Overdue For One Of These

Had my monthly WC doctor visit today. Good timing for two reason… first, because it looks like we’re gonna get our first measurable snow tonight (possibility of 2 to 3 inches) and second, because my shoulder was bad this morning. 😣 Most of the time when I have my appointments with him, I’m in my typical / average condition. Not good, but not too bad. But luckily, every now and then, my shoulder has one of its little fits while I’m in the office so he can see in real-time what I deal with a lot of days. Of course I never want to hurt, but it’s like when you take your car to the repair shop and it just won’t “make that noise” for the guy… yeah… my shoulder was making all kinds of “noise” for the doctor today.

It kinda doesn’t matter though… πŸ˜• and that sucks. πŸ˜’ I mean, my treatment is based on my condition, and he already knows that’s part of my condition – so seeing it happening “live” isn’t gonna change anything about it. It’s hard to describe the frustration of just wanting to “feel okay” while also knowing that there really isn’t anything that can make that happen. 😐 (And yeah, I know, I’m far from the only person that feels that way.) I’m gonna have to ask him at my next appointment, how much WC is affecting what he’s able to do for me. Lord knows they look for any reason to fight even paying for the meds that I’m on now, so I could see where he might know that some options would just be “off the table” from the start.

Meh… gotta try to not dwell on that stuff. πŸ™πŸ» But that’s why I’m a little more twitchy than usual once a month. Every time my WC appointment comes around, it just brings up all the frustration that I go through, for treatment that just makes things tolerable, and the fun waiting and wondering if / when my pharmacy will be given approval for each of my meds, etc, only to do it all over again a month later. πŸ€¦πŸ»β€β™‚οΈ It’s just a shitty cycle that it seems I’m gonna be stuck in forever.

But like I told the doctor today… yeah, I might have times where I bitch about this stuff more than usual, but I also know that things could be a lot worse. I see the other people as they walk into the office… or, sometimes, as they’re rolled by in a wheelchair. 😟 I know that while my disability is definitely full of suck, there’s a lot of folks that have it a lot worse than me – so I try to keep my perspective. (But it doesn’t stop me from thinking that there’s got to be something out there that could still help me more.)

So, yeah, I haven’t done one of these rants for a little while… so there it is. πŸ˜πŸ€·πŸ»β€β™‚οΈ Honestly, if you took my doctor appointment off of today’s schedule, everything was about the same as any other day – a random mix of good, bad, frustrating, okay, painful, tolerable, etc. πŸ™„ It just happened that today, the worst of the tremors happened at the most influential time. So despite several paragraphs of complaining, I’m fine… just thinking out loud and getting shit off my chest like usual. πŸ™‚πŸ‘πŸ»Β It’s all good…

Weekend Ramble

Went over to Bri’s for a while the other day. Got to see all the work she has done on the apartment since moving in several months ago. She’s really got the place looking good, with the boys’ room having an Avengers theme – plus she’s getting ready to put up a bunch of glow in the dark stars to go with the blacklight. πŸ˜―πŸ˜ƒ I definitely see her mom’s decorating style in what she’s done… most people’s first apartments don’t start off as nice as she’s got hers so far. It’s nice to see her happy and proud of what she’s been able to accomplish.

Brantley was with his grandma, but he did make a FaceTime call to Bri while I was there. Now, when he was a newborn, baby, then toddler I was around him a lot. But when he went to live with his dad… I’m not sure how long it has been, but he’s in kindergarten now – and last time I had seen him, other than his birthday a few months ago, he still wasn’t even talking yet. But her phone was almost dead at that point, so I went to grab the charger so she didn’t have to get up, and Brantley caught what couldn’t have been more than a second or two of me in the background of the image, but he smiled and said “Hey, what’s Bobby doing there?” 😊

So that was pretty neat, especially since I’m not even used to him carrying on conversations quite yet – and since it’s been so long since I’ve been around him. So whether he remembered me mostly from the birthday party, or from his younger years of being around the house, it’s nice to know that I’ve got a somewhat-permanent spot in his little brain somehow. πŸ™‚ It’ll be nice once they get their custody stuff ironed out a little better, where we can all actually do stuff more regularly again, hopefully.

Like I’ve mentioned plenty of times, my energy is coming back – but I’ve still got a surplus of twitchy when it comes to my social energy. πŸ˜’ That’s not related to my thyroid, but more just how I’ve always been… or at least how I’ve become over the past several years. πŸ€·πŸ»β€β™‚οΈ So even if she gets him a lot more often, and even though I love spending time with them, it still uses up my batteries a heck of a lot faster than if I was just at home by myself. 😏 Hey, what can I say, I’m just an old fart that’s getting more set in his ways… it happens.

So this weekend I’m gonna take it easy for the most part. I’ve got plenty of NASCAR stuff to watch, gonna do a little of this and that like usual, and then Monday I think Cassi and her new possible-boyfriend are gonna come down for a bit. He’s already gotta be in town for something, so I figured between the two of them they can get the heavy-ass old mirror out of my bathroom closet and up to her place to hang in the hallway. It’s the one that was in my living room forever, but I took it down months ago when I thought I was getting close to being ready to have the place painted. Heh… that didn’t happen, but that’s okay – it doesn’t bother me, really, and I’ll get to it at some point – and meanwhile that mirror can live on and be appreciated and actually used.

I like when I can gift something (that has meaning / history) to someone that actually knows the history, understands the relative importance, etc… whether it’s Bri’s bed, which was actually Grandpa’s bed… or like with Genesee, her and Sarah have a nicely decorated home, including a nice curio cabinet where they stick “special” or particularly “pretty” stuff. So about a month ago, before my scan, I actually sent her “The Candy Dish” to be added to the cabinet. It’s funny… to anyone else it’s just a regular glass candy dish with a lid.

But it’s definitely a “Batina thing” because it’s been around since I was little, and the whole “thing” was that you weren’t allowed to take a piece of candy from it unless you could lift and replace the glass lid without it making any clinking noise whatsoever. 😁 Now, once her nieces and nephews are old enough, she’s going to carry on that tradition / game with them… and that makes me happy, versus it just sitting here and not living its full purpose anymore.

So yeah, gonna try to keep my weekend light… a few doctor appointments coming up next week, along with whatever other stuff that I didn’t accomplish this past week, so it actually makes sense to treat the weekend like an actual weekend in this case. Might try to do something fun / hobby related… like, I still have fireworks from a couple of years ago that I’ve wanted to shoot in slow motion – might try to do something like that. Or I might do nothin’…Β  who knows. πŸ˜‹πŸ€·πŸ»β€β™‚οΈ

Method To My Madness

You may or may not have noticed, but over the past many weeks – especially in the time right before and after my scan – I’ve been posting a lot more entries to the blog than usual. Even if not in quantity, I’ve definitely been ramblingΒ more than I typically do. Now that I’m most of the way past that phase, I’m probably gonna end up slowing a little with my postings – not necessarily on purpose, but because as things start to feel like they’re returning to normal I have a feeling I just won’t feel like I need to post quite as much.

There’s no way to explain to someone who hasn’t gone through it, how it feels to sit with an unspecified amount of cancer in your body, jumping through all of the hoops for the tests, which includes gradually wearing down your energy levels to nothing, and then just sitting there, not knowing, waiting, worrying, hoping, etc. 😟 There isn’t an emotion that you don’t experience, ranging from hoping that it’s completely gone – to hoping that if it isn’t gone, that you at least get an expiration date… just to finally get rid of the uncertaintyΒ more than anything else. 😞 I suppose I can only speak for myself, but I don’t see how anyone wouldn’t feel most of the things / ways that I’ve felt. πŸ€·πŸ»β€β™‚οΈ

But my way of dealing with all of that (or distracting myself from all of that) was by posting here. Didn’t necessarily want to talk to anyone about it in person, or in any detail or whatever… but also couldn’t just sit here and stay all bottled up about it. So whether my posts had something to do with my medical stuff or not, it’s been a big reason why I’ve been so active lately. Now, I’m not saying that I’m gonna stop blogging… I mean, rambling is sort of my thing, it’s more that I just wanted to come here and finally explain.

Of course it doesn’t help when in the middle of all that, I get new “neck stuff” (unrelated to cancer) to eventually be concerned about. πŸ˜’ It’s hard to stay positive and try to get back to normal when just as you’re finishing up with one thing, something else fairly big comes along right on the tail of the last thing. And that’s what a lot of my postings have been, whether they seem like it or not… trying to find the silver linings, trying to reassure or even convince myself that I have the ability to take the good for what it is, and work around whatever negatives are left after that. (Bleh… that sounds cheezy.)

I’m still not back to normal, but I’m definitely getting there. I found out, thanks to the festival, that even though my energy levels are a whole lot better – there’s still a wall there to be hit, and I still don’t get a sign when I’m approaching it. I’m assuming that’ll just continue to get better though, because it has so far. I’ve barely been doing anything with friends yet, and still haven’t been on Facebook for over a month now… so I’ve still got a few of those types of hurdles to get over, but it’ll all come in time. πŸ™‚ I’m not setting goals or time-frames or anything like that… just trying to always make sure that I keep moving forward with all of it. And as for the stuff that I’ll have to face in the future, whether it is spine related or cancer related (or something as of yet unforeseen), I can’t let it chew up all my thoughts and actions between now and whenever that will be.

So whether it helps me because I’m just getting stuff out, or because it also helps to reinforce the positive thoughts… whatever it is, it’s just what I’ve needed to do during this more-uncertain time in my life. πŸ€·πŸ»β€β™‚οΈ But as I continue to get better, it should require less energy (or rambling about it) in order to keep the progress going. I made it up and over the most recent hill, so now I can hopefully start to coast a little more if that’s what I decide to do.

Meh… I could obviously continue with more on this topic, but this basically explains what I wanted to be explained. We’re all works in progress, and I’m no different. And if it’s not one of the issues that I’m currently focused on, there’s always gonna be something else that tries to damage my calm and toss some grenades in my life’s direction. 😟 I’m just hoping that I can take the things that I’ve learned from dealing with the current situations and apply them to those other things when needed. πŸ™‚ Maybe get a little better with the “ups and downs” since we all seem to come with an endless supply.

Hopefully Motivational Rambling

Now I just have to decide how much other stuff I want to do this week. πŸ€” The car has been crying about an oil change for a while now, but it’s because I forgot to tell it (through the computer system settings) that I used synthetic oil last time instead of the typical cheap stuff… so I know it’s fine, but it thinks it isn’t. πŸš—βš οΈ Whether it ends up being important at some point or not – I know that it’s keeping track of all that sorta stuff, so I’d rather just get it done so she can stop whining at me. πŸ™„πŸ˜

And while she’s not ready for a new set just yet, I find myself airing up the tires a few times each month, so I’ll probably actually schedule the oil change with Piper’s service center there by the railroad tracks on Maple. That way they can rotate the tires, check ’em over, and hopefully plug anything that can be plugged. I could try to do all that through the local Ford place, which would also allow me to get any trivial recall shit taken care of – but that sounds like a longer process than I think I’m up for. πŸ˜’ I suppose I could get a rental for a night or two if I really wanted. Meh… again… just thinking out loud. πŸ€·πŸ»β€β™‚οΈΒ For whatever reason, it helps.

The other “gotta do” thing on the list, eventually, is getting into Walmart to get my vision checked and glasses updated. πŸ€“Β I’ll be able to keep the Rx shades I’ve already got for driving 😎 because I don’t think my vision has changed that much, but when it comes to my normal glasses – pretty sure it’s gonna end up being bifocals this time. 😟 I’ve actually been wearing older “backup” glasses since the end of last year, so it’s gonna be like having new eyes whenever I get around to getting this done. Still glad that I did my LASIK all those years ago, it’s just a shame that it’s not a “fix it and forget it” thing that lasts forever. But I’m not gonna push my luck and go under the laser for what would be the third time in total for each eye, because even if they correctly and safely fixed my distance vision again, I’d still have to wear reading glasses.

Of course the garage door still needs attention, but that’ll be based more on Rick’s schedule once I give him the go ahead to come check it out and start, and then after that he’ll be able to start on the shower. 😬 That’s the first thing on my “to do” list that starts making me a little twitchy. He knows what he’s doing, so it’s not that… it’s just the “fuss” of having people here and the bathroom sorta torn up in the process – along with that same type of worry that you also have with car repairs. 🀨 Where you go in for a rattle or whatever, they find the rattle, but then they also find “this, that, and the other” which also could or should be worked on. He’ll be able to handle whatever, it’s just that cringe of not knowing exactly what’s going on behind the tile and hoping there’s not bigger, unknown problems ahead. 😐🀞🏻

I suppose me thinking and talking about this stuff now… it’s all because of how my scan results turned out. Like, in a good way. Before I got the results, there was this subconscious feeling of “Why bother doing (whatever) if…” that I was probably having. Getting mostly positive (good) results from the scan, rather than getting something worse or even an expiration date… it’s allowed my brain to at least start thinking about shit that needs to be done, even if it still takes me a while to actually do it. πŸ™‚πŸ€·πŸ»β€β™‚οΈ

Batina/Bu Tae-nam/λΆ€νƒœλ‚¨/ε―Œζ€ η”·

Okay, so when someone says or writes their full name in Korean, their family (last) name is the first part, followed by their given names. Names are almost always three syllables long, and many, many families seem to share the same surname because when people were permitted to have and use a last name, many of them selected a name that is associated with a former leader or emperor or whatever… to distance themselves from what they felt would be seen as a family name belonging to a commoner or slave. That’s why you have so many Kims, Parks, Gangs, Kwans, etc.

So, the last name is typically one syllable and the given names have two. There’s no direct translation for “Robert” in Korean, so I’m going a different route and am attempting to use my last name of “Batina” as my full Korean name, which conveniently has three syllables already. So I chose a legitimate family name of “Bu”, and then a given name of Taenam (or Tae-nam) because those are also legitimate Korean given names that sound the most like my last name when spoken together phonetically. Batina. Bu Tae-nam,

Granted, not perfect, but there are just certain sounds that aren’t in the Korean language that would allow something to have an exact phonetic translation. Plus, like I said, Bu is an actual family name – although not terribly common – and the given name of Tae is a masculine name, although I don’t think it typically has “nam” (which often means “south”) following it. You’d type all three Hangul characters together for the Hangul Korean version: λΆ€νƒœλ‚¨ … but if you put a space after the second character, the American translation would be “booty” of all things.

So, that’s Bu Tae-nam in Hangul: λΆ€νƒœλ‚¨. However, it’s not that simple. Korean names are also written in Hanja Korean, which use Chinese characters recognized by the SK government, to give meaning to each syllable. So, in Hanja I’ve chosen these three characters, which are still pronounced very close to “boo-tay-nam” if you wanted to speak the Hanja, But I believe people pronounce their names from the Hangul and only use the Hanja when they write it or have a name seal produced. But my Hanja characters are: ε―Œζ€ η”· which allegedly mean “Rich Man” when used together. But for example, the name Tae… there are about 20 different recognized Chinese symbols that you can choose from, and each one gives the “Tae” name a different meaning. I chose my symbols not because I’m bragging or think that I’m rich, but because they form the least ridiculous Hanja/Hangul translation that sounds phonetically similar to Batina.

Interestingly enough, it was coming across a random Japanese video about “name seals” that got me interested in choosing a Korean name. It seems that across many parts of Asia, name seals are actually recorded with the government and used in place of an actual signature. So when you have your name seal created, you can have it done in Hangul or Hanja, and the more stylized the design the better – as it can be made to look completely different than someone else’s with the same or very similar name. And having a larger than normal affinity for stationary and office product type stuff, it just all came together to make me curious enough to look into it as far as I did.

But like I said… this is only what I think is the proper way for choosing not only a Korean name, but as for how to write it in either Hangul or choose the Hanja characters for the Hangul which give each name its on meaning. I’m absolutely sure there’s plenty I’m just skipping past here, but that’s the basic idea of it. But in order to feel fully confident in choosing and using Bu Tae-nam as my Korean name, I’d really want to run it past a few authentic Korean citizens to see what they’re reaction to it would be. I wouldn’t want to have a bizarre Korean name, the same way we’d react if a Korean person moved here and picked out Johnny Whizbang McPuffinstuff as their name – just because there was a similarity somewhere along the way when it came to the phonetics.

So yeah, for now I’m still gonna say that I’m tentatively gonna call myself λΆ€νƒœλ‚¨.

(Sorry, no emojis and little bold or italics or whatever – took all my brain reserves for tonight just to punch up this explanation and process as I’m familiar with it. And yeah, I’m definitely going to get a name seal at some point… obviously not registered anywhere… because it also reminds me of the sealing wax stamps that Mom used to have, which featured our family initials or monogram. It’s just something neat and unusual. Maybe more on this later… maybe not… carry on.)

Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… 😏 but cripes, that little bit of work messed me up somethin’ fierce. πŸ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. πŸ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. πŸ™πŸ»πŸ€·πŸ»β€β™‚οΈ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed 😳 yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. πŸ§Ÿβ€β™‚οΈπŸ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. πŸ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. πŸ€·πŸ»β€β™‚οΈ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. πŸ™„ Sitting here, happy that I had enough mental/physical oomph to write this. πŸ˜πŸ€·πŸ»β€β™‚οΈ

Rambling Elaboration

Yesterday’s entry was admittedly pretty bleak… but not all of yesterday was completely full of suck, so I figured I should come back in here and sprinkle a little bit of that “good” around – even though I know it won’t really do much to balance out the tone of the blog lately or overall. πŸ€·πŸ»β€β™‚οΈπŸ˜•

Knowing that soon I’ll be runnin’ completely without my thyroid meds, there were a few things inside and outside of the house that I wanted to get to… just in case the next several weeks are as “challenging” as I’m expecting them to be. 😟 The inside stuff was whatever… but the outside stuff, that’s the kind of stuff that kicks my ass even when I’m at my relative best these days. It also didn’t help that it was still 87 degrees in the late afternoon, when I finally went outside, since “waiting for the heat to die down” wasn’t really gonna work unless I intended to do my yard work in the dark.

When they took out my line of bushes, they plucked about a 1/3 of them, and the remaining 2/3 were cut off at the base – as close to the ground as possible. I told Jason that I had plenty of poison spray when they were doing it, and he suggested that after they were done I should probably go out and hit all the remaining “nubs” in the ground, to discourage them from trying to make a comeback – and to hopefully make them brittle enough that anything still above ground will eventually just start breaking off. So, that was mini-project number one, and luckily I didn’t need my cane nor did I have any neighbors eyeballing me as I worked.

I still had juice left in the sprayer when I was done, so I started hitting weeds along the fence, under a bunch of the evergreen bushes, all over the empty-but-weedy spot (where a big bush used to be) beside the garage, and then all around the AC unit just to make sure nothing considers growing up around it. I was sweating balls at this point. Actually, I was sweating balls within the first 10 minutes of being outside… but yeah, it was time for a break in the cool air inside.

It felt nice, but when it became obvious that I wasn’t gonna stop sweating, I sucked it up and went back outside. I’ve got a couple different sprays for spiders, wasps, bees, and ants – so I treated all the areas that needed it. 😷 Front porch got most of the spider attention, back porch had the bees, and then I sprayed what amounts to an “ant barrier” at the bottom and lowers sides of all of the doors that go outside or into the garage. (They’re a fan of Maven’s messy eating habits, usually leaving bits of cat food on the floor for them to sniff out and come after.)Β Bugs don’t really count as “critters” I suppose, but I still hate to be an exterminator. πŸ˜• But when they won’t stay outside, or try to take over certain areas when they do, they’ve gotta go.

Don’t you love how I can take “Sprayed some poison on the bush stumps and weeds, then killed some bugs” and turn it into a multi-paragraph blog entry? This time it’s intended… to make it sound as time-consuming and exhausting as it actually was. πŸ˜“ I ended up sweating so much that the mosquito repellent finally quit working, but I had done everything that I wanted – so it was time for a shower, and to stop friggin’ sweating.

Throughout the process, I learned that I have another mutant ability. πŸ™„ I can work outside for a little less than an hour, come inside into the cold air conditioning, take a shower to get all the stink, grass, and stray poison mist off of me… but I can continue sweating for a full two hours after everything was done and I should have been good. πŸ€¦πŸ»β€β™‚οΈ I’m guessing it’s a thyroid thing that I just hadn’t discovered yet, since I’m usually too gimpy to work that much outside. But yeah… cool shower, cold air, and two more hours of sitting here with a towel to keep drying myself off.

It’s fine though… because as much as this all might sound like bitching, it felt good to accomplish so many things when there were so many other things trying to mentally or physically discourage me from doing so. Until I started to not be able to do a lot of things, I didn’t realize how important that it could be to be able to do something with purpose. So even though this stuff is probably most people’s typical weekend, it’s my little thing to grab hold of and feel good about. πŸ€·πŸ»β€β™‚οΈ

And, obviously, I have to take what I get when it comes to stuff like that these days.