Getting By

Heh… I don’t really visit my own site, so I had to chuckle when I clicked over and was reminded that the title of the last entry was “Tired Of This Shit” because I was like, “Yeah, that sounds about right.” 😏

Things have been rough this past week too, because why wouldn’t they be, eh? πŸ™„ Gah… I’m trying not to bitch even more than I already have been, but this week was loaded with appointments – so of course I had to start it all off by being sick. 🀒 You know, I’m not even gonna cover how this week was… I’d rather just be thankful that the week is over, and that I think I’m about back to 100%. πŸ€·πŸ»β€β™‚οΈ Or at least what passes for 100% for me these days.

Only appointment I had to cancel was the dentist, and that’s because it was the first appointment of the week – right when I was feeling my worst, and in the midst of a shitty 36 hours of not being able to sleep. Great way to start the week. I guess there wasn’t anything remarkable about any of the other appointments… if anything, they went pretty good… it’s just been a little exhausting being sick, not being able to sleep, but still getting up around dawn each day to make it to this place or that place.

Today wasn’t bad though. I knew I felt good enough to eat something, even though nothing sounded good, but then since we were out that way we decided to stop at Frisch’s Big Boy for lunch. πŸ™‚ Our eyes were both a little bigger than our stomachs, but at least that meant goodies to take home. Plus we had the nicest, most genuine waitress that I can remember having for a long time.

So now it’s a couple days off before another appointment Monday, and then the follow-up with the endocrinologist later in the week. πŸ‘¨πŸ»β€βš•οΈ Four tubes of blood for several different tests, information from the scan at the hospital a while back… this will be my first appointment since then and, believe me, good or bad, waiting for info like this isn’t easy. πŸ™Β That’s probably part of the reason that I’m having even more trouble sleeping than usual.

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Anxious

I’m not sure how I feel about the weekend falling right before New Year’s Eve. 😟 I think it’s actually going to work out better for me this way, since I’ve already got a January’s worth of medical appointments on my mind, but I can’t even really go about changing my insurance information or anything like that until after the first of the year when the new plan kicks in. 🀨 So I’ll have at least a couple of days to start planning who I need to contact and when, and I might even get a couple days after that since some places might be closed on Monday and/or Tuesday. I’ve just got a lot of upcoming shit… I wanna hit the ground running.

I think I’m gonna have Cassi down for the night tomorrow. She can’t stay on New Year’s Eve since she has to be at work early early, but it would still be nice for her to stay – since not only has it been a little while since she has, but also because it might also be a little while until the next chance – depending on how my month goes and how I’m feeling during any given stretch. πŸ˜”

I’ve also decided that I’m going to let her take my Wii and games back up home with her to give to Junior. I can’t remember the last time that I sat down and played any of my games, let alone any of the games on that system that’s almost a decade old now. I could sell it I guess, but I’d hardly get anything for the lot of it… might as well brighten up a kid’s day a bit, eh? πŸ™‚ I’ll probably wait until she’s here to start finding all the bits and bagging it up… with the way I’ve moved stuff about since I last played, it’s hard to say what’s where.

But like I’ve described regarding my friends before… sometimes it’s just nice to have the company, because not only does it provide time to chill and (hopefully) clear the mind of “the now” for a while – something that’s always needed – but it also helps to encourage a little more productivity, since we’re both essentially able to pat each other on the back for our respective jobs well done. 😏

I’m certainly not looking forward to 2019, so a couple more days of “nothing” and some company to distract is probably exactly what I need. So I guess I do know how I’m feeling about it.

Miserable

What an awful night… and I’m not sure if it’s over yet. I don’t know if it was something specific that I ate, or a combination of the different things that I ate… but yeah, spending every couple of hours in the bathroom yacking was not how I anticipated last night going. And this is a little gross, but the main taste coming back up was the sauce from the meatballs… so I don’t think I’ll be able to eat any more of those.

And of course it had to start right after I decided to message some lady last night on Facebook about a camera that she had listed for sale. I told her I’d come in town as soon as I was up and around the next day, and now I’m all barfy and bleh. 🀒 I think I’ve entered a window of a couple hours where I should be okay again though, so the deal is still on. (My throat feels really effed up now, though… I’m hoping that what I’m feeling isn’t serious or permanent damage around my thyroid surgery area. 😧)

Hopefully it actually works like it’s supposed to… because I’ll probably use it as a camera that I just keep in my car for moments when I need a “better than my cell phone” camera but didn’t realize it until that moment. It’s a Canon SX210, which came out in 2010, but it’s 14MP and it’s got a 14x zoom lens – which is pretty good for a little point and shoot. Can’t beat the price of twenty bucks, though… which is low enough that it outweighs my aversion to interacting with the camera’s human former-owner to get it. 😏

Checking In

Haven’t been able to shake this funk.Β πŸ˜• Started with that shitty low-iodine diet, then the self-imposed house arrest so I wouldn’t unintentionally expose anyone to radiation, and even now after the scan the other day I’m having a hard time bouncing back. And I was only hoping to bounce back to “meh” rather than “okay” or “good” since I know those two options are unavailable to my brain right now.Β πŸ˜”

It’s not even really about my own stuff… it’s just tough knowing that Mom has been having bad days recently, and knowing where things are eventually headed. 😟 It’s not even a conscious choice… but I have a hard time attempting a good mood when I know Mom’s going through things that certainly won’t allow her mood to be that great. And like I’ve mentioned, it’s not just her… my friend Christina just passed, another couple of friends are still fighting different types of cancer as well, dealing with my stuff, worrying about Mom and Dad… it’s just hard to break out of the “bleh” that I feel for all of those things, even though I know nobody would want me to be “bleh” on their behalf. 😏

But anyway… my scan… I think I may have mentioned that I really didn’t know the details before I went in, although all of my assumptions were correct. I don’t dare google anything about thyroid cancer, because I’m sure that I’d accidentally expose myself to horror stories that would make me stress more than I already am. 😳 But the imaging machine looked like an open MRI for the most part, although not only did it scan in that traditional method, but there were parts during the process where the entire thing would slowly rotate all around me as I was lying there. 😬

I didn’t have to get into a gown, and only needed to remove my keys, wallet, belt, ring, etc. The most difficult thing was lying flat on my back for an hour. 😣 Whether I’m sitting (usually on the floor) or sleeping (either flopping around or in one specific “good” position) I rarely maintain a posture where I’m completely straightened out and flat. Thankfully the machine made little noise, and nothing even close to the anxiety inducing buzzes and thunks of a damn MRI machine. So all-in-all it wasn’t as bad as it could have been.

But it sounds like the scan was just a scan, since all of the current treatment had been ongoing since the week prior – as the radioiodine 131 was flowing through me and into any stray, dying thyroid bits that remained after the surgery.Β πŸ€• The scan basically just documents any little glowing specks… at least I hope that specks are all that’s left… then in several months I’ll have to do it all over again, and the results then will be compared with the scan from the other day.Β πŸ™πŸ»

I do have another appointment scheduled with the endocrinologist in a little more than a month, where I’ll have to do all my bloodwork again so they can check all of the various levels that indicate how good of a job they’ve all done to this point.Β πŸ˜·πŸ’‰πŸ˜ It’s difficult knowing that there isn’t really an “Okay, we’re done. You’re good.” with this.Β πŸ˜” They’re not able to tell me that I’m cancer free, because even if the scans show zero specks, it’s just one of those things that a person has to live with, have regular tests for, and if specks are found again in the next scan… then the cycle will start all over again. 😟

I’d say that I get a break from worrying about all of this for a while, but I don’t know if there could be something in the recent scan that would make my doctors go “Ahh, shit…” and require me to come in for something else before my already scheduled followup.Β πŸ˜’ Next on the agenda, though, is my first full appointment with the new shrink on Monday.Β πŸ™„ I’ll certainly have a variety of things to tell her about, which make me the way that I am right now.

Inescapable

My brain and body have definitely been on pause today. Thursday night into Friday afternoon was a rough chunk of time… going over to say goodbye to my friend Christina with a ton of family around, then a couple hours sleep before heading to the hospital at 6.5a for the radioactive iodine treatment, and shortly after I got backΒ home I learned that Christina was gone. πŸ˜”

We knew it was coming, and we were all there the night before because we honestly thought it would happen that evening – but she held on for one more day. It was so nice to be around all the family, many of whom I hadn’t seen in a good while, and I even met her biological dad… who was a really kewl old d00d. We all tried to keep the vibe as positive as possible for each other, but of course it was still really sad. I wasn’t even going to go over, feeling like it wasn’t my place, but Bri reminded me that I’m just as good as family – and that of course I was welcome and wanted there.

Meh… I don’t really wanna talk about that anymore. My thing at the hospital took over two hours, although most of that was pre-treatment lab work, having three pages of precautions read to me, and of course the signing of all sorts of documents. Once they opened the lead-lined container and used tongs to get the pill out to hand it to me, it was literally a minute until they were shuffling me to the door. They really want you to just gtfo once you’ve got the radioactive vibe.

The lady that did it all, you could tell that she was used to it… because even before the pill was in the area, she would still do things like asking me to place my ID on the tray table so she could grab it, rather than me handing it directly to her and risking actually touching her. And boy, once that pill was out and in my hand, she backed across the room until I took it – and as she guided me to the quickest way out of the building she reminded me to stay at least six feet away from her. Good stuff, eh?

I didn’t have any nausea or sickness as side effects, but it did make me have a funny taste in my mouth… and I unintentionally fell asleep that afternoon from about 4p until midnight – but that was as much from the lack of sleep the night before as it was the medication. I have to stay on this low iodine diet for a few more days, I’m supposed to not be around kids or pregnant people at all for a week, and six feet away from anyone else… and poor Maven, when she wants to sit on me or lay next to me, I have to put her down on the floor at the base of the recliner – but I make her a little nest in the blanket and share the space heater with her, so she’s okay as long as she’s close to me. She hasn’t left my side since I got home… pretty sure she senses the “bleh” I’m giving off.

Just hoping I don’t irradiate her too much until it’s out of my system.

Unrelated to Adulting

Okay, now that I’ve got all that other shit out of my brain for the moment… now I can write about the other stuff from the past week or so. Let me start off by talking about a new toy that I couldn’t resist. 😊 It was only $80 shipped, which isn’t too bad… and considerably less than what the original (with disk drive) would have cost new. It’s called The C64 Mini, and while it’s not an official Commodore product, it’s essentially an entire C64 emulated on a teeny board, in a teeny replica of the original “breadbin” style Commodore 64.Β πŸ˜ƒ And before you ask, no… the keyboard doesn’t actually work… but you can plug a USB keyboard into it and use it as an actual computer – and the company intends to come out with a full-sized, completely working replica soon. 😁

I’ve yet to even power the thing on, because I’m waiting for a spell when I’ll be able to do nothing but mess with the thing… which will include upgrading the firmware to allow me to load any program from a flash drive, and loading it up with all of my favorites from when I was a kid. It does have 64 licensed games built in, but most people are like me and get it so they’ll have the closest thing to an actual C64 – but with HDMI output – for the best looking Commodore 8-bit computer ever. 😊

I suppose everyone has a “thing” from their generation that they loved when they were younger, and therefore want to have again once they’re old. 😏 Classic video games and Commodore computing are definitely my thing, the same way that HAM radio is Dad’s thing… and like me, he’s still got a few toys as well that he plays with to this day.Β πŸ€“ I’m even learning how to take a C64 disk image, open it on a Windows 10 laptop, add or remove C64 programs as I see fit, and then export the new C64 disk image for use on this thing. 😯 That’s how it is with me though… give me something I’m genuinely passionate about, and my brain will start absorbing everything that it needs to know about it.

Okay, gotta keep this entry short-ish. 🀨 Maven is almost completely done with her home-grooming, which means my bathroom and living room carpet areΒ covered with poofed hair for now. 😟 I’m lucky that she’s so cooperative though. In fact, for the most part she loves the process. Bri came for a visit right before Halloween, not only to hang out (she drew the face on the pumpkin and I carved it upΒ πŸŽƒπŸ˜) but to also distract from her mom’s deteriorating health. She’s actually had a couple of good days, so it was nice to see her have a little more energy. However, my friend Greg, his mother passed away this past week. 😒 She was having a rough time, so it’s one of those deals where you’re almost relieved.

Cassi came down to spend the night on one of her days off. Her life is so hectic, between all of the hours that she’s been putting in lately and then having her, her mom, and her (very opinionated) 17 year-old sister all there at her house, making noise at each other. 😏 So coming here, even if half of her time is spent sleeping… it really is like a teeny mental vacation for her.Β πŸ™‚ Plus she helped me out with some chores, including the whole de-flea-ing process with the sprays and the carpet powder, etc. (Plus the most important and helpful thing… getting Maven to swallow that damn Capstar flea killin’ pill.)

As we sat in the living room watching the new “Charmed” show, we also each had our notebooks and were fastidiously jotting down the things that we intend to work on in the next few days. It’s strange how just having her here “working” in the same way that I was, how it helps to settle my brain and let me get down to business without getting as easily distracted by Twitter, Facebook, or YouTube. 😡

So there ya go… just so you don’t think my entire existence is grumping and bitching. 😐 There’s always some good sprinkled in there – and even when it isn’t “good” in general, I’m thankful that I have the right kind of friends to help me through those times, and vice versa.Β πŸ™‚Β Okay, carry on…

Tedious Ramblin’

Doing my typical weekend thing, being half-productive / half-bum. 😐 Last week wasn’t too bad… got a few of my “must do” things done, while adding in a couple new things on the fly – and whatever wasn’t accomplished last week will just be added to the list of stuff for the upcoming week.Β πŸ€·β€β™‚οΈ I guess I got just enough of last week’s stuff done that it’s not really stressing me out today like it normally might.

Dealing with the misc “bill stuff” last week was tedious.Β πŸ˜’ My check for an bill that I had gotten was returned to me, with a note that said no balance was due. That same day, I got a second bill for that same amount… and it took talking to someone in person to get them to acknowledge that I was handing them a check for the amount due, at least according to their file. 😠 Not a big deal, just annoying.

Then I got a bill from one of Dad’s nurses or doctors, for an “at home visit” which I obviously don’t get here at my own home. I called and explained that our names are similar but not identical, but she still couldn’t tell me why the bill came to me, in my name. 🀨 She assured me that she fixed it in the system and that I won’t have to worry about it. It was for only ten bucks, but still… annoying.

Tried to call the hospital about some additional bill stuff on Friday afternoon, but even though it wasn’t that late in the day – apparently everyone with any authority had already left the building for the weekend. In theory, the financial assistance should absorb some bills as they’re generated, so there’s a good chance that the ones I’m calling about will have already been affected (or perhaps eliminated) by the time I actually speak to someone about them.

Everything that I ordered for Maven finally came in. There were issues because of the package being damaged in transit, then automatically refunded, then the order was automatically re-orderedΒ – despite me doing that same thing manually… just nonsense that had to be worked out before everything was good.Β πŸ™„ But she’s feeling better, isΒ mostly flea-free… so basically I’m handling a few things at the same time with her, like I’ve been doing appointments with myself for a few months now.

Oh, and then the “on the fly” thing that I mentioned having to make room for last week… it was an intake appointment that my PCP had made for me, to start seeing a therapist and psychiatrist.Β πŸ˜³πŸ‘©β€βš•οΈ The last two PCP appointments I mentioned that I’d like to do that eventually, but that I wasn’t ready to throw it in with all of the rest of the things I’m dealing with quite yet… but my PCP apparently (and accurately) figured that I really did want to get started with the psych side of things, and that I just needed the nudge of having an appointment straight-up scheduled without any input from me. 😏

The first person I saw (and the only person, until next week) was the therapist lady, and I think I’m going to like her. 🧐 I got the typical hour-long intake visit with generic questions to start sizing me up… and I think I’ll like her not only because we share political and social views (it came up while talking about insurance and pre-existing conditions), but also because I think she’s aware that I’m relatively smart – and she seems pretty sharp herself. I always like therapy better when there seems to be a “fun” but somewhat adversarial type relationship – where we each know that what we both say will likely have merit.

Not much talk about meds yet, since that will fall under the umbrella of what the actual psychiatrist will be handling for me… so, I dunno, it may seem weird but I’ve always liked counseling for some reason. Even if it’s just because I can rant to a disconnected party for almost an hour and then just go home.Β πŸ™‚ I don’t have to consider any “solutions” that they think might make me “better” compared to what I usually am. I mean, I’m open to suggestions… but do I have any specific goals or methods that I’m particularly interested in? Not really. Hey… I’m not the one who actually made this appointment.