Carry On

Well, Genesee made it home safely a little bit ago, so now officially starts the time of “carrying on” I guess. When all the condolences have been given, everyone’s concern has been shown, etc… so now it’s just back to normal. As much as I appreciated the company, I’m glad that I’m gonna have a couple days and nights where it’s just me and the cat. I can feel crappy if I want, I can feel good if I want, and I can talk out loud to Mom if I want. I could have done all that with Genesee here, but you know how it is when you have company… you want it to be the best experience for them, and right now I’m definitely not the person to be around for the best experience. Meh… I know it sounds weird, but she understands.

In a way it was difficult to make myself do it, but yesterday I took Brianna to her “4D Ultrasound” appointment. She’s approaching 32 weeks, I believe, so she wanted to see if they would be able to get any good pictures of her yet-to-be-popped-out baby. At first he had his hands (and a foot) blocking the view, but after a little poking he moved around and the technician was able to get a handful of really good shots. It’s pretty remarkable… you can actually get a decent idea of how his features look, with his Brantley-like ducky lips, Brianna’s chin and nose, and the daddy’s brow line. She has already been ready to squeeze this kid out, and seeing the pictures in such detail only made that feeling even stronger. I think he needs to cook for a couple more weeks… but she’s right, the time is definitely getting closer. I’m glad that I went.

Meh… I dunno… I just felt like typing something I guess. Not really planning to socialize much for a few days. I just wanna be here in my thoughts, feelings, and memories. Of course I’ve got a doctor appointment tomorrow, so that kinda craps up my isolation plans a bit, but it’s one where I don’t really have a choice. Not really sure what I’m gonna do other than that, but after the weekend I’m probably gonna go in and visit Dad. I’ve got that new batch of scanned photos on the iPad, and rather than just e-mailing them to him, I figured it would be nice to look at them together so he might be able to tell me stories relating to them that I haven’t heard before.

Okay… checking out. Wish me luck. (Sorry for the lack of emojis… maybe next time)

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Where To Even Start?

This is probably the fifth or sixth time since last Sunday that I’ve opened up the blog editor and just sat here, staring at the blank screen, unable to come up with “the right words” that would end up being the first post that I’ve made since Mom passed away. I think I just need to accept that right now I just don’t have the right words. If I waited until I could come up with something exceptionally eloquent or thoughtful, there’s a good chance I wouldn’t even update this blog anymore.

Mom’s passing wasn’t unexpected, so a person might be tempted (for that reason) to think that they’ll be ready for it when it happens… but nope, that’s not how it works. It’s been almost a week now, and my brain still hasn’t decided how it wants to handle it. Nothing is “normal” about the days immediately following someone’s death, so we probably won’t really start feeling it until we all settle back into our normal routines.

I was there to support Cassi when her aunt passed away, I was there for Genesee when her dad passed away, and I was there for Brianna when her mom passed away just a few months ago… so of course they’re all being super supportive for me now. And as you’d expect, all of the family has been texting, calling, talking, and supporting each other… but with all of that fuss (which I absolutely appreciate) it doesn’t really let you feel how your brain will eventually decide that it wants to feel. That’ll probably start happening a little more around the middle of this coming week, in large part due to Genesee (who came to Ohio almost as soon as she got the news) returning home around that time.

It ends up being kinda perfect though. Having all of the company and support has actually been a good thing for me… but I’m also looking forward to things going back to normal, because I know I’m gonna have days where I want to be absolutely alone, to feel however I wanna feel about it, and without feeling like I have to act this way or that way, or appear strong for someone else’s sake when maybe I don’t want to.

I dunno… that’s all I really care to say right now. Not because I don’t have a billion thoughts and feelings and memories that I could talk about, but because my goal for this post was to just finally acknowledge it and put it out here. Besides, no matter how much I might talk about Mom, there’s simply nothing that I could say that would do her the justice that she deserves. So rather than be awkward and weird and possibly ending up saying the wrong thing due to my brain being a little fried, I’m just gonna leave it like this for now.

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.) I mean, how many times have I bitched here myself about how nearly every damn month I have to make multiple calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that they still seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)

LOAD”*”,8,1 … READY … RUN

I don’t want tomorrow to feel like today did, so I’m gonna try my hardest to push aside all of the bad things in my mind – and hopefully do some things that I know should be fun. It’s so strange how the past few years have kinda stolen “fun” in general from me. I’ve got two current game systems, several different cameras, that Playstation VR system I haven’t even set up yet, a couple decent musical keyboards, the C64 Mini system I got the other day… and all of it just sits here.

I think the more that bad, sad, or unfortunate things started happening to me, my friends, and my family… the less able I’ve been to allow myself to have fun. Even if I have moments where I’m not feeling bad about my own shit, I guess I sorta feel like it’s not right for me to have fun when some of my friends and family are dealing with their own bad, sad, unfortunate shit. I know it’s dumb, and I kinda know how I got here… but that doesn’t matter… what matters is changing my way of thinking and letting myself just enjoy shit now and then.

I have to just accept that some people might roll their eyes or have something shitty to say if they think I should be doing “this” when I decide to do “that” – because if I live my life making sure I make everyone else happy… well, that’s just some bullshit… but believe it or not that’s how I’ve been for a long while now.

Meh… but anyway, tomorrow has to be different. I think once I straighten up the living room a little bit I’m gonna hook up both the C64 Mini and the PSVR. Who would have thought, back in the late 80s, when Mom, Dad, and Aunt C bought me a C64C, 1541-II disk drive, Okidata 120 dot matrix printer, and 13″ color TV… that almost 30 years later I’d be so excited to have a baby version of that old computer that I can play on my 50″ HDTV. Oh, and I also have that CD of scanned slides that I still need to check out.

So many things stuck with me from my childhood. The computers, the classic video games, the nerdy interest in photography, radio, musical keyboards, and tech in general -and even a lot of the music from back then that still means the most to me… all of those started as these little seeds that were planted back then, which are still growing strong in me to this day. Well, maybe not “strong” for some of them, but I still want them to be…

Tomorrow’s gonna be different. Even if it’s just tomorrow.

Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got back home I learned that Christina was gone. 😔

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

Too Lengthy For People To Care

This is the post I made to Facebook yesterday. I guess it’s worth sharing here…


  • I dare you to read all of this 😏

  • Most of us were raised to not be assholes. To not be racists, not be sexist, conduct ourselves in the way that we’d like to be treated, etc. And for a good long time that worked, and people in general conducted themselves in a pretty respectable way.

  • But I don’t think people acted like that because they *wanted* to, or because that’s how they were programmed… I think a lot of folks acted that way because they assumed there would be a down side or backlash if they acted like selfish buttholes.

  • And that’s why we now have a *whole* lot more crappy people than we did even a decade ago, because the more that people have seen high profile people acting like nutsacks and not paying any price whatsoever – a lot of folks decided that “decent, kind human being” wasn’t for them.

  • It just fed on itself at that point… because the more you see shitty people getting away with shitty things, the more that other people will decide to follow that shitty path – since it’s working so well for the others. More shitty people breeds more shitty people, sometimes literally heh

  • It just seems that more and more, people are going to do what benefits them, with less consideration of others. If someone doesn’t agree with you, don’t bother discussing it with them… just put them down, make fun of them, get your friends in on it too.

  • Have you always wished that fewer darkies would move into the neighborhood? Go ahead and let your other racist friends know too, because there’s strength in numbers, right? Get enough people that agree with you and you won’t even need to hide it anymore.

  • Getting tired of your wife/husband/girlfriend/boyfriend? Good news… you don’t actually have to split up with them. Keep them around for the few good things they can do for you, and just get yourself someone on the side for all the other stuff. Chances are, even if your significant other finds out, they’ll stay with you anyway. So why deprive yourself of other strange?

  • Oh, and if something doesn’t go your way, make sure you absolve yourself of any responsibility … because playing the victim is how we do things now. Nothing is actually your fault, and fuck anyone who even suggests it. This includes babies. Did your girl go and get herself pregnant? Well that shit sure wasn’t *your* idea, so why should *you* be expected to do anything to help out?

  • Another thing… if you ever actually *are* wrong about something, for God’s sake NEVER admit it! Admitting you’re wrong or have made a mistake… WEAKNESS. You don’t want to be a pussy, do you? And of course if you never admit you’re wrong about anything, ever, then you’ll never need to apologize for anything. Apologize to someone and they’ll have that to hold over your head forever.

  • Someone wants to merge in front of you on the highway? Fuck that guy. He should have planned ahead better. Someone taking too long with their order at McDonalds? Roll your eyes, bitch about it under your breath, and by all means make sure you take it out on the cashier once you finally get to order. And if you use the restroom first and accidentally piss on the seat… just leave it – someone “lesser than you” gets paid to clean up shit like that anyway.

  • At school or work, especially if you’re insecure about yourself, make sure you team up with as many other insecure people as you can – because then you can be an entire *gang* of insecure assholes who can lash out at anyone even weaker than you. Nothing makes a person feel *better* than making another person feel *worse*. And yes, I know you were probably raised to not do any of these things … but trust me, nobody cares anymore, so why waste your time trying to be “good?”

  • Agree? No?

“Customer Service”

Might as well continue my bitching into Tuesday. 😒 Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy. 🙁 Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment. 🤕 That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes could help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I could (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either. 🤷🏻‍♂️

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.