Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Advertisements

Anxious

I’m not sure how I feel about the weekend falling right before New Year’s Eve. 😟 I think it’s actually going to work out better for me this way, since I’ve already got a January’s worth of medical appointments on my mind, but I can’t even really go about changing my insurance information or anything like that until after the first of the year when the new plan kicks in. 🀨 So I’ll have at least a couple of days to start planning who I need to contact and when, and I might even get a couple days after that since some places might be closed on Monday and/or Tuesday. I’ve just got a lot of upcoming shit… I wanna hit the ground running.

I think I’m gonna have Cassi down for the night tomorrow. She can’t stay on New Year’s Eve since she has to be at work early early, but it would still be nice for her to stay – since not only has it been a little while since she has, but also because it might also be a little while until the next chance – depending on how my month goes and how I’m feeling during any given stretch. πŸ˜”

I’ve also decided that I’m going to let her take my Wii and games back up home with her to give to Junior. I can’t remember the last time that I sat down and played any of my games, let alone any of the games on that system that’s almost a decade old now. I could sell it I guess, but I’d hardly get anything for the lot of it… might as well brighten up a kid’s day a bit, eh? πŸ™‚ I’ll probably wait until she’s here to start finding all the bits and bagging it up… with the way I’ve moved stuff about since I last played, it’s hard to say what’s where.

But like I’ve described regarding my friends before… sometimes it’s just nice to have the company, because not only does it provide time to chill and (hopefully) clear the mind of “the now” for a while – something that’s always needed – but it also helps to encourage a little more productivity, since we’re both essentially able to pat each other on the back for our respective jobs well done. 😏

I’m certainly not looking forward to 2019, so a couple more days of “nothing” and some company to distract is probably exactly what I need. So I guess I do know how I’m feeling about it.

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)

“Customer Service”

Might as well continue my bitching into Tuesday.Β πŸ˜’ Had to get up really early for my appointment with Dr Walter… and everything was routine until he asked me if I would be willing to be seen by a new physicians’ assistant that they have added to the office. 😳😟 I think they actually added two other doctors as well… but like he and I were discussing, ever since the big changes that were made about six months ago they’ve been struggling to try and keep up with appointments, paperwork, insurance stuff, medicare stuff, workers comp stuff, etc.

So while I’m glad (for them) to see that they’ve added some auxiliary people that will help evenly distribute the workload, it’ll definitely take a while to get used to the new guy.Β πŸ™ Dr Walter isn’t going anywhere, so if my condition changes he’ll be able to handle it, but that was his point… my condition has been relatively stable for a long time now, so my appointments are really just about prescription refills rather than treatment.Β πŸ€• That’s why he felt like I was a good candidate to go to the new guy – freeing up Dr Walter (someone with a lot of seniority) to choose appointments with patients he still has a chance of repairing. 😏 And to be honest, it could be interesting to bounce ideas off of new guy – since on most days I still struggle to just reach “okay” … so fresh ears and eyes couldΒ help me in the long run.

After that, I didn’t really feel like going to the Social Security office to handle my insurance enrollment issues… so as soon as I got home I was on the phone again. 😐 I’m not sure why it took as long as it did, but just enrolling in the dental part of my Medicare Advantage plan took over a half hour. And for me, someone who gets super twitchy if I have to be on the phone for more than a few minutes, it may as well have been three or four hours. 😣

I ended up calling it a day around 3pm, even though there was still stuff that I couldΒ (should?) have made calls about. Couldn’t get through to the hospital again, despite definitely calling during business hours, and so far they haven’t returned my calls. 😠 That’s fine though… I’m fine just sitting here and waiting until another notice for those bills arrive, and another, and another. I mean, I’ll call again, but if they don’t seem interested in dealing with it, then I’m not gonna be terribly interested either.Β πŸ€·πŸ»β€β™‚οΈ

Strangely, despite twitching out over the obscene amount of time that I spent on the phone today, I’m still feeling enough of a burst of energy that I’m gonna try to work on a few things around the house. I’ve got a couple of friends who have been hinting heavily that they’d like to come over, so I feel kind of obliged to make it look less like the house of a single guy and his white cat that’s in the process of being groomed. 😳🐱 But mostly I’m doing this stuff for myself, because the more organized and calm this place is, the more organized and calm it makes me. 😌

But after these crap days starting the week, I think tomorrow I’ll take at least half of the day off… maybe get my cameras organized and charged up, get the C64 Mini all updated, set-up, and hooked up. I dunno… Monday and Tuesday have me pretty grrr, so I really need to make tomorrow different.

Depth Perception

I’m not feeling too great, so I’m gonna keep this post short. Today was the day that Jim and his brother were going to the county fair, and he also wanted to drop off the Phil Collins concert ticket that he got me – so I just saved him the extra driving and time and met them at the fair. I wasn’t much fun for the Sweet Corn Festival, and I’m not sure I was a whole lot more fun today, but I did make an appearance. Plus I wanted to get some longer “real-world” footage with the 360 camera and take some “portrait mode” iPhone shots to see what Facebook’s new “3D” algorithm could do with them.

(Wow… vertical video shows up bigger than I expected. Click to make it “screen sized” at bottom of vid.)

It’s a neat little trick that they’ve come up with… something that I wish the phone could do natively… but it’s also something that once everyone and their brother learns how to do it, the motion sickness that it may cause will probably be enough that the peanut gallery starts demanding a button to disable this nerdy new trick entirely. But I’m feeling a little too “off” to fuss with that 360 video right now… not sure when I’ll get around to it, but don’t be surprised if it sits on the back burner for a while.

Turning The Corner

Well, the last day of the three-day weekend went by a little too quickly. πŸ˜• Got some stuff done around the house, but just as importantly, got the number of a repair guy to come look at the AC unit outside. Rick and Amy used them when they had central air installed in their house, and they’re based on Bauman Hill – not too far from where we lived when I was a kid. I can’t believe it’s still been near or in the 80s during the first week of October. πŸ˜“ Thought for sure that I’d be fine waiting…

So tomorrow morning I get to call the AC guy, the pharmacy (of course), the endocrinologist’s office, and Ricart. I have three recalls on my car, including the one that says my steering wheel could fall off, so it’s about time to get all of that looked at. 😧 I might also see about having them repair the cracked plastic around the mirror housing on the driver’s side. But yeah, lots of calls.Β Yay. πŸ™ Oh, and I almost forgot the billing office for my WC doctor, since they accidentally billed me for my last appointment. (As if I haven’t been going there on WC’s dime for over a decade… heh… wth)

Talking with Bri yesterday, she asked if I was going to be going to the fair at all this week. Jim G is already coming down on Friday, so I was planning on at least making an appearance there with him… but now it looks like I might be making a sooner-than-expected trip to the fair tomorrow with her. It’s not a done deal, but if she’s not doing anything else I know she wants to go. And between my stuff, her stuff, her mom’s stuff… we’ve got plenty to catch up on. I just hope I’m up for all the walking.

If I do end up going, I’ll probably take the new camera with me. We were talking about just looking at critters and eating shitty food, but I’m sure I can find something worth covertly recording. 😎 A viewer request has asked for a comparison between “as shot / true 360”, “standard HD with focus points / target tracking”, and “little planet” modes. One of these days I’ll even do the “bullet time” mode, even though I think I’m gonna look goofy. I guess there’s also a hyperlapse mode somewhere in there as well… this camera really is amazing compared to my first 360 camera. πŸ˜ƒ

I dunno… just trying to get back to feeling “normal” and not dwelling on medical stuff each day. 😐 I’m feeling better now that I’ve gotten the house straightened up some and got the bills all done up, so now I’ve just gotta keep doing the normal adulting that’s required and just hang out until I know what the next step’s gonna be. πŸ˜” And whatever “big” stuff that I’ve got to do… I’d rather just get to it. πŸ™„ This waiting isn’t doing my brain any favors.

Unique Blog Entry Title

A month or two ago, Dad asked me if I’ve ever had moments where for no real reason, you just get a “content” or unexplained happy feeling that comes over you. πŸ€” At the time I said no, but I think that how I’ve been feeling these past couple of days is what he was talking about. No real reason to be in a good mood, but here it is… for me to not exactly know what to do with it. 😏 Genesee keeps telling me to not dwell on it and just let it be, which is obviously the correct answer. 😁

After all of my appointments this week, I agreed with myself that today should be a day off. I did that with the intention of tricking myself though, because whatever I actually do accomplish by the end of the day – it’s now all just “bonus” stuff. 😊 So that’s been today… staying at home, inside my bubble (so nothing can accidentally crap up my mood), while working on office/organizational type things. πŸ€“ No need for details because I’ve already covered it in recent entries.

My PCP appointment yesterday was a mix of good and bad, which is what I expected. πŸ˜• And rather than doing the referral to the psychiatrist (that I never got around to from the last visit) I told her that I’d compromise and set up some appointments with a therapist. πŸ‘©πŸ»β€πŸ’Ό I already had plenty of stuff that I could have talked about, and that was before learning about my whammy medical condition. But I’ve always liked therapy, the handful of times that I’ve gone… so why not.

If my mood maintains I might go for a walk around Alley or Rising Park tomorrow. I need to stop doing an impersonation of a potato every day… so I’m gonna try to find my misplaced passion for photography/videography and maybe use that as an excuse to leave the house. Oh, and every damn human that I encountered while out doing my runnin’ this week… they’ve been nice, polite, friendly, jokey, etc. 😯 Local society acting so welcoming that I almost felt “normal” being out among them.

Oh, and the hospital finally called today to let me know that they read my letter, and that they’ve talked about it with the people involved. 😳 That’s good enough for me. Acknowledgement. Being heard. I’m hoping that they did take my concerns seriously, but not so seriously that anyone got hollered at or suspended or worse. I ended the call by joking with her, saying that I don’t wanna end upΒ “The Patient with The Scarlet Letter” though, should I ever have to return there for another procedure. πŸ˜…

So between feeling a little accomplished today, and then hopefully doing something distracting over the weekend, I should have a few good days before I have to field calls from the two new doctors’ offices that are supposed to be setting up appointments for me. 😬☎ I really hope that the next steps don’t interfere with the fair and Phil Collins concert. I could live without going to the fair, but I’ll be damned if I’m gonna miss that concert. 😠 Especially since Jim got my ticket as a “no particular reason” gift.

Okay, time to find something good on Netflix and get back to work, but not.