Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Advertisements

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)

Abundance Of Caution

We’re down to about a week-and-a-half before my surgery. 😳 And let me tell you, I’ve been dealing with some serious anxiety issues since the beginning of this past week – and I’m finding it hard to shake. πŸ˜₯ I’m right on the edge, always, and the slightest thing will push me over into labored breathing, chest pains, dizziness, etc. 😟 So while it might make me “difficult” in some people’s minds between now and my surgery, I’ve got to do whatever it takes to keep my anxiety levels low, or at least unchanged if I’m still managing to hang on to being okay.

It’s kind of embarrassing, but I honestly need to keep myself in a mental health bubble for the next 10 days. πŸ˜’ I don’t want anything to happen that will risk me not being able to have the surgery when scheduled, and going to the ER for a panic attack with severe chest pains probably wouldn’t help that cause. πŸ˜• Now, I am gonna tell the doctors and surgeon everything that I’ve experienced up to that point, before I go in, because I absolutely want them to know… but yeah, right now is not the time for me to deal with anything that I don’t absolutely need to deal with.

Cassi helped with that over the past couple of days. πŸ€·πŸ»β€β™‚οΈπŸ˜ I went and got her on Thursday after she got off work, because she had two days off in a row and wanted to spend them here with me. ☺ We never figured out how to make our “couple” relationship work, but boy are we good at being each other’s “person” in times of need. And it’s because neither of us need much… just the distraction from our respective lives that’s somehow provided by just being in each other’s presence.

As for what we did over those two days… there’s really not much to talk about. We just plop down in the living room, turn on Grey’s Anatomy on Netflix, and just sit with each other and watch, talk, eat mac and cheese… heh… just “normal” stuff that doesn’t add to the anxiety. The only times it got a little rough for both of us was when one of the episodes would be about thyroids or cancer and the results. Probably shouldn’t have watched those particular episodes, but it’s also good to think about everything realistically, all of the potential outcomes – and letting myself cry a little bit and be scared with her… it was much better than doing that same thing by myself. πŸ™‚

So yeah, the last couple of days were really nice, and really needed… and today, well, I’m calling it “a day off” since I don’t intend to do much (if any) communicating with anyone, and instead focus on things that I just personally need to do before it’s time for my surgery. 😊 The doctors and surgeon haven’t give me any reason to worry about the surgery. None. But you know how it is… you still wanna kinda get things in order, just to give yourself that peace of mind. And doing that sorta thing makes me feel better… makes me feel productive, which is something I always aim for.

Mood is good… I’m hangin’ in there.

Sunday Delivery

No real change in the past couple of days, and I’m starting to get restless. πŸ˜’ I’m sitting here, keeping it in neutral, but also wanting to do stuff around the house… anything other than just sitting here. πŸ€• But then I stand up and take a few steps and it knocks that motivation right out of me. So I’m gonna continue to take it easy and just work on things that I can take care of in the immediate area. Sitting on the floor with my back right up against the heater is helpful, and I can pop open the laptop and spread out any paperwork type shit that I want to work on… πŸ€“πŸ’»πŸ“ so I guess that’ll have to do for now.

The mailman stopped here today thoughΒ (Sunday… weird) to bring a couple of goodies that I ordered the other day. They aren’t even goodies for me, but it still made me happy to see them arrive. πŸ˜ƒπŸ“¦πŸ“¬ Now, I’ve been out of circulation for a long time when it comes to most of my friends, but Brantley and Desiree both have a birthday this week – so I wanted to get each of them something so they don’t think that I’ve forgotten about them.

Bri and her family have Indiana roots, so I got him an Indianapolis Colts wallet. 🐎🏈 Now, he’s only four, so he’s not gonna be all Woohoo! when he opens it – but hopefully mama will teach him how to carry important things in it and tell him how “grown up” it will make him. 😊 I also unsealed the packaging, stuck a $20 in the wallet, and sealed it back up again before I wrapped it… so that should be a nice “extra” surprise.

Meandering Thoughts

I’ve been anxiously waiting for the weekend to get here. 😐 While technically the day of the week doesn’t matter too much when it comes to my life, right now I’m using these “weekend” days as a crutch for my struggles of the moment. 😟 I’ve had a string of challenging days which have gotten progressively worse, mostly because I’m dwelling on a few things that I’m incapable of doing at the moment. Things that other people are somewhat countingΒ on me to be able to do. 😬 No matter what it might be, I hate when I can’t be “reliably reliable” for my friends or family… so while I do continue to work on myself, I really needed this weekend so I could chill and tell myselfΒ “Just take it easy on yourself for a couple of days. It’s the weekend.”

Even having said that, it’s only partially effective, so my brain took it upon itself to engage in other distractions. Twitter is always a “go to” place for relatively irrelevant engagement. It seems most of the world goes there to loudly and/or angrily broadcast their opinions (often barely grounded in facts, if at all) and I usually end up trying to educate the exceedingly ignorant, insulting, and condescending of the lot. I know the odds are slim that I’d ever get any of them to think beyond their narrow view of reality… but like I said, it’s more distraction than crusade. (Plus it lets me act like an asshole to those that deserve it. Everyone needs that outlet sometimesπŸ€”)

Lots of discussions about gun control and the Parkland kids, talk about the recent military engagement in Syria and the potential consequences… πŸ€“ but then somehow I got diverted towards more random/fun Twitter and Google searches. I think it started with things about Atlantic City, since I’m considering a trip there sometime this year, but then I ended up looking through local auction listings – which switched my brain over to straight nostalgia mode. 😊

One of the first things that I came across (which was weird, since I was just wondering about it a few days ago) was a vintage “Poosh-M-Up” pinball-ish type game… one that my Dad had when he lived here at this house. πŸ€— It’s funny, one of those things where my memory of the game and the location are inseparable. I’m assuming my grandparents originally bought it for him, but then I ended up playing with it once I was old enough. πŸ‘¦πŸ» But yeah, such a random thing to accidentally come across… and there’s actually quite a few varieties of this game, and I plan on reading about the history of them all. πŸ™‚ I never considered there’d be a bunch of ’em out there like this.

This local auction though, it has several items that I’m kinda interested in. 😯 That pinball game, old Atari game consoles and computers, other misc old toys of my era… and even though it’s in Mt Vernon, that actually motivates me to go a little more – since it’s a sleepy little town and there might not be many people that show up to outbid me. 😁 So after looking up that stuff on eBay, it made me think of other old games that I had when I was a kid, so of course I started looking up some of those things as well. I know that I always threaten to do an entire blog entry devoted to pricing toys from my personal childhood, but I really think that I’m gonna do that later tonight if my brain remains in its current happy place. πŸ˜‹

Maybe, Possibly

Sitting here trying to get my brain out of “pause” and onto something productive. I’ve got a whole cabinet full of stuff that’s destined for eBay, but I just haven’t had the mental energy for it in a long, long time. I think I might be feeling some motivation today though… and I’ve already gone to eBay and updated a bunch of my information and settings, and I’ve got the desire to start listing – if not the actual motivation quite yet.

It’s difficult to explain how frozen I’ve been in my life over the past couple of years. I don’t do much around the house, I don’t do pretty much anything with friends anymore… I’m just here, existing through the day so I can exist again the next day and do the same. I don’t bring it up because I wanna explain or get in to it… but to just paint the picture of someone who is trapped in a moment as life passes by.

A few months ago I wouldn’t have even cared, so right now, feeling like I wanna start doing some stuff – whatever it might be – is definitely an improvement. Yeah, thinking about doing stuff barely counts more than not thinking about it… so it’s gonna be about pushing it from a thought into action. Right now at least, I feel like I might be able to start doing that. Meh… so yeah, that’s what my brain is spinning on today as I sit at the house.

Better All Around

I don’t wanna celebrate too much, at risk of jinxing myself, but I actually got a decent amount of sleep last night… and woke up feeling good enough to head into town to grab a fresh change of clothes for Dad, for when he got released from the hospital to go home. 😎 As it turns out, when I got to his place, he was already there and settled back in. πŸ˜ƒ For him feeling like absolute crap only 48 hours earlier, I was surprised and pleased to see that he appeared to be back to his old self again already.

I hadn’t taken my morning pills before I went in, because I honestly thought I’d only be picking out some clothes, getting them ready, and then heading back home – so after visiting for a while I was really starting to feel my neck. 😣 Before I left my house I was also half-assed thinking about getting my hair cut… but meh… I figure it’s the weekend and I’d rather go home and medicate, and hopefully keep myself good for the rest of the day and into the weekend. πŸ€·πŸ»β€β™‚οΈ

I’ll probably go back in a few days for another visit, plus I wanna grab him some pop and some kind of junk food goodies for Mom – so that way I’ll be “coming bearing gifts” when I check in on her. 😁 I don’t wanna get ahead of myself though, as that’s not the only plans that I’ve got for the next few days. First thing on my list is writing up a brief but complete recent medical history so I’ll have something to offer the doctor, whenever my appointment may end up being. πŸ‘¨πŸ»β€βš•οΈπŸ™‡πŸ»β€β™‚οΈ

Between what the MRI tech said, and now after experiencing some concerning chest pains a couple times over the past few weeks… I mean, I’m 99% sure it’s just anxiety related, but I’ve gotta just suck it up and “play grown-up” and start with the regular doctor visits. πŸ§˜πŸ»β€β™‚οΈ I’m no spring chicken anymore. It’s just been a while since I’ve been in for service, and you know how it goes… you go in for the oil change, and pretty soon they’re talking about air filters, rotating tires, transmission fluid, unexpected rust, blah blah blah… 😏

Not particularly looking forward to that shit, but like I told Genesee… I can deal with whatever aches, pains, or glitches that my body may have – but I’d just like some reassurances that all of it is relatively normal and that I’m not going to just drop dead here in my house on some random afternoon while doing basically nothing. 😯