I’ve Got Too Much *clap clap* Time On My Hay-unds

I’ll do this and that on any given day, but overall, my life feels like it has been on pause for a long time now. πŸ˜” Three big things are much of the reason behind it. Getting diagnosed with thyroid cancer two years back and then surgery to have that removed, my workers comp situation that’s been going on for well over a decade, and then waiting while my lawyers try to hammer out an agreement for the medical portion of my WC claim. 😐 So, technically, it’s guess it’s just two “big” things that have me on pause. πŸ€”

I mean, like everyone else, I’ve got a billion other little bitty tiny things that will pop up and add to the stress or anxiety whenever they feel like it, but it’s those things mentioned above that feel like they’ve put the brakes on “who I was” the most. πŸ˜• This entry isn’t about getting into the finer details of how or why… even though it’s relatively obvious, at least on the face value things, how it would make life different for anybody if they had to deal with them as well.

I’ve got a “checkup” ultrasound scan that I’m supposed to schedule sometime around the end of spring / beginning of summer, and I’m not super excited for that. 😬 My yearly check up last fall, which included a second dose of radiation and a gamma scan, went fine… in so far that there wasn’t anything to be immediately worried about. πŸ€”πŸ€·πŸ»β€β™‚οΈ But of course with something like this it’ll take a few return trips before anyone’s gonna be so bold as to declare me cancer free… and it’s hard not to be anxious about your future with that just floating out there. (It is a good sign that I’m only getting an ultrasound vs the whole other shpeal.)

And then the workers comp stuff, which (considering the above) should feel smaller than it does… but it’s another thing that’s been hanging over my head for what feels like forever, and as some of you may know – it has a way of being a thorn in my side almost every month, so it’s something that once it’s “solved” that month – I immediately start thinking about next month and what dumb shit I’ll have to deal with then. It’s just another “always there” thing. 😠 It’s a shame what a pain in the ass it all is, considering how great my doctor is. And it’s been the same d00d for all this time… πŸ‘¨πŸ»β€βš•οΈπŸ™‚ I’m lucky, there.

Even though I probably won’t, I could say that I’m gonna start tomorrow… trying to change whatever it is that needs to be changed in order for me to feel like I’m restarting things. πŸ˜•πŸ€·πŸ»β€β™‚οΈ Granted, not the best time, given the stay-at-home stuff goin’ on… but still, I’m gonna at least give it a little more of a shot. Tomorrow, the next day, the day after that… while allowing myself to have days where it’s just not working, but without letting those days totally sink the idea of getting myself headed in the right direction. πŸ€žπŸ»πŸ™‚

I gotta get out of this trap, where just because I know that some big shit is gonna go down soon regarding my WC settlement talks, it ends up causing me to waste most of my days as I sit there just waiting and wondering when “the next thing” is gonna happen. πŸ˜’ I miss so much of each day because my brain is looking too far ahead, fearing the worst. I suppose that applies to both of the examples that I mentioned in the first paragraph.

It’s not that I’m feeling sorry for myself or anything like that. I look around, I watch the news, I read the articles, and I know that I’m extremely lucky compared to a whole bunch of people. That’s all the more reason that I need to figure out how to stop being so affected by my stuff in the way that I am. πŸ€·πŸ»β€β™‚οΈπŸ˜” Meh… so yeah, this has been bouncing around in my head all day… figured I better put it in print so someone can remind me about this post and rightfully wag their finger at me if it seems I’m not doing what I said. πŸ˜πŸ‘πŸ»

In The Background

A small silver lining of the world catching fire is that I haven’t been stressing about my workers comp situation quite as much. Things are still moving along anyway, of course, and I did get to talk to my attorney on Friday so he could give me some updates. We’re at a bit of a stalemate when we have our numbers and they have theirs, so it looks like it’s going to a somewhat unbiased 3rd party so that they can determine what the numbers should be. I haven’t had great luck with “independent” (whatevers) when it comes to my case, but I’ll just keep hoping that things work out fairly. No timeframe.

Nothing New

Still haven’t completely bounced back from the weekend, but I have a feeling that the stress of waiting for all of the workers comp stuff to play out is adding to that problem. 🀨 Unfortunately there’s no getting around the fact that emotional stress causes a physical reaction, especially when my injury is in my neck and shoulder… because that’s where stress tension often tends to land. πŸ€·πŸ»β€β™‚οΈπŸ˜• Even in folks without other physical defects there, most people definitely feel stress in those areas.

But this was “Day One” of two pretty decent looking days when it comes to the weather forecast. Sun’s out (mostly), I’ve got the windows open, breeze blowing through the house, and was hoping that would help motivate me to do some laundry and whatever… πŸ€” but rather than pushing myself I just took the day off and enjoyed it the best that I could through my picture window. No hurry on the laundry, so why not.

I hate “not doing anything” but I’d also like to make it in town to visit with Dad tomorrow, so I didn’t wanna push my luck. At some point we’re supposed to go on a sight-seeing ride to check out some of the places from our family history, to see what everything is looking like these days compared to back then… so part of me is kinda thinking about that for tomorrow, but if not – a regular visit would still be a success. πŸ™‚ Waking up each day with different levels of brokenness makes it so it’s better to not necessarily “plan” some things… but rather just “let them happen” if they’re meant to happen.

I never hold my breath on these things, but so far the “take it easy” approach to today seems to have helped with the aches and pains. Now if I can only manage to not “sleep funny” I should be in decent shape for getting out of the house tomorrow. 😏 I’ve been really stressed out the past few days, so I’ve been in hermit mode but still texting back and forth with Dad and Genesee which helps me escape my thoughts throughout the day. Fingers crossed for the continued bounce back to something close to normal…

(I don’t know why I still feel “guilty” or “bad” if I take a day and do absolutely nothing with it. πŸ€·πŸ»β€β™‚οΈπŸ˜• )

Unwanted Realism

Had a good day yesterday, got a bunch of bills / paperwork / etc. done, and went to sleep in fairly decent shape. And then I had a series of some of the worst nightmares that I’ve had in quite a while. I can’t think of any reasons for them, nor can I link any of the dreams’ imagery to anything I saw or experienced during the day prior. 😯πŸ₯ΊπŸ€·πŸ»β€β™‚️ So along with waking up several times during the night, when I finally woke up for good this morning I was legitimately exhausted. πŸ˜“ Way too real and stressful. Hours later and I’m still having a hard time shaking it off. (Chases, knife attacks, abducted kids, assaults, horror movie deaths 😳 Oy…)

So now I feel like I’m having an awful day even though there’s nothing about this day (at least so far) that should make me feel that strongly one way or the other. πŸ€”πŸ˜ Heh… so along with just taking it easy today (since I’ve got my meeting tomorrow) I’ll have to kinda keep reminding myself that it’s not actually a bad day. πŸ™„πŸ˜ Nothing on the agenda, nothing that needs my immediate attention, so I’ll probably bubble up and just watch some YouTube and Netflix and try to avoid anything negative. πŸ€¨πŸ“Ί

The only thing (based in reality) that’s got me a little bit anxious is that there’s some rainy / icy / snowy weather headed this way. 😳 But I’m sure by the time I’ll be leaving the house tomorrow, if anything has managed to accumulate it’ll be gone from the roads by time I’m out on ’em. 😌🀞🏻 And, ironically, it actually helps to focus my thoughts on the meeting with my WC attorneys tomorrow. It’s still stressful, yeah, but I know what I need to talk about, and however it goes it’ll still be pushing this shit further along towards a resolution or significant change… so yeah, still looking forward to it. πŸ™‚

Lowered Expectations

I’m not sure if this is what I should be doing, but I’ve been seeking out more of Steve Lehto’s videos (and others) where people get legally screwed over and that’s just how it is. The unfortunate thing is that it isn’t that hard to find tales of people who have been bent over by the legal system and just have to deal with the injustice. 😠 And when a person can legit say “I haven’t done anything wrong or “I’ve done everything right yet things still go south… I’m starting to be able to imagine how they feel.

It’s obviously not good to dwell on my WC case more than I have to, but I also want to prepare myself if things don’t go “how they should” in the future. I mean, I’ve spent years dealing with things not going how they should, but they’ve been smaller, monthly problems that I could sort out in other ways or remedy via other solutions. But if I get into real, productive settlement talks… when that’s it, that’s it.Β  😳

My ask would likely be simple, although I haven’t discussed this with my attorneys yet. Figure out the standard estimate of how much longer I’m going to live, and provide me an amount that covers the current true cost of my doctor appointments and medications each year, for as many years as I’m predicted to live. πŸ€·πŸ»β€β™‚οΈ I should probably also include an amount to cover bigger things like x-rays every couple of years, an MRI now and then, along with the potential need for further surgery… but those numbers would require more “figuring” than I care to do at home on my off time. πŸ˜’

So my ask would essentially be what they’re already required to pay, and their benefit in agreeing to that would be that they would no longer have to waste thousands of dollars on legal services each year to fight me and eventually lose. 😏 They’d be unhappy that they’d still need to cover my actual costs, and I’d be unhappy that it wouldn’t likely be an amount that considers extra or unexpected needs. Also, it wouldn’t account for inflation… but each side has to make some concessions, so…

I’ll almost certainly be required to sign an NDA no matter what agreement we come to, so I don’t expect to be able to talk about the details once it’s done. 🀨 But like I said, I’m almost expecting to feel like I’ve been screwed over, so I just wanna try to prepare myself for it. Even though I can’t put a dollar value on “not having to fight anymore,” I also can’t ignore it as a real mental / emotional benefit of settling. πŸ€·πŸ»β€β™‚οΈ Meh…

πŸ₯ΊπŸ€·πŸ»β€β™‚️

Partial Reprieve

I’m half disappointed and half relieved. πŸ€” Lead attorney said I’d probably get a call to set up a meeting with everyone towards the end of the week… and now the week is over. So, I’m gonna guess that the letter I sent with my concerns, pre-meeting, may have caused a little more research and discussion among the team. Or I’m a piddly case and they’re working on something bigger and didn’t even think of me this week. πŸ€·πŸ»β€β™‚οΈπŸ˜

Obviously I’m torn… part of me is ready to get this shit taken care of as quickly (but firmly) as possible, but part of me is glad that it’s the weekend so I’ll have two whole days of not having to think about it. πŸ™‚ (For the most part.) I did get a printout from the pharmacy though, with the records for all of my meds from 2019… and at some point this weekend I have to go through that and figure out when the WC insurer did pay for things and when they didn’t. 🀨 (As well as calculating the true total cost of all my meds.) That’ll be fun, considering the printouts have no payment info other than the type, date, and cost. πŸ˜’ Meh… I’ll figure it out.

I’m gonna go to the rarely-used “sitting room” in the basement this evening, to watch my shows in complete isolation from the world… 😊 then the weekend is supposed to be nice, or at least sunny, so I’m gonna try to go see Dad on one of those days. The one year anniversary of Mom being called Home is coming up, so of course that’s been bouncing around in my thoughts along with all of the other stuff. 😒😌

It sure doesn’t seem like it has been a year already…

I Ain’t As Good As I Once Was…

This has been on my mind, so I’mma ramble. πŸ™‚ If we’re able to come to a settlement agreement regarding the medical portion of my claim, I wonder if I’ll be able to eventually undo all of the damage that’s been done. πŸ€”πŸ˜Ÿ Not the physical stuff, of course, since that’ll slowly continue to get worse over the years… but the way the whole process has mentally changed me, especially over the past several years. 😞

It’s just that I’m guaranteed that one week out of every month will be filled with anxiety and stress, simply because I have to get my medications filled. 😐 The meds are required to be covered by my claim, and many years ago I could pick them up without issue – even being able to get them a few days early at times. πŸ€·πŸ»β€β™‚οΈ

Then the problems started. πŸ˜’ Short delays turned into long delays, and long delays became even longer. Eventually the delays were so long that I’d have to pay out-of-pocket just so I didn’t go without, and then wait and hope that I’d get paid back. πŸ˜• If my doctor prescribes a new medication, it can be denied pending an IC hearing. Even when a prescription doesn’t change they can still sometimes deny coverage pending an IC hearing to prove that it’s still necessary. (Which, after a decade, it obviously will be.)

Three weeks of “tolerable” pain at best, followed by a week of worrying, fussing, and fighting just to get the meds that they’re legally required to provide. 😠 Repeat, repeat, repeat, repeat… πŸ™„πŸ˜ž Combine that stress with fluctuating pain and lack of ability, and eventually it consumed so much of my thoughts and time that I started backing away from everything else.

(Don’t mind my rambling… like I said, this blog sometimes acts as my therapy…)

When I can’t guess how I’ll physically feel, and I can’t even count on having (or being able to get) my meds to help… things became too unpredictable to continue like I had been. πŸ™ A couple of years ago I had a long phase where I couldn’t do anything if it meant someone “counting on me” for something. Family started getting shut out, friends definitely got shut out, all because I never knew how I’d feel when I woke up that day nor if I’d be facing (or getting pulled into) another hearing or lengthy process with the pharmacy.

That hasn’t changed. 😐 The concern and worry, that is. πŸ˜’ Along with my family and friends’ understanding, I’ve been able to make some adjustments that has kept me from totally isolating myself these days… but lemme tell ya, sometimes it feels easier to just remove myself from people’s lives than to disappoint them over and over again when things are bad. πŸ₯ΊπŸ˜ž And that leads me back to my original question… how long does it take for a person to escape that mindset, if that 1/4 of each month no longer has that anxiety and stress from the fight? 😐

The stress now, for better or worse, is making sure the settlement (whether an annuity or lump sum) is truly enough to cover the things that it will need to cover. If not, I’ll just be trading the stress of fighting for meds each month for the stress of not being able to take the same meds, because I won’t have the funds to pay for them. πŸ˜’ Medicare is technically supposed to step in at that point, but they’ll require all kinds of proof that I spent the settlement money only on applicable things, and the more expensive meds still might not be covered. πŸ˜– So as you can see, there truly is “always something.”

Kinda makes all the “You’re so lucky that you don’t have to work anymore!” folks reconsider, eh? 😏