Not What I Planned

Yup, like I said, last night was fun, but I’ll be paying for it today. Thinking that this would be a lazy Sunday, I made the mistake of pushing a bunch of things from last week off until today. I’ve gotta handle my mail, work on a bunch of stuff regarding my upcoming IC hearing, listen to my voice mails and deal with whatever those require, plus I’ve gotta call the pharmacy to continue trying to get my current prescriptions filled…. and that’s all gonna be a lot harder now with a frozen neck.

Of course because of the physical aspect, but also because it’s particularly stressful to be coordinating my fight against workers comp and struggling to get my meds filled while I’m experiencing the exact thing that they’re fighting me over. It’s emotional stress that makes the physical stress worse, which makes the emotional stress worse, ad infinitum… the ouroboros of my disability. 😞

When that cycle starts it’s hard to escape. That’s why I worry so much about things like my planned concert trip later this year. Yesterday, my only concern with meeting up with my friends was that I might be too tired to do it, but then my shoulder shows up too, goes nuts, and now today is screwed. If I make just the smallest misstep, things can go downhill so quickly.

So I’m gonna wait a little longer for the morning meds to kick in, then I’ll start slowly tackling this stuff. But ugh… cringing about what else the mail might contain, cringing about what the voice mails might say, cringing about yet another hearing that will determine the quality of my life for the indefinite future… it would just be nice if I felt like I had some control of where my life is heading.

It’s probably partially my fault for not dealing with stuff as it showed up, but again I made the mistake of thinking that because I felt okay on those particular days that I’d feel okay today when I planned to deal with everything. Meh… I have very little control over how this will all turn out, so I might as well just power through it as best as I can and then give it up to God. And yeah… this counts as a negative post.

Predictably Unpredictable

Had one of those fortunate times where my workers comp doctor appointment coincided with my neck acting up. Obviously “fortunate” is a relative term… but I think it’s important that the doctor sometimes see me at the worst of my worst times, since at many of my appointments I’m “okay.”

The spasms started yesterday, after carrying a big bag of cat food in from the garage. It used to be that I could still use my right arm to carry about any amount of “dead weight” … where I don’t really do any lifting but just let whatever-it-is hang there at the end of my arm. I guess I’ve got to be more careful about even that now.

It makes sense that something heavy, carried with my right arm, could still pull across the muscles and tendons of my neck and therefore irritate the damaged area… I’m just not stoked about the potential of losing even more ability than I already have. 😟 I’m also not stoked that sometimes just the act of sitting down a little too hard triggers a nerve spike that radiates out over both of my shoulders. 😣 I know I’ve got a big head, but just that little bit of “extra” downward force on my neck… it’s scary that that’s enough to sometimes cause an unpleasant jolt.

But my visit with the doctor was productive. It’s great that after more than a decade (with a basically stable, yet slowly deteriorating condition) he’s still more than happy to give me as much time as I need at an appointment, and this was one that took a little longer as we discussed everything. And while I’m not a fan of the process, we both agreed that it’s probably time for another MRI to see what’s going on in there. 😳 Now, whether workers comp will approve it, that’s another matter.

This was one of those “C’mon, there has to be a way to make it where I don’t hurt like this.” visits, which are probably as frustrating for him as they are for me. 😐 It’s just that there’s only a limited amount of reasonable things we can try, and I’ve already done treatments like cervical spine injections – which only provided limited relief, both in the amount the pain was reduced and for how long. πŸ˜’ And with the risks involved in that method, I’m not sure that it’s worth it when adjusting my meds could prove to work better.

Meh… I’m so tired of medical stuff. 😞 But I’ll wait to see if the MRI is approved, I’m also waiting for a call back about some other things, and then we’ll just go from there. Like I told him today, I’m still too young to just accept that this is how I have to feel, and I haven’t battled with workers comp for this long just to feel “bad, but not really bad” most of the time. πŸ˜’ If there are still things that could help me, they need to remain open as options – otherwise what’s the point? Thankfully, he still seems to agree.

This Is How I Do… Unfortunately

Kinda overdid it yesterday, so I paid for it last night and today. 😟 Had a little boost of energy or motivation so I tried to make the most of it. First stop was Tim’s for some coffee, but then I headed over to Great Clips so Toni could cut my hair. She had several people that requested her before me, so I ended up waiting well over an hour. I had her do something a little different this time, but I’m not sure I like it… 50/50 odds that I’ll end up shaving my head before the week is over. 😏

After that I went over to Walmart to get a new pair of shoes and some other crap. My old ones were actually worn through on the bottom, and since I prefer the look of boots – I did end up getting a steel-toed version. Of course that will set off the metal detectors at the IC place, and I’ll inevitably get the side-eye from someone about why I need steel-toed boots if I’m not working. πŸ™„ They’ll have to just take my word… they’re cheap, they last a long time, they look good, and they’re actually comfortable. πŸ€·πŸ»β€β™‚οΈ What else can I say?

While I was there I finally stopped by the vision center and made my eye appointment. I’m tired of having a hard time driving at night because of my shitty old backup glasses with an Rx from years and years ago. 😠 That adds another appointment to my already busy first-half of January, but I did have one thing fall off the calendar unexpectedly.

I’m not sure if it was a request from my attorneys, their attorneys, or something the IC just decided itself – but it looks like my hearing has been continued, with a rescheduled date yet to be determined. πŸ€¨πŸ˜• I’m not sure if it has something to do with the concurrent court case… meh… I suppose I should be glad that there’s a little more time before it goes down, but I don’t really need any more time. I wanna get things settled.

But the last thing yesterday… Bri was in town at her cousin’s place, so I stopped by there and dropped off her Christmas present that I got a little bit late. I also picked up a pack of Bertie Botts jelly beans for Brantley and me to try at random – and hope that we didn’t get the gross ones. 😏 Out of four, the only good one I got was banana… and while he got a bunch of gross ones as well, he’d only bite them in half and then wanted me to eat the rest. πŸ˜„ I’m glad I picked that up at the last moment though, he had a ball with ’em.

Got home and realized that not only did I use up all of my social juice, but my neck was killing me as well. 😣 Went to bed early but woke up at 2:30 with my neck frozen. Took my morning meds a little early to fight that, and it ended up knocking me out around 10am until 2pm… so not only is my sleep screwed up, but my neck is still bad. 😠 Gonna take a hot shower in a bit and then put a Salonpas patch on… that’s about all I can do.

Luckily no appointments tomorrow, so we’ll see how things go tonight.

Method To My Madness

You may or may not have noticed, but over the past many weeks – especially in the time right before and after my scan – I’ve been posting a lot more entries to the blog than usual. Even if not in quantity, I’ve definitely been ramblingΒ more than I typically do. Now that I’m most of the way past that phase, I’m probably gonna end up slowing a little with my postings – not necessarily on purpose, but because as things start to feel like they’re returning to normal I have a feeling I just won’t feel like I need to post quite as much.

There’s no way to explain to someone who hasn’t gone through it, how it feels to sit with an unspecified amount of cancer in your body, jumping through all of the hoops for the tests, which includes gradually wearing down your energy levels to nothing, and then just sitting there, not knowing, waiting, worrying, hoping, etc. 😟 There isn’t an emotion that you don’t experience, ranging from hoping that it’s completely gone – to hoping that if it isn’t gone, that you at least get an expiration date… just to finally get rid of the uncertaintyΒ more than anything else. 😞 I suppose I can only speak for myself, but I don’t see how anyone wouldn’t feel most of the things / ways that I’ve felt. πŸ€·πŸ»β€β™‚οΈ

But my way of dealing with all of that (or distracting myself from all of that) was by posting here. Didn’t necessarily want to talk to anyone about it in person, or in any detail or whatever… but also couldn’t just sit here and stay all bottled up about it. So whether my posts had something to do with my medical stuff or not, it’s been a big reason why I’ve been so active lately. Now, I’m not saying that I’m gonna stop blogging… I mean, rambling is sort of my thing, it’s more that I just wanted to come here and finally explain.

Of course it doesn’t help when in the middle of all that, I get new “neck stuff” (unrelated to cancer) to eventually be concerned about. πŸ˜’ It’s hard to stay positive and try to get back to normal when just as you’re finishing up with one thing, something else fairly big comes along right on the tail of the last thing. And that’s what a lot of my postings have been, whether they seem like it or not… trying to find the silver linings, trying to reassure or even convince myself that I have the ability to take the good for what it is, and work around whatever negatives are left after that. (Bleh… that sounds cheezy.)

I’m still not back to normal, but I’m definitely getting there. I found out, thanks to the festival, that even though my energy levels are a whole lot better – there’s still a wall there to be hit, and I still don’t get a sign when I’m approaching it. I’m assuming that’ll just continue to get better though, because it has so far. I’ve barely been doing anything with friends yet, and still haven’t been on Facebook for over a month now… so I’ve still got a few of those types of hurdles to get over, but it’ll all come in time. πŸ™‚ I’m not setting goals or time-frames or anything like that… just trying to always make sure that I keep moving forward with all of it. And as for the stuff that I’ll have to face in the future, whether it is spine related or cancer related (or something as of yet unforeseen), I can’t let it chew up all my thoughts and actions between now and whenever that will be.

So whether it helps me because I’m just getting stuff out, or because it also helps to reinforce the positive thoughts… whatever it is, it’s just what I’ve needed to do during this more-uncertain time in my life. πŸ€·πŸ»β€β™‚οΈ But as I continue to get better, it should require less energy (or rambling about it) in order to keep the progress going. I made it up and over the most recent hill, so now I can hopefully start to coast a little more if that’s what I decide to do.

Meh… I could obviously continue with more on this topic, but this basically explains what I wanted to be explained. We’re all works in progress, and I’m no different. And if it’s not one of the issues that I’m currently focused on, there’s always gonna be something else that tries to damage my calm and toss some grenades in my life’s direction. 😟 I’m just hoping that I can take the things that I’ve learned from dealing with the current situations and apply them to those other things when needed. πŸ™‚ Maybe get a little better with the “ups and downs” since we all seem to come with an endless supply.

Predicted? Or Jinxed…

Stayed up late last night, not only trying to get some pics of the lightning, but also watching the delayed Southern 500 which didn’t finish until 2am. I had a feeling… wasn’t really sleepy even at that hour, my neck was feeling different, so I didn’t end up falling asleep for good until around 4a – and at that, it was with the idea of trying to “sleep carefully” so I didn’t wake up with my neck feeling even worse. πŸ˜’ It worked, but only because every time I would stir in my sleep, I’d wake up a little too much – making sure that I wasn’t being rough on my neck. Meh… so five hours of not-so-solid sleep… not in the greatest mood today.

And even using a “lightning capture” app to cheat a bit, I still wasn’t able to capture a single decent photo last night. If I didn’t have the ISO and exposure either too high or too low, resulting in images that were too dark or too blown out – the other problem was just the thickness and multiple layers of the clouds. πŸ˜‘ When the lightning wasn’t bright enough it was just obscured by the clouds, and when it was bright enough – it was like a strobe light going off in the middle of a huge ball of cotton. Just no definition.

So I think today I’ll do the bills, catch up on laundry, just general meh stuff around the house. Once the week actually starts tomorrow, that’s when I’ll have to start worrying about oil changes, glasses, haircuts, and all the other “out and dealing with people” stuff… so keeping to myself and just getting some minor chores done around here actually sounds like the most appealing way to spend my time today, believe it or not. πŸ€·πŸ»β€β™‚οΈπŸ˜•

I’m sure as my morning meds kick in I’ll start to feel better, along with mentally feeling better about getting some random shit done around here. πŸ™‚ I’m just never good when I first wake up, especially when I basically predicted last night that my neck would be an issue and that I’d be glad that today was still part of the 3-day weekend. πŸ™„ Just gonna tune the world out as much as possible, put on some music, and do my thing.

Still Unpredictable, Of Course

I had a scenario today where I was gonna be a backup person in regards to getting a friend to the Sweet Corn Festival for the parade this evening. They’ve got a handful of kids, with some needing to be here, some needing to be there, so basically between scheduling and other helpers and everything – I said I’d be willing to take her or her “band kid” to the parade if needed, because it’s not like I’d mind even seeing the parade myself since it’s been quite a while.

But luckily my name wasn’t drawn, because I woke up today with my neck and back again just feeling a little bit off. 😟 I took my morning meds, including an Rx anti-inflammatory, so hopefully that’ll help… but yeah, after doing some work around the house yesterday, I’m definitely gonna take it easy today. 😳 I just don’t wanna pester my injuries to the point where it screws up my main SCF plan this weekend.

Like it usually is when I have lower back problems, I can’t think of anything specific that I did that would have triggered it… πŸ˜’ and now that I know the damage in my neck could actually affect nerves in my lower back and leg, it does make me nervous when I notice anything different. But just knowing about the damage in itself causes me to be more “aware” about any unusual feelings, and more alert to any changes in general.

So it’s NBD at the moment, but I think I might sleep in the recliner for the next couple of nights – since that’ll keep me from flopping around in bed like I usually do when I sleep. Hopefully if I did tweak something in my neck it was just minimal, and if I try to sleep in a more “still” manner and maybe activate “robot head” for a couple of days (where I either just move my eyes, or move my entire body if I wanna look in any certain direction)Β when I need to look around, I can keep things from getting worse. ‘Cuz this has happened before, and it doesn’t always end with huge pain and the temporary need for a cane.

Just another aspect of testing what I can get away with in my attempts to avoid becoming a potato. πŸ€·πŸ»β€β™‚οΈπŸ˜

It Shouldn’t Be This Challenging

Today’s been kind of a flop. I didn’t have anything on the schedule really, but even after not getting much sleep – I still woke up with some motivation to work on one or two of my extra projects around the house. Also, between the lack of sleep and the shitty weather, I knew today wasn’t a car or glasses day either… so I’ve spent most of the day waiting for my upset stomach to go away so I could do a little of the work that I wanted to do without feeling like I was gonna yack. 🀒

It did make for a nice lazy day though, something that I sometimes struggle with allowing. Texted with Dad quite a bit, along with a few other friends, and then finally decided to go in the kitchen to chop up some green peppers to make some tuna salad for sammiches – to hopefully settle my belly, which it did. πŸ™‚ And to be honest, I was glad to just wake up today without my back being screwed up… something that it was showing signs of before I ended up falling asleep early this morning. 😯😬

So it wasn’t really that today was a flop… it was just unremarkable for the most part, so I wasn’t looking at it in the right way. πŸ€·πŸ»β€β™‚οΈπŸ˜ And now that I’m feeling better since this afternoon, I know it’ll help my mood to get some more of my “unessential” stuff done before whenever I fall asleep tonight. Normally my lack of productivity would have made me a little twitchy, but I think I’m still riding along on the thyroid med train – still seeming to get back a little more energy with each day that passes. πŸ€’πŸ€žπŸ» I wish I could explain how bad the bad days really were just a few weeks ago, to emphasize how these little improvements are still a big deal.

I think I might go ahead and pull out the 360 cam and charge it up, in case I feel up to shooting any video at the SCF here in a few days. If not that, I plan on taking a lot more regular pictures this year. It’s been a few years since I’ve bothered, especially since last year’s trip was kind of a shit show from the start. πŸ˜’ And with my mood being decent lately (for the most part anyway…) I’m hoping that it’ll also nudge me towards getting interested in my hobbies like video and photography again. 😟

Every now and then Jim will post one of goofy our old videos on Twitter and I’ll come across it, where we were just goofing off and having fun for random Squirtman themed videos, and it makes me realize how long it’s been since I could truly say that I was having fun at anything, or that I was in a good mood for more than a couple hours out of one day. 😞 I’ve gotta start trying to figure out how to get a little more of that back, despite all of the other non-fun stuff I’ll obviously have to be working on (or facing) as well. 🀨 It wasn’t that many years ago that I was a totally different person, and it’d be nice if I could find my way back toward that at least a little bit. πŸ€·πŸ»β€β™‚οΈ If my body will just stay physically un-fucked for a while, I might have a shot at it.

Meh… just thinking out loud again I guess…