Oops…

Obviously didn’t have the oomph for that “korean name” post that I was planning the other evening. It will still be coming… just whenever it decides to come. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ Got the gamma scan the other day, and actually felt a little worse afterwards this time. Everything went as planned, I wasn’t ever scolded for not holding still or anything – but 45 minutes to an hour lying in the machine just isn’t pleasant, especially when half of that was with my arms raised above my head, which is a position that my gimp shoulder obviously isn’t a fan of.

But you know how it goes… scan techs can’t tell you anything, other than knowing that they got the images they needed, and then I didn’t get a “next day” phone call from the thyroid doctor, so I’ll take that as a good sign. That way I have just started taking my meds as normal again, and I can get through this weekend without having to think about any of it too much hopefully.

And knowing how bad I’ve been feeling, and how I’m supposed to be avoiding people due to the radioactivity, Genesee had one of her friends drop off a bunch of food for me.ย ๐Ÿ™‚ย She basically got three or four entrees from Olive Garden, plus a big salad, slice of pie, and a bunch of cheese sticks. ๐Ÿ– That’s gonna help a lot, because my appetite is already low, as is my energy to get up and make anything to “make” myself eat, so having all that awesome food just ready to go whenever I want a few bites or more – it’ll last me through the weekend easily.

But yeah, just wanted to check in to report that everything went as planned with the scan, and that I get to treat this weekend like a weekend and not worry about any appointments or cooking or anything… so hopefully I can start to recharge my run-down ass.

Oh, and even though I still haven’t gotten on Facebook, I did see a couple posts through the Google News app, reminding me that the Perseid meteor shower happens over the next couple of nights. ๐Ÿ“น๐Ÿ˜ฏย So I’m gonna put all of the practice I’ve been doing (with planes and cars at night) to use – and hopefully will be awake to capture some of the streaks as they cross the sky. Luckily, my view from the front porch is just about the right direction for viewing. Gonna use ridiculously long exposures, to maintain the light trails despite the video playing at time-lapse speeds. ๐Ÿค“ย First thing I’ve felt a little bit excited about in a while, so hopefully my energy and the weather cooperates.

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Makes Sense

I’m gonna make a non-bleh post today… I just have to work up to having the energy to do it. After getting dosed yesterday and coming back home, I honestly didn’t feel any worse… but my gosh, from yesterday evening on… man, am I feeling physically awful. ๐Ÿ˜Ÿ๐Ÿคฆ๐Ÿปโ€โ™‚๏ธ๐Ÿคฎ I didn’t notice many side effects the first time I had this done, but I also hadn’t gone a month without thyroid meds, already having me weak and feeling like shit. So I should have been a little more prepared that things could feel worse than last time. ๐Ÿ˜ž

That’s not why I posted though. Next post is gonna be about me choosing my Korean name. ๐Ÿคจ๐Ÿ˜ And I know that sounds bizarre and random and “What are you talking about?” but when I do have the energy to explain it all, how it’s done, why I’m doing it… basically I just wanted to do something to distract my brain for a while yesterday, and later I’ll be able to make a post about it that will help me distract myself again. Hopefully. It’s actually a really interesting process. It’s a shame I don’t know any Korean people personally though, for them to tell me how goofy or old or weird my chosen name sounds. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ

But I’m gonna lie back down and hopefully get a short nap to get rid of this headache, but hopefully I’ll be able to get back on here later tonight for all that stuff.

Nuclear Medicine

Had the same lady as last time give me the radioactive iodine dose today. I’m not sure if they all act this way, but she’s fun… not intentionally, but in the way that she makes it feel so dramatic. ๐Ÿ˜ And I get it, she works in that department every day, so a person’s gonna want to keep as far away from all the radioactive stuff as possible, so I don’t blame her. ๐Ÿ‘ฉ๐Ÿปโ€โš•๏ธย …ย ๐Ÿฅข๐Ÿ’Šโ˜ข๏ธย ย ๐Ÿคขย It also has the side effect of making it seem like this pill is reallyย going to be doing something, whatever that something may be.

Before they even bring the pill in, she had me go through a practice run – having me put my hands exactly where they need to be, telling me how to get the pill out of the container without touching it or anything else, and then how to gtfo while having to pass near as few people as possible. Of course once the lead container is opened and the pill is out, she stays as far away from it and me as possible – but, probably just from habit, that’s mostly how she acts even through all of the tedious paperwork and talking beforehand.

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Don’t mind how dusty my entertainment screen is (or the custom commands ๐Ÿ˜), but I’ve decided to take this as a sign… this was the first song that played (at random)ย in the car as I left the hospital parking lot. (Video Link: Back to Life – Hailee Steinfeld)ย I’ll even give credit to Mom, since I was talking to her on the way in, asking that if she was able to give any help guiding the medicine during the process this morning, that I’d be happy to take it. ๐Ÿ˜Œย Oh, and they remarked how shit my thyroid levels are (in a good way, for the dose/scan anyway) and it’s no wonder I feel like utter shit and fall asleep all the time. So, there’s that. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ๐Ÿ˜Ÿ

Still can’t start up my meds until after the scan, and until after the doctor has reviewed the results to make sure that they “came out okay” for lack of a better term. It’s a typical long test where you have to lie still in a tube for about 45 minutes, so there’s always a chance there could be some sort of blur or error or something, to where they’d wanna do it again in a few days or whatever. ๐Ÿคจ But with any luck, by this weekend I’ll be on my way “back to life” at least in as far as my thyroid and energy levels are concerned. ๐Ÿ€๐Ÿ™๐Ÿป๐Ÿ™‚

Unfortunately, I’ll have to avoid stuff likeย this until I’m less radioactive. ๐Ÿ˜Ÿ Wish she could understand.

Oh C’mon…

Getting a half-way decent night of sleep didn’t do anything to recharge my batteries for any significant use today. Of course I do have a little more on my mind than usual, but that wasn’t what was bothering me today. Actually, I didn’t realize that anything was bothering me today – until it did. Around noon I went outside to use my little air compressor to air up my tires, since that was something I could just do in the driveway without having to drive into town or anything. Figured that was within my ability today.

Spent about ten minutes doing that. It was in the sun, yeah, but it wasn’t like it was actually that hot out. But yeah, so I was just waiting in the normal sun as my slow compressor topped off two of my tires… and when I went back inside, I fell asleep within minutes and didn’t wake up until almost two hours later. So bizarre. I wasn’t tired, wasn’t sleepy, and that’s all that I did… but *ploop*… I was out.

It’s still frustrating, and it still bothers me… but being so close to the end of this phase, at least I can think about it at the end of the day and smirk. It would be terrifying if this was just “how I’m gonna be from now on” but that’s not how it is. But knowing that something so truly small can trigger the “nope” button in my brain, which effectively shuts me down, it’s such a weird thing. Not a fan.

Hoping that I can get one more solid night of sleep under my belt tonight, and that maybe that will be enough to at least avoid any unintentional spontaneous naps tomorrow.

It’ll Be Fine

I’ve developed a bad habit of letting my mail sit and gather dust for a week or two before getting to it, but sometimes that procrastination yields interesting results. For example, in the current batch I got two bills from the hospital for relatively small amounts… but I also got two checks from the hospital as well, which total about five times more than what the bills are asking for. ๐Ÿคจ๐Ÿค” Part of me wants to say nothing and mark it up as a win, but the twitchy side of me insists that I go in and talk to someone in the billing office and get my account in order before the actual expensive things start up again here soon. ๐Ÿ˜’

Toni actually messaged me a few hours ago (before I got into my mail) to see if I wanted to go with her when she cuts Dad’s hair tomorrow. I told her I’d have to sleep on it, since every day is basically a crap shoot lately – but between the hospital mail and some other mail that I got, I’m hoping it’s a sign that I’ll feel good enough to at least go see Dad, and then hopefully hit the hospital on the way home. Didn’t start feeling extra shitty until half the day was done today, so hopefully tomorrow can be the same. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ I just hate feeling so off of my game… ๐Ÿ˜Ÿ and worry that being around me could be mostly depressing.

And yeah, I know I instantly jinx myself whenever I “make plans” for something, but both of those things are things that I want and need to do, so I’m gonna do what I can to make it happen. Now, when it comes to my car crying about an oil change, or that one of my tires is low on air… (and how rude is it that it knows which tire, but won’t specifically tell me?)ย ๐Ÿคจย yeah, that stuff can definitely wait. No pushing of the luck tomorrow. ๐Ÿ˜ ย In fact, no pushing of the luck tonight… I’m not even gonna waste any energy cleaning up all the sorted mail and trash and whatever. Time to hit the recliner for some Avengers: Endgame and hopefully sleep soon after.

Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… ๐Ÿ˜ but cripes, that little bit of work messed me up somethin’ fierce. ๐Ÿ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. ๐Ÿ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. ๐Ÿ™๐Ÿป๐Ÿคท๐Ÿปโ€โ™‚๏ธ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed ๐Ÿ˜ณ yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. ๐ŸงŸโ€โ™‚๏ธ๐Ÿ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. ๐Ÿ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. ๐Ÿคท๐Ÿปโ€โ™‚๏ธ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. ๐Ÿ™„ Sitting here, happy that I had enough mental/physical oomph to write this. ๐Ÿ˜๐Ÿคท๐Ÿปโ€โ™‚๏ธ

I Have My Reasons

Still hangin’ in there, still waiting through this process… ๐Ÿ˜Ÿ of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. ๐Ÿ’‰๐Ÿ˜ฌ๐Ÿ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. ๐Ÿ˜ Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. ๐Ÿฅบ My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. ๐Ÿ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldย be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” ๐Ÿ™‚๐Ÿคท๐Ÿปโ€โ™‚๏ธ๐Ÿ™๐Ÿป