Trying To Not Read In To This

I got a message two days ago from the doctor’s office that is handling my thyroid cancer treatment. My next session with the radioactive iodine treatment, which should be my final session (if everything goes well), was scheduled to start near the end of July… but they now actually want to schedule that as soon as possible. 😐 They asked me to call in yesterday so we could start making a plan, but to be honest the message had me a little too shook… πŸ˜₯ and since I was actually having a decent day yesterday, I didn’t wanna risk nuking that by bringing all of my thoughts back to the “unknown” about what’s remaining inside me, if anything.

That’s also why I took advantage of the day yesterday to get caught up with some things around the house, because I know that this next step is gonna be a bit of a nightmare. 😣 I have to completely stop taking my thyroid meds for a couple of weeks, and they were clear about how it could have drastic physical and mental side effects. (Also part of the reason that I stopped the Paxil, so I didn’t have one crap thing on top of another.)Β Then once the thyroid medication is completely out of my system, that’s when I’ll go to the hospital for the radioactive pill and another full body scan about a week later. πŸ˜•

Confession… I didn’t call them back today either. 😞 Instead, what I’m going to do is just go into the office tomorrow and talk to them in person. To be sure that I understand the details of the plan, to be sure that everything is scheduled properly… and also to see if I can catch some kind of vibe by the way that they speak with me about it. 🧐 Like I said, I’m trying to not assume that something has gotten worse just because they want to start things sooner. 😳 It could be as simple as being easier on their schedule, and just better for me (or anyone) to do all of this “second phase” stuff sooner rather than later anyway.

So yeah, that’s the next thing on the radar… movin’ in fast. 😟 And lemme tell ya’ something. πŸ˜’ Uncertainty, when it comes to something like this… it’s a special kind of slow, drawn-out torture. I’m ready though. I was doing good at keeping it out of my thoughts up until now – but whether I got that call a couple days ago, or whether we stuck to the original end-of-July starting point… either way the anxiety was gonna come. So I agree… let’s get this shit started. 🀨

Unrelated: I just updated my Windows 10 and all of my emojis now have thick black outlines. πŸ€”πŸ€·πŸ»β€β™‚οΈ

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Unfortunately… Nope

This will be a lengthy entry.Β Β πŸ€”Β  Although, I suppose that’s typical for me and the blog… 😏

A few days after going to my full dose of Paxil, one in the morning and one at night, the side effects that I hoped would go away were actually getting much worse. 😳 So over the past couple of days I’ve weaned myself back off… and today was the first day I started feeling close to my normal “normal.” 😟

The biggest problem was the tremors. Any time I would yawn, which was a lot,Β probably due to the new med… every time I would yawn, my left shoulder and arm would start shaking uncontrollably – sometimes lasting up to 30 seconds before it would calm. 😧 And then it started doing it with my other shoulder as well, to where eventually when I yawned (and even when I wasn’t) I’d honestly compare the tremors to what you would see in a person with Parkinson’sΒ disease. πŸ˜₯ I suppose it makes sense, as the disease is related to dopamine problems and that’s often something that psych meds mess around with as well.

The daily waking up in a near panic attack… that didn’t stop either. And when on the full dose, taking the morning dose was no longer relieving the anxiety when I took it. So, it was waking up with severe anxiety, taking the pill (along with my others) that was supposed to help with anxiety, only to have it then stay around all day. 😣 Awesome. πŸ™„ That was reason enough for me to reconsider if I wanted to continue taking it… and I really did want to give it a chance, to wait out the side effects to see if they’d pass. But you have to remember, after my work injury, the main thing that my doctor and I had to work on for a long time was getting my left shoulder with the nerve damage to stop randomly shaking.

So not only was the new med increasing my anxiety, but it had brought back the uncontrollable shaking in my left shoulder, which always leads to much more pain by the end of each day. πŸ˜’πŸ€¦πŸ»β€β™‚οΈ So I hope most people would understand why I wasn’t willing to “just keep hoping it’ll pass” while possibly risking it getting worse or even becoming permanent again.

It’s disappointing, but again I’m experiencing the “Ahhh” of just losing all of those awful and scary side effects, and returning to my “normal” self… which now feels like a relief – hopefullyΒ returning just to “how I was” a couple of weeks ago. πŸ™‚Β (The tremors weren’t gone today, but they’ve lessened quite a bit.) And with my thyroid doctor calling today and wanting to accelerate the next step with that issue, I just don’t think I’d be able to do it while essentially fighting against the side effects of the Paxil. The next step with my thyroid stuff is gonna be difficult enough as it is. πŸ€•

More on that when I know more. (Although I’m gonna try to squeeze in a subjectively more positive entry between this one and that one.) But in the mean time, I’m still wondering if sometimes it’s in the doctor’s plans, or at least something that they know can happen – where a medication that is supposed to help makes you feel so awful that when you stop taking it, you actually feel happier and more relieved just to be back to how you were. πŸ‘¨πŸ»β€βš•οΈπŸ€¨ Because boy, that’s been the trend with me, the few times I’ve been prescribed something by a shrink. 😏

  • Just to cover my ass, I’m not saying with any type of certainty that the Paxil definitely caused all of the symptoms that I was experiencing while taking it. It’s possible that all of the things that I considered “side effects” were completely unrelated… this is just my account of how things went while I was taking it.

Me? You Sure About That?

Another big part of my yesterday and the day before was spent trying to help a friend who’s going through some serious shit. 😒 Granted, if you’ve read many of my posts here, you’ll already know that I’ve got plenty of acquaintances, friends, and family that are going through their own personalized flavor of shit at the moment. πŸ˜• Some worse than others, some where I can help, and some where all I can do is just listen, try to understand, and hope and pray for the best. 😟 But man, this person’s state of mind over the past two days… let’s just say that it was very concerning. 😳

(I know this person doesn’t read my blog, nor does anyone that really know this person, so even though I’m sorta putting their business out here… it’s not something that will affect them, and even if they knew, I think they’d actually be okay with me posting about it anonymously like this. They know how I am… how a lot of times, processing my thoughts on the site here is just how I have to do things if I want to attempt to clear my brain of all the clutter…)

I am glad that I have people in my life who feel like I’m the right person to open up to, even when the topic is something as serious as it was… 😬 but I am so not the right person to be able to handle something like that right now. I mean, I did… because I had to… but not without getting completely emotionally drainedΒ (and actually physically ill from the stress of the conversation) and realizing how little I could do about any of their problems. πŸ₯ΊπŸ€’ But despite that, of course I’m glad that they turned to me… even if I was essentially helpless and basically only able to listen and talk things through with them.

The hardest thing about the drawn out text conversation was that as they’d mention this thing, the next thing, the thing after that… I could absolutely understand how the weight of all of those things piling up on them, seemingly all at once, could push them (or anybody, for that matter…) to the point where they’d just be ready to give up. 😒 It’s scary because it’s hard to know if you’re making a difference with what you say, when in the back of your mind, it’s like “Wow, yeah… I get it.”

But at least for now, I feel like our conversations helped. πŸ˜πŸ€·πŸ»β€β™‚οΈ Enough so that I might be able to sleep sometime tonight, and I’m finally able to eat something and keep it down. And I’m not saying that to give anyone any crap. If someone feels like their last resort is reaching out to someone, they do so knowing that it’s not going to be an easy conversation for either side, and that the person they are talking to cares enough about them that they’re going to get pretty messed up by the whole thing as well. πŸ˜• But as stressful as it is to be on the receiving end of that sort of conversation, I just know that I can only pray that someone would be willing to be that person for me if I ever felt like I’d run out of reasons to keep going.

I dunno, I just had to post this. πŸ€” Often times I still feel like people, in general, who know me… they’ve got this mental image of what I’m like, what my days are like, and that it usually falls somewhere between lazy” / “boring” / “uneventful” / “a little stressful” / “what’s he complaining about nowheh 😏 Sometimes I wish that they could spend a couple days in my head… to know how things reallyΒ can be. And as I typed that…Β just now realizing it, that’s probably what all of us want – even the people who feel like everything is crashing down around them… we just want someone to know, to try to understand, to realize that there’s so, so much more going on behind our “game faces” and other people’s assumptions. πŸ™πŸ»

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Abundance Of Caution

We’re down to about a week-and-a-half before my surgery. 😳 And let me tell you, I’ve been dealing with some serious anxiety issues since the beginning of this past week – and I’m finding it hard to shake. πŸ˜₯ I’m right on the edge, always, and the slightest thing will push me over into labored breathing, chest pains, dizziness, etc. 😟 So while it might make me “difficult” in some people’s minds between now and my surgery, I’ve got to do whatever it takes to keep my anxiety levels low, or at least unchanged if I’m still managing to hang on to being okay.

It’s kind of embarrassing, but I honestly need to keep myself in a mental health bubble for the next 10 days. πŸ˜’ I don’t want anything to happen that will risk me not being able to have the surgery when scheduled, and going to the ER for a panic attack with severe chest pains probably wouldn’t help that cause. πŸ˜• Now, I am gonna tell the doctors and surgeon everything that I’ve experienced up to that point, before I go in, because I absolutely want them to know… but yeah, right now is not the time for me to deal with anything that I don’t absolutely need to deal with.

Cassi helped with that over the past couple of days. πŸ€·πŸ»β€β™‚οΈπŸ˜ I went and got her on Thursday after she got off work, because she had two days off in a row and wanted to spend them here with me. ☺ We never figured out how to make our “couple” relationship work, but boy are we good at being each other’s “person” in times of need. And it’s because neither of us need much… just the distraction from our respective lives that’s somehow provided by just being in each other’s presence.

As for what we did over those two days… there’s really not much to talk about. We just plop down in the living room, turn on Grey’s Anatomy on Netflix, and just sit with each other and watch, talk, eat mac and cheese… heh… just “normal” stuff that doesn’t add to the anxiety. The only times it got a little rough for both of us was when one of the episodes would be about thyroids or cancer and the results. Probably shouldn’t have watched those particular episodes, but it’s also good to think about everything realistically, all of the potential outcomes – and letting myself cry a little bit and be scared with her… it was much better than doing that same thing by myself. πŸ™‚

So yeah, the last couple of days were really nice, and really needed… and today, well, I’m calling it “a day off” since I don’t intend to do much (if any) communicating with anyone, and instead focus on things that I just personally need to do before it’s time for my surgery. 😊 The doctors and surgeon haven’t give me any reason to worry about the surgery. None. But you know how it is… you still wanna kinda get things in order, just to give yourself that peace of mind. And doing that sorta thing makes me feel better… makes me feel productive, which is something I always aim for.

Mood is good… I’m hangin’ in there.

All I Have To Give

I’m finally sending up the white flag and giving in to this nerve twinge thing that I’ve got going on. After talking to Dad, Cassi, and Genesee about it, and after suffering with this infuriating pain for the better part of a week, I’ve decided that I better go get it checked out. πŸ€•πŸ˜Ÿ Gen worked at a local doctor’s office when she was still living around here, so she’s possibly got an “in” with a couple different chiropractors. She’s gonna call tomorrow and see if she can get something worked out for me… oh, and I decided to try a chiropractor before the ER for a number of reasons. 🀨 Besides, the ER is still there if it turns out that a back doctor can’t help me.

Rather than sitting around all day and letting my frustration and anger build, I’ve decided to just stay in a comfortable seated position on the floor and get some work done… while watching a bunch of YouTube videos about stuff that gives me the “goody” feels. 😏 (History about Atari, Sega, Samantha Fox, Commodore, Jane Child, Nintendo, Klonoa, etc.) As for the “work” part… just a few minutes ago I printed out the final versions of my will, living will, health care directive, final arrangements, and a durable power of attorney for my finances. πŸ˜―πŸ˜ƒπŸ€“

Heh… no… I don’t expect to be going anywhere anytime soon, but I’ve had all these documents about 90% done for a while now. 🧐 So I just had to check the details and make a few tweaks, and now I just need to seek out a couple of witnesses and visit the notary at my bank. πŸ‘©β€πŸ‘¦πŸ‘¨πŸ»β€βš–οΈ Oh, and there will be no more sleeping in my bed until I get this nerve problem sorted. πŸ™„ My dumb ass… I knew it was a trap… but my bed can be so comfortable, and I wanted a good night of sleep so badly… but nope, constant pressure on that area = a bad idea, so it looks like I’ll be sleeping in the recliner until further notice.

I keep reminding myself how much worse it could be. 😳 I try to put myself in the shoes of the folks who still have to go to their jobs and put in a full eight hours while dealing with this pain. Sure, a TENS device helps mask the pain, but that’s no way to spend your day… working for “the man” while worrying about a) nerve pain randomly zapping you, and b) the TENS unit randomly zapping you. ⚑😣⚑ So, yeah… just trying to make the best of the day.

Sunday Delivery

No real change in the past couple of days, and I’m starting to get restless. πŸ˜’ I’m sitting here, keeping it in neutral, but also wanting to do stuff around the house… anything other than just sitting here. πŸ€• But then I stand up and take a few steps and it knocks that motivation right out of me. So I’m gonna continue to take it easy and just work on things that I can take care of in the immediate area. Sitting on the floor with my back right up against the heater is helpful, and I can pop open the laptop and spread out any paperwork type shit that I want to work on… πŸ€“πŸ’»πŸ“ so I guess that’ll have to do for now.

The mailman stopped here today thoughΒ (Sunday… weird) to bring a couple of goodies that I ordered the other day. They aren’t even goodies for me, but it still made me happy to see them arrive. πŸ˜ƒπŸ“¦πŸ“¬ Now, I’ve been out of circulation for a long time when it comes to most of my friends, but Brantley and Desiree both have a birthday this week – so I wanted to get each of them something so they don’t think that I’ve forgotten about them.

Bri and her family have Indiana roots, so I got him an Indianapolis Colts wallet. 🐎🏈 Now, he’s only four, so he’s not gonna be all Woohoo! when he opens it – but hopefully mama will teach him how to carry important things in it and tell him how “grown up” it will make him. 😊 I also unsealed the packaging, stuck a $20 in the wallet, and sealed it back up again before I wrapped it… so that should be a nice “extra” surprise.