Bad, But Not Bad Bad

Well, “Doctor Visit #1” is out of the way. Going in, I definitely didn’t know what to expect. I know what I feelΒ (and hear) inside my neck, but I wasn’t sure if the MRI was going to accurately reflect that. πŸ˜• And… it did but it didn’t. πŸ€” Comparing it to an MRI from years ago, he could see more damage directly above the fusion area – but not so much that it requires more surgery. So I guess I got my wish… not that I want to hurt, but that I wanted it to show why I hurt, because I do. (Oh, and I actually have C5, C6, and C7 fused. I thought, for some reason, that it was only C5 and C6.)

It gets tricky now though, because my WC claim only allows for very specific parts of my body to be included. And even though any doctor that you’d ask would know that fused areas often end up with increased damage either above or below the fusion point, because that area isn’t specifically allowed by my claimΒ it may be a fight to get anything done in that regard. 😠 So, even though there’s a suggested course of action, if WC won’t concede that the damage is related to an area within my claim, there’s probably gonna be a delay. πŸ™„ Again.

First of all, he said there doesn’t appear to be much stenosis… a word that I’ve learned to fear from my mom’s own experience with it. 😳 But after spending a little more time than usual trying to describe the where/when/why/how of my current pain, he suggested that we try a steroid injection directly into my spinal cord area. 😯 I guess he’d inject some contrast dye first, and then while under some sort of scan – he would carefully puncture the right areas and inject the steroid, while being careful not to puncture the wrong areas. πŸ‘¨πŸ»β€βš•οΈπŸ’‰ A bit unnerving, yes, but I have to do something.

Like I told him… I can’t even explain how much this injury and surgery have stolen from me over the past decade. πŸ˜” Who I am now is not who I was back then, and I don’t hesitate to put a lot of the blame on this disability. But to have my life changed so greatly, yet still be experiencing this kind of pain on a daily basis… frustration doesn’t begin to explain it. πŸ˜‘ But anyway, he’s doing what he can, and he doesn’t like the fight against WC any more than I do, but it’s just how things have to be done. So we’ll see over the next week if it’s allowed or if I’ll have to figure it out some other way.

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Little Things Mean A Lot

It’s a handy thing to remember that when I talk about negative things or depression or whatever, it’s quite likely that what I’m feeling is actually considerably stronger than what I’m putting out for public consumption. However, the same can be said for the positive things. Even though most of the time I’d compare waking up, existing for the day, and then falling asleep to slogging through an endless waist-high bog of mud right now – I absolutely have good moments, and sometimes they’re actually really good moments. They’re just so hard to hang on to anymore.

I’m knocking out several blog entries today, after a week of relative silence, because I’m having one of those good moments. For the reasons that I’ve mentioned in the other posts below, but also because Cassi stayed last night, is probably gonna come back after her errands of the day to stay again, and even though we’ve “been there, done that” with our phase as a couple – we’re still managing to stay close, and we’re still quite important to each other. And I know, people could go down a list of oil/water things about us, but it doesn’t matter… sometimes time spent with each other, even if it’s just silently in the same room, watching the same shows on Netflix that we’ve already watched together multiple times, sometimes that time is more important than someone would ever think.

Even though being alone in my bubble is nice when I’m experiencing a span of less-than-great, sometimes letting one significant other person into the bubble as well can be a good thing. Because what often starts off as a “misery loves company” thing, almost always ends up turning away from the negative and letting us find some happy… at least for the time we’re together.

And it’s so difficult, even for myself, to understand how despite being able to spend a couple days with her around me nearly 24/7, it would be almost impossible for me to go in town and have even a short visit with nearly anyone else that I know, even if inside I really wanted to. I wish I could understand it, because I’d give anything to be able to explain it to the people that I care about, so that they could understand that even though my absence probably (understandably) feels personal – it’s not meant that way at all. It’s just one of the ways I’m damaged. 😞 Meh… I need to stop sweating this, and just accept that it’s an unfortunate situation that is unable to be changed so I need to quit mentally pushing against that wall.

Believe it or not, that’s something that Christina was trying to help me better understand the other day. She had made a post on FB about going through shit, getting back up, dusting yourself off, and continuing on while giving no shits about whatever the initial problem was. And for her to be able to be filled with that type of optimism was inspiring to me, because she just went through her first round of chemotherapy just a couple days ago. 😟 Yet here she was, saying “shit happens” and somehow being able to shake it off enough to continue on with whatever’s next, without letting it weigh her down. And she’s not really a gushy, inspirational-quote-spewing type of person… which made the little exchange even more meaningful to me. And she probably doesn’t even know it.