Good Days = Still Remarkable

Today was a nice, uneventful day. Having caught up on my sleep over the past couple of days, I woke up in a pretty good mood so I decided to head in town to wash the car and pick up some pop, bread, and other misc. $13 seems a little steep for a car wash, but I’ll give the place credit – as cruddy as she was when she went in, she came out shining as if someone had washed her by hand. 😎

Next time I’ve just gotta remember to spray on some wheel cleaner that I’ve got, and let it sit for 5 or 10 minutes, because that’s the only part that remained somewhat cruddy. πŸ€·πŸ»β€β™‚οΈπŸ˜ Even the dryer section completely dried her off, unlike the freebie wash that I sometimes get from the dealership. Oh, for reference, it’s that barn shaped car wash out by the mall… can’t remember its name at the moment. πŸ€”

I also took the opportunity to stop in at the new Ohio Thrift there in the Plaza shopping center. It started as a furniture place, then turned into a thrift, and then it was vacant for several years before this new one moved in. Nice place, lots of variety – likely due to it being part of one of the bigger chains from around Columbus. πŸ˜ƒ I doubt that much of their inventory came from the area, with as much as they had in there.

I had the 360 camera in the car with me, just in case my motivation held up, but walking around the thrift store ended up being enough exercise for me. πŸ€• So I just took a short drive through the fairgrounds and Rising Park before heading back home, but that did give me the chance to stick the camera to my roof and get two recordings. πŸ€“ I’ve had that camera for quite a while but haven’t put it to much use due to this or that, so now I’ve at least got a couple of clips to mess around with as I re-remember how it all works.

Trying to think of a use for that camera did make me kinda “meh” again, thinking about not being able to ride a motorcycle anymore. πŸ˜’ Using the fairly heavy duty selfie-stick that it came with, if it was mounted off the back seat or fender of a bike (sort of like a kid would have a goofy orange flag waving off the back of a bicycle) it would result in some impressive looking footage. 🀨 The stick is digitally removed automatically, so it would look as if I had a drone following behind me the entire time – but with the ability to “look around” in any direction that you wanted at any time. Meh…

It’s weird how there are things, things that I can’t do anymore due to my shoulder, that I’ve gotten over… and this is a good example. I tried a short ride a few years after my surgery, but I could tell that if anything unexpected happened, I just couldn’t count on my left shoulder to do what it might need to do. πŸ˜³πŸ˜• And for those who aren’t aware, bikes are friggin’ heavy… so not only would riding hurt, but it would have just been a really bad idea anyway. πŸ˜’ So yeah, having that bike / camera idea pop into my head for a split second, before remembering that I can’t ride anymore… those unexpected reminders just suck sometimes. 😟

But no worries with all that. πŸ™‚ Like I said, I’m quite happy with how today went. Grabbed some kitchen supplies, hit a thrift store for a few “new” shirts, took a joyride through the parks, and got to mess around with yet another camera. And with the way people drive in this town, I wouldn’t trust half of those assholes to be around me while I was on a motorcycleΒ anyway. πŸ˜› Similar to my dash cam, I bet most riders these days have some sort of camera on their bike or helmet. I know that I sure wouldn’t ride without one.

Hoping that “good days” keep coming along, to where they no longer merit entire blog entries… 😏

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Some Today, Some Tomorrow

Woke up to my neck feeling all janky today… either from sleeping on it wrong, or just from the building stress of the last few days. But I still dragged my ass out of bed with intention today, determined to get some of the stuff on my mental to-do list done. It wasn’t until I was getting ready to leave the house that I realized it was 92 effing degrees outside today. The heat still takes a little more toll on me than it used to, and along with the neck / headache shit – I ended up scaling back my goals just a bit.

First stop was gassing up the Fusion and topping off the air in the tires, then to the bank, then to the post office – to mail out that report for my attorneys. I wish I could snap my fingers and it would just be there, but I’ll have to be okay with them getting it tomorrow and then finally actually looking at it at the start of next week. I’m gonna give Jim a call though and leave him a message, letting him know that it’s coming.

And then since my car has gone from “change oil soon” to “oil change required”, I figured I should go ahead and get that done while I was out today. It was like I suspected though… and why I like these new guys that I go to for service… he said the synthetic blend that I got last time could have actually lasted me many more miles, and the car was only crying because I forgot to inform it that it got synthetic this last time, and didn’t increase the mileage interval before it starts squawking at me. But yeah, for an oil change place to say 7,500 miles on synthetic is cake, and even 10,000 wouldn’t be that bad… that shows some honesty that you wouldn’t always expect.

But by the time the oil change was finished, the base of my skull was thumping and I was feeling pretty meh due to hanging around in the heat as I waited, so I decided that was enough “on the go” chores for the day. Hoping I’ll bounce back overnight tonight, so I can finally go get my hair cut and schedule an eye appointment tomorrow.

Ugh… I hate that the workers comp crap is still in the back of my mind though. Today is a good example of something that would be used against me. “Look! He admits to working on his car!” (Because they’d count putting air into my tires as work.) And if I didn’t specifically state that I took my car somewhere for an oil change, they’d probably claim that I didΒ that myself as well. And of course, regardless of whether I mention any levels of pain or not, there’s this strange “Robert admits to performing multiple chores, including multiple stops at various locations throughout his day.” kind of stuff that’s obviously intended to imply something…

I guess I just thought that I was past the point of having to justify doing things that I simply have to do, or pointing out every time that something causes me difficulty or pain each time I do it. It hurts to do certain things, such as folding laundry, standing and doing dishes, etc… but of course I still have to do those things. I’m not sure how pointing out that I’m still managing to get by, despite my disability and pain, somehow makes me the bad guy. Meh… but anyway… I’m okay with what I was able to accomplish today.

EDIT: After I finished this entry, I remembered something else that annoyed me enough to come back to add this. Weeks ago I learned that Skillet was having a concert at the end of September in Columbus. However, I’m not going to that concert… a concert by one of my most favorite bands… because it’s a general admission show, and it would simply hurt too much to stand and be bumped around for that hour and a half. I’ve fought with myself, trying to make myself go, but I chose not to because I don’t want to hurt. I think I even made an entry where I wondered about “disabled seating” for folks like me… but in the end, despite it being a show I’d desperately love to see, I’m not going. My life is a constant balancing act because of my disability and pain… sometimes I have to do things that hurt (like chores) that I don’t want to do, but I have to. Sometimes I choose to do something fun, despite knowing that fun thing will likely cause me pain… and I think that’s okay too. But then there are examples like this – where I really wanna do something, but I’m not willing to pay the pain-equivalent of “the price of admission” to do it, because I’m that concerned with avoiding extra pain. Yet the legitimacy of my disability and pain is still being questioned, year after year after year…Β  fml.

Oops…

Obviously didn’t have the oomph for that “korean name” post that I was planning the other evening. It will still be coming… just whenever it decides to come. πŸ€·πŸ»β€β™‚οΈ Got the gamma scan the other day, and actually felt a little worse afterwards this time. Everything went as planned, I wasn’t ever scolded for not holding still or anything – but 45 minutes to an hour lying in the machine just isn’t pleasant, especially when half of that was with my arms raised above my head, which is a position that my gimp shoulder obviously isn’t a fan of.

But you know how it goes… scan techs can’t tell you anything, other than knowing that they got the images they needed, and then I didn’t get a “next day” phone call from the thyroid doctor, so I’ll take that as a good sign. That way I have just started taking my meds as normal again, and I can get through this weekend without having to think about any of it too much hopefully.

And knowing how bad I’ve been feeling, and how I’m supposed to be avoiding people due to the radioactivity, Genesee had one of her friends drop off a bunch of food for me.Β πŸ™‚Β She basically got three or four entrees from Olive Garden, plus a big salad, slice of pie, and a bunch of cheese sticks. πŸ– That’s gonna help a lot, because my appetite is already low, as is my energy to get up and make anything to “make” myself eat, so having all that awesome food just ready to go whenever I want a few bites or more – it’ll last me through the weekend easily.

But yeah, just wanted to check in to report that everything went as planned with the scan, and that I get to treat this weekend like a weekend and not worry about any appointments or cooking or anything… so hopefully I can start to recharge my run-down ass.

Oh, and even though I still haven’t gotten on Facebook, I did see a couple posts through the Google News app, reminding me that the Perseid meteor shower happens over the next couple of nights. πŸ“ΉπŸ˜―Β So I’m gonna put all of the practice I’ve been doing (with planes and cars at night) to use – and hopefully will be awake to capture some of the streaks as they cross the sky. Luckily, my view from the front porch is just about the right direction for viewing. Gonna use ridiculously long exposures, to maintain the light trails despite the video playing at time-lapse speeds. πŸ€“Β First thing I’ve felt a little bit excited about in a while, so hopefully my energy and the weather cooperates.

Rambling Elaboration

Yesterday’s entry was admittedly pretty bleak… but not all of yesterday was completely full of suck, so I figured I should come back in here and sprinkle a little bit of that “good” around – even though I know it won’t really do much to balance out the tone of the blog lately or overall. πŸ€·πŸ»β€β™‚οΈπŸ˜•

Knowing that soon I’ll be runnin’ completely without my thyroid meds, there were a few things inside and outside of the house that I wanted to get to… just in case the next several weeks are as “challenging” as I’m expecting them to be. 😟 The inside stuff was whatever… but the outside stuff, that’s the kind of stuff that kicks my ass even when I’m at my relative best these days. It also didn’t help that it was still 87 degrees in the late afternoon, when I finally went outside, since “waiting for the heat to die down” wasn’t really gonna work unless I intended to do my yard work in the dark.

When they took out my line of bushes, they plucked about a 1/3 of them, and the remaining 2/3 were cut off at the base – as close to the ground as possible. I told Jason that I had plenty of poison spray when they were doing it, and he suggested that after they were done I should probably go out and hit all the remaining “nubs” in the ground, to discourage them from trying to make a comeback – and to hopefully make them brittle enough that anything still above ground will eventually just start breaking off. So, that was mini-project number one, and luckily I didn’t need my cane nor did I have any neighbors eyeballing me as I worked.

I still had juice left in the sprayer when I was done, so I started hitting weeds along the fence, under a bunch of the evergreen bushes, all over the empty-but-weedy spot (where a big bush used to be) beside the garage, and then all around the AC unit just to make sure nothing considers growing up around it. I was sweating balls at this point. Actually, I was sweating balls within the first 10 minutes of being outside… but yeah, it was time for a break in the cool air inside.

It felt nice, but when it became obvious that I wasn’t gonna stop sweating, I sucked it up and went back outside. I’ve got a couple different sprays for spiders, wasps, bees, and ants – so I treated all the areas that needed it. 😷 Front porch got most of the spider attention, back porch had the bees, and then I sprayed what amounts to an “ant barrier” at the bottom and lowers sides of all of the doors that go outside or into the garage. (They’re a fan of Maven’s messy eating habits, usually leaving bits of cat food on the floor for them to sniff out and come after.)Β Bugs don’t really count as “critters” I suppose, but I still hate to be an exterminator. πŸ˜• But when they won’t stay outside, or try to take over certain areas when they do, they’ve gotta go.

Don’t you love how I can take “Sprayed some poison on the bush stumps and weeds, then killed some bugs” and turn it into a multi-paragraph blog entry? This time it’s intended… to make it sound as time-consuming and exhausting as it actually was. πŸ˜“ I ended up sweating so much that the mosquito repellent finally quit working, but I had done everything that I wanted – so it was time for a shower, and to stop friggin’ sweating.

Throughout the process, I learned that I have another mutant ability. πŸ™„ I can work outside for a little less than an hour, come inside into the cold air conditioning, take a shower to get all the stink, grass, and stray poison mist off of me… but I can continue sweating for a full two hours after everything was done and I should have been good. πŸ€¦πŸ»β€β™‚οΈ I’m guessing it’s a thyroid thing that I just hadn’t discovered yet, since I’m usually too gimpy to work that much outside. But yeah… cool shower, cold air, and two more hours of sitting here with a towel to keep drying myself off.

It’s fine though… because as much as this all might sound like bitching, it felt good to accomplish so many things when there were so many other things trying to mentally or physically discourage me from doing so. Until I started to not be able to do a lot of things, I didn’t realize how important that it could be to be able to do something with purpose. So even though this stuff is probably most people’s typical weekend, it’s my little thing to grab hold of and feel good about. πŸ€·πŸ»β€β™‚οΈ

And, obviously, I have to take what I get when it comes to stuff like that these days.

Unfortunately… Nope

This will be a lengthy entry.Β Β πŸ€”Β  Although, I suppose that’s typical for me and the blog… 😏

A few days after going to my full dose of Paxil, one in the morning and one at night, the side effects that I hoped would go away were actually getting much worse. 😳 So over the past couple of days I’ve weaned myself back off… and today was the first day I started feeling close to my normal “normal.” 😟

The biggest problem was the tremors. Any time I would yawn, which was a lot,Β probably due to the new med… every time I would yawn, my left shoulder and arm would start shaking uncontrollably – sometimes lasting up to 30 seconds before it would calm. 😧 And then it started doing it with my other shoulder as well, to where eventually when I yawned (and even when I wasn’t) I’d honestly compare the tremors to what you would see in a person with Parkinson’sΒ disease. πŸ˜₯ I suppose it makes sense, as the disease is related to dopamine problems and that’s often something that psych meds mess around with as well.

The daily waking up in a near panic attack… that didn’t stop either. And when on the full dose, taking the morning dose was no longer relieving the anxiety when I took it. So, it was waking up with severe anxiety, taking the pill (along with my others) that was supposed to help with anxiety, only to have it then stay around all day. 😣 Awesome. πŸ™„ That was reason enough for me to reconsider if I wanted to continue taking it… and I really did want to give it a chance, to wait out the side effects to see if they’d pass. But you have to remember, after my work injury, the main thing that my doctor and I had to work on for a long time was getting my left shoulder with the nerve damage to stop randomly shaking.

So not only was the new med increasing my anxiety, but it had brought back the uncontrollable shaking in my left shoulder, which always leads to much more pain by the end of each day. πŸ˜’πŸ€¦πŸ»β€β™‚οΈ So I hope most people would understand why I wasn’t willing to “just keep hoping it’ll pass” while possibly risking it getting worse or even becoming permanent again.

It’s disappointing, but again I’m experiencing the “Ahhh” of just losing all of those awful and scary side effects, and returning to my “normal” self… which now feels like a relief – hopefullyΒ returning just to “how I was” a couple of weeks ago. πŸ™‚Β (The tremors weren’t gone today, but they’ve lessened quite a bit.) And with my thyroid doctor calling today and wanting to accelerate the next step with that issue, I just don’t think I’d be able to do it while essentially fighting against the side effects of the Paxil. The next step with my thyroid stuff is gonna be difficult enough as it is. πŸ€•

More on that when I know more. (Although I’m gonna try to squeeze in a subjectively more positive entry between this one and that one.) But in the mean time, I’m still wondering if sometimes it’s in the doctor’s plans, or at least something that they know can happen – where a medication that is supposed to help makes you feel so awful that when you stop taking it, you actually feel happier and more relieved just to be back to how you were. πŸ‘¨πŸ»β€βš•οΈπŸ€¨ Because boy, that’s been the trend with me, the few times I’ve been prescribed something by a shrink. 😏

  • Just to cover my ass, I’m not saying with any type of certainty that the Paxil definitely caused all of the symptoms that I was experiencing while taking it. It’s possible that all of the things that I considered “side effects” were completely unrelated… this is just my account of how things went while I was taking it.

My Selfish “Good” Day

I had a lucky day yesterday, where my knee decided it would cooperate with me, so I was actually able to pick back up on some of the tasks that had the brakes slammed on them when my knee originally went out. It happens when I have sudden problems with my back as well… those things around that house that you just assume you’ll be able to get to tomorrow or the next day, once your knee or lower back goes screwy, those are the messes and tasks that you’ll have to just look at for the next days or weeks… until the pain hopefully goes away enough to finish those things up.

So I was finally able to bring up the laundry from the basement, as well as do another couple of loads. (And let me tell you, I now understand how the basement stairs were a big “nope” for my Aunt C when she reached an older age.) Got that all folded, hung, and put away. And then I finished up the grooming of the cat… at least as good enough as I care to get it… and then also picked up all the big globs of fur, ran the vacuum over the two rugs that I was using in the bathroom to catch it all, and then went over the carpet in the living room and hallway to catch the rest of the stray hair.

I did a few more small things, essential things, and with each thing I did I could feel my knee reminding me to take it easy… and I really did. Being careful with each step or turn, making sure I didn’t move it in any wonky ways that could derail the rest of my meager plans for it for the day. Like, I didn’t even try to put all my junk back on my bookshelves in the bedroom, although after my appointment today I might take a stool in there and attempt it. Yeah, that’s another reason why I didn’t mind “risking” yesterday’s actions, since I knew that “back/knee guy” was already on the agenda for today.

It was such a relief to be able to do those few things, but it still left me feeling guilty. My knee has been screwed for about a month now, which has also screwed my neck and shoulder more than usual, which has kept my anxiety at shitty high levels… and it’s kept me from being able to do so much. So when “good knee day” was gifted to me, knowing that it would likely be a limited resource, out of all the things I could have done – I did choose “work around the house as best / long as I can” over other things. 😟

I had to… because I already feel ineffective enough on most days, so having to sit here with most of my clothes clean, but in the basement… and with two big ass rugs in my bathroom, covered with an obscene amount of cat fur… along with going out to fetch my trash buggy, empty the litter box, and even just finally putting my groceries away and standing there to do the dishes. If I would have not gotten that stuff done yesterday, and woke up with a fucked knee today, which I did, all of that stuff would have been even more heavy on my mind.

So I ghosted almost everyone, doing what I needed to do for my brain to be a little more at ease during this whole “doctor / workers comp BS week” and the time immediately after. Still gotta get it through my head that I need to not fuck things up around the house (and not immediately clean it up or undo it or whatever) since there’s a pretty good chance that the next day could bring me some new surprise that physically stops me from doing so. I’m not old old yet, but the things affecting me… I may as well be. 😐 I need to start figuring out how to think about life in that way. Making use of, in all ways, the good days – and not just counting on each following day to be the same or better.

That’s why my anxiety messes with my head when people count on me or rely on me… because I can’t even count or rely on myself half of the time. So, kudos to all those people who are dealing with daily pain, disability, anxiety, depression, etc… but who still manage to carry on with their lives and not let it tie them in knots like it does me. I keep hoping it’s just a matter of getting used to it. But again, it makes me think of my Aunt C, who was in horrible shape and probably hurt in more ways than any of us ever knew… yet all the way up through her final days, she still lived her life without complaint, fought against the pain to play the organ at church each Sunday, and probably lots of other stuff that only she knows.

So whether it’s my neck, shoulder, thyroid, back, knee, or whatever’s next… I hope that I can eventually at least be like her, and just accept things as “how they’re gonna be” once doctors have determined that yes, this is just how it’s gonna be. I still haven’t gotten past the “Nope, I’m not that old, I shouldn’t feel like this.” phase – as made obvious by all the appointments just this week, and my decade-plus long battle with workers comp – but maybe it’s time to try and start accepting and adjusting, rather than fighting. πŸ€·πŸ»β€β™‚οΈ Meh… I dunno… but my appointment is soon, so I better get off here or I’ll just keep rambling… wish me luck.

I Guess It’s My Turn

My sleep’s been a bit affected over the past couple of nights. I did have two or three decent days where I was able to get out and do some small things that I needed to do, but all the driving tweaked my knee enough again that the pain’s got my sleep just a bit screwed. 😴 Not here to complain about that though. I’m starting to get used to it and make concessions the same way I have to do with my left shoulder.

But today, sleep was on and off all night, so I didn’t end up getting up and around until after noon. Before my brain even had a chance to give me a hint about how it was gonna feel about today, I heard knocking on the front door. 😳 Checked the cams to discover that it was some of my lawn guys. 😏 They were here today to trim all the hedges around the house, and then Jason came by a little bit later to lock down the details and prices for the spirea removal and other misc.

And with the bushes around the house all trimmed back, it’s even more obvious that I really need to stop putting it off and have the siding and sidewalk power washed. He gave me a good deal on the trimming today, which made it easier to just apply that savings towards getting all the green, bugs, webs, and bird poop washed off of the house. But yeah, there wasn’t much new to what we discussed (except for that) so it was just a matter of reconfirming everything now that my name’s apparently up on the “next job” list.

Gotta admit, waking up and having to immediately “human” started my day off a little twitchy. πŸ˜•Β I didn’t expect to even be seeing any people, let alone interacting with them… but I’m feeling better now that plans and prices are set, things should start soon, evening is coming, and things are cooling off outside. I mean, just walking around the yard with everyone, pointing out this and that, using my cane and trying not to dick up my knee any more… I was sweating just from that. πŸ˜“ Good on them for being able to work in the heat like they did today. It sure saves lazy and/or broken people such as myself. πŸ™‚

Just hoping to get some good sleep tonight so I can be a little more productive tomorrow. Bills, e-mail, laundry, vacuuming… just little shit… but I’ve had to stay on pause for a couple days, and I’ve learned that if I don’t turn it around quickly it could end up sticking. But hey, like I said, I’ve gotten out of the house to handle a few things and even make it to an appointment up in Columbus – so things are still basically moving in the right direction. Just really looking forward to the couple of doctor appointments for my neck and knee once June gets here… ‘cuz this shit is getting old. Like me, I guess… πŸ˜πŸ€·πŸ»β€β™‚οΈ