New Rule

I have to stop letting how I feel when I wake up each day be an indicator of how I’m going to feel for the rest of the day. 🀨 Especially since I usually have the luxury of waiting it out… taking my morning meds, giving it a little time, and eventually feeling at least somewhat better. And yeah, I know that this is such a “Yeah, no shit.” thing for normal people, so of course my brain just instinctively resists the idea. πŸ™„

I’m gonna be so bad at getting older and more broken if I don’t keep trying to recognize my flawed ways of thinking and trying to change them. πŸ‘¨πŸ»β€πŸ¦³ The other thing that I have to work on is learning to accept that some of the physical things just aren’t going to get better. What’s that Garth Brooks song? Much Too Young (To Feel This Damn Old) 😏 Heh… I really hate that my blog is like 90% “bitching about things” these days though… like today, it was only four hours of sleep, waking up because I could feel my pulse in my friggin’ jaw, and then (when I got up to go to the bathroom)Β discovering that my back is trying to re-fuck itself.

I swear, there’s an invisible hat in my house somewhere, filled with bits of paper listing all of my various potential ailments or irritants for the day, and some unseen force just grabs three or four of them at random and there ya go. πŸ€•πŸ€’πŸ˜–πŸ˜·πŸ˜ŸπŸ€’πŸ˜“β™Ώ The unending uncertainty of each day is such shit… so waking up depressed or mad is understandable, but I gotta stop letting it stick… especially if that’s the only thing that seems to be triggering it on that particular day.

But it’s been a few hours now since I woke up, my meds are kicking in, things are sucking a bit less, but I’m still gonna take it easy today. I’ve got another appointment tomorrow, plus I need to build up some positive juju because I wanna get back in to see Dad again next week, Bri is gonna be induced and have her baby next week as well – starting at 6 friggin’ AM, then on Saturday Jim’s going to Buckeye Lake to meet up with his dad, brother, and Adam at Pizza Cottage and I’ve also been invited. I’ve missed the last couple of hang-outs with them, so I really wanna try to make it this time. πŸ˜”πŸ€žπŸ»

And that leads me back to the new rule. Well, let’s call it a guideline, since I know that I’m going to fail at it at least as often as I succeed…. but without being able to “shake off” how I feel when I wake up, none of that fun stuff on my potential to-do list will be possible. History has proven that more times than I’d like to admit. πŸ˜’ Trying to adjust my attitude each day will let me hopefully be less flakey to my friends and family, and being less flakey to my friends and family in itself will help keep my mood going in the right direction. I just have to hope that my meds decide to start pulling their weight again soon too.

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Yowza

10pm… groggy… slept all night last night, then took my morning meds and slept all damn day today. I mean, I guess I’m glad – since my body apparently needed about 20 hours of sleep in the past 24 hours… but cripes… these new meds, man.

I’ve got an appointment with my workers comp doctor on Monday, and I think I’m gonna talk to him about switching back to Lyrica. Klonopin does work to control the tremors in my shoulder, but if you aren’t completely awake and active – as soon a you take it it will knock you on your ass and you’ll sleep for eight hours. Hmm… maybe Lyrica in the morning, Klonopin at night. You’d think after a decade of treating my injury we’d have it worked out – but between workers comp fighting against paying for the expensive Lyrica, and me getting insurance that would completely cover the Klonopin…. I dunno, there’s just a variety of decisions to be made I guess.

Still haven’t put my other plans into action yet, but hoping that this weekend will help motivate me. Gotta get my shit together…

Blank Slate

With the way my past few days had gone, and then getting suckered in by that early evening nap yesterday, I sure didn’t expect to get a decent night of sleep last night anyway and then wake up feeling as good as I do. Keep in mind, it’s always “relatively speaking” when I talk about how I feel… but yup, not too tired, aches and pains aren’t too bad, and whatever ick I’ve been slowly fighting off seems like it may finally be gone.

It’s even fairly warm outside, so I’m gonna go ahead and open up the house to blow some stink out, and maybe do a little of this and that around the house as I watch the race. (Even though, honestly, I probably won’t even really be watching it. I’ve lost so much buzz for NASCAR over the past couple of years.)Β The only mandatory thing for the day is getting the mail opened and bills caught up, but I have a feeling that this will be the first day in a while where I’ll be able to be a little more productive than that without it taking some sort of toll on me. πŸ™‚ It feels silly to be kinda excited about that, but that speaks to how crappy I feel most days.

And when I was at Walgreens to pick up Dad’s prints the other day, I also went ahead and grabbed what will be a purpose-specific little notebook so I can continue to get my shit together. Sure, I could do it on my phone, but I’ve just been wanting a notebook where (all in one place) I can start listing out all my doctors, addresses, phone numbers, meds prescribed by each one, etc… and in another part I’ll do the same with my lawn guy, potential other handyman/repair/service/etc type people or companies. Just wanting to inject a little more order into my sometimes aimless life. Even if doing all that is almost just for a placebo effect, it’s gonna make my brain happier if I do this and then have all of that information right there at hand whenever I need it. πŸ€·πŸ»β€β™‚οΈ

Meh… guess I should stop rambling and get to enjoyin’ the day, eh? 😏 It could be a one-off…Β  heh

Whirlwind

The past few days have been rough… starting off with some sort of 36-hour bug that had me down for the count. I can’t remember the last time that I felt that bad and threw up that much. It was awful. For 24 hours I didn’t even leave my bed, unless it was to go to the bathroom, but by yesterday morning I could tell that I was starting to get back to decent. Not completely better, but with as miserable as I was feeling, man did I feel blessed to feel at least as good as I was feeling. (I appreciated Gen keeping me “company” through an always-open message screen… ‘cuz man does it suck to feel alone when you’re that sick.)

But later that evening I got a few messages from my friend Bri, telling me about some concerns she was having regarding her pregnancy… and that she was advised to go to the hospital to have a couple tests done, but she wasn’t able to find anyone that could give her a ride. Her sister and brother-in-law both had the same bug as me, so I totally understood their inability to drive her there and wait – so I ended up being her last resort, and luckily I was just good enough to be able to go in and take her.

Everything ended up being fine but the whole ordeal didn’t wrap up until after 1am, and then I didn’t manage to get to sleep until after 4am. I had made plans with Aunt Sharon to go visit Dad today, but that was before I knew I’d have my late night at the hospital. (I had a bunch of old slide scans of him, Mom, me, and others turned into prints that I definitely at least wanted to drop off – even if I wasn’t feeling good enough to stay long.) So a few hours sleep and I was back up and at ’em. Sort of. Took me forever to get moving, because I could (and can still) tell that I haven’t quite shaken whatever had me laid out.

The visit was really good, and I finally ate some real food, but almost immediately when I got home I sacked out for a three hour nap. Not really what I wanted to do, risking losing a normal sleep schedule, but I didn’t get much say in the matter. I think I’m still good though… and between wearing a mask the whole time at the hospital, and then hopefully being over it by today, hopefully I won’t end up getting anyone else sick. Whatever it is is really going around though, so everyone’s kinda watching out for it.

I don’t know how I didn’t manage to jinx myself today. During that “Ahh!” period of feeling better after a couple days of puking, that’s when I made the plans to go see Dad… so I’m lucky that I didn’t end up overdoing it or setting myself back with the lack of sleep and end up having to cancel. For once my body didn’t betray me… let’s all hope that I can still get some good sleep tonight in a few hours though. Still staying optimistic, cuz any improvement over a couple days ago is worth being happy about. And maybe it was good to get one more day before I try to throw myself back into “getting some things done around here” – albeit slowly. Still trying to get myself back on track from this past month…

Ugh… Why, Cat?

My cat meows, but she doesn’t. Her mouth does the movement, but no sound comes out. If she comes up to me for whatever reason and does one or two of her silent meows, I’ll often joke back at her “What? I can’t hear you… try again.” or some similar bullshit. Of course then I’ll pet her or go check her food and water or try to figure out what she wants…. I mean, I’m not an asshole… but for some reason, when it comes to her stupid little toys, somehow she manages to find her voice.

She likes to pay me back in the mornings sometimes, and this was one of those mornings. I haven’t slept worth a shit for days and days, but her dumb ass decided that this morning around 8a she would start finding all of her random toys to bring down the hallway towards the bedroom, all the while squawking like she was some sort of obnoxious squeeze toy that someone was repeatedly stepping on.

So now I’m wide awake and she’s curled up on the living room floor next to me, sound asleep. Asshole.

Exhausting

Nobody really knows what to say or do for someone when one of their loved ones passes, much the same as nobody knows how their brain is going to react to it. Most of my friends and family are doing exactly what I need – checking in on me now and then with a call or text, but basically leaving me alone so I can work it all out. But I’ve also got a couple people who are constantly wanting me to get out of the house and do something, or who are constantly wanting to come over to visit, etc… and even after explaining how much that’s not what I want or need right now, I dunno, I guess they don’t believe me.

They’re trying to make me feel better, when actually they are making me feel like shit – when nearly every day I have to tell someone no… that I don’t want to go out to spend time with them, or no, I don’t want them here spending time with me. It’s simply a matter of needing time, but I know that in at least some way I’m hurting those people’s feelings, making them feel unneeded or unwanted. So I haven’t even really had a chance to reset and regain my bearings since Genesee left, because almost every day I’m reminded how much I’m not okay yet – by wanting to just be away from people and “stuff” for a while – and knowing that each time I do it, I seem ungrateful or whatever.

And again, I know that I’m probably not reacting like most people do, but when I give an explanation you’d hope that would help, you know? But no, so each day that I’m hoping to feel a little bit better – I actually end up feeling worse. It’s that “being a disappointment” trigger that I’ve developed. People want me to be better already, or do the things that they think will make me better, so I feel shitty when I can’t’ be that person that they’re expecting.

And yeah, that’s definitely more their problem than it is mine, but of course I don’t want anyone I care about to misunderstand and feel like it’s personally about them. I don’t want to have to straight up ignore people’s messages, but if I have to I have to… because right now I’m just spinning my wheels, waiting for the first day where I feel like I get some traction, and some people’s “help” definitely isn’t helping.

I’m gonna try to do tomorrow what I was hoping to do today. It’s Saturday, so it’s a weekend day… which technically shouldn’t mean shit to me, as I don’t really have a schedule I have to keep right now… but when I finally fell asleep at 4a this morning (ugh…) it was with the mindset that I wasn’t going to put any pressure on myself, it was the day after I told a friend how much I needed to just be left alone, so I was hoping to put together just one somewhat-normal day that was unaffected by anything or anyone else. But nope… woke up to a message wanting me to go “do something” today, which meant I started my day disappointing someone.

I think that tomorrow I’ve earned the right to just ignore anyone that isn’t respecting what I need, so hopefully I won’t let it weigh on me too much. It’s like fuck… leave me alone, let me start to feel better, let me get back on track, and everything can be fine. Hell, just starting to make a mental list of things that I’ve put on hold, not to mention spring coming up here around the house… yeah, I need to get my shit together.

Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ