, but basically Maven was lucky to have even survived – which made me remark how lucky she (Maven) was. And Genesee replied thatΒ she and IΒ were the lucky ones, considering the influence that Maven has had on both of our lives… and I definitely can’t disagree with that. But it was neat hearing the whole story again, with her lazy butt sleeping next to me by the space heater, and realizing how much she overcame in her first few days and weeks.

So, yeah… I guess it’s sort of crappy that just an “okay” weekend like that feels like such a positive improvement, but it really was a decent couple of days – and I needed it. And like I said, I’m gonna try to follow the lead of the folks that I know who are dealing with just as much as me, if not more, to try and keep the stressful stuff from weighing me down so much. Disability and pain are a couple of challenging adversaries when it comes to that… so not only do I need to embrace the good days when they come, but I also need to do more to nudge the “less good” days in the right direction whenever possible.

(Sorry, I can’t be arsed to go back through and add all the normal emojis today… just gonna hop off here and see where the rest of the day takes me since I’m not feeling too gimped up at the moment.)

Small Steps… Always

Still not much going on lately. πŸ˜πŸ€·πŸ»β€β™‚οΈ I’ve been continuing the incremental bits of cleaning and packing up of stuff, spreading the work out over time so I don’t excessively aggravate any of my gimpy parts. I wish that it made a bigger visual difference in the house, but honestly most of what I’ve been doing has revolved around cleaning out closets, working in the (rarely used) basement, and cleaning out various junk drawers. It’s nice to get my desk organized though, with all the “office stuff” that used to be scattered around the house. πŸ€“

It’s still being done mostly for the sake of “doing something” during my otherwise lackluster days, along with the feeling of accomplishment when a long-delayed project / task is finally finished. πŸ˜•πŸ€·πŸ»β€β™‚οΈ I’m not usually thinking about it, but it’s feeling more and more like I’m subconsciously preparing the house and myself to eventually move out of here. πŸ€”πŸ€¨ I’ve talked about the reasons before, which are all still valid, but when I’m not getting any younger and have been dealing with my various health problems – I think I just wanna be closer to town, people, stores, fast food, civilization, etc… just for convenience sake, if nothing else.

Meh… like I said, it’s not something that’s in my thoughts most days, but the idea is there. And in the same way that I’ve had to make adjustments to my daily life due to my disability and thyroid / energy issues, I can just see how being closer to all that stuff in general could make life easier and more bearable when it comes to the things that are a little more challenging for me. πŸ‘¨πŸ»β€πŸ¦―πŸ€• I’ve got several friends that are feeling similarly, as they realize they’re a little more isolated than they’d like, so I think that’s also partially motivating me. Where do I want to live? 😐 Who knows. πŸ˜… But at least the chores that I do, essentially just to give myself some purpose, is preparing me for whenever I might be ready for whatever the next phase will be.

Improving

Went out and did actual grocery shopping yesterday. It’s been a long time since I’ve gone anywhere other than Dollar General or a quicky mart to just stock up on little random amounts of this or that to keep me going. But being run down for a couple of weeks and not making those little trips… I finally burned through pretty much everything in the fridge and cupboards. That’s good, I guess – I mean, that’s what some of the food was… shit that I could eat when I ran out of stuff that I wanted to eat. Well, that’s not exactly right, but you know what I mean. “Four cans of beets? Okay, I guess I’m going to be eating some beets today.”Β πŸ˜πŸ€·πŸ»β€β™‚οΈ

It did take some energy out of me, but not like it would have done a week ago, or two weeks ago… so that’s one positive thing, that I’m definitely getting some of my energy back. Shopping is one of my least favorite things to do, so I ended up spending about $250… hopefully getting stuff that will last me a long damn time, other than stopping off for bread or pop or the other stuff that you always need to replenish before “the next shopping trip” wherever.

What’s funny though, is that when Gen and I were messaging last night, she asked me what all I got – and I legit had no idea. πŸ€”πŸ˜ Granted, I was already in bed, so my brain wasn’t trying that hard to remember… but I really think my brain put up a firewall while I was shopping. πŸ‘¨β€πŸ‘©β€πŸ‘¦πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦πŸ‘©β€πŸ‘§β€πŸ‘¦Β Β βž–πŸ›’πŸ˜βž–Β πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦πŸ‘©β€πŸ‘§β€πŸ‘§πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘§Β  Β Knowing that I was already running on much lower energy, doing something that already causes annoyingly inexplicable anxiety at times, I couldn’t tell you what a single person looked like or did as I passed them in the aisle. No, wait, I remember some lady in the frozen section yelling at her kids for wanting to get the ready-made frozen lasagna – because she had already loaded her cart with all the things to make it from scratch. Oh, and I don’t remember my cashier, but the bagger chick was lightning fast… with all my shit bagged, back in the cart, and her moving on to the next station before my receipt even finished printing. πŸ˜ƒπŸ‘πŸ»

I finally ran out of juice once I got home and unloaded, but I did get all the cold shit put away – which means I have a kitchen floor full of bags waiting for me once I drag my ass out of the bedroom today. πŸ˜’ But it was just being worn out… not that “Oops I fell asleep for three hours” shit that was happening far too often a couple weeks prior. That’s really the only reason I’m posting about what 95% of people don’t even have to think about… a typical “big” shopping trip… because it hasn’t been that long since just walking out into the back yard to spray some weeds would put me out of commission. Just glad to know the thyroid meds are pushing me back in the right direction… and hoping that my uncharacteristic optimism here doesn’t jinx me for my appointment tomorrow. Also, plans for today are very limited… not falling for that “Ahh, I’m better!” shit and then ending up wiping myself out anyway after yesterday’s progress. 😏 Basically gonna take this as another “day off” after I get the rest of the shit put away and the laundry started…

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Less Bad, Overall

They came and plucked / cut all of the bushes out the other day. πŸ™‚ I don’t know why it made me feel so awkward, sitting in the house doing nothing while other people were out in my yard taking care of things… but I thought about the x-ray results of my knee, how nothing was apparently wrong, and whether I wanted to do physical therapy – and all of those thoughts resulted in me doing quite a bit of work inside the house over the past couple of days.

I figure that physical therapy would be “Yeah, I know it hurts, but keep moving your knee.” so I decided if I was going to hurt, it would be for something useful… something that allowed me to feel productive instead of sitting around like a turd while other people did work outside that I still feel (even though I physically can’t) like I should be taking care of myself. 😟 They did a great job though, and left the area in a condition where all I’m gonna have to do is spray a little poison on the nubs that didn’t get plucked, and then spread some grass seed (actually, quite a bit) and cross my fingers.

Inside, it was basically just a continuation of what I’ve been off-and-on working towards. The yellow bedroom is never actually used as a bedroom, so I donated the bed from that room to Bri when she got her apartment. Now, that’s my new “auction / sale” staging area. So a lot of what I did was just moving boxes from one bedroom to another, but getting it sorted much better and stacked more efficiently… keeping the more valuable things in their own area, separate from the random household goods or whatever.

It was frustrating, only being able to do a couple boxes at a time before taking another break for my knee… but I just spent a couple of days “keepin’ at it” and even getting several more tubs and boxes packed with stuff and stacked with everything else. πŸ™‚ It’s still frustrating that it took me two days to do something that would normally have taken an afternoon at the most, but I wanted to keep moving – but with breaks so I could tell if I was making my knee worse. 🀨 Which, luckily (and surprisingly) I don’t think it was. It doesn’t feel good now, but it’s actually slightly better than before I started doing all this… so, who knows, maybe my slow-ass self-PT’ing is working. πŸ€·πŸ»β€β™‚οΈ

I did take today off though, because the next logical step that I would be taking is working in the basement, either packing stuff down there and trying to carry tubs and boxes up the stairs, or bringing individual items up one at a time and packing them upstairs… and I can’t quite trust my knee enough to consider either of those things. πŸ˜’Β I guess I could just take the laptop and go down there with the intention of staying down there and working, letting Netflix play in the background, and just wait until things are better before I try to haul anything upstairs. πŸ€” Meh… could have done that today actually… but after two days of solid “going” it’s probably better that I didn’t confine myself to the basement today.

I’ve basically stayed offline, I’ve been ignoring most of my messages… but to have the oomph to do what I’ve been doing, I needed to unplug and just do my stuff in my own little bubble here. 😞 That’s a sucky thing, I’ll admit, but at least I get to feel good about finally getting a good amount of something done around here, after over a month of my knee making sure that that wasn’t likely to happen.

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. πŸ˜’ They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🀨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. πŸ€·πŸ»β€β™‚οΈ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that didΒ look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in thatΒ previousΒ situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. πŸ‘πŸ»

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill dealΒ  – which will hopefully be a one time thing followed by close monitoring. 🀞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessingΒ that’sΒ gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. πŸ€” It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. πŸ™‚ Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…

You Might Not See It

Despite all my bitching, I can at least say that I’m doing better than I was several months ago – at least regarding my anxiety, my “twitchy”, and whatever other random weird mental things affect me. 😡 I’m obviously going to have setbacks, where I kinda just retreat into my shell (like today), but considering that just a few months ago I wasn’t talking to hardly any of my friends, wasn’t really visiting with Mom and Dad, had no desire to do pretty much anything… where I’m at right now is objectively better, even though a lot of times it doesn’t feel that way to me.

But I’ve been back on email with Dad for a couple months now, after essentially abandoning email as a whole over a year ago… and I know, it sounds weird, and it’s even harder to explain how “anxiety” and “email” can go together… but yeah, more emails, more visits, reaching out to friends – slowly, one at a time… I’m doing so much more than I was able to or wanted to do just a handful of months ago.

I don’t necessarily like admitting how messed up my brain can be, but what can I do? It’s me. 😐 So I think it’s fair to look at my slow but steady progress on these dumb, sometimes inexplicable anxiety issues and feel at least a bit better about it. I know I don’t function like a “normal” human, not by any stretch of the definition… and I know that my occasional communication drop-outs or disappearances by me are still frustrating and hard for friends and family to understand – but they pretty much “get me” now, at least as best as I can be “gotten” I suppose.

Hmm… this counts as posting something positive, right? πŸ€·πŸ»β€β™‚οΈ (Even though today is fucked. 😏)