Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… 😏 but cripes, that little bit of work messed me up somethin’ fierce. πŸ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. πŸ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. πŸ™πŸ»πŸ€·πŸ»β€β™‚οΈ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed 😳 yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. πŸ§Ÿβ€β™‚οΈπŸ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. πŸ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. πŸ€·πŸ»β€β™‚οΈ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. πŸ™„ Sitting here, happy that I had enough mental/physical oomph to write this. πŸ˜πŸ€·πŸ»β€β™‚οΈ

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Bubble Doesn’t Always Work

It’s been a rough, rough week… but I’m not even gonna talk about all of it. I don’t want to take the chance of spreading more negative emotions just because it helps me to get things off my chest. Going to bed early tonight. Hoping for a reset of my body and mind. Glad I made it through the week… sadly, the same can’t be said for one of my old friends from school. He was a couple grades ahead of me, so I was actually closer to his little brother. Definitely one of those things where nobody even saw it coming. But yeah, I’m tired of this week… so the sooner I get to sleep, the sooner it will be over and I can try to start fresh.

Happy (late) birthday, Dad…Β  trying to get good enough where I can visit soon. Sorry… that’s all I can say. 😞

Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…

Variety Week

I actually thought about making an entry over the weekend, but the prior few days were pretty eventful, and I knew today could be as well… so yeah, I basically actually just treated my weekend as a weekend, other than finally cleaning the kitchen and doing up all my bills.

Bri had her baby on Wednesday. 😊 I didn’t make it in there at 6am like she had to do, but I was there a few hours later and stayed several more hours… taking a break to go home, since I could tell it was gonna take a while. And in that time I was able to help Dad get his car back from the repair shop after getting the AC serviced. (Hmm… AC serviced… we’ll come back to that.) As I was ready to head back to my house after that, Bri messaged me that she finally had him (9 hours of labor… yikes…) and she wanted me to come back to the hospital.

Of course I went back in the next day as well to visit them… and as you may know, whenever I do an extensive amount of “stuff” sometimes my body’s like “Okay, that’s enough out of you” and I kind of crap out. 😏 And that’s pretty much what happened. But it didn’t end there. Later in the evening, Cassi called in a mild freak-out, because her cat was getting ready to deliver her kittens and seemed to be having trouble and was making all kinds of awful sounding noises – so she wanted me to come up, just in case we had to take her to an emergency vet.

You know, they may have actually been Friday. πŸ€” That’s how frazzled my brain was. I dunno, it was late in the evening and it was on a day where the last thing I wanted to do was to “do anything” at that point. Hence taking the weekend off for the most part. But I slept well last night, had a comforting dream… which of course I remember zero details from… but woke up feeling good enough to go out and use the hand trimmer to clear up the tiny branches growing out of the trunks of my crabapple (I think)Β trees so the mowers aren’t at risk of losing an eye around them… along with cutting out some other “trying to grow” baby trees popping up in weird places in the yard.

That wasn’t an intended part of the day though, so I’m just taking that as a bonus, because today was when the AC repair guys came to check out the furnace and AC. 😐 Long story short, I went ahead and opted to have a new one installed. 😣 The current unit is about 20 years old, any replacement parts (the compressor, specifically) would have to be a used part, the refrigerant used isn’t available anymore… just lots of things that made replacement the smarter (yet more expensive) decision. Whether I live here until I die, or if I sell the house in a year and move into an apartment or whatever… it’s just the better, yet painful choice. πŸ€·πŸ»β€β™‚οΈ

He gave me the estimate, but is gonna officially type it all up and send me an itemized version later this afternoon for me to sign. So I’m a little twitchy right now, but really, I’m not even paying for it. πŸ™‚ When Mom passed, her and Dad made sure that she left me some money, so technically Mom is going to be buying a new central AC system for me. That makes it a heck of a lot easier to think about. Okay… I need to give my head a break for a bit, but should be checking emails later this evening.

Now We’re Cookin’

Another long day of medical stuff. Nothing really new or concerning. So, so much data from all the labs and pathology and whatever… some of the most recent stuff hadn’t even been interpreted so it was presented in its pure data form, but there was still enough “plain english” stuff for him to form his opinion and explain things very clearly. It turns out that not only was the cancer in my left lymph node, but they also found (after the fact) that there was a “micro-tumor” in the right one as well… so it’s good that they sliced them both out to be safe.

The thing that made the overall picture slightly better today is that they also tested the nearby lymph node and the results showed no cancer cells there. So, yeah, it’s just a test, it’s hard to say how accurate it really is, but I’ll take the good news… so we’re gonna go with that for now. Defective thyroid removed, and no cancer in the nearby lymph node. He also made some adjustments to my meds which should help me battle the lack of energy and accidental naps, and I’ll start taking those tomorrow.

The other positive thing from this appointment is that one of the bigger balls is now in motion. I doΒ have to go through the radioactive iodine treatment, which is meant to catch any random cancer cells that may still be hiding out, but there’s not a huge urgency to it – so I won’t start until this time next month. It had to be that way due to my other appointments and schedule, because there’s a 7-day period where I’m supposed to remain isolated so I don’t contaminate the unwashed public by my presence… so of course I wouldn’t wanna see Dr Walter and Nicole during that time.

The process will begin with me getting some sort of injection (to mask the effect of the thyroid medication) on Monday and Tuesday, followed by the actual radiation stuff on Wednesday. After that part is completed I then have to go for a full body scan. I think that’s the next thing that I’m actually nervous about. It’s meant to see if anything was missed, anywhere, and to have a scan to use as a (hopefully) successful baseline for another full scan six months after that. So yeah, it’s quite the glob of activity coming up here soon.

Pass The Baton / Kick The Can

I didn’t do my bills last night, but I’m doing them now. πŸ˜’ They’re enough of a pain in the ass that I think I deserve an intermission, so I figured I’d jump over here and drop a few paragraphs. I knocked out the easy ones… gas, electric, internet, etc… but all of the fun medical related ones are starting to come in, and I want to pay closer attention as they nickel and dime me. 🀨 Mostly just to make sure that they don’t nickel and dime me over the same test, scan, procedure, or person twice.

My appointment today? Well, I guess it was okay. πŸ€·πŸ»β€β™‚οΈ He said that the pathology reports on the tissue removed during my surgery was exactly what the pre-surgery biopsy had suggested, and that it’s the most common and most treatable type of thyroid cancer. 😐 Bleh… I don’t like using that word, so don’t expect to see it get used much here. 😷 So, it was a good follow-up, with the labs at least not coming back with something scarier than already thought. And I really pushed him for his true opinion. I told him not to bullshit me, and asked him if he had any “gasp” moments during the surgery.

Like I told him, before I was able to get workers comp to pay for my C5-C7 fusion surgery, I had to get an MRI done – with several doctors and medical assistant folks looking at the results, which showed some pretty severe damage. 🧐 And each one that didΒ look at it… it gave them a “gasp” moment. 😧

Where even a trained medical professional was like Wow. 😳 or Damn. 😯 or Holy shit. 😱

I explained how that helped me in thatΒ previousΒ situation, as it got everything approved and moving much more quickly… but that a “gasp” moment now isn’t something that I was hoping for, but that I still wanted him to tell me if it happened to him while he was digging around inside my neck. 😐 His reply seemed genuine (as usual) when he said that nothing was any more concerning to him once he was in there than when he was anticipating how it would look and how it would go. πŸ‘πŸ»

He explained that there was inflammation, but no more than he was expecting. He said that nothing gave him any kind of pause, that the surgery went as well as he could have hoped for, and that I don’t need to worry so much at this point. (Easier said than done, pal… 😏) I’m getting more blood drawn tomorrow, and he’s referring me to an endocrinologist in the same building that will hopefully help get my screwed up levels straightened out, as well as likely doing (or scheduling) this marker/radiation pill dealΒ  – which will hopefully be a one time thing followed by close monitoring. 🀞🏻

I figure I’ll save the questions about if/when I’ll have to see an oncologist, although I’m guessingΒ that’sΒ gonna be the doctor that would be doing the marker/radiation pill deal that I just mentioned, now that I think about it. πŸ€” It’s a little frustrating to be handed off from specialist to specialist, but better to have a whole bunch of different eyes on the situation than just one d00d who might not know what he’s doing, right?

So today’s follow-up… I’ll take it as a positive outcome. πŸ™‚ Didn’t really learn anything new, but learning that the labs confirmed what the initial tests suggested, and nothing worse… that’s sure better than the alternative. Also, having the whole “Don’t BS me, doc.” conversation, with the way he replied… it did actually make me feel a little more comfortable with the whole thing in my head. And so it goes…

Abundance Of Caution

We’re down to about a week-and-a-half before my surgery. 😳 And let me tell you, I’ve been dealing with some serious anxiety issues since the beginning of this past week – and I’m finding it hard to shake. πŸ˜₯ I’m right on the edge, always, and the slightest thing will push me over into labored breathing, chest pains, dizziness, etc. 😟 So while it might make me “difficult” in some people’s minds between now and my surgery, I’ve got to do whatever it takes to keep my anxiety levels low, or at least unchanged if I’m still managing to hang on to being okay.

It’s kind of embarrassing, but I honestly need to keep myself in a mental health bubble for the next 10 days. πŸ˜’ I don’t want anything to happen that will risk me not being able to have the surgery when scheduled, and going to the ER for a panic attack with severe chest pains probably wouldn’t help that cause. πŸ˜• Now, I am gonna tell the doctors and surgeon everything that I’ve experienced up to that point, before I go in, because I absolutely want them to know… but yeah, right now is not the time for me to deal with anything that I don’t absolutely need to deal with.

Cassi helped with that over the past couple of days. πŸ€·πŸ»β€β™‚οΈπŸ˜ I went and got her on Thursday after she got off work, because she had two days off in a row and wanted to spend them here with me. ☺ We never figured out how to make our “couple” relationship work, but boy are we good at being each other’s “person” in times of need. And it’s because neither of us need much… just the distraction from our respective lives that’s somehow provided by just being in each other’s presence.

As for what we did over those two days… there’s really not much to talk about. We just plop down in the living room, turn on Grey’s Anatomy on Netflix, and just sit with each other and watch, talk, eat mac and cheese… heh… just “normal” stuff that doesn’t add to the anxiety. The only times it got a little rough for both of us was when one of the episodes would be about thyroids or cancer and the results. Probably shouldn’t have watched those particular episodes, but it’s also good to think about everything realistically, all of the potential outcomes – and letting myself cry a little bit and be scared with her… it was much better than doing that same thing by myself. πŸ™‚

So yeah, the last couple of days were really nice, and really needed… and today, well, I’m calling it “a day off” since I don’t intend to do much (if any) communicating with anyone, and instead focus on things that I just personally need to do before it’s time for my surgery. 😊 The doctors and surgeon haven’t give me any reason to worry about the surgery. None. But you know how it is… you still wanna kinda get things in order, just to give yourself that peace of mind. And doing that sorta thing makes me feel better… makes me feel productive, which is something I always aim for.

Mood is good… I’m hangin’ in there.