Medically Deferred Deportation?

I’m gonna try to do a mental reset tomorrow, and get all this workers comp stuff out of my head until a hearing is scheduled and things are closer to being in motion in that regard. I did what I needed to do in so far as writing a response to claims in the report, so I can’t let the frustration and annoyance linger when there’s nothing else that I can do.

Plus I’m watching Rachel Maddow right now, and she’s covering the topic of people who are in the United States who have been receiving some sort of deferred deportation due to medical conditions that they have, for which they are receiving treatment within the United States. Apparently there are still plans in place which will remove that protection from at least some of the people who are getting life-saving treatment here. Treatment that they wouldn’t be able to get if they were sent out of the country… so that helps to put my problems into context.

Yeah, all of the stuff I’m going through is a giant pain in the ass, and there are significant implications to my future medical care that will be decided based on these current reports I’ve been talking about… and yeah, it’s really working my anxiety. But it’s nothing like what those people are facing. I can’t even imagine being previously allowed to stay in the country because you’re getting life-saving treatment, only to be told that nope – you have to leave the country within the next 30 days, which essentially sentences some of those people to death. It must be nearly impossible to process that news.

So yeah, what I’m dealing with feels unfair, unjust, and uncalled for… and I know how awful just that makes me feel – but man, how does your mind react when you find out that the country is kicking you out, and sorry about your luck when it comes to your medical treatment. Ugh…

And this isn’t even meant to be a political post. I don’t know how these “medically deferred deportation” people got here… whether they have visas, whether they were brought illegally as kids, whether they were originally granted entrance because they were seeking medical care and the administration changed its mind… because it kind of doesn’t matter. What matters is one moment they’re legally allowed to be here and get their treatment, and the next moment someone has decided that that particular program is no longer going to be allowed, at least in some circumstances, and they just have to go.

When you’re upset about your own shit, sometimes you forget how bad other people’s shit can be. πŸ˜•

Advertisements

Method To My Madness

You may or may not have noticed, but over the past many weeks – especially in the time right before and after my scan – I’ve been posting a lot more entries to the blog than usual. Even if not in quantity, I’ve definitely been ramblingΒ more than I typically do. Now that I’m most of the way past that phase, I’m probably gonna end up slowing a little with my postings – not necessarily on purpose, but because as things start to feel like they’re returning to normal I have a feeling I just won’t feel like I need to post quite as much.

There’s no way to explain to someone who hasn’t gone through it, how it feels to sit with an unspecified amount of cancer in your body, jumping through all of the hoops for the tests, which includes gradually wearing down your energy levels to nothing, and then just sitting there, not knowing, waiting, worrying, hoping, etc. 😟 There isn’t an emotion that you don’t experience, ranging from hoping that it’s completely gone – to hoping that if it isn’t gone, that you at least get an expiration date… just to finally get rid of the uncertaintyΒ more than anything else. 😞 I suppose I can only speak for myself, but I don’t see how anyone wouldn’t feel most of the things / ways that I’ve felt. πŸ€·πŸ»β€β™‚οΈ

But my way of dealing with all of that (or distracting myself from all of that) was by posting here. Didn’t necessarily want to talk to anyone about it in person, or in any detail or whatever… but also couldn’t just sit here and stay all bottled up about it. So whether my posts had something to do with my medical stuff or not, it’s been a big reason why I’ve been so active lately. Now, I’m not saying that I’m gonna stop blogging… I mean, rambling is sort of my thing, it’s more that I just wanted to come here and finally explain.

Of course it doesn’t help when in the middle of all that, I get new “neck stuff” (unrelated to cancer) to eventually be concerned about. πŸ˜’ It’s hard to stay positive and try to get back to normal when just as you’re finishing up with one thing, something else fairly big comes along right on the tail of the last thing. And that’s what a lot of my postings have been, whether they seem like it or not… trying to find the silver linings, trying to reassure or even convince myself that I have the ability to take the good for what it is, and work around whatever negatives are left after that. (Bleh… that sounds cheezy.)

I’m still not back to normal, but I’m definitely getting there. I found out, thanks to the festival, that even though my energy levels are a whole lot better – there’s still a wall there to be hit, and I still don’t get a sign when I’m approaching it. I’m assuming that’ll just continue to get better though, because it has so far. I’ve barely been doing anything with friends yet, and still haven’t been on Facebook for over a month now… so I’ve still got a few of those types of hurdles to get over, but it’ll all come in time. πŸ™‚ I’m not setting goals or time-frames or anything like that… just trying to always make sure that I keep moving forward with all of it. And as for the stuff that I’ll have to face in the future, whether it is spine related or cancer related (or something as of yet unforeseen), I can’t let it chew up all my thoughts and actions between now and whenever that will be.

So whether it helps me because I’m just getting stuff out, or because it also helps to reinforce the positive thoughts… whatever it is, it’s just what I’ve needed to do during this more-uncertain time in my life. πŸ€·πŸ»β€β™‚οΈ But as I continue to get better, it should require less energy (or rambling about it) in order to keep the progress going. I made it up and over the most recent hill, so now I can hopefully start to coast a little more if that’s what I decide to do.

Meh… I could obviously continue with more on this topic, but this basically explains what I wanted to be explained. We’re all works in progress, and I’m no different. And if it’s not one of the issues that I’m currently focused on, there’s always gonna be something else that tries to damage my calm and toss some grenades in my life’s direction. 😟 I’m just hoping that I can take the things that I’ve learned from dealing with the current situations and apply them to those other things when needed. πŸ™‚ Maybe get a little better with the “ups and downs” since we all seem to come with an endless supply.

Nuclear Medicine

Had the same lady as last time give me the radioactive iodine dose today. I’m not sure if they all act this way, but she’s fun… not intentionally, but in the way that she makes it feel so dramatic. 😏 And I get it, she works in that department every day, so a person’s gonna want to keep as far away from all the radioactive stuff as possible, so I don’t blame her. πŸ‘©πŸ»β€βš•οΈΒ …Β πŸ₯’πŸ’Šβ˜’οΈΒ Β πŸ€’Β It also has the side effect of making it seem like this pill is reallyΒ going to be doing something, whatever that something may be.

Before they even bring the pill in, she had me go through a practice run – having me put my hands exactly where they need to be, telling me how to get the pill out of the container without touching it or anything else, and then how to gtfo while having to pass near as few people as possible. Of course once the lead container is opened and the pill is out, she stays as far away from it and me as possible – but, probably just from habit, that’s mostly how she acts even through all of the tedious paperwork and talking beforehand.

img_3525

Don’t mind how dusty my entertainment screen is (or the custom commands 😏), but I’ve decided to take this as a sign… this was the first song that played (at random)Β in the car as I left the hospital parking lot. (Video Link: Back to Life – Hailee Steinfeld)Β I’ll even give credit to Mom, since I was talking to her on the way in, asking that if she was able to give any help guiding the medicine during the process this morning, that I’d be happy to take it. 😌 Oh, and they remarked how shit my thyroid levels are (in a good way, for the dose/scan anyway) and it’s no wonder I feel like utter shit and fall asleep all the time. So, there’s that. πŸ€·πŸ»β€β™‚οΈπŸ˜Ÿ

Still can’t start up my meds until after the scan, and until after the doctor has reviewed the results to make sure that they “came out okay” for lack of a better term. It’s a typical long test where you have to lie still in a tube for about 45 minutes, so there’s always a chance there could be some sort of blur or error or something, to where they’d wanna do it again in a few days or whatever. 🀨 But with any luck, by this weekend I’ll be on my way “back to life” at least in as far as my thyroid and energy levels are concerned. πŸ€πŸ™πŸ»πŸ™‚

Unfortunately, I’ll have to avoid stuff likeΒ this until I’m less radioactive. 😟 Wish she could understand.

Oh C’mon…

Getting a half-way decent night of sleep didn’t do anything to recharge my batteries for any significant use today. Of course I do have a little more on my mind than usual, but that wasn’t what was bothering me today. Actually, I didn’t realize that anything was bothering me today – until it did. Around noon I went outside to use my little air compressor to air up my tires, since that was something I could just do in the driveway without having to drive into town or anything. Figured that was within my ability today.

Spent about ten minutes doing that. It was in the sun, yeah, but it wasn’t like it was actually that hot out. But yeah, so I was just waiting in the normal sun as my slow compressor topped off two of my tires… and when I went back inside, I fell asleep within minutes and didn’t wake up until almost two hours later. So bizarre. I wasn’t tired, wasn’t sleepy, and that’s all that I did… but *ploop*… I was out.

It’s still frustrating, and it still bothers me… but being so close to the end of this phase, at least I can think about it at the end of the day and smirk. It would be terrifying if this was just “how I’m gonna be from now on” but that’s not how it is. But knowing that something so truly small can trigger the “nope” button in my brain, which effectively shuts me down, it’s such a weird thing. Not a fan.

Hoping that I can get one more solid night of sleep under my belt tonight, and that maybe that will be enough to at least avoid any unintentional spontaneous naps tomorrow.

Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

Here Comes The Rain Again

It was interesting, yesterday at the pharmacy, as I tried to get all of my medications processed through the proper insurer, etc. When the lady told me that one of my WC meds had been denied again, I sort of jokingly apologized for my situation being such a pain in the ass for them each month – and said that I could pay cash for it and hope to be able to get a refund once it does get approved, but that I was sure there are probably dozens of other customers just like me and that I didn’t want to be even more hassle than I already had to be. 😏 The interesting part, and this isn’t the first time that someone there has at least hinted this towards me… but she said that in general, they don’t have many problems with workers comp customers, and was surprised (looking at my records in their system) how I seem to have the same trouble almost every month. πŸ€¨πŸ˜’ So it’s nice to feel like the complaints in my head are justified, but it doesn’t help when I want to reassure myself that it’s “nothing personal” against me. πŸ™„ Yeah, the appointment coming up this week, the requirement that my WC adjuster be contacted personally to approve the same meds I’ve been taking for years and years… it’s hard to pretend like it’s all a coincidence. 😞

But in the evening I managed to fall asleep relatively early, and then woke up in a cold sweat about an hour later after another awful nightmare. πŸ˜₯ Dad and I were out on Shepherd Hill, it was late in the evening, a storm was blowing in, and we were walking along the fence-line of the property… where everything was all overgrown, as if our houses there had been abandoned. 🀨 My cousin Jim was at our house, and was helping to pack up all of our valuable things before the storm hit… but Dad and I were still out in the cold and wind, looking for Mom. 😟 As it turned out, she was actually out in the garage, making a safe space for all the kittens to hide and safely ride out the storm.

By this point Jim, Uncle Jay, and some others had already taken their carloads of things and left, and Dad and I were trying to get Mom to come inside the house so we could get the last of our things and then leave as well. But having grown up in that house, she didn’t want to leave… and as the storm hit, it turned into a tornado. Pieces of the walls started giving way, window were breaking, parts of the floor were being pried up from the beams and thrown into the air, and the three of us took shelter in the doorway between the foyer and the kitchen – and could only watch as the house was being torn down around us. 😒

It was then that I woke up… so I didn’t actually “go through” the worst of what would have happened if I had stayed in that dream, but it was close enough. And it was one of those dreams that felt so real that the noise and wind blowing from the fan in my room… it took me a few seconds to realize / remember that it was just my fan, and not that storm blowing things around still. Luckily I’m still exhausted… not only from the past few days, but also from that nightmare… so I think I’m gonna be able to go back to sleep fairly easily. I just hope I don’t drop right back into that dream.

That’s one of my “talents” that I usually appreciate… being able to “resume” interrupted dreams, or having dreams that take place in certain fictional locations, but locations that are always the same in my dreams, making them seem as real as if I was sitting on my porch and looking out at my back yard. It’s usually a comforting feeling to have these made up, but specific dream “destinations” over multiple decades… but that’s not even how it was this time. This was our old house, it was the house that Mom grew up in, and it was too fucking real. 😣 I have “good” Mom and Dad dreams too, but I’m really learning to hate these bad ones.

Used to be I could be screwed up during the day for whatever reason, but at least I could count on “sleep” as a time where no matter how stressed, depressed, or screwed up I was feeling during the day – it would all go away at night. But these past couple of months, more often than not, the “twitchy” of the day just follows me into my dreams. A lot of days when I wake up, my first thought is “I can’t wait until this day is over so I can go back to sleep.” but, at least right now, I can’t even say that and mean it. 😞

I’m tired, boss…

Me? You Sure About That?

Another big part of my yesterday and the day before was spent trying to help a friend who’s going through some serious shit. 😒 Granted, if you’ve read many of my posts here, you’ll already know that I’ve got plenty of acquaintances, friends, and family that are going through their own personalized flavor of shit at the moment. πŸ˜• Some worse than others, some where I can help, and some where all I can do is just listen, try to understand, and hope and pray for the best. 😟 But man, this person’s state of mind over the past two days… let’s just say that it was very concerning. 😳

(I know this person doesn’t read my blog, nor does anyone that really know this person, so even though I’m sorta putting their business out here… it’s not something that will affect them, and even if they knew, I think they’d actually be okay with me posting about it anonymously like this. They know how I am… how a lot of times, processing my thoughts on the site here is just how I have to do things if I want to attempt to clear my brain of all the clutter…)

I am glad that I have people in my life who feel like I’m the right person to open up to, even when the topic is something as serious as it was… 😬 but I am so not the right person to be able to handle something like that right now. I mean, I did… because I had to… but not without getting completely emotionally drainedΒ (and actually physically ill from the stress of the conversation) and realizing how little I could do about any of their problems. πŸ₯ΊπŸ€’ But despite that, of course I’m glad that they turned to me… even if I was essentially helpless and basically only able to listen and talk things through with them.

The hardest thing about the drawn out text conversation was that as they’d mention this thing, the next thing, the thing after that… I could absolutely understand how the weight of all of those things piling up on them, seemingly all at once, could push them (or anybody, for that matter…) to the point where they’d just be ready to give up. 😒 It’s scary because it’s hard to know if you’re making a difference with what you say, when in the back of your mind, it’s like “Wow, yeah… I get it.”

But at least for now, I feel like our conversations helped. πŸ˜πŸ€·πŸ»β€β™‚οΈ Enough so that I might be able to sleep sometime tonight, and I’m finally able to eat something and keep it down. And I’m not saying that to give anyone any crap. If someone feels like their last resort is reaching out to someone, they do so knowing that it’s not going to be an easy conversation for either side, and that the person they are talking to cares enough about them that they’re going to get pretty messed up by the whole thing as well. πŸ˜• But as stressful as it is to be on the receiving end of that sort of conversation, I just know that I can only pray that someone would be willing to be that person for me if I ever felt like I’d run out of reasons to keep going.

I dunno, I just had to post this. πŸ€” Often times I still feel like people, in general, who know me… they’ve got this mental image of what I’m like, what my days are like, and that it usually falls somewhere between lazy” / “boring” / “uneventful” / “a little stressful” / “what’s he complaining about nowheh 😏 Sometimes I wish that they could spend a couple days in my head… to know how things reallyΒ can be. And as I typed that…Β just now realizing it, that’s probably what all of us want – even the people who feel like everything is crashing down around them… we just want someone to know, to try to understand, to realize that there’s so, so much more going on behind our “game faces” and other people’s assumptions. πŸ™πŸ»